Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Anyone Around Albany Ny?
0

36 posts in this topic

Hi,

I'm not celiac, but my fiance was recently diagnosed (only a couple of weeks after our official wedding cake tasting, how cruel is that???). We live in the Albany area.

I've been doing the majority of my shopping at the Latham Farms Hannaford, the Latham Price Chopper and the Green Grocer in Clifton Park. We also made a trip to Brunswick to Sherry Lynn's Gluten Free Bakery and Cafe on a day off, which was very nice.

I was encouraged to see the Times Union has a gluten-free blog: http://blogs.timesunion.com/glutenfree/ It details many of the restaurants and stores in the area that offer gluten-free selections, as well as gluten free recipes.

Up until three weeks ago we ate almost nothing but gluten - admittedly we probably had way too much fast food, pizza, ate out almost every week, and partook quite a bit of Bella Napoli. Since then, we've made the house relatively gluten free (everything except for my Lean Cuisines), bought/registered for new appliances like a new toaster, etc. This diet is a very big adjustment for both of us. :(

If anyone has any suggestions of other grocery stores or restaurants in the Albany area, I'd love to hear them, thanks in advance!

0

Share this post


Link to post
Share on other sites


i currently live in the Saratoga/Glens Falls area but am moving to Binghamton at the end of the month. My blood tests just came back positive and i'm awaiting scheduling for the biopsy.

i have a couple of questions...

thecookingnerd:

do you have a particular doctor in Binghamton that you see? I'm looking for both a primary care doctor and a GI or someone who specializes in or at least has some knowledge of Celiac.

i stopped gluten for 8 days while waiting for my blood work to come back - i just got results last night and was told i have to start again for the biopsy. the doctor didn't specify how much i would have began to heal in 8 days and just said to start eating gluten again so i'm wondering if i have to wait a certain time before i have the biopsy so as not to skew the results? I am really pushing to get it done before the end of the month so it will be covered under my current insurance but i don't want to do it if the results may not be accurate.

I'm pretty excited to go to Wegmans and see all the gluten-free foods they have!

0

Share this post


Link to post
Share on other sites
Albany area here. Not diagnosed celiac as of right now, but I have a GI appt. on December 17 where maybe I can figure something out.

Do all you Albany people go to Albany GI for gastroenterologists?

I'm seeing Dr. Ben, I believe.

I noticed a small gluten free section in the natural foods section of price chopper in slingerlands. Not much, but i don't know how much would be in a good size section.

Dr Richard Eglow is in Troy, Ny and he is great!

0

Share this post


Link to post
Share on other sites
Hi I live in the Albany, Area, if I can be of any help, please don't hesitate to contact me.

Hi, I'm new to the Albany area and still trying to find a GI Doc that is very knowledgeable about Celiac. Can you recommend any?

0

Share this post


Link to post
Share on other sites
Check out support groups online for the area. I'm pretty sure there are 2 or 3. I've looked because my family is in the Lake George area, and that was the closest I could find anything. My sister has had to take my neice to Albany for some of the testing. Her doctors are really messing around. 2 Positive blood tests. and they keep saying that they doubt she has Celiac, and they've been delaying a biopsy. What does it take? Meanwhile she's deathly ill, pale and growing tinier by the day.

Anyway.....I know there are a number of people not so far from you. After my diagnosis, my family members keep "running into" Celiace everywhere, and until last Nov. had never heard of it. We're out there.....just not wearing any banners and flags!

The blood tests can be "inconclusive" because the test looks for antibodies and the antibody level is strictly related to gluten consumption for that date. If I go a week without eating gluten my antibodies drop like a hot rock. There is no bacteria or virus to check so an elevated antibody level can only point your doctor towards Celiac.

However, the only true test is the Endoscopy. It takes much longer for damage to the digestive system to repair itself. EGD will show a doctor if those antibodies have flattened the villi in the Digestive System - a sure sign of Celiac. Tell your sister to demand an EGD and threaten to find a new doctor. Its terrible that in this day and age, we have to be our own advocates and push the doctors in the right direction.

0

Share this post


Link to post
Share on other sites
Anyone live in the Albany area? I have not met another celiac here and sometime I feel so alone.

Hi there! I'm not in Albany but fairly close. I'm in Syracuse and haven't met anyone with our problem either.

0

Share this post


Link to post
Share on other sites

i live in albany, ny and have been attempting to go gluten free for just over a week, though i've definitely made mistakes. i've had fatigue/depression/weight issues for about 10 years that began around the same time as a digestion issue which seemed to resolve itself. the past 4 years have been especially bad and a couple of times since late last year i've been physically ill with headache, sore throat, and body aches for no apparent reason other than maybe stress. the first time i was sick, i had bloodwork done. including testing for lyme disease, and the doctor said everything was normal. after the most recent illness, i went to a naturopathic doctor who had me do more bloodwork (still waiting on results) and suggested i try going off gluten for a month.

in some ways it isn't as difficult as i expected since there are a lot of products available that are labeled gluten free and some restaurants are knowledgeable and accommodating or even have gluten free menus. on the other hand, reading ingredient labels can also be overwhelming and some people have no idea what i'm talking about and don't seem to want to help.

i haven't felt like myself for a long time and am optimistic about something new that could help me feel better. i'm going to do the best i can this month and see if it makes a difference. what i'm trying to figure out is if it's just gluten sensitivity rather than celiac, do i still have to be as worried about contamination? i bought 'living gluten-free for dummies' to try to get a handle on all of this. i'd appreciate guidance from those who have been dealing with this and it would be great to hear from albany-area people with local advice.

0

Share this post


Link to post
Share on other sites

Southern Vermont about an hour and a half from Albany....(Not me...at least I don't think so...my almost 1 year old)

Hi - i'm in Southern Vermont too! Near Bennington! Its hard to find restuarants around here that have options but Hannaford has a lot of good choices.

0

Share this post


Link to post
Share on other sites

Newburgh NY, luckily I have a Hannafords and a pretty good health food store (natures Pantry) with a nice sized gluten-free section.

0

Share this post


Link to post
Share on other sites

Rochester, NY not to far from Albany.. about 4 hours. My boyfriend is from Albany and we go up there alot. Dont hesitate to ask if you need anything!

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      102,702
    • Total Posts
      914,492
  • Topics

  • Posts

    • Do this, scientists! (experiment to confirm/deny the existence of "leaky gut")
      Good idea! Add also the lactulose - mannitol test, to confirm they are/are not experiencing leakyness in the gut, then correlate the results with the symptoms (obviously digestive symptoms would have to be excluded, because diarrhea and bloating will probably be present anyway, due to having damaged intestines). You see, ironically it would be "gluten-free challenge", because possibly systemic symptoms ("leaky gut syndrome")  and GI symptoms start after going IV fluids -> gluten-free (instead of "gluten challenge", which would be gluten-free -> gluten).
             
    • "Pre-Celiac" & scared
      PPIs should not affect your digestion of gluten one way or another. Many folks with celiac disease may have villous damage without obvious symptoms. Others eventually get symptoms after the disease is "activated," but exactly how or why this happens is not yet clearly understood. Biopsies are generally done after someone has symptoms, and likely already has villous damage, so I would imagine your doctor must be necessarily a bit vague about whether you might have "inactive" or "active" celiac disease. The gold standard is to get a biopsy while still eating gluten, and then another after being on a gluten-free diet for some time, to assess whether you heal without gluten in your system. Positive genes and blood work, AND villous atrophy would seem like fairly strong evidence, but that's up to your doctor to determine. If you feel comfortable sharing your test results on the forum, some folks here can give you their two cents. But listen to your doctor! Glutenease might help your digestion, but if you have an autoimmune reaction to gluten, it won't prevent the possible damage that comes with gluten mistakes. Research on l-glutamine is somewhat supportive for healing, but it's not a panacea.  You will read about various levels of sensitivity and prudence here and elsewhere. Eventually you'll come up with a plan that you consider is "safe," but hopefully will still let you get out in the world. Read up on gluten-free groceries and how to deal with restaurants safely, and you ought to be able to find a happy "middle-path" between prudence and paranoia. I'm one of the fairly sensitive/paranoid types at this point in my life. I personally don't worry too much about possibly breathing in gluten, but on the other hand I wouldn't eat anything that's been out where flour is in the air. Nor would I use a shared toaster or fryer. Again, it's important that you form a lifestyle approach that is informed about the risks but still a good life! Most importantly, work with your medical team to determine if you in fact have celiac disease.
    • Second Panel has come back...advice?
      We are utilizing the "our kitchen is completely gluten free" and DEFINITELY checking every label every time methods. SO glad to hear my DGP should drop!!!! 
    • Celiac in 10 month old?
      Without reference ranges for the IgA there's no telling wether the IgA or tTG are anything worth while.  I think your best bet is to wait on a call from them for interpretation. I know that's hard but really, they are the ones with all the necessary information.  
    • Celiac in 10 month old?
      Hello all, new to this site!  My 10 month old son was referred to an endocrinologist as he has consistently failed to chart in both weight and height.  After discussing his symptoms with the endocrinologist (fussiness after eating, diarrhea) she suggested it could be Celiac disease.  She ordered several blood tests to which I have received results that I am not quite sure how to interpret (and of course I haven't heard back and she hasn't returned my messages).  The following abnormal test results I received: Immunoglobulin A:  Less than 8 mg/dl IgA TTG Antibody:  Negative (I've read this can be a false negative if he is IgA deficient?) SGOT/AST:  93 U/L (standard 25-55) SGPT/AST:  49 U/L (standard 13-45) IgF-1/Somatomedin-C:  Less than 25 ng/ml (standard for age range 16 days to 1 year is 55-327) Any insight into what these results mean would be extremely helpful and appreciated!  Also, my son has been exclusively breastfed; if he does, in fact, have Celiac disease is gluten transferred through breast milk? 
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

    There are no registered users currently online

  • Member Statistics

    • Total Members
      59,739
    • Most Online
      1,763

    Newest Member
    larnotlars
    Joined