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Anyone Around Albany Ny?


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35 replies to this topic

#31 LkGrgGrrl

 
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Posted 29 June 2009 - 08:26 AM

Check out support groups online for the area. I'm pretty sure there are 2 or 3. I've looked because my family is in the Lake George area, and that was the closest I could find anything. My sister has had to take my neice to Albany for some of the testing. Her doctors are really messing around. 2 Positive blood tests. and they keep saying that they doubt she has Celiac, and they've been delaying a biopsy. What does it take? Meanwhile she's deathly ill, pale and growing tinier by the day.
Anyway.....I know there are a number of people not so far from you. After my diagnosis, my family members keep "running into" Celiace everywhere, and until last Nov. had never heard of it. We're out there.....just not wearing any banners and flags!


The blood tests can be "inconclusive" because the test looks for antibodies and the antibody level is strictly related to gluten consumption for that date. If I go a week without eating gluten my antibodies drop like a hot rock. There is no bacteria or virus to check so an elevated antibody level can only point your doctor towards Celiac.

However, the only true test is the Endoscopy. It takes much longer for damage to the digestive system to repair itself. EGD will show a doctor if those antibodies have flattened the villi in the Digestive System - a sure sign of Celiac. Tell your sister to demand an EGD and threaten to find a new doctor. Its terrible that in this day and age, we have to be our own advocates and push the doctors in the right direction.
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#32 sweetforyounow

 
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Posted 19 July 2009 - 04:22 PM

Anyone live in the Albany area? I have not met another celiac here and sometime I feel so alone.



Hi there! I'm not in Albany but fairly close. I'm in Syracuse and haven't met anyone with our problem either.
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#33 gfny66

 
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Posted 03 August 2009 - 07:02 AM

i live in albany, ny and have been attempting to go gluten free for just over a week, though i've definitely made mistakes. i've had fatigue/depression/weight issues for about 10 years that began around the same time as a digestion issue which seemed to resolve itself. the past 4 years have been especially bad and a couple of times since late last year i've been physically ill with headache, sore throat, and body aches for no apparent reason other than maybe stress. the first time i was sick, i had bloodwork done. including testing for lyme disease, and the doctor said everything was normal. after the most recent illness, i went to a naturopathic doctor who had me do more bloodwork (still waiting on results) and suggested i try going off gluten for a month.

in some ways it isn't as difficult as i expected since there are a lot of products available that are labeled gluten free and some restaurants are knowledgeable and accommodating or even have gluten free menus. on the other hand, reading ingredient labels can also be overwhelming and some people have no idea what i'm talking about and don't seem to want to help.

i haven't felt like myself for a long time and am optimistic about something new that could help me feel better. i'm going to do the best i can this month and see if it makes a difference. what i'm trying to figure out is if it's just gluten sensitivity rather than celiac, do i still have to be as worried about contamination? i bought 'living gluten-free for dummies' to try to get a handle on all of this. i'd appreciate guidance from those who have been dealing with this and it would be great to hear from albany-area people with local advice.
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#34 Eliza82

 
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Posted 12 May 2010 - 03:31 PM

Southern Vermont about an hour and a half from Albany....(Not me...at least I don't think so...my almost 1 year old)



Hi - i'm in Southern Vermont too! Near Bennington! Its hard to find restuarants around here that have options but Hannaford has a lot of good choices.
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Gluten-free 4/25/10 (as a test run)

When you wholeheartedly adopt a "with all your heart" attitude and go out with the positive principle, you can do incredible things. -Norman Vincent Peale

#35 Rizz

 
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Posted 28 June 2010 - 06:53 PM

Newburgh NY, luckily I have a Hannafords and a pretty good health food store (natures Pantry) with a nice sized gluten-free section.
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#36 Jen13

 
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Posted 23 July 2010 - 07:09 PM

Rochester, NY not to far from Albany.. about 4 hours. My boyfriend is from Albany and we go up there alot. Dont hesitate to ask if you need anything!
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