Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Cinnamon Buns, Pizza, Perogies


Jessica04

Recommended Posts

Jessica04 Newbie

Hi there im new..

I just want to start off by saying im 25 and Im always feeling sick :( .. Im overweight but i havent lost my baby weight which i had my baby in 2004.. growng up I tried not to eat to much cause i was always sick with stomac ackes.. its been worse now that I had her I talked to my doctor about this problem but he told me it was my hormones and to eat more flax seed... when I eat certin foods i start to bloat and im just sick feeling.. My Husban and I have been in lots of fights about this cause im always sick even my daughter now 3 asks me if im sick.. and now she starting to say shes sick which i hope she isnt.. but she is bloated and i make her go to the bathroom .. also I carry with me imodium and basicly im always taking them.. Im embarrased.. I hate going anywhere with people Im starting to feel depressed.. could this be Celiac?

cause this makes me feel panicie can this cause an anxiety disorder too?

I been searching online for anything to help me feel better and came across this site.. I asked my doctor to test me.. which he did last thursday im not sure how long it takes but im hopeing to find out the problem with me.. could this be it? and if it isnt dose anyone have anyother ideas what it might be? How long did it take for u guys to get ur test back?

Thanks for reading Jessica

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



gfgypsyqueen Enthusiast

Celiacs can "start" or flare up after a major trama and child birth or surgery qualify. My Celiacs started after my first child was born too. It took 2 1/2 to 3 years of active health problems to finally get a diagnosis. Many people have 10 plus years of problems before they ever hear about celiacs. Many of us have stories of years of stomach problems, bowel problems, poor health overall, etc. Sound you sound like the rest of us.

Sometimes the post partum depression can hang around for a while too. You might need to ask the doctor about taking something to get past this depression that is starting.

As for celiacs, the test should be back in a couple of weeks. The people on this site know a lot of medical info. You will want to ask the doctor exactly what blood tests were run and what the results were. Another helpful test is for malnutrition. Even though you are eating well, if your body is not absorbing the nutrients you will be malurished which is another sign of celiacs.

If possible, get a gene test done. That is a quick way to know if your blood work is inconclusive whether or not you even have the gene for the disease. The blood work is often inconclusive. I biopsy of your intestines is the way most of us get diagnosed. DO NOT STOP EATING GLUTEN UNTIL AFTER YOU HAVE BEEN TESTED AND BIOPSIED.

If it is possible, find a good health food store and dietician. Start taking higher quality vitamins. The health food store workers or dietician can help you figure out which ones you need. Taking better vitamins daily and replenishing the nutrients your body is not absorbing from food will help you to start getting healthy. I was sick constantly before I saw a dietician and started taking better vitamins. Now I only get sick once in a while.

I hope some of this info helps. Ask more questions and start reading the posts here, you will learn a lot about you body and this disease. (In my opinion, if you have to be sick with something, celiacs would be my choice. Why? No daily medicine with side effects to manage the disease. Follow the diet and you will feel great!)

FYI: If you do have Celiacs, you will need to have the baby checked for it too. This disease runs in families :(

Link to comment
Share on other sites
Jessica04 Newbie
Celiacs can "start" or flare up after a major trama and child birth or surgery qualify. My Celiacs started after my first child was born too. It took 2 1/2 to 3 years of active health problems to finally get a diagnosis. Many people have 10 plus years of problems before they ever hear about celiacs. Many of us have stories of years of stomach problems, bowel problems, poor health overall, etc. Sound you sound like the rest of us.

Sometimes the post partum depression can hang around for a while too. You might need to ask the doctor about taking something to get past this depression that is starting.

As for celiacs, the test should be back in a couple of weeks. The people on this site know a lot of medical info. You will want to ask the doctor exactly what blood tests were run and what the results were. Another helpful test is for malnutrition. Even though you are eating well, if your body is not absorbing the nutrients you will be malurished which is another sign of celiacs.

If possible, get a gene test done. That is a quick way to know if your blood work is inconclusive whether or not you even have the gene for the disease. The blood work is often inconclusive. I biopsy of your intestines is the way most of us get diagnosed. DO NOT STOP EATING GLUTEN UNTIL AFTER YOU HAVE BEEN TESTED AND BIOPSIED.

If it is possible, find a good health food store and dietician. Start taking higher quality vitamins. The health food store workers or dietician can help you figure out which ones you need. Taking better vitamins daily and replenishing the nutrients your body is not absorbing from food will help you to start getting healthy. I was sick constantly before I saw a dietician and started taking better vitamins. Now I only get sick once in a while.

I hope some of this info helps. Ask more questions and start reading the posts here, you will learn a lot about you body and this disease. (In my opinion, if you have to be sick with something, celiacs would be my choice. Why? No daily medicine with side effects to manage the disease. Follow the diet and you will feel great!)

FYI: If you do have Celiacs, you will need to have the baby checked for it too. This disease runs in families :(

To be honest I dont think I have depression.. Im just upset on how I feel about not knowing whats wrong with me.. and asking the doctor and him telling me its hormones and I know its not that..

It will be 2 weeks tomorrow since I had my blood test.. how much longer dose it take?

Now that I been tested couldnt I go gluten free now I mean I would like to stop the damage if I am celiac and if i am would there already be damage? I was talking to my mom about this and she has stomac problems too not as bad as me but she always thought it was dairy.. so shes been dairy free for years but she still feels sick.. Ok im rambling.. but when should I expect my results back?

Thanks for reading

Jessica

Link to comment
Share on other sites
ravenwoodglass Mentor
To be honest I dont think I have depression.. Im just upset on how I feel about not knowing whats wrong with me.. and asking the doctor and him telling me its hormones and I know its not that..

It will be 2 weeks tomorrow since I had my blood test.. how much longer dose it take?

Now that I been tested couldnt I go gluten free now I mean I would like to stop the damage if I am celiac and if i am would there already be damage? I was talking to my mom about this and she has stomac problems too not as bad as me but she always thought it was dairy.. so shes been dairy free for years but she still feels sick.. Ok im rambling.. but when should I expect my results back?

Thanks for reading

Jessica

Your results should be there soon but DO NOT rely on just those tests. The answer to whether you can start the diet depends on whether you are going to agree to an endoscopy if they are. If you are going to go with the endo you need to wait to be gluten-free, however there are risks of false negatives on the endo so again do not just go by that. If you do not plan on doing the endo then you can go ahead and give the diet a try for a couple of months, that is the true test anyway.

Link to comment
Share on other sites
zagadka Newbie

oh man, pierogies...yum. potatoey, cheesey filled lumps of goodness. and kolaczki...mmmmmmmmmm. apricot kolaczki...

sometimes i like to day dream about food...

well, jessica- like others have mentioned...don't rely on the tests alone! many people go this route, maybe for closure or for justification, which is fine. personally, i didn't go that route because i feel that modern medicine and many doctors treat symptoms- not the cause or root of the symptom.

listen to your body!! chances are that if you think you're having a problem with gluten, you are. i don't think you stumbled upon this place for no good reason!

i hope you start feeling better.

Link to comment
Share on other sites
Jessica04 Newbie

Well Igot my results back from the doctor he says its not that :unsure: .. so dose anyone know what else it could be? :(

Jessica

Link to comment
Share on other sites
gfgypsyqueen Enthusiast

You might want to start a new post and ask for help interpretting the results. It does make a difference on exactly what blood work was done. You may not have had the right test or your resutls may have been a false negative. A lot of people on this site are very good at interpreting results.

Otherwise, there is no harm in doing the gluten-free diet and see how you feel. Many people can't get an official diagnosis and go gluten-free because the diet makes them feel better. Another thing to look at is your hormone levels - estrogene and testosterone. Have your thyroid checked - I think there are three specific things that should be checked. See if you can get the doctor to do more blood work.

Think about seeing an herbalist/kinesiologists. They can help get you on some suplements and feeling better.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,088
    • Most Online (within 30 mins)
      7,748

    Aventine
    Newest Member
    Aventine
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Anmol
      Thanks this is helpful. Couple of follow -ups- that critical point till it stays silent is age dependent or dependent on continuing to eat gluten. In other words if she is on gluten-free diet can she stay on silent celiac disease forever?    what are the most cost effective yet efficient test to track the inflammation/antibodies and see if gluten-free is working . 
    • trents
      Welcome to the community forum, @Anmol! There are a number of blood antibody tests that can be administered when diagnosing celiac disease and it is normal that not all of them will be positive. Three out of four that were run for you were positive. It looks pretty conclusive that you have celiac disease. Many physicians will only run the tTG-IGA test so I applaud your doctor for being so thorough. Note, the Immunoglobulin A is not a test for celiac disease per se but a measure of total IGA antibody levels in your blood. If this number is low it can cause false negatives in the individual IGA-based celiac antibody tests. There are many celiacs who are asymptomatic when consuming gluten, at least until damage to the villous lining of the small bowel progresses to a certain critical point. I was one of them. We call them "silent" celiacs".  Unfortunately, being asymptomatic does not equate to no damage being done to the villous lining of the small bowel. No, the fact that your wife is asymptomatic should not be viewed as a license to not practice strict gluten free eating. She is damaging her health by doing so and the continuing high antibody test scores are proof of that. The antibodies are produced by inflammation in the small bowel lining and over time this inflammation destroys the villous lining. Continuing to disregard this will catch up to her. While it may be true that a little gluten does less harm to the villous lining than a lot, why would you even want to tolerate any harm at all to it? Being a "silent" celiac is both a blessing and a curse. It's a blessing in the sense of being able to endure some cross contamination in social settings without embarrassing repercussions. It's a curse in that it slows down the learning curve of avoiding foods where gluten is not an obvious ingredient, yet still may be doing damage to the villous lining of the small bowel. GliadinX is helpful to many celiacs in avoiding illness from cross contamination when eating out but it is not effective when consuming larger amounts of gluten. It was never intended for that purpose. Eating out is the number one sabotager of gluten free eating. You have no control of how food is prepared and handled in restaurant kitchens.  
    • knitty kitty
      Forgot one... https://www.hormonesmatter.com/eosinophilic-esophagitis-sugar-thiamine-sensitive/
    • trents
      Welcome to the forum community, @ekelsay! Yes, your tTG-IGA score is strongly positive for celiac disease. There are other antibody tests that can be run when diagnosing celiac disease but the tTG-IGA is the most popular with physicians because it combines good sensitivity with good specificity, and it is a relatively inexpensive test to perform. The onset of celiac disease can happen at any stage of life and the size of the score is not necessarily an indicator of the progress of the disease. It is likely that you you experienced onset well before you became aware of symptoms. It often takes 10 years or more to get a diagnosis of celiac disease after the first appearance of symptoms. In my case, the first indicator was mildly elevated liver enzymes that resulted in a rejection of my blood donation by the Red Cross at age 37. There was no GI discomfort at that point, at least none that I noticed. Over time, other lab values began to get out of norm, including decreased iron levels. My PCP was at a complete loss to explain any of this. I finally scheduled an appointment with a GI doc because the liver enzymes concerned me and he tested me right away for celiac disease. I was positive and within three months of gluten free eating my liver enzymes were back to normal. That took 13 years since the rejection of my blood donation by the Red Cross. And my story is typical. Toward the end of that period I had developed some occasional diarrhea and oily stool but no major GI distress. Many celiacs do not have classic GI symptoms and are "silent" celiacs. There are around 200 symptoms that have been associated with celiac disease and many or most of them do not involve conscious GI distress. Via an autoimmune process, gluten ingestion triggers inflammation in the villous lining of the small bowel which damages it over time and inhibits the ability of this organ to absorb the vitamins and minerals in the food we ingest. So, that explains why those with celiac disease often suffer iron deficiency anemia, osteoporosis and a host of other vitamin and mineral deficiency related medical issues. The villous lining of the small bowel is where essentially all of our nutrition is absorbed. So, yes, anemia is one of the classic symptoms of celiac disease. One very important thing you need to be aware of is that your PCP may refer you to a GI doc for an endoscopy/biopsy of the small bowel lining to confirm the results of the blood antibody testing. So, you must not begin gluten free eating until that is done or at least you know they are going to diagnose you with celiac disease without it. If you start gluten free eating now there will be healing in the villous lining that will begin to take place which may compromise the results of the biopsy.
    • Anmol
      Hello all- my wife was recently diagnosed with Celiac below are her blood results. We are still absorbing this.  I wanted to seek clarity on few things:  1. Her symptoms aren't extreme. She was asked to go on gluten free diet a couple years ago but she did not completely cut off gluten. Partly because she wasn't seeing extreme symptoms. Only bloating and mild diarrhea after a meal full of gluten.  Does this mean that she is asymptomatic but enormous harm is done with every gram of gluten.? in other words is amount gluten directly correlated with harm on the intestines? or few mg of gluten can be really harmful to the villi  2. Why is she asymptomatic?  3. Is Gliadin X safe to take and effective for Cross -contamination or while going out to eat?  4. Since she is asymptomatic, can we sometimes indulge in a gluten diet? ----------------------------------------------------------------------------------------------- Deamidated Gliadin, IgG - 64 (0-19) units tTG IgA -  >100 (0-3) U/ml tTG IgG - 4   (0-5) Why is this in normal range? Endomysial Antibody - Positive  Immunoglobulin A - 352 (87-352) ------------------------------------------------------------------------------------------------ Thanks for help in advance, really appreciate! 
×
×
  • Create New...