183 replies to this topic

[CarolinaKip]

Enjoyed this thread.

I had an ER doctor to ask me if I was there for her to find out what was wrong with me or control my pain. I replied to find out what's wrong. She rolled her eyes and said That's not going to happen!

I had my PCP give up and pat me on my knee and said, well it's probably something for the GYN, he'll fix you up. If something was going to rupture, it all ready would have.

I had CC and didn't know I had done it last month. I was in so much pain when I called the gastro on Monday, the nurse said we have no appointments until Friday, you'll have to go to the ER. What?! I didn't go to the ER BTDT!

My dietition was the bigeest help!

[mushroom]

When your doctor's P.A. is a hopeless incompetent and/or has it in for you

You leave a message that you need an urgent appt. (instructions from the ER) and a prescrription for potassium. You get her voice mail which states that your call will be returned in 24 hours and DO NOT call again "because this only delays the process", and then she not only does not call you but claims you didn't even call.

When you call scheduling and finally get an appt. and ask her to leave a written message for the P.A. about the potassium prescription. And she claims she did not get the message.

When she actually calls you just prior to discharge from the hospital (which you would not have needed to go to if you had gotten the */@#* potassium), and tells you she is calling in a prescription for overnight oxygen to a company (I have COPD and have trouble with the altitude). When you get home you call the company at 4:45 p.m. to confirm you are there to receive it, and they tell you they don't have a prescription And they have to wait for the doctor to get free to get it from her. And it is coming from Reno Fortunately the driver lives in Carson City

And all that is just this one week, this year. We won't go into last year....

Trouble is, I love my doc

[kaki_clam]

My doctor said.."My wife and I had a few friends over the other night, we were sitting around drinking beer, and I brought up my 'Celiac Patient' (meaning me)...next thing I knew, we had spent hours talking about how much that would suck."

Really?

[Coolclimates]

My dad's doctor refused to let him get tested for Celiac disease (and I have it) because he showed "no symptoms."
After 20 plus years of having that grouchy bastard doctor, this was the last straw and he finally changed doctors.

[ilookthetype]

I just got super scared to go see my doc about getting tested.

[sb2178]

Don't be. I had two docs convinced that celiac was the issue despite negative tests.

And then a sensible one who did more comprehensive testing and found more nutrient deficiencies that were also issues, as well as pushing me to do an elimination diet.

I also had an incompetent GI years ago who lost blood and never sent me any test results. But hey.

[mamabear]

When I created this post a few years ago, it was mainly a comic relief effort to some really serious reactions from disengaged doctors. It has been gratifying to check in from time to time, because it still gives a chuckle; still gives a great vent and still educates us to keep pushing until you find a doctor who cares to be a partner in YOUR health and healing.

[Kay DH]

If it is clear from your first meeting with a doctor that he is trying to prove you wrong, run, and I don’t mean your GI tract because it already runs enough.

My Celiac symptoms started last September, after getting the flu. I could handle the D by just eating small pieces of bread, couldn’t do anything for my very stiff hands, and didn’t notice the other symptoms. I’d had skin rashes in the insides of my calves and other places for decades, but the doctors just said to use hydrocortisone. No diagnosis. So, in November I went to a rheumatologist. He said to just take Aleve for now, and he then went into a prolonged discussion of the cardiac ablation he had the month before. No tests. So, I researched reactive arthritis, which I had 20 years ago, and noticed that gluten can cause problems. So, that is why I went gluten-free. My GI, brain fog, lethargy, and other symptoms went away within a week. My arthritis took 1.5 months, my rashes +6 months. My sensitivity to cc increased greatly. I went to my GP in Jan and she ran a Celiac Panel; negative, probably because I was off gluten. Other inflammation tests were weakly positive. I have had low thyroid for about a decade and have low D vitamins. Only test I’ve had for Celiac that hasn’t been negative is for HLA-DQ8. Family history is inconclusive but suggests Celiac. So, in my attempt to be proactive in determining what I have, I make an appointment with a GI in March. I mistakenly believed that a GI from a group recommended by a local Celiac website would know problems associated with gluten.

I kept a journal of my diet and symptoms. He said the HLA-DQ8 only gave me a 10% chance of Celiac, and proceeded to dismiss my other symptoms as diverticulosis. I debated him on the various points, which seems to be a mistake with medical doctors (not my GP though, she is great). I’m a research scientist, but my Ph.D is not in medicine, and he seemed to want to prove me wrong. Fine by me. My colonoscopy/endoscopy was scheduled for April. He was sure that I only needed 1 week on 3-slices of white bread a day for a positive reaction. He took so many biopsies of my large intestine that it probably looked polka dotted inside (all negative for diverticulosis), one of my esophagus (minor asymptomatic gerd), and only one about ½ down my duodenum, which was negative. I never talked with him after this, his assistant called with the results and the doctor didn't even address the gluten problem. Well, at least I know I don’t have other problems, but I’ll probably never know if I have Celiac because there is no way I’m going to make myself sick for the 3+ weeks required for real endoscopy biopsies.

[Aphreal]

These are quite something and I take them to heart!

My GI told me just the other day that "Because you've had IBS so long, that's what it is" I also got the *antidepressant* speel and of course the ever popular eating more fibre. She had nothing to come back with when I told her I am already on antidepressants for PMDD.

So if your an idiot for 30 years I guess you will always be an idiot and there is no cure?

BUZZZZZ

[debmidge]

Gastro's report says you have an "aversion to food."

Another gastro tells you that your weight loss is only becuase your're not eating enough food. (Heck with the fact that you've had diarrhea for 3 mos and lost 30 lbs.)

[aderifield]

My favorite all time reason for changing doctors is when they look at you and say,

"You look healthy."

I recently had a cardiologist tell me (on a morning when I was especially sick), "You're better than advertised.... You advertise yourself! All you need to do is cheer up, be happy... you'll feel better!"

And, at the end of that meeting, we both walked out thinking, "Next!"

[mushroom]

When you tell your cardiologist you are consulting a nutritionist, and all he has to say is (playing to the peanuts back-desk gallery here): "Is she a good-looking chick?"

[Lynayah]

When the doctor suggests that you walk around carrying a sign that says "Will work for Pampers."

Seriously though, when the doctor takes blood tests then looks only at celiac and not at gluten intolerance -- only at IgA and not at IgG.

Great thread!

[VioletBlue]

"Loose twenty pounds and all your problems will go away."

"Yeah, ah, the joint pain and the nausea too? Really?"

"Absolutely."

I never went back to him. He was way too young anyway, and his hands were clamy and cold and shook when he examined me.

[Dellers]

When your doctor says " in over 25 years I have never had a patient with negative bloods for celiac be celiac "