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Top Five Reasons To Get A New Doctor


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183 replies to this topic

#166 Emilushka

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Posted 12 October 2010 - 05:43 AM

As a health professional, this sickens me. I am sorry this happened to you. He was completely out of line with that comment.


AGREED. Actually, this thread is really sad. I tried to read all the way through but it just made me sad so I stopped. I hate bad doctor stories. Sometimes I wonder how these idiots ever made it through med school. Maybe the 45 hours of standardized testing that comprise MCAT and USMLE Steps 1-3 filter out the sane, nice people and allow the idiotic jerks who are good at choosing multiple-choice answers to get through.
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#167 Rowena

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Posted 12 October 2010 - 02:21 PM

"Oh here lemme give you a medicine to force your period to come." At this point, she was telling me this over the phone without having seen me. And the medicine could be very hazardous to an unborn child. So I went and of my own accord to have a blood test done to verify before I took the meds.

A few months before, "I never even suspected it was a possibility." When referring to my miscarriage. *headsmack*

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Gluten Free since Oct. 1, 2010
Fish/Seafood Free since 1997
Chocolate Free (with a few taste tests to see if I'm just crazy) since 2001.
Officially Dairy free 8/5/2013 (mostly dairy free before that, but I like my cheese and things) (dx'd officially with lactose intolerance, suspect casein too though)
Esophagitis dx'd 8/5/2013 thus doing a diet devoid of acidic foods and stuff


#168 Loey

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Posted 26 October 2010 - 03:13 PM

AGREED. Actually, this thread is really sad. I tried to read all the way through but it just made me sad so I stopped. I hate bad doctor stories. Sometimes I wonder how these idiots ever made it through med school. Maybe the 45 hours of standardized testing that comprise MCAT and USMLE Steps 1-3 filter out the sane, nice people and allow the idiotic jerks who are good at choosing multiple-choice answers to get through.


How bout when you're diagnosed after being bedridden for 6 weeks with the big D and your new GI does all the tests and they come back positive for Celiac. You move to a new state literally the day after your GI gives you all of your test results. She wants you to have a capsule endoscopy as soon as you find a new GI. Your new GI thinks it's unnecessary (and you're in excruciating pain) and treats you like you're not really sick. After putting your foot down the test is done. The results show an ulcer in addition to the Celiac. The new GI totally changes his attitude and is no longer dismissive. My calls are now returned immediately and I'm schedule for a biopsy in two weeks (I moved to a small town and he wants a special anesthesiologist).

An I live happily (and healthily) ever after...

Loey
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#169 Loey

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Posted 28 October 2010 - 10:39 AM

Or when the doctor directs you to the internet for information.
That really was good advise, as this is where I met all of you wonderful people.
Cathy



I agree but my doctor didn't tell me to look at the internet. I googled a question myself and then was directed here. It's been a lifeline!!!!!!


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#170 Loey

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Posted 28 October 2010 - 10:48 AM

How about the ever famous answer of "It's a female thing". Followed in a close second to "It's all in yuor head. Here's a prescription for Prozac." Yeah I'm sure that Prozac is just gonna make me happy that I have lower right abdominal pain, weight loss, diarrhea, gas, bloating, more weight loss, and chronic anemia.

We should start a list of favorite quotes from relatives and doctors!


Don't get me started on the "all in your head." I swear that's what my new GI thought about my pain (not about the Celiac diagnosis). I think he thought I was after pain meds but the last thing I want to do is mask the pain or get addicted. He seems to FINALLY be taking me seriously after the capsule endoscopy (which i had to insist on) showed an ulcer) but I have a referral to someone else in case he's not the one to hep me.

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#171 Loey

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Posted 28 October 2010 - 10:55 AM

Upon your first visit to this doctor; never having had a prescription for anything from this doctor (prior prescription from this facility was that they gave "Colace" to someone with non-stop diarrhea!). You're sick, scared, exhausted, weak and desperately wanting to feel better; you ask for what is state of the art in those days (lower barium GI series - meaning thru rectum test) and the GI accuses you of only being there to get drugs "You junkies are all alike. You only come here for drugs!" You respond to Dr. Jerk, "I don't want any prescription drugs! What kind of a nut do you think I am asking fo a barium enema?" You leave the facility without test or prescriptions and realize you need a new non-Govt Issued doctor.

1977 East Orange Veteran's Hospital (no wonder Walter Reade Hospital has been found to be unfit)


As I just mentioned I think my new GI thought I was just looking for pain meds. I WASN"T!!!!!!!!!!!!!!!!!!!!!!! I actually have some from an old injury and won't touch them!

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#172 Loey

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Posted 28 October 2010 - 11:11 AM

First he told me I had lactose Intolerance, which he had, too. Funny, going off dairy made me L.Intol. Since then, I've gotten back on it.
Then he said my back pain was from slouching and to do more situps (I was aerobics queen as it was)...plus then I'd look at my fat, slouching husband and wonder how his back didn't hurt...????
I begged for the bloodtest and the Dr. INSISTED that I go gluten free to see a dietary response and then if I felt better he'd do the blood test.
When my IgA or whatever levels were "elevated but not enough to diagnose". I said, "What do I do?" He said, keep on a gluten free diet!
btw
Every time I went in he'd say "I think I have that, too". I think they teach them to say that to show compassion. But I can tell it's BS. When he sent in my bloodwork he sent his own in to test his levels, supposedly. what a dork
.


And as we all know we need to not be following a gluten-free diet to get an accurate reading. That is if you care about a a definitive celiac diagnosis. Some people prefer to be gluten-free and just feel better.

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#173 Loey

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Posted 28 October 2010 - 11:19 AM

I would formally and in writing fire this doctor. I would be very specific about your treatment by her and I would also send copies of the letter to the head of whatever medical group or hospital she is affilated with. Make sure you get full copies of ALL your records from her ASAP (you have a legal right to them and don't let them try to tell you that you don't, you may have to pay a copy charge, and let your new doctor know what happened.


And contact the AMA or any other association that deals with uncouth doctors. This HAS to stop!!!!!!!!!!!

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#174 Loey

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Posted 28 October 2010 - 11:29 AM

I was also sent to the internet for information... had no idea what to eat those first few days. Got a great start here at celiac .com :)


There's a thread that lists foods to eat (you still need to check the label and be very careful) and I found a list of gluten-free medicines. Will post below. Hope they help. I have also purchased the Triumph Dining Trio. It contains a books with restaurants in the 50 states that have gluten-free menus, a book of products in the supermarket that are supposed to be gluten-free (again check ALL labels) and finally a laminated set of dining cards that fold and fit in your wallet. The cards are my favorite. They have cuisine from 7 countries. One side lists the information in the language of the country and the other side is in English.

Hope this helps!

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http://www.celiac.com/gluten-free/topic/42274-my-gluten-free-food-list-11008please-add-yours/page__pid__647654__st__30&#entry647654


http://dearpharmacist.com/?p=755&print=1






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#175 Loey

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Posted 28 October 2010 - 11:35 AM

Doctor #1- An internist. I'm 45 and the doc is a woman a bit older. I go in complaining of bloating and "bathroom" problems, with several symptoms of ovarian cancer and wondering why I feel so bad. She poo-poos me but pokes me and does a blood test for ovarian cancer, which is negative. Tells me I'm just overweight (I am, by about 25 pounds) and to go away. Of course, if she had really cared, she might have asked me my other symptoms and diagnosed celiac. A year later I got really sick and had stomach pain, so she did refer me for an endoscopy for an ulcer. That was the only good thing she did.

Doctor #2 - A GI specialist set up to do my biopsy. He was great because he didn't see any evidence of celiac (and wasn't told to look) but he took small intestine samples. No blunting villi BUT there was cellular evidence of an immune response, so he said to eliminate wheat & gluten. Sent me to a dietician. On the followup where I told him how much better I felt and how quickly, he diagnosed celiac. HOWEVER, he told me that since I had a "mild" case, I didn't have to be as careful with CC and could occasionally cheat. So, in the end, a dud.

Doctor #3 - Another internist, a woman in her 30s. I wanted a better doctor, so I went to her on a recommendation from a family member. I told her I felt better after the celiac diagnosis/gluten elimination but still crummy and, based on symptoms and research, I wanted to be tested for autoimmune thyroid problems. She refused, saying that I had no symptoms and all I needed was my TSH tested and I argued with her. She snarkily commented that "not everything you read on the internet is correct" and I argued back that what I read is PubMed, and I also am an intelligent person and expect to be treated correctly and with dignity. I fired her and am seeing a naturopath next week.

Doctor #4 - My long-time OB/GYN who also had the opportunity to diagnose me based on sypmtoms 2-5 years ago. Yesterday when I saw her, she was interested in the celiac and asked what my sypmtoms had been. I told her and stated that that was why I was worried about ovarian cancer and there is some overlap in the symptoms. She sarcastically said, "EVERYONE is worried about ovarian cancer!" HELLO of course we are when CNN or some other media says "IF you have bloating, gas etc. etc. ask your doctor to ckeck for ovarian cancer". And some women do have it. Why she was so defensive I don't know, except maybe because I pointed out that there were symptoms of celiac over 4 years ago. I didn't blame her explicitly but... there you go.

Doctor #5 - My son's Pediatric GI. Talking about my diagnosis, he tells me that without total villious blunting, many doctors would have said that I don't have celiac. Yeah, and since I went off gluten in February, who's to say that by now or next year I wouldn't have been even more sick and by then I would have shown totally "gone" villi due to more gluten damage? Do they really expect someone to have to get so sick before they diagnose? The one good thing that he told me is that even though the insurance company won't pay for my son's gene test until all other test options (i.e. EGD) have been exhausted that I should get MY gene test done and paid for by insurance to see if I "really" have celiac. So I will, but even if I don't have the gene, I would never go back on gluten. But it's a good idea and will help me help my son, even if the doctors won't.

You know the most frustrating thing is that without all you guys, I would feel so alone. The docs make me feel abandoned and unsupported, which is not a good thing - I'm sure you'll all agree - when you're faced with serious illness. I'm happy that I don't have cancer or diabetes but those diseases at least get you some concern from doctors.



We're all here for you and each other. I know I was feeling depressed an isolated because of moving to a new /state the day after my diagnosis. Now I don't feel alone and have made two friends who live in my state.

Whoever started this forum is a Godsend!!!!!!!!!!!!

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#176 Loey

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Posted 28 October 2010 - 11:45 AM

For my complaints of dumping immediately after taking a bite of food, my primary care doctor did two things, gave me zelnorm, which is for constipation and told me that I was depressed, it was my nerves, and that I had IBS. He managed to get me to take paxil with no results, then zoloft which made it so much worse that I could not even eat one bite of food in the am and travel by car to work without having an accident. I had to wait all day long until I got home to eat, to where I could be near a toilet.

He kept trying different antidepressants, all with no results. I refused them after awhile and still he kept trying. Even though he never said it, looking back, I realize now that he thought I was some kind of a nut case. Our twenty year relationship ended when his office sent me a certified letter stating that it was no longer beneficial for him to be my doctor.

The only good thing that he did for me was to send me to a GI doctor who prescribed Cholestyramine which helped enough with the D that I could have enough time after eating to get to the bathroom, in most cases.

By that time I was so worn down and mentally confused due to fatigue and other symptoms that I didn't have the wherewithal to even keep track of doctor's appointments. The GI doctor insisted that I needed a test, which I have no clue to this day what the test was, and I kept dragging myself out of bed and going on the wrong day. I would go a few days in advance or a few days after the scheduled appt. I never got that test.

I then went through a sleeping spell that lasted for over 6 weeks, only rising to use the restroom and eating very little as everything made me sick.

Went to another doctor who told me I had EBV and low thyroid.

By this time, my extended family had drawn the conclusion that I was just lazy and were very unhappy with me because I could not drag myself out of bed to go visit them or do things with them. My brother washed his hands of me at that time.........and still won't speak to me because he wanted to have a big dinner for my birthday and I told him that I was too sick to come.

My new doctor listened to my entire laundry list of complaints, including the fact that my memory has deteriorated so badly that while on the way to his office I could not even remember where I was going at all for a few moments, and to his credit did not try to put me on antidepressants but started running blood tests. They came back as extremely low folate and low thyroid.

I have discussed the likelihood that I have Celiac disease with him but so far as I am aware, he has yet to order any blood tests for that nor has he referred me to a specialist in that field. He did however refer me to an allergist. The results where that out of 64 things tested for including, trees, grasses, molds and foods that I am allergic to all but 7. Beef, pork, chicken, fish, egg whites, garlic and saline are my safe foods.

When the test results came back on all of that he exclaimed with happiness, "See, it's not all in your head after all, you have a real problem". I had never indicated that it was all in my head. I had told the man that I have had chronic D for 12 years now and was suffering from extreme fatigue to where I could sleep around the clock and that my stomach was constantly bloated and felt as if it were on fire with infection at times, which I believed was altering my ability to absorb proper nutrients to the point that I was losing cognitive ability.

On my own I have gone gluten free, but it is particularly difficult when you are allergic to all grasses including rice. I have lived on cabbage soup, roast beef, scrambled eggs, green beans, pineapple and chicken for the last several months. The D is gone for the first time in 12 years.

This guy seems to want to help, but really knows so little, but is not really wanting to refer me to a specialist, as he seems to want to try to figure it out himself. If he will refer me to someone who can help I will keep him for my primary physician but if he won't, I am going to have to go doctor shopping yet again.


My old GP and GI were the best but as I mentioned I moved. Don't hesitate to go to aGI. The Celiac Support Groups in each state can recommend doctors as can the Celiac Sprue group online (I found that out thanks to the help of a wonderful ember of this forum).

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#177 AJoy

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Posted 22 November 2010 - 02:39 PM

When the office tells you to take "Vitron C for Iron, Vitamin D 20,000 & Vitamin D One-A-Day." After confirming that I will be taking 20,000 for Vit D and will be on three different supplements and am told yes I proceed to going to three specialty vitamin stores and become very confused when I can't find anything above 5,000 IUs and One-A-Day doesn't make a Vitamin D concentrated supplement. After calling the office and speaking with a second person they confirm I should only be on two supplements, tell me the Vit D should be 2,000, and I should only be taking Iron three times a week - WOW that could have turned out bad, you would think they were trying to kill me!
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#178 Cypressmyst

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Posted 23 November 2010 - 12:07 AM

With as incompetent as most Doctors are. I think they are trying to kill us all. Gotta hand it to them, they are doing a bang up job! :huh:
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#179 cap6

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Posted 24 November 2010 - 09:03 PM

This was a great thread. I have to say that at first my dr gave me info from the internet and told me that once I was well I may be able to eat gluten again. I've stayed with her though (we're in sort of a small town anyway) as she not only read everything I gave her she studied the disease on her own. She spends as long as necessary with me and will do any test I ask for. I wish we had access to a specialist but at least I have someone who is willing to listen & learn.
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#180 Loey

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Posted 25 November 2010 - 02:12 PM

This was a great thread. I have to say that at first my dr gave me info from the internet and told me that once I was well I may be able to eat gluten again. I've stayed with her though (we're in sort of a small town anyway) as she not only read everything I gave her she studied the disease on her own. She spends as long as necessary with me and will do any test I ask for. I wish we had access to a specialist but at least I have someone who is willing to listen & learn.


You're so lucky that she listens and is wiling to learn. The jury is still out on my GI.

Wishing you a happy and healthy gluten-free Thanksgiving. Just put my Ducks in so we'll be eating late.

Loey



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