Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Positive Panel, What's Next?
0

5 posts in this topic

Hi all...new here. My daughter's ped recently did an extensive blood draw on her and her Celiac panel came back with red flags. I don't know exactly which (thinking iga) but the ped said it definitely showed levels indicating possible celiac disease. I have read that true diagnosis is confirmed through biopsy. Then, I've also read about endoscopy. Are they referring to the same thing, just specific method? My daughter is 15 months old and terrified of others (esp. docs) so I'm guessing they have methods where anesthesia is allowed? So I've read, anyway. I know you guys probably get this type of message all the time, so I'm sure I'm asking the right folks. I guess I'm just trying to figure out what to expect next. We don't see the Ped GI until mid-November.

Thanks much!

0

Share this post


Link to post
Share on other sites


Ads by Google:

First, she must continue eating gluten. The biospy is done by the endoscopy and, yes, she'll be sedated. She should also get an amnesiac and shouldn't remember a thing. Ask the doctor how many samples he takes -- it should be 10 or more.

richard

0

Share this post


Link to post
Share on other sites

Hello. We are in a similar situation. My son is almost a year; and after a month long run of diarrhea his ped. ran the celiac panel; and he came back positive for the IgG and IgA antibodies. The ped. said "he has celiac disease, he needs a gluten-free diet'. So last week we went to the ped GI dr. and HE said based on those lab tests he isn't yet convinced it is celiac. He drew more blood for a bunch of lab tests; including some food allergies; and more extensive celiac screening (I think he is testing for 'total IgA or something...if that level is low then the blood test isn't accurate anyway). They are also testing his stool for fat. He said to go back on gluten - and see how he does. Then; if based on those labs it still looks like celiac then my son will have an endoscopy to take biopsies. The ped. GI mentioned our problem could be 'toddler diarrhea' - which toddlers sometimes get because their digestive tracts aren't mature yet. This can sometimes last until potty training. It's a bummer you can't get into the ped. GI sooner - so they can start ruling things out and finding a diagnosis soon! Renee

0

Share this post


Link to post
Share on other sites

Thanks Richard & Renee for your input. I'm not sure how extensive the Celiac panel was that they ran, but I know my daughter's ped wouldn't go so far as to say that it was definitely celiac disease. I think they should leave that up the GI folks, anyway. She did say to keep a stool sample stored in the fridge in case they wanted to check that out as well. My daughter doesn't really have diarrhea very often at all, but she's failure to thrive and has the irritability as well. I thought the wait to see the GI was long myself, but then I was told my friend had to wait up to 4 months so it didn't sound too bad! Does anyone happen to know how long the endoscopy takes and if they usually let the parent(s) accompany during the procedure?

Jen

0

Share this post


Link to post
Share on other sites

I THINK most places will let you stay with your child at least until he or she is sedated, and probably the whole time. The procedure itself doesn't take more than 20 minutes, maybe not even that long. It takes different people different amounts of time to come out from under the sedation.

richard

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,115
    • Total Posts
      919,447
  • Topics

  • Posts

    • Well, you can probably get an apple or something.  You might be able to get someone to boil you some eggs.  But be careful of things like nuts that should be naturally gluten free.  They have almost always been soaked in a flavor solution that usually containes caramel coloring, "soy" (wheat) sauce and other aditives.  If I am really hungry and must eat in a Chinese restaurant, I order plain white rice and steamed vegetables.  But even so, you must monitor it carefully.  The rice sometimes has other substances added to give it a better texture, and very often the vegetables have in fact had "just a little bit" of soy sauce added.  To be fair, celiac disease is hardly ever found in East Asians, so understandably people are not tuned it to it.  Also, culturally, with the exception of fruits, it is generally thought that the flavor of foods needs to be enhanced, so it is had to find anything natural even in the "western" gorceries. Even in the western restaurants, be careful.  Fish and meat and often vegetables are usually pre-marinated. I will not even attempt to address the issue of cross-comtamination, since that is a whole higher order of things. I do know what I am talking about; I have celiac and have worked here for nearly 7 years.  
    • I'm glad I found these forums!  I will spend some more time this evening reading through them.  But I wanted to get my question out there just to see if anyone else might have answers quicker than I can sift through the forum for them.      I've been feeling terrible for about a year, and after an elimination diet last month, figured out that if nothing else, gluten/wheat is a problem.  After lots of research, I abandoned the elimination diet and added gluten back in, so that I could get tested for Celiac.   I was off gluten for 3 weeks, from mid-June until early July.  I've had it back in my diet for almost 3 weeks now.    My question is this: Since I was off gluten for 3 weeks, and now back on for almost 3, is that enough time on to yield a positive Celiac blood test, if that indeed is what I have?  All the research I've done says 4-6 weeks for a gluten challenge, but is that really necessary if I was only not eating it for 3 weeks?  I am desperate to get this testing done and over with.  I feel terrible all the time and getting through the day is a struggle.  My doctor ran allergy panels already and everything came back clear except for a mild wheat allergy.  So if nothing else, I'll have to give up wheat for sure at the end of all this.  I get the feeling she doesn't know a ton about Celiac though, so I'm doing a lot of the research on my own. Any advice or information would be so appreciated! 
    • Hi Michael, That's quite a spike in blood pressure!  I haven't tested that myself and don't want to if it means I have to eat gluten.  Blood pressure testing to identify food reactions is something that has come up before.  It sounds like it might be possible but I don't know how much study has been done on it.  Probably not much since it is such a simple, straight forward idea. Welcome to the forum!
    • Hi Megan, Did the doctor test you for celiac disease?  You really shouldn't go gluten-free until all the testing for celiac disease is completed.  It is a little odd for a doctor to tell you to go gluten-free for no reason IMHO.  Did he/she explain the reason for it? Personally, I have learned over the years what I can eat safely and what I can't.  Occasionally I get hit but it is rare.  Simplifying your diet is a good first step.  Avoiding processed foods for a while and dairy also is good.  I suggest any change you make last for a month at least. Then try the food again. If you are eating 100 random ingredients/foods each day it is hard to figure these things out.  If you reduce it to a much smaller number of foods then things become simpler. Welcome to the forum!
    • Finally, proof that non-celiac gluten sensitivity is real. ... for the 30 percent of consumers who choose to buy gluten-free products and the 41 percent of ... View the full article
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,154
    • Most Online
      1,763

    Newest Member
    calla84
    Joined