Posted 13 October 2004 - 03:13 PM
I am taking him to a gastro next week.
Any help is appreciated.
Posted 14 October 2004 - 06:30 AM
Hang in there. Remember it took a long time (probably) for your son's system to get to where it is. It will take some time for his system to get back to normal. My husband has been a celiac now for about 3 or 4 years and he was at that same point as your son. The key I believe is a very strict diet. My husband NEVER cheats. It's hard, but read every label, and don't eat out for a long time. Remember he may be allergic to other things than just wheat/gluten, so one step is to find that out as well. Obviously have him stay away from liquids that can cause loose stools ie, coffee, soda, juice even some raw fruits like apples. My husband when first diagnosed went to white rice, bananas, home made banana bread (gluten-free of course), unprocessed meats, veges, potatoes etc. My husbands villi were completely colapsed, he now has no problems, and he's gone from about 175 down to 140 back up to 175. He works out every day. He eats very little sweets and loves Qdoba for a main staple (the naked burritos). Seeing a Gastroenterologist to rule out anything else, and make an appt. with a dietician, I can only believe it can help (personally we didn't see a dietician) I just strictly modified my cooking, and it seemed to do the trick for my husband. Remember every celiac is different, what works for one, may not work as well for another. There are several on-line sites to order premade breads, buns, cookies, tortillas, pastas etc., so be sure to use all of your resources. And visit this forum often, it will help you to feel not so alone. I know as a mother/wife that we feel responsible for what our loved ones take in, so it's a heavy burden to carry, but it will get better, - hang in there! To be honest, we feel being gluten-free is a better diet for our general health (those of us that aren't gluten-free), I have a hard time keeping my 3 kids from eating my husbands stuff half of the time!
Posted 14 October 2004 - 02:16 PM
If he's still having problems after 6 months than maybe ask for a follow up endoscopy to see if his intestines are healing (That's what I'm going to do).
Hopefully he will be better before then though!
Diagnosed with Celiac Disease in March 2004
Postitive tTg Blood Test, December 2003
Positive Biopsy, March 3, 2004
Posted 15 October 2004 - 05:56 AM
Posted 19 October 2004 - 06:57 PM
I have made it one year and feel much much better!!!!!!!!!!!!!!!!
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