Get email alerts Get E-mail Alerts Sponsor: Sponsor:

Ads by Google:

   Get email alerts  Subscribe to FREE email alerts

Celiac Returns?

3 posts in this topic

I was diagnosed with celiac as an infant - back in the late '40s. My parents were told that I would grow out of it. As I understand it, the connection to gluten wasn't really made until the 50's. As a child I don't remember having any problems. Nor did I have any as a teenager, young adult or until recently. It seems as if it was in remission for 50 years! I have never really liked bread. Did not like pasta or pizza very much. Ate very small portions of those. Preferred corn tortillas to flour.....

Two years ago I started having stomach problems, bloating, gas, but not the diarrhea I had as an infant. In additon to to stomach problems I started breaking out in a rash all over my body. Never thought of it as celiac related. Was referred to an allergist who put me on Zyrtec. That controlled the rash, but I was always hungry. I attributed it to the medication and kept trying to wean myself. I could be off for about 3 - 3 1/2 weeks and the rash would be back. Burning, itching... Went back to the allergist after a year. Saw someone new and mentioned that I had celiac as a child, but didn't know if it was a correct diagnosis bucause I did eat wheat products. After a blood test came back 10X higher than normal, I was referred to a gastrenterologist and diagnosed by endoscopy at stage 3 this March.

Has anyone ever heard of celiac going away?


Share this post

Link to post
Share on other sites

Ads by Google:

celiac does not ever go away, but some people find - particularly during adolescents - don't experience much in the way of symptoms, even though damage is being done. many people can be asymptomatic for lengths of time, but it doesn't mean that they are in remission - as demonstrated by your antibody levels.


Share this post

Link to post
Share on other sites

I can completely understand how you feel. I was diagnosed with celiac when I was an infant (1970) but there was not blood test then, or at least none was given to me. My doctor said that I would grow out of it and I began eating wheat again around the age of 6 or 7. I am now 34 and the symptoms just returned last year. I, unlike you, loved bread and pizza so I was consuming a lot of gluten. My blood tests show that I am "highly allergic" now. I wish my doctor had known better back then. Think of all the damage we have done over the years! I haven't had the biopsy done yet...just the blood I'm not sure exactly how much damage...not sure I WANT to know. Well, at least I enjoyed pizza for a few years...


Share this post

Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Forum Statistics

    • Total Topics
    • Total Posts
  • Topics

  • Posts

    • Do you mean something like a protein powder you could mix up?  A lot of them in the US seem to be gluten free.  Maybe just go to your local store and read all the labels?
    • Yeah I ended up allergic to corn, olives, sesame, whey, and peanuts and intolerant to dairy, soy, yeast, enzyme issues with breaking down meats, and egg yolks, along with extreme bloat with any kind of carbs/sugars in moderate amounts. And very adverse reactions to certain artificial sweeteners. So your not alone in all the other issues cropping up, it happens as our bodies adjust.  I eat a bunch of stir frys with veggies, egg whites, plenty of  avocados, and toasted and raw forms of almonds, coconut, cashews, walnuts, hemp seeds, pumpkin seeds, flax seeds, sancha inchi seeds, chia seeds, and sunflower seeds in all forms including making them into butters, spreads, and incorporating them into sauces.   Most meals are forms of soups, omelettes, and stir frys. I do the seeds and nuts on rotation same with my veggies and snack on fruits in small amounts along with some homemade baked goods I make for markets. I do suggest a rotation of foods, my dietician said I need to rotate my foods to prevent more issues, making sure I am off one one for at least 7-14 days at a time completely. I find changing up the spices and rotating my cuisine base works well. I also make puddings, and protein shakes along with nut/seed milks, and different bases and extract flavorings to get my random cravings Taken care of. Guess take what you can from this and and see how it can help you,    As to the tinging, I ended up with both B vitamin and magnesium deficiency issues, the magnesium one caused a fire like tingling in my arms, legs and back, along with muscle pain. Ended up on a doctors best powder form of it so I can dose it out right, and found epsom salt bathes helped.  
    • Hi, I've gained so much knowledge on this forum over the past few months, which I am so thankful for. I can see how much hell people are going through with this disease and it's so lovely to see how much support and advice people give to others on here. I'd like a little bit of reassurance and advice myself from anyone that can help. I've been gluten free for six months. Two weeks after going gluten free I realised I also had a problem with corn so cut out processed food. Over the following weeks and months I continually had problems with food; fruit, dairy, a lot of vegetables, nuts,'s basically dwindled down to just eating potatoes (not white potatoes), cucumber, lettuce, small amounts of red onion, spring onion, sprouts and beetroot. There may be more things I could be okay with but to be honest I'm too scared to try.  Is this all normal? Am I an extreme case? I've been taking some digestive enzymes and probiotics for about six weeks, my acid reflux has dramatically decreased but I always have a lot of loud noises going on in my guts, I'm guessing this is the probiotics working.  I've lost nearly 3st in weight since this started - which I'm not complaining about as I was overweight due to thyroid problems. I've had loads of blood tests done recently, all organs are working 'great' according to my doctor, the only thing they've picked up on is ketones, I seem to be having a glucose problem, which might explain my exhaustion and weight loss. I also have permanent numbness and sometimes tingling in one of my legs and sometimes hands and one shoulder, I thought it could have vitamin B12 deficiency but that's okay according to blood tests. I would be greatful for any replies. Thanks for reading.
    • Hi everyone, I am doing job in restaurant at evening 5 to 12 during working hours no time to do a dinner. I'm thinking to make a shake but don't know the gluten free vitamin or supplement brand which one is good for me and easily available in Berlin Germany to make me fit cause last one week i feel weak. I'm 28 year old. Sincerely
    • Hey there just wanted to warn anyone that has other allergies- these crackers may not be a good choice! I'm mildly sensitive to MSG- I only react if there's a giant amount like in Chinese food or Ramen noodles, etc.  I literally have a to eat TONS of a the offending food before reacting.  Anyway, I was excited to try these Trader Joes pumpkin crackers, kept hearing about them on the radio .... and they're gluten free!  (I have Hashi's).  I ate about 3/4 of the box last night. Woke up this morning with a red itchy face and nasal congestion, headache, anxiety. Hallmark symptoms for me of high MSG intake. (It does say yeast extract on the side but it's pretty far down the list). So if you're sensitive.... stay away! Apparently these particular crackers are loaded with it. 
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

    There are no registered users currently online

  • Member Statistics

    • Total Members
    • Most Online

    Newest Member