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jennyj

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jennyj Collaborator
jennyj
Posted

When I was diagnosed about a little over a year ago, I did two things. When on a gluten free diet and joined this awesome support group. I don't know how I would have made it without you guys. I just got home from a four day hospital stay. I had two units of blood and an IV iron infusion. After a variety of tests they have found 3 masses in my small intestine that are actively bleeding, so I have to have about 18 inches of my small intestine removed. I posted a few weeks ago that my son is going to have brain surgery on the 31st so I will have mine two weeks later so I can stay with him the week he is in the hospital. I have asked for prayer before and if you don't mind I would like to ask again for my son and I.

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Lisa Mentor
Lisa
Posted

BIG HUGS TO THE BOTH OF YOU!!! and all the energy I can muster for good vibs and successful outcome.

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jerseyangel Proficient
jerseyangel
Posted

A prayer and many hugs for you and you son, Jenny :)

Best of luck with everything, we'll be thinking of you.

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ravenwoodglass Mentor
ravenwoodglass
Posted

I hope everything goes well for you both. You are in my thoughts and prayers.

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holdthegluten Rising Star
holdthegluten
Posted

i will pray for you both. Trust in God and you will be fine.

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natalie Apprentice
natalie
Posted

Good luck to both you and your son. I'll be thinking of you.

Natalie

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little d Enthusiast
little d
Posted

my daughter and i will say a prayer your family at nihgt night time, i really hope that everthing will be ok

donna

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pedro Explorer
pedro
Posted

My family and I will be praying both of you.

Take care

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bugstabber Rookie
bugstabber
Posted

I said a prayer for the both of you, hope everything goes well.

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jennyj Collaborator
jennyj
  • Author
Posted

Many thanks to all of you. I have a strong faith but today I am a little anxious for his surgery tomorrow. Thanks for all you do. You guys are GREAT.

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      Why?

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      - trents replied to mishyj's topic in Coping with Celiac Disease
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      Why?

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      Why?

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    • trents
      Why?

      By trents · Posted

      What kind of stool test was done? Can you be more specific? 
    • mishyj
      Why?

      By mishyj · Posted

      Perhaps I should also have said that in addition to showing a very high response to gluten, her stool study showed that she had extreme reactions to everything achievement on it long course of microbials to treat that.
    • mishyj
      Why?

      By mishyj · Posted

      My daughter has celiac disease and has had for a long time. She fell loses strictly gluten-free diet and recently got rid of all cutting boards in any gluten in her house at all. She just had a stool test and it came back showing of gigantic response to gluten in her diet. What could be going on since she doesn't eat any gluten and is very careful about any kind of hidden glue? Help!
    • cristiana
      Constant low back, abdominal and pelvic pain!

      By cristiana · Posted

      I think sometimes the pain described here can be a result of a sort of 'perfect storm' of contributing factors.  Recently I had an appalling bout of lower back pain, lower burning gut pain and what felt like cramps.  I then started to think about what could have caused it and I realised it was several things that had set it off: I'd been carrying heavy luggage (back strain); I had been sitting down in a car for too long and wearing a tight belt (I have pudendal nerve issues and sacroiliac issues and this exacerbates the pain), and I had bloating and burning pain in my colon caused by eating too much soy, latte and caffeine, I guess putting further pressure in the lower abdomen.  I had this same pain prior to my diagnosis and a couple of years post-diagnosis, I'd quite forgotten how unpleasant it was. 
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      Have this rash forming on the back of my legs. Looking for relief outside of going to the doctor.

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      HI @Kirbyqueen That's great news your insurance will be kicking in soon.  Sorry to see that you have been dealing with this for six months now, but I do hope you have managed to find some relief with some of the suggestions in the meantime. Perhaps come back and let us know what the doctor says. Cristiana
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