Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Need Your Input
0

3 posts in this topic

I am wondering what you, more experienced persons think about this. I am worried about both of my kids. I have been tested for celiac disease after being gluten-free for 3 1/2 years with a short ( probably too short) gluten challenge of about 4 weeks where I did not eat as much gluten as I probably should have. My results came back highly positive for the anti-gliadin antibodies (IGG) but inconclusive, still within normal for the other 2 blood tests. Obviously I feel much better gluten-free and my symptoms resolve also. My lactose intolerance and acid reflux both completely disappeared on a gluten-free diet.

I primarily got tested because both of my children have a lot of stomach complaints. My oldest child suddenly became very heavy as a teenager and then lost a lot of weight fairly suddenly. Now , in her 20's,she is extremely thin, tired and cold all the time, and consumes truly astounding quantities of food without gaining any weight. I cannot describe how much she eats -it has to be seen to be believed. She is also lactose intolerant and is in her 20's. She is not bulimic.

My other daughter eats next to nothing and is slim and complains of nausea and bloating on an almost daily basis.

We are of Irish descent ( the western part) and are 2nd generation Americans.

Does anyone know of relatives with symptoms such as this and should I be concerned that they have undiagnosed celiac disease?

Also - has anyone ever read of a connection between celiac disease and atrial fibrillation? ( I ask this question on my father's behalf)

Thanks for any help!

0

Share this post


Link to post
Share on other sites


Ads by Google:

Your family all needs to be tested, and probably needs to stay gluten free. You might also try adding electrolytes to your diet for the rapid heart beat. Before I was diagnosed I often had episodes of rapid heart beat and after I added a banana and some extra electrolytes to my diet --and going gluten free, I rarely had a problem. Shirley

0

Share this post


Link to post
Share on other sites

Sabina,

Your children sound like my sister and me! When I was in high school and college, I had very little appetite and weighed less than 100 pounds (I am 5'5" tall), but despite my pediatrician's concerns, I did not have an eating disorder. My younger sister, however, was quite pudgy until she hit adolescence, when she suddenly stopped gaining weight and may even have lost some during her growth spurt. Now, she is quite willowy herself.

After college, on the other hand, I ballooned to 150 pounds (BEFORE my first pregnancy)! I managed to drop the excess weight after each pregnancy, and now I weigh a relatively ideal 115 pounds (I am small-boned even though I am tall). Before I went gluten-free, though, I was always tired, cold, and ravenous. People tried to blame my hunger on breastfeeding, but although that accounts for some of it, I don't find it a satisfactory explanation for why I had to consume four meals and two snacks every day just to keep going (and often had to get up at night to forage some more)! It got to the point where I realized that if I ever felt full but not bloated, that was my cue to get up and fix some more food, because fifteen minutes later I would be dying of starvation!

I have told my family a bit about celiac disease and that they should be tested, but I'm not sure any of them will follow through. I wish they would, though! It would be great if your relatives would get themselves checked out.

I seem to remember that nutritional deficits and electrolyte imbalances can cause heart rhythm abnormalities, and celiac disease could certainly be the underlying cause of these conditions. Your father should definitely be tested, as well.

Good luck to you and your family as you seek a diagnosis!

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,338
    • Total Posts
      920,471
  • Topics

  • Posts

    • They didn't suggest any probiotic support. Ultimately the side-effects of this drug stabilized approaching the end of the course of treatment, though after it was finished, I was perhaps a bit improved, but no profound symptom resolution for me. Darn! The search goes on.
    • Thankyou I have found that I became intolerant of dairy and having cut it out feeling better but if I come into accidental consumption the symptoms are similar to that of gluten but not as severe .. Patience ay ?
    • I checked the Gluten Free Watchdog (I subscribe) and did not find this  particular product, but found the company's oat bran flakes which did not list any gluten ingrediants, but barley was found in testing well over 20 parts per million.  I would stick with certified gluten-free cereals, personally.  I think it is "hit or miss" on grain products.    
    • It is normal for other intolerances to become apparent once you remove gluten. I don't know why, perhaps as the immune system is free'd from chasing gluten it finds new targets? A lot of coeliacs find they have to cut out dairy as well for example. It's certainly my number one culprit for skin issues.  It also can take time for removing gluten to have its full effect, as antibodies will remain in the body for up to 6 months. So the reaction could still be to gluten in a way. 
    • I did not re-test my antibodies for a full year after diagnosis but I think your daughter should be checked again in 6 months.  If she does have celiac, and I really am sure she does regardless of what this doc seems to think, they should decrease in 6 months.  If she is fast healer, they could potentially be in the normal range but it varies from person to person. She did show damage in her small intestine but at 4 years of age, damage would not have progressed to the point where this doctor could be convinced it is Celiac.  They set the bar way too high. Kind of silly to require you to damage her insides further to prove it to the AMA. I think she should go gluten-free, as you have stated, and re-scope her in 6 months to see how the original damage looks then. If it is gone, then maybe that would convince them. The 4 out 5 criteria is not done in kids because, I am convinced, of liability issues. They just do not want to get sued if by some small chance, they diagnosed someone who did not have Celiac.  I think the odds of that are pretty slim, when you think about it. Even with a misdiagnosis, eating gluten free will never harm anyone. But as children are minors and cannot legally make medical decisions on their own like adults can, that rule is out for them.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,407
    • Most Online
      1,763

    Newest Member
    Poppyann
    Joined