Other Related Diseases / Misdiagnosis
Posted 14 October 2004 - 11:16 AM
I am just glad I found this site. This is my situation.... my wife has not yet been diagnosed with Celiac Sprue, but she is showing all the signs for it and we are just waiting for a biopsy to take place. Since the age of 6 my wife has been diagnosed with, and treated for Crohn's disease. Well after several years of fighting Crohn's and not getting too far, she elected for surgery. After surgery, we both were excited because now her life was going to get back to normal and she was going to start feeling better. The only problem was, something was still not right. Then, upon another doctor appointment, and more blood work, the doctors were still puzzled. Then, my wife happened to mention a certain sympton (dryness inside her nose) and a light went on with the doctor. She immediately thought of Celiac Sprue and is having my wife checked for it. She will be having a biopsy in the upcoming months. Now we are not sure if my wife does have it, but we are starting to prepare for it. (Hence me finding this website)
For starters, has anyone else had this situation of a misdiagnosis for so long?
Why is this disease not commonly checked for?
And third, I have heard that this disease could be a cause of Crohn's?? Is that right?
Needless to say I am in need of more information, and will continue to research as much as I can. I know very little other than a change in diet can solve it.
Other than answers to my above questions, I am not sure what I am looking for. If you have any similar situations, or know of someone else who was also diagnosed with Crohn's I would be glad to hear about it. I must also mention that it is not fair for me to say my wife was misdiagnosed with Crohn's. She did have Crohn's, it is just that I have a feeling that maybe if she was properly diagnosed at age 6, then the Crohn's may or may not have ever shown up.
Thanks and I will keep researching. I have a very small knowledge on the subject so far.
Posted 14 October 2004 - 12:18 PM
I hope that you keep with your quest to find out if your wife needs to be on a gluten-free diet. It really isn't all that bad...however adding the cf thing in there really puts a crimp in things. Eating out is harder, at home the gluten-free thing is a snap. Many people are diagnosed with IBS and Chron's and really have celiac disease. Best wishes to you, be sure to stay with this board, I have learned so very much, including how to get properly tested through Enterolab. I will be ETERNALLY grateful for that.
Posted 14 October 2004 - 12:38 PM
Good luck to your wife with the biopsy (don't forget she needs to continue eating plenty of gluten before the test), and the diet - while a big adjustment in some areas - really isn't too hard once you get used to it, even if it can take a while to get used to it. :-)
Inconclusive Blood Tests, Positive Dietary Results, No Endoscopy
G.F. - September 2003; C.F. - July 2004
Hiker, Yoga Teacher, Engineer, Painter, Be-er of Me
Posted 04 January 2005 - 04:07 PM
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