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Misdiagnosis
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Hi! I have just had blood work done to check for Celiac disease. I have not received my results yet but have a lot of the symptoms. My question is concerning my sister who also has a host of these symptoms and what has been diagnosed as chronic hives. They have not found any cause for these outbreaks and none of the meds they have tried seem to be effective for them other then steroids. Is it possible that what she has is DH? I have not read anything anywhere on it being mistaken for hives but the pictures I have seen look like what she gets. Thanks!

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Hi, I am also suffering from chronic hives right now. I have had them about 10 weeks. I've been to 2 internists and 2 allergists. If your sister's doctor said it's hives then she probably has hives. Has your sister been to allergist? They can work with the antihistamines to get the right combo of drugs for her. They did for me, well to keep me comfortable most of the time. I still have my times during the day or night when I get a little itchy!! Sometimes my lips swell, not fun!!

I also have autoimmune thyroid disease and the doctor(s) told me that 30-35% of people with this also get chronic hives. They also told me more often than not you never find the cause(90-95% of the time).

Enjoy your weekend! :P

Lisa

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Here are some articles regarding urticaria (hives) and celiac disease:

http://www.blackwell-synergy.com/links/doi...9.00216.x/full/

http://pediatrics.aappublications.org/cgi/...full/106/5/1139

http://pediatrics.aappublications.org/cgi/.../full/104/2/e25

http://www.ncbi.nlm.nih.gov/entrez/query.f...3&dopt=Abstract

I have also encountered several people who have had this experiece as well... antecdotal evidence.

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Hi! Thanks so much for your reply. I have forwarded the links to my sister. Sure hope she can find something that can work for her as well as you have. At least maybe you will be an incentive for her to get into an allergist and try differant :D meds. Thanks again!

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    • I eat them with no issues and know several other Celiacs that eat them with no issue.
    • I am sorry that you are sick! i think you need to really adhere to a gluten free diet that consists of ONLY whole foods (no processed gluten-free foods) and do not go out to eat, until you start to see improvement.  Each tiny gluten exposure can set you back.  It sounds like you really became even more ill after the gluten challenge.   I was just anemic when diagnosed.  I waited seven weeks for my endoscopy due to work issues, so i took the time to consume lots of gluten.  Like a loaf of sourdough per day not to mention all the cakes, cookies that I loved.  (Okay, I just ate a few out of each package......)  by the end of seven weeks, I knew I had celiac disease.  I had a bloated stomach visible under my left rib cage, pinching when I bent over, indigestion, etc.  Not to mention some weird Fibro pain my my shoulders, tingly legs, etc.   Most resolved, but it took about two years. If you  ask for thyroid panel, be sure it includes testing for thyroid antibodies.   
    • My daughter, who is almost 21 and has celiac disease, was diagnosed with Epilepsy a year ago. Hindsight being 20/20, we realized she had been having seizure since she was a teenager but the random passing out and feelings of being 'out of it' were attributed to dehydration or poor nutrition and sleep habits during numerous trips to the emergency room. In our reading about Epilepsy, I have found some mention of celiac and gluten issue connections and even where a strict adherence to a gluten-free diet provided a lot of improve the with frequency and severity of seizures.  I would be interested to know if anyone else shares this experience.
    • I have also reacted to various Planters products, believing them to be safe because gluten is not listed in the allergens but have had almost identical reactions to yours.  It did not occur to me that I might be getting zapped from them until just recently when I ate some of their Salt and Vinegar almonds and became really ill and then recognized that I had reacted to them before. I have notice in the past few months that the 'Hermans' brand nuts, which have never mentioned wheat in their allergens now carries the 'processed in a plant that processes wheat' disclaimer.  It makes me wonder if all nuts are processed in the same manner and if all nuts and nut products should be considered unsafe? I know that I will not trust the Planters brand any longer regardless of whether wheat is listed or not.
    • I've heard some people say that they're gluten free, and some say they're not.. I had a container of planter's cashews that I ate a few days ago and I haven't been feeling that great since then. I thought I was fine, but yesterday I woke up with a headache and was feeling really gassy all day. Then since last night, every once in a while I'll have some stomach cramps. They last for a few minutes and then go away.. that has happened 3 or 4 times since last night. It seems weird that I wouldn't have a reaction right away though.. or at least within a few hours of eating them. I ate some on thursday and on friday, and I didn't really start to feel sick until saturday. It's been a while since I last got glutened though, so maybe my reaction has changed? Or maybe I'm being paranoid and I just ate too many cashews haha. But that's the only thing I've eaten in the past like 2 weeks that was different. Has anyone else had a problem with planter's nuts?
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