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Misdiagnosis
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Hi! I have just had blood work done to check for Celiac disease. I have not received my results yet but have a lot of the symptoms. My question is concerning my sister who also has a host of these symptoms and what has been diagnosed as chronic hives. They have not found any cause for these outbreaks and none of the meds they have tried seem to be effective for them other then steroids. Is it possible that what she has is DH? I have not read anything anywhere on it being mistaken for hives but the pictures I have seen look like what she gets. Thanks!

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Hi, I am also suffering from chronic hives right now. I have had them about 10 weeks. I've been to 2 internists and 2 allergists. If your sister's doctor said it's hives then she probably has hives. Has your sister been to allergist? They can work with the antihistamines to get the right combo of drugs for her. They did for me, well to keep me comfortable most of the time. I still have my times during the day or night when I get a little itchy!! Sometimes my lips swell, not fun!!

I also have autoimmune thyroid disease and the doctor(s) told me that 30-35% of people with this also get chronic hives. They also told me more often than not you never find the cause(90-95% of the time).

Enjoy your weekend! :P

Lisa

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Here are some articles regarding urticaria (hives) and celiac disease:

http://www.blackwell-synergy.com/links/doi...9.00216.x/full/

http://pediatrics.aappublications.org/cgi/...full/106/5/1139

http://pediatrics.aappublications.org/cgi/.../full/104/2/e25

http://www.ncbi.nlm.nih.gov/entrez/query.f...3&dopt=Abstract

I have also encountered several people who have had this experiece as well... antecdotal evidence.

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Hi! Thanks so much for your reply. I have forwarded the links to my sister. Sure hope she can find something that can work for her as well as you have. At least maybe you will be an incentive for her to get into an allergist and try differant :D meds. Thanks again!

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    • I havent used it, not much of a baker tbh, but this one looks good: http://alittleinsanity.com/gluten-free-pie-crust-recipe/
    • As you say, there's no test, it's diagnosed by exclusion, so there's no metrics to check to assess compliance other than anecdotal response to symptoms. Conversely, I've not seen anything that says that NCGI can resolved or be cured either.  This paper gives a good summation.  Basically, there's not much research period! That is changing though, I think there's research underway which could help give answers.
    • First, do you have celiac disease?  Have you recently had a celiac antibodies follow-up blood test panel to see if gluten has been actually getting into your diet by accident or through cross contamination?  If you haven't had the test, you should ask your doctor for one.  You could also also ask for a follow-up endoscopy to see if you intestines have truly healed.  This will rule out if gluten is really the problem.    If you don't have celiac, I assume you have Non-celiac gluten Intolerance because no one would stick to the gluten-free diet for six years unless you have had reductions in symptoms.  There is no test for NCGI unfortunately.  So, it is hard to say if gluten has been sneaking into your diet.  You really are going to have to try to figure out if you are getting gluten into your diet.  If gluten is not the problem, then your doctor needs to check you for other issues, like SIBO. There is a test to check for SIBO.  Has this been done?   Once a celiac, always a celiac.  There is no cure for celiac disease except to remain on a gluten free diet for life.  I am not sure about NCGI.  Not much research has been done.  Maybe others can chime in?    
    • I am so confused right now.... 6 years ago I went on gluten free diet... after being on it for the first yr I was 100%better up until 5 months ago in got the "flu" the doctors told me to cut out dairy sonic did and my diarrhea  became better but not completely gone would not have it every day tho. I went to the gi doctor and they said to cut out fructose and dairy and keep gluten out... yesterday I went to the dietitian to see what I can eat and she gave me the list for fructose... she said it should have been on a antibiotic for sibo.... eventually I will be able to add dairy back and maybe gluten.... I said how can I add gluten back when this was my first problem... she goes well through fructose goes hand in hand with it... I said with gluten I vomit and am sick for weeks.... fructose isn't that bad I vomit sometimes but I'm not sick for weeks.... I'm just confused on really what is going on and was wondering if you or someone you know had sibo from gluten and or fructose and how Is this all related?
    • I see no one has responded to your query.  Unfortunately I have yet to try making a pie crust.  It was something I never mastered before going gluten free.  Have you looked on Pinterest?  You might find something there.
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