Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Anger, Quick Temper, Depression
1 1

61 posts in this topic

Anyone else have varying levels of gluten reactions? I know when I've been seriously glutened. I practically pass out, vomit, diarrhea, etc. When I touch gluten, my hands break open and bleed. But sometimes I just have a nasty temper, which is not like me, with no other signs of gluten. Everything and everyone makes me really mad. Little issues really make me mad. No patience for anyone or anything. It'll take me a few days of this before I realize that I think I've been glutened, but I don't know where or how. I assume this anger issue is gluten related because I lose my patience, have depression issues, skin feels I need to crawl out of it to feel better from a bad glutening. I'm not angry all the time. Normally I am happy and laugh a lot. But when I get this no patience anger thing I can barely laugh.

Anyone else feel like this? Or is it just me?

1

Share this post


Link to post
Share on other sites


Ads by Google:
Anyone else have varying levels of gluten reactions? I know when I've been seriously glutened. I practically pass out, vomit, diarrhea, etc. When I touch gluten, my hands break open and bleed. But sometimes I just have a nasty temper, which is not like me, with no other signs of gluten. Everything and everyone makes me really mad. Little issues really make me mad. No patience for anyone or anything. It'll take me a few days of this before I realize that I think I've been glutened, but I don't know where or how. I assume this anger issue is gluten related because I lose my patience, have depression issues, skin feels I need to crawl out of it to feel better from a bad glutening. I'm not angry all the time. Normally I am happy and laugh a lot. But when I get this no patience anger thing I can barely laugh.

Anyone else feel like this? Or is it just me?

From all of the reading that I have done the past month on this subject, there is an amino acid, L-Glutamate, that can get into your blood stream from the intestines and then cross the blood-brain barrier and cause the anger and depression issues. I use to think it was just who I was and part of my personality. I have always wanted to be a person who did not have emotional, mood issues. I definitely think I have Celiac disease and an intolerance to Glutenated food. I am not a doctor nor biologist, I am just speaking from personal experience.

Being angry is normal, but being angry all of the time is not.

0

Share this post


Link to post
Share on other sites

Thanks! So what herbs/medicines do you take to make everything normalize? I know it must be related to some slight glutening issue, but i can't connect the dots.

0

Share this post


Link to post
Share on other sites
Thanks! So what herbs/medicines do you take to make everything normalize? I know it must be related to some slight glutening issue, but i can't connect the dots.

My symptoms don't sound as severe as yours. I would normally get diarrhea and my gut prutudes, not obscenely but enough where it is annoying... My symptoms are more neurological as I discussed earlier.

As far as medicines and herbs. I take a Centrum multivitamin, cod liver oil, borage oil maybe once or twice a week. I heard multivitamins can have gluten. I am only new to this Celiac disease for the past month. I am on anti-dpressants, Celexa, but I notice they dont work after I eat gluten, so I am thinking of tapering off the next month or two. I have been on ADs for two rounds before, and they are not a permanent cure. I don't everything can be totally normal, that is just part of life. Do you taken any drugs, supplements, vitamins???

I am thinking of getting Enterolab to confirm my suspicions as I heard bloods tests are hit or miss. My thyroid came back normal. I have been trying to take things into my own hands after continually be misdiagnosed.

I see your gall bladder was taken out, I see a lot of people with Celiac have that happen. My mother in law had hers taken out, so I wonder if she has it too.

0

Share this post


Link to post
Share on other sites

You are not alone. I am not a nice person to be around when I'm on gluten. Not so much now but in the early stages of healing and years before gluten-free I would get very angry, depressed and impatient. I'm by nature a VERY calm, patient person. Off gluten, I can't even "go there" if I try.

0

Share this post


Link to post
Share on other sites




My symptoms don't sound as severe as yours. I would normally get diarrhea and my gut prutudes, not obscenely but enough where it is annoying... My symptoms are more neurological as I discussed earlier.

As far as medicines and herbs. I take a Centrum multivitamin, cod liver oil, borage oil maybe once or twice a week. I heard multivitamins can have gluten. I am only new to this Celiac disease for the past month. I am on anti-dpressants, Celexa, but I notice they dont work after I eat gluten, so I am thinking of tapering off the next month or two. I have been on ADs for two rounds before, and they are not a permanent cure. I don't everything can be totally normal, that is just part of life. Do you taken any drugs, supplements, vitamins???

I am thinking of getting Enterolab to confirm my suspicions as I heard bloods tests are hit or miss. My thyroid came back normal. I have been trying to take things into my own hands after continually be misdiagnosed.

I see your gall bladder was taken out, I see a lot of people with Celiac have that happen. My mother in law had hers taken out, so I wonder if she has it too.

You need to totally avoid Gluten...

0

Share this post


Link to post
Share on other sites

same problem... my friends and i call it "wheat anger", or "pws" (not pms) post wheat syndrome.

Here's how mine goes like clockwork... I get contaminated food, my stomach burns within 15-30 min then i get super tired, by the next day i barely can get out of bed i have joint pain, muscle pain, muscle weakness, my entire body hurts i get bad sinusitis headaches, my allergies go nuts my brain doesn't seem to function correctly, i have problems concentrating and remembering words i want to say...

as all the goes away and i start to feel better... about 3 days later i have super out of nowhere anger for no reason, everything and everyone pisses me off and i feel like i want to punch things, i don't want people around me, i feel closed in, i have anxiety and am jumpy. I just try to kinda joke it away with my boyfriend, he knows and understands whats up and i try really really hard not to be personally mean to him or anyone else. Then as fast as it comes it disappears 12-24 hours later out of nowhere and i am completely the opposite super happy, goofy and normal again.

I believe it is a total chemical reaction in my brain from the wheat. It is like this every single time i get glutened like clockwork.

I had anxiety all my life, depression, paranoia, i worried all the time, had phobias, and panic attacks. After I took gluten out of my diet ALL of these mental problems disappeared like magic...It was as if I was an entirely new person with less limits and new found mental stability with NO medications ONLY no wheat!

1

Share this post


Link to post
Share on other sites

Yes, I would say my irritability definitely went down after I got off gluten. When I am glutened--or, for that matter, eat too much dairy---I get irritated and angry much too easily for my liking.

0

Share this post


Link to post
Share on other sites
same problem... my friends and i call it "wheat anger", or "pws" (not pms) post wheat syndrome.

Here's how mine goes like clockwork... I get contaminated food, my stomach burns within 15-30 min then i get super tired, by the next day i barely can get out of bed i have joint pain, muscle pain, muscle weakness, my entire body hurts i get bad sinusitis headaches, my allergies go nuts my brain doesn't seem to function correctly, i have problems concentrating and remembering words i want to say...

as all the goes away and i start to feel better... about 3 days later i have super out of nowhere anger for no reason, everything and everyone pisses me off and i feel like i want to punch things, i don't want people around me, i feel closed in, i have anxiety and am jumpy. I just try to kinda joke it away with my boyfriend, he knows and understands whats up and i try really really hard not to be personally mean to him or anyone else. Then as fast as it comes it disappears 12-24 hours later out of nowhere and i am completely the opposite super happy, goofy and normal again.

I believe it is a total chemical reaction in my brain from the wheat. It is like this every single time i get glutened like clockwork.

I had anxiety all my life, depression, paranoia, i worried all the time, had phobias, and panic attacks. After I took gluten out of my diet ALL of these mental problems disappeared like magic...It was as if I was an entirely new person with less limits and new found mental stability with NO medications ONLY no wheat!

WOW I'm so glad someone asked this question, this is something I never thought about. I figure(d) quick-tempered, moody, impatient, etc etc were (are) just parts of my personality, but now that I'm starting my gluten-free diet (and immediately physically I already feel better) maybe I'll realize I'm much more calm of a person??!? I too have CONSTANT headaches (migraines actually) and the joint pain kind of randomly but I have scoliosis so I thought it was associated with that. I also have bad allergies so I typically attribute headaches to allergies.

But I woke up this morning and felt pretty happy, not nearly as exhausted today, and I just generally feel good. How odd that we may become different people after we remove gluten. Controlling my temper is something I worked hard at for as long as I can remember with minimal success - maybe this is the ticket!! :o

0

Share this post


Link to post
Share on other sites
same problem... my friends and i call it "wheat anger", or "pws" (not pms) post wheat syndrome.

Here's how mine goes like clockwork... I get contaminated food, my stomach burns within 15-30 min then i get super tired, by the next day i barely can get out of bed i have joint pain, muscle pain, muscle weakness, my entire body hurts i get bad sinusitis headaches, my allergies go nuts my brain doesn't seem to function correctly, i have problems concentrating and remembering words i want to say...

as all the goes away and i start to feel better... about 3 days later i have super out of nowhere anger for no reason, everything and everyone pisses me off and i feel like i want to punch things, i don't want people around me, i feel closed in, i have anxiety and am jumpy. I just try to kinda joke it away with my boyfriend, he knows and understands whats up and i try really really hard not to be personally mean to him or anyone else. Then as fast as it comes it disappears 12-24 hours later out of nowhere and i am completely the opposite super happy, goofy and normal again.

I believe it is a total chemical reaction in my brain from the wheat. It is like this every single time i get glutened like clockwork.

I had anxiety all my life, depression, paranoia, i worried all the time, had phobias, and panic attacks. After I took gluten out of my diet ALL of these mental problems disappeared like magic...It was as if I was an entirely new person with less limits and new found mental stability with NO medications ONLY no wheat!

Korie, you articulated that process so well. I've noticed that my stomach symptoms come first, then there's a whole unfolding thing with various problems. I've noticed several bad temper flares that I haven't felt for so long -- think I got too tired to feel any strong emotions. (lupus and maybe gluten as well, as I'm undiagnosed w/r/to gluten) A couple weeks into gluten-free life my energy was rebuilding significantly, which was GREAT but... also noticed vicious temper flares (throwing things while trying to bake w/rice flour lol come on it's not THAT hard).

Would you tell me something? How long after you went gluten-free did you notice your moods really smoothed out? I'm still having g sneak in a bit, think I've got a handle on how to stay truly gluten-free (99% anyway) and now I'm impatient for the benefits... esp. am looking forward to 1) mastering my own behavior and 2) growing my nails!!!! For those two things alone it's so worth going gluten-free!

0

Share this post


Link to post
Share on other sites

I'm so glad that there's a topic about this. When I was reading the notes in this thread, I felt I could have written them myself.

When I have wheat/gluten, I have a very short temper. What's worse, I'm a schoolteacher! I have a very rough time keeping my temper with the kids when I've ingested some gluten. And you're right; this doesn't happen right away, but rather, a few days after I've had some gluten.

Also, I have the same kind of joint pain....almost like I'm an arthritic old person...it affects some of my joints, but not others. I especially notice it in my elbow joints, and the arches of my feet.

And I have experiences the brain fog as well. That's a lot of fun when I'm trying to be articulate in a phone call. I start spacing out, I can't think of the right things to say, which is the opposite of how I usually am!

And, I have anxiety, only when I have gluten.

THEN, there are people out there who say that food cannot produce those kinds of reactions with the brain! I beg to differ!

I have found out that since I've started exercising (I'm not a workout buff, just do the elliptical everyday) I can rid myself of the symptoms a little quicker.

But, it's amazing what foods can do to you!

1

Share this post


Link to post
Share on other sites

Hi

I've been gluten free for about 3 months now, and one of my worst symptoms was anxiety and depression. Since I've been on the diet, I'm doing great, feeling very positive and energetic, whereas the few times I've been noticeably glutened, its the anxiety that hits me the worst, like a physical tension and sudden bursts of emotion.

I've been doing so well, but tonight it's hit me suddenly. I'm pretty sure i've stayed out of the gluten, but its possible that i've eaten something a bit cc'd. It could just be other stress from stuff in my life, but this is more of a random reaction that I can't pin down.

Samcarter mentioned earlier in the thread that he gets anxious when he eats too much dairy. While I can drink milk no problem, I have found that I get a bit of stomach upset when I eat ice cream or too much cheese. I made gluten-free mac and cheese tonight, which could have bothered me... no. actually, I think it could have been something I ate for breakfast... I'll figure it out.

In any case, I was wondering what a good remedy is for you? to ease the anxiety/anger/emotional outbursts as soon as possible? Multivitamins and omega3's have been mentioned, for a more long-term control. what do you do to get things under control as soon as possible (other than retreating to your room and curling into a ball and sobbing)

thanks for the help. I think we're all evidence that depression/anxiety issues are related to Celiac.

Peg

0

Share this post


Link to post
Share on other sites

Just registered for these forums and was thrilled to find this discussion!!

I have not been very diligent since Thanksgiving in staying gluten-free. I kept thinking I was having just a taste here and just a taste there. But I was not feeling well and I attributed it to being laid off and a host of other stress related events.

About six weeks ago, I finally had a complete emotional melt down. It was absolutely horrible! I didn't make the connection until my mom asked if I have been staying gluten-free. Wish you could have seen the HUGE light bulb over my head. <_<

I had all the symptoms of a major depression, too many to list here but I'm sure you all know what I mean. I had forgotten that gluten has that affect on me when I get too much in my system.

I have been gluten-free again since then and I feel so much better! Even my allergies have cleared up.

I have found that if I remain gluten-free that I am also able to remain med free. There is a definite connection!

Let's behave out there! :)

0

Share this post


Link to post
Share on other sites

Oh yes! I am a happy woman with the sweetest husband in the world (though I may be biased) :) I am very active and eat healthy. Before I was diagnosed and started to have symptoms (anemia, fatigue, dizziness, severe abdominal pain, etc) I experienced depression, anxiety, and worst of all was serious irritability, a quick temper, and felt angry most of the time. I would constantly feel irritable and get annoyed or mad at minor things. I think part of it was because I was so tired due to the anemia, but I have read that depression and anxiety can be Celiac-related. Since being gluten free I have not experienced the same irritability and anger issues I used to have.

Anyone else have varying levels of gluten reactions? I know when I've been seriously glutened. I practically pass out, vomit, diarrhea, etc. When I touch gluten, my hands break open and bleed. But sometimes I just have a nasty temper, which is not like me, with no other signs of gluten. Everything and everyone makes me really mad. Little issues really make me mad. No patience for anyone or anything. It'll take me a few days of this before I realize that I think I've been glutened, but I don't know where or how. I assume this anger issue is gluten related because I lose my patience, have depression issues, skin feels I need to crawl out of it to feel better from a bad glutening. I'm not angry all the time. Normally I am happy and laugh a lot. But when I get this no patience anger thing I can barely laugh.

Anyone else feel like this? Or is it just me?

0

Share this post


Link to post
Share on other sites
Anyone else have varying levels of gluten reactions? I know when I've been seriously glutened. I practically pass out, vomit, diarrhea, etc. When I touch gluten, my hands break open and bleed. But sometimes I just have a nasty temper, which is not like me, with no other signs of gluten. Everything and everyone makes me really mad. Little issues really make me mad. No patience for anyone or anything. It'll take me a few days of this before I realize that I think I've been glutened, but I don't know where or how. I assume this anger issue is gluten related because I lose my patience, have depression issues, skin feels I need to crawl out of it to feel better from a bad glutening. I'm not angry all the time. Normally I am happy and laugh a lot. But when I get this no patience anger thing I can barely laugh.

Anyone else feel like this? Or is it just me?

Uggg! YES!! I do get quite moody from being cross contaminated. Not just upset cause"darn it" I got glutened again. But, moody, I can't controll it moody. It sucks and no one understands it. my doctor has put me on some crazy drugs. None have helped. So I am learning to cope. If anyone has a solution I am all ears.

Debbie

www.myefusjon.com/1debbie

0

Share this post


Link to post
Share on other sites
Anyone else have varying levels of gluten reactions? I know when I've been seriously glutened. I practically pass out, vomit, diarrhea, etc. When I touch gluten, my hands break open and bleed. But sometimes I just have a nasty temper, which is not like me, with no other signs of gluten. Everything and everyone makes me really mad. Little issues really make me mad. No patience for anyone or anything. It'll take me a few days of this before I realize that I think I've been glutened, but I don't know where or how. I assume this anger issue is gluten related because I lose my patience, have depression issues, skin feels I need to crawl out of it to feel better from a bad glutening. I'm not angry all the time. Normally I am happy and laugh a lot. But when I get this no patience anger thing I can barely laugh.

Anyone else feel like this? Or is it just me?

Uggg! YES!! I do get quite moody from being cross contaminated. Not just upset cause"darn it" I got glutened again. But, moody, I can't controll it moody. It sucks and no one understands it. my doctor has put me on some crazy drugs. None have helped. So I am learning to cope. If anyone has a solution I am all ears.

Debbie

www.myefusjon.com/1debbie

0

Share this post


Link to post
Share on other sites
From all of the reading that I have done the past month on this subject, there is an amino acid, L-Glutamate, that can get into your blood stream from the intestines and then cross the blood-brain barrier and cause the anger and depression issues. I use to think it was just who I was and part of my personality. I have always wanted to be a person who did not have emotional, mood issues. I definitely think I have Celiac disease and an intolerance to Glutenated food. I am not a doctor nor biologist, I am just speaking from personal experience.

Being angry is normal, but being angry all of the time is not.

oh yeah, this is a really frustrating part of celiac disease... your body gets so deprived, your brain can't function. I have been diagnosed with bipolar disorder, though since i have been diagnosed with celiac, i am now thinking that this is really my problem. I find that when i supplement with sublingual b12 vitamins (has to be sublingual) that I no longer have that uber-irritable, skin-peeled off so don't touch me, can't control what i am saying, please move faster and get me my coffee, barrista before I turn into a witch feeling that caused me to lose jobs and friends and family

but taking those b12's.....ALL THOSE FEELINGS GO AWAY. I take tons, and then taper off. The exhaustion goes away too.

0

Share this post


Link to post
Share on other sites

Hi,

I just joined because i found this thread while googling wheat and anger.

I could have written every post here... I dont know if it's wheat, cause I often tend to eat it with other things like sugar... but it's true, a few days later i want to kill everyone i come into contact with... my belly is bloated and i HATE the feeling of my clothes, especially anything tight... right now i am living in yoga pants...

once i get going though, it's so hard to stop. i know wheat does awful things to me, but i crave it more than anything else.

i only ate raw foods for almost a year and i felt great, no more aches and pains and if i was mad it was for a reason, not just out of the blue!

i'm confused though. i have blood tests done last year sometime and my dr told me i'm definitely not celiac... so what do i do now?

0

Share this post


Link to post
Share on other sites

OMG Im not alone!! I was just wondering if my anger issues and having a short temper has something to do with gluten. When I eat gluten every little thing makes me mad, :angry: then I start cussing and wanting to punch something.. it is very hard trying to calm myself down. I even tell my professors that some of the stuff they say is the stupidest things I ever heard. That behavior is not me...Im not totally off of gluten, because Im the only one in my family that has this.so its hard not to eat what my family has...other family members are denying they have it though. I think that as long as you try to be totally gluten free it will help.. :)

0

Share this post


Link to post
Share on other sites

Hi,

I just joined because i found this thread while googling wheat and anger.

I could have written every post here... I dont know if it's wheat, cause I often tend to eat it with other things like sugar... but it's true, a few days later i want to kill everyone i come into contact with... my belly is bloated and i HATE the feeling of my clothes, especially anything tight... right now i am living in yoga pants...

once i get going though, it's so hard to stop. i know wheat does awful things to me, but i crave it more than anything else.

i only ate raw foods for almost a year and i felt great, no more aches and pains and if i was mad it was for a reason, not just out of the blue!

i'm confused though. i have blood tests done last year sometime and my dr told me i'm definitely not celiac... so what do i do now?

Those darned blood tests have caused more suffering on this earth than I would care to quantify.

Just so you know, they are not infallible. There is a 20% (at least) false negative rate on those tests. And the doctors not only don't tell you that, but they don't tell you that it would be a good idea to give the gluten-free diet a good three-month trial and see how you feel at the end of it. You may not feel 100%, but if you are better than you were before, then gluten is a problem for you, diagnosed celiac or not.

To most doctors, it is either celiac disease or "no problem." This is so not true. Non-celiac gluten intolerance, according to Dr. Rodney Ford, affects as much as 30% of the population in varying ways, and for some of us it is just as bad as celiac disease. For others, we are celiacs "in waiting" - just not damaged enough to show positive on their inadequate tests.

So get yourself gluten free and then come back and talk to us about how you feel. You may (or may not be. given your knowledge of 'your issues') be surprised. :D I tend to think you will find it is gluten (wheat, rye, barley) that is the root cause of your problems. And after you have recovered from that you may possibly find some other foods that bother you. This is not at all unusual. But ridding yourself of gluten is the first step. We can help you deal with the rest later. Oh, and with the gluten, chuck milk, cream and ice cream for a while too, because you may not be able to digest lactose if your villi in your small intestine are damaged.

Good luck to you, and let us know how you do.

0

Share this post


Link to post
Share on other sites

wow! I had forgotten about this thread! two years later and I'm still having the same issues. (worse even!)

it's definitely gluten, no doubt in my mind anymore. I'm waiting on tests from enterolab right now, but it almost doesn't matter what they say. I know gluten is the source of all my problems. I'm just so surprised to find a post of mine from 2 years ago!

0

Share this post


Link to post
Share on other sites

Oh, I am sorry you didn't come back :( We could have saved you a couple of years :)

0

Share this post


Link to post
Share on other sites

well I was mostly gluten free during that time. every time I slip it's obvious that gluten isn't doing me any favors. so I'm back now!

thanks for such a wonderful resource :)

0

Share this post


Link to post
Share on other sites

Sorry you have these symptoms . I have been gluten free for 9 years and I have a ridiculous amount of anger and depression it really sucks.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
1 1

  • Forum Statistics

    • Total Topics
      103,337
    • Total Posts
      917,377
  • Topics

  • Posts

    • Gluten ataxia...?
      I was explaining that some people have other trouble that is immune related and caused by eating gluten, but doesn't effect the gut in a noticeable way. According to the paper that I quoted there are some people which have different types of brain problems but don't have inflammation when tested by a biopsy.  The author used the term "non-Celiac gluten sensitivity" to refer to anyone who has any brain trouble that can be traced to gluten but without obvious gut inflammation.  There are a lot of different possible ways gluten can effect the brain some may not be related to the gut.  It could still be an immune system problem.  Normally "non-Celiac gluten sensitivity" refers to just a food intolerance.  Withdrawal symptoms are not normal and could be indicative of an immune system response of some sort, but I don't know for sure.        
    • Weird Reaction
      Hi Richie I've put the above in quotes as you have described in the first and second sentence how I felt six months prior to my DX.   In my own case, in the end I concluded it was anxiety after consulting Dr Google!  It was such an alien feeling to me, I couldn't even think what it was, particularly as life was pretty good at the time.  Anxiety is a problem for a lot of celiacs prior to diagnosis, and often after glutening after going gluten-free. You mention breathlessness, this of course can be for reasons such as anaemia (again a common celiac problem, I had this prior to DX) but of course also can arise if you are anxious.   Re 'gluten free' - Flowerqueen is right, from what I have read on this forum some people really do seem to react with less than 20ppm.    But perhaps some other things to consider...  could there be something wrong with the batch you have consumed?  Might it be worth contacting the manufacturers?   That said, you could , as Flowerqueen suggests, have a problem with another ingredient, in the product or something else you consumed. In the past I have had a terrible reaction - fever, trembling, diarrhea, stomach cramps that lasted up to three hours the last three times I ate..... broccoli, of all things.    Who would have thought that possible?  I have often thought I should try it again, just to be sure it was the broccoli, as it is a 'super food' that I ought to have in my diet, that I like very much, but the thought of having such a reaction again has put me off. I do hope you will find some answers soon.  
    • Weird Reaction
      Hi Richie,  I've not heard of this drink before, as I live in the UK, but any drink made from barley is something you should avoid.  There's a brand in the UK that makes lemon and barley water and orange and barley water and Coeliac UK say it is not safe for people with Coeliac disease.  (Our labelling laws in the UK changed a couple of years ago).  You say the drink you had was under 20 ppm, which is acceptable (usually) for coeliacs, but a lot of people are super-sensitive to gluten even in very small amounts.  I recently had a similar problem with something which was supposed to be okay for coeliacs, but when I checked the website of the product, for all it said there were no gluten containing ingredients, it was produced in an area where gluten was present, which was enough to put me off and must admit, the symptoms you describe sound very much like I experienced at the time.  (Personally I'd be avoiding that particular drink like the plague from now on). One other thing though,  have you checked the ingredients to see if there could be anything else in it which you may be intolerant to? 
    • Confused
      I have not. I'll talk to my doctor about it
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
    • ukuleleerika

      Hello! I am new to this Celiac website... Is there anyone out there with Celiac AND extensive food allergies? My allergies include shellfish, dairy, eggs, cantaloupe, kiwi, mango, nuts, oranges, red dye, and more I can't think of. I went to the allergist about a year ago to see why I wasn't feeling well, and once everything was eliminated, I still didn't feel well. We did more testing to find out I had celiac as well as allergies to cattle as well as rye grass (I live on a farm basically). This was back in January 2016. I recently had my endoscopy with the gastroenterologist a week ago. I have no idea what to do or what to eat... So fish and potatoes for me!
      · 2 replies
    • SLLRunner

      Week 4 of the gluten challenge- wheat cereal every morning, regular bread every day, and wheat tortillas for my lunch wraps. Right now, body aches that seem exercise related (weight lifting and running), even though I am doing the same intensity of weight lifting and running I've always done.  Just a few more weeks until my blood test. Counting down the days.
      · 0 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,470
    • Most Online
      1,763

    Newest Member
    Kiwiana
    Joined