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Is There Anyone Like Me? (sorry If I'm Redundant)
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I, too have been recently diagnosed with celiac. Not very surprising since

I'm allergic to most proteins anyway. I still have to wait 3 more weeks to

meet with a dietitian. Any advice to someone who is allergic to corn, soy,

beans, shellfish, fish, chicken, nuts, chocolate, some fruits/veggies, eggs and

dairy, etc.? (I don't eat meat, but do eat organic - it's easier)

I'm a "sports playing- 2 job working single mom".

Thanks!

Alicia

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get plenty of fat? (avocados, oil, coconut (if you can have it)) I say that as a hypoglycemic, where too much starch bothers me. other than that, I'm not a big help... if you can have rice, you can get powdered rice proteins that you can use in baking to help increase the protein in your diet...

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I use ground flax instead of eggs in my baking; you could probably use water instead of milk, or try Rice Dream; I just plain avoid everything else I'm allergic to. It makes life much easier than trying to substitute.

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I have most of those same problems...howeever, I do eat meat so I have some at each meal, very plain--Bette Hagman's books seem very good for allergic people and she has suggestions for alternative ingredients. I checked them out from the local library and have now asked for them for Christmas from my family.

-Kate

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Thanks to all for the help -

a note on the Rice Dream, I've read that it is not considered gluten free

due to it's processing (with oat I think), I used to drink it.

I recently found "hemp seed" by Nutiva for protein - it is not from the illegal plant,

so as long as I can get it - I'm using it.

:D

Alicia

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    • by the way, I do find the lab who does the gluten sensitive test Gluten Allergy IgE Test This test is used to determine if a person has an allergic reaction to gluten, a protein found in wheat, barley, and rye.  Roughly 1 in 30 adults and 1 in 40 children suffer from a Gluten Allergy.  An IgE test looks for antibodies which develop in a person who has a particular allergy.  Gluten Allergy can display symptoms similar to other conditions such as Celiac Disease.  Unlike an allergy, Celiac Disease can do permanent harm to the body if left untreated.  Allergy testing when a person is experiencing symptoms can help identify or rule out an allergy as the cause.

      Gluten Allergy is typically less severe than other Gluten related conditions like Celiac Disease.  People with Gluten Allergy will often experience abdominal discomfort, bloating, gas, constipation, or diarrhea when they eat products containing gluten.  These symptoms usually stop when a person cuts gluten out of their diet.

      A Gluten Allergy IgE test can be ordered to help determine if someone allergic to gluten.  This test can also be ordered when a person is testing for Celiac Disease and has had negative results on Celiac specific antibody tests.  An allergy test can also be ordered prior to Celiac testing to rule out Gluten Allergy as a likely cause for a person’s symptoms.
    • so does it mean a person who carry dq2 or dq8 gene will have high chance to develp celiac disease if they continue to eat gluten or some other stuff trigger it??      
    • I just wanted to share my experience. I started with the endoscopy because I was having symptoms of a hernia + I had a colonoscopy at the same time to test for Chron's. While getting the scope the doctor noticed damage of the small intestine and did biopsies and they came back positive for Celiac disease. We followed up with the necessary blood work to confirm and those all came back like yours, negative, however my genetic testing was positive. So although rare, it is possible to test negative on the blood work and still have damage and be a positive. I don't know why my blood work was off, but I am glad I had the scope first because I would have never known the damage I was doing if I relied solely on the blood work. 
    • You're welcome. Good that you're having the gene test as well. If you DO have the gene(s) then you realize one can present with celiac at any point in life -- any age -- so you would need to be tested like you were, every 2 years in the absence of symptoms. If one develops symptoms then they need to be tested right away instead of waiting for the 2 yr. mark. It's not common, but is possible to test negative on the blood and still have villi damage on endoscopic biopsy. So depending on the results of the gene test....... you might see if your doc will do a endoscopy for you OR you might be what they refer to as something like a pre-celiac where you're not testing positive yet but most likely will soon.
    • Just don't give up.  Good luck and best wishes to you.  Let me know how it's going for you.  Been there, done this.  It ain't fun.
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