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Adding/subtracting Food
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I ordered Chinese food last week. I have been consciously making an effort to avoid Gluten. Well, I went crazy, I had a hard time getting out of bed and getting motivated for work and life. Then I remembered MSG, which has Monosodium GLUTENATE!!! It took me three days of eating leftover Chinese fried rice and General Tsao's chicken to figure this one out. My other symptoms were severe depression, fatigue, anxiety, anger, loss of motivation, apathy and maybe some D when I am Glutened. Last Friday, and since, I have felt much better by watching what I am eating. My family and friends think I am nuts when I tell them this, with the exception of those who have been around people who have had this disease.

This article has really helped me (please read): http://news.bbc.co.uk/2/hi/health/4610998.stm

A professor from my graduate school once said that "small changes make for big changes" and in my case how true. I feel much sharper and more optimistic by something as small as avoiding grains. I am beginning to feel that I have control of my emotions for the first time in my life, 33 years of it. I don't like to blame things, but I guess I can blame a lot of my behaviors on Gluten. I think I tolerate Casein pretty well, still experimenting.

I am thinking of getting Enterolab, but it looks pricey.

Your thoughts and experiences?

BTW, this is a great web-site, I am learning so much!

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MSG is gluten free, however, the soy sauce used in most chinese dishes is NOT gluten free. That would likely be your problem. You could make most of these dishes at home using gluten free soy sauce in the recipe.

Enterolab is a great tool for those who don't have their doctor's support in diagnosis. However, it can only tell you if you're gluten sensitive. It can't diagnose Celiac.

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MSG is gluten free, however, the soy sauce used in most chinese dishes is NOT gluten free. That would likely be your problem. You could make most of these dishes at home using gluten free soy sauce in the recipe.

Enterolab is a great tool for those who don't have their doctor's support in diagnosis. However, it can only tell you if you're gluten sensitive. It can't diagnose Celiac.

yeah, had some soy sauce with it, but maybe I am MSG intolerant as well from the symptoms I read.

question: is Centrum multivitamin Gluten free? I think I had a small reaction to it a couple days ago.

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MSG is controversial, but is gluten-free. Many soy sauces are made from a mixture of wheat and soy. Wheat is cheaper, so the resulting sauce is cheaper if wheat is used. Restaurants are businesses seeking a profit, so they usually use the least expensive ingredients available. Basic economics.

There are are a number of soy sauces available which are truly soy sauces and which contain no wheat. If you are in Canada, VH brand soy sauce is gluten-free and is widely available in grocery stores at a reasonable price. Only in Canada, you say. Pity. :o

Soy sauce in a restaurant, hmmmm.... :blink:

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question: is Centrum multivitamin Gluten free? I think I had a small reaction to it a couple days ago.

The regular Centrum multi is gluten-free, but not all of their formulations are. You would need to call and check for those--their number is on the bottle.

Do you have problems with dairy? The Centrum does contain lactose.

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The regular Centrum multi is gluten-free, but not all of their formulations are. You would need to call and check for those--their number is on the bottle.

Do you have problems with dairy? The Centrum does contain lactose.

I think I have a dairy allergy, in that it causes my skin to break out.

I've read MSG can penetrate the blood brain barrier and cause depression moodiness, is this true?

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oy chineese food is a gluten havan!! i ate stirfrys for 2 days in feb when we had to travel out of town thinking that it was better for me than the burgers. i was sooooo sick, and then i found out there is gluten in all their sauces, and soy sauce, not to mention that im allergic to soy. i make my own stirfrys at home now with no problems. so now we stay away from asian food out at all costs!!

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Like people said, MSG is gluten free, but for me it causes problems. I had beef jerky, no gluten, soy sauce, nothing... But MSG... had D for 2 Days!

I'd say Soy Sauce is probally the culprit.

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    • I think the idea of grinding your own at home stems from the thought that flavored coffees might be ground on the same machines.  The grinders in the grocery are not cleaned between uses.  However, I have not found a flavored coffee bean that had gluten, so it's probably not a real concern.  For coffee that comes from a factory ground, I wouldn't worry at all.   Machines would be cleaned between flavors and nothing but coffee could be made on the machines or even in the same building ( everything made would taste/ smell like coffee). if you still have doubts - I went to the International Celiac Disease Symposium a few years back.  This is held every few years in different countries for medical professionals that study and treat Celiac.  They present research, etc.  All food served was gluten-free.  We drank a lot of plain, already ground, coffee!  A lot!   Coffee is not on any lists as a gluten containing food.  Talking legitimate organizations - not some blogger or pseudo- science website.   After all this, if you still doubt that coffee is gluten free...... Then don't drink it!  It leaves more for me!    
    • To answer some of your questions.... Non celiac gluten sensitivity does not cause any damage to the small intestine so that is not the source of the "little holes or bumps".  You need to get her records including the report of the endoscopy to see exactly what it says as well as the pathology report of the biopsies. You should always get medical records anyway & keep a copy for yourself. How many biopsies did he take? There should be a minimum of 4, ideally 6. The small intestine is very vast even in a small child. An adults is the size of a tennis court! That's a whole lot of territory so biopsies can miss damage especially when enough of them are not taken! She has 2 positives on the serum panel. This crap about "weak" positives should be thrown out of the nomenclature! A positive is a positive, weak or not! Her DgP IGG is way over the range and extremely telling. As far as my knowledge goes, there is nothing else that causes a positive DgP IGG other than celiac disease. False positives are really rare and to have 2 false positives would be astronomically rare! You are right & smart that she really does need an official diagnosis! IMHO, keep her on gluten for right now. Get a second opinion pronto & I believe you'll be able to get her a dx based on the 4 out of 5 rule if nothing else. I wouldn't think it's going to take more than a month to get to see another doc for a second opinion. Then you can take her off gluten. Kids heal up really fast, way faster than us old geezers! I'm sure as others  wake up & get on their computers they will be along to voice their knowledge. I am in the eastern time zone & rise before the birds so I was on here early. Hang in there mom! You're doing the right thing!
    • Now that my initial rage has calmed a tad.... your daughter has to fulfill 4 out of 5 of the diagnostic criteria. Second opinion can do a gene test. If positive, then she will have4 out of 5 of the dx criteria to dx without a positive biopsy. See: http://www.gastro.org/news_items/a-biopsy-should-not-be-required-to-make-the-diagnosis which says in part: The presence of signs and symptoms compatible with celiac disease. Positive serology screening (high serum levels of anti-TTG and/or EMA). Presence of the predisposing genes HLA-DQ2 and/or –DQ8. Histological evidence of auto-insult of jejunal mucosa typical of celiac disease. Resolution of the symptoms and normalization of serology test following the implementation of a gluten-free diet.   Also see: http://www.tenderfoodie.com/blog/2014/5/1/dr-fasano-on-new-gut-autoimmune-research-autism-clearing-up.html She can get a dx after her symptoms resolve on a gluten-free diet!
    • OMG!!!! The doc wants her to get sicker & sicker & do further damage so he can diagnose her? Don't do me any favors doc!!! I'm so spitting med right now I can't even speak! Find a new doc, take the records & get a second opinion. Maybe the next doc will have a freaking brain & dx your daughter. She should be dx'd! This is absurd in the extreme. The very least that should happen is the doc give her a dx now & then in a year or 2 have her do a gluten challenge & do a biopsy all over again but seriously, that would be just as cruel as what he's doing now. He's an ASS!
    • Celiac disease may lead to a host of other inflammatory, gluten-related ... Fortunately, Diet Doc offers gluten-free diet plans which are customized to ... View the full article
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