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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

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I ordered Chinese food last week. I have been consciously making an effort to avoid Gluten. Well, I went crazy, I had a hard time getting out of bed and getting motivated for work and life. Then I remembered MSG, which has Monosodium GLUTENATE!!! It took me three days of eating leftover Chinese fried rice and General Tsao's chicken to figure this one out. My other symptoms were severe depression, fatigue, anxiety, anger, loss of motivation, apathy and maybe some D when I am Glutened. Last Friday, and since, I have felt much better by watching what I am eating. My family and friends think I am nuts when I tell them this, with the exception of those who have been around people who have had this disease.

This article has really helped me (please read): http://news.bbc.co.uk/2/hi/health/4610998.stm

A professor from my graduate school once said that "small changes make for big changes" and in my case how true. I feel much sharper and more optimistic by something as small as avoiding grains. I am beginning to feel that I have control of my emotions for the first time in my life, 33 years of it. I don't like to blame things, but I guess I can blame a lot of my behaviors on Gluten. I think I tolerate Casein pretty well, still experimenting.

I am thinking of getting Enterolab, but it looks pricey.

Your thoughts and experiences?

BTW, this is a great web-site, I am learning so much!

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MSG is gluten free, however, the soy sauce used in most chinese dishes is NOT gluten free. That would likely be your problem. You could make most of these dishes at home using gluten free soy sauce in the recipe.

Enterolab is a great tool for those who don't have their doctor's support in diagnosis. However, it can only tell you if you're gluten sensitive. It can't diagnose Celiac.

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MSG is gluten free, however, the soy sauce used in most chinese dishes is NOT gluten free. That would likely be your problem. You could make most of these dishes at home using gluten free soy sauce in the recipe.

Enterolab is a great tool for those who don't have their doctor's support in diagnosis. However, it can only tell you if you're gluten sensitive. It can't diagnose Celiac.

yeah, had some soy sauce with it, but maybe I am MSG intolerant as well from the symptoms I read.

question: is Centrum multivitamin Gluten free? I think I had a small reaction to it a couple days ago.

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MSG is controversial, but is gluten-free. Many soy sauces are made from a mixture of wheat and soy. Wheat is cheaper, so the resulting sauce is cheaper if wheat is used. Restaurants are businesses seeking a profit, so they usually use the least expensive ingredients available. Basic economics.

There are are a number of soy sauces available which are truly soy sauces and which contain no wheat. If you are in Canada, VH brand soy sauce is gluten-free and is widely available in grocery stores at a reasonable price. Only in Canada, you say. Pity. :o

Soy sauce in a restaurant, hmmmm.... :blink:

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question: is Centrum multivitamin Gluten free? I think I had a small reaction to it a couple days ago.

The regular Centrum multi is gluten-free, but not all of their formulations are. You would need to call and check for those--their number is on the bottle.

Do you have problems with dairy? The Centrum does contain lactose.

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The regular Centrum multi is gluten-free, but not all of their formulations are. You would need to call and check for those--their number is on the bottle.

Do you have problems with dairy? The Centrum does contain lactose.

I think I have a dairy allergy, in that it causes my skin to break out.

I've read MSG can penetrate the blood brain barrier and cause depression moodiness, is this true?

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oy chineese food is a gluten havan!! i ate stirfrys for 2 days in feb when we had to travel out of town thinking that it was better for me than the burgers. i was sooooo sick, and then i found out there is gluten in all their sauces, and soy sauce, not to mention that im allergic to soy. i make my own stirfrys at home now with no problems. so now we stay away from asian food out at all costs!!

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Like people said, MSG is gluten free, but for me it causes problems. I had beef jerky, no gluten, soy sauce, nothing... But MSG... had D for 2 Days!

I'd say Soy Sauce is probally the culprit.

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    • Weird Reaction
      Hi Cristiana, You are quite right, there could be something wrong with the batch. I have often wondered this myself when I've had symptoms. A lot of manufacturers recall products when they find contamination issues, I often wonder though, how many products 'sneak' under the radar and no-one knows for sure; it could be the reason why so many of us wonder what we did to get 'glutened'. 
    • 9 year Old going through testing
      Thank you everyone. I have scheduled a second opinion. He last biopsie came back and he is lactose intolerant.     
    • Gluten ataxia...?
      I was explaining that some people have other trouble that is immune related and caused by eating gluten, but doesn't effect the gut in a noticeable way. According to the paper that I quoted there are some people which have different types of brain problems but don't have inflammation when tested by a biopsy.  The author used the term "non-Celiac gluten sensitivity" to refer to anyone who has any brain trouble that can be traced to gluten but without obvious gut inflammation.  There are a lot of different possible ways gluten can effect the brain some may not be related to the gut.  It could still be an immune system problem.  Normally "non-Celiac gluten sensitivity" refers to just a food intolerance.  Withdrawal symptoms are not normal and could be indicative of an immune system response of some sort, but I don't know for sure.        
    • Weird Reaction
      Hi Richie I've put the above in quotes as you have described in the first and second sentence how I felt six months prior to my DX.   In my own case, in the end I concluded it was anxiety after consulting Dr Google!  It was such an alien feeling to me, I couldn't even think what it was, particularly as life was pretty good at the time.  Anxiety is a problem for a lot of celiacs prior to diagnosis, and often after glutening after going gluten-free. You mention breathlessness, this of course can be for reasons such as anaemia (again a common celiac problem, I had this prior to DX) but of course also can arise if you are anxious.   Re 'gluten free' - Flowerqueen is right, from what I have read on this forum some people really do seem to react with less than 20ppm.    But perhaps some other things to consider...  could there be something wrong with the batch you have consumed?  Might it be worth contacting the manufacturers?   That said, you could , as Flowerqueen suggests, have a problem with another ingredient, in the product or something else you consumed. In the past I have had a terrible reaction - fever, trembling, diarrhea, stomach cramps that lasted up to three hours the last three times I ate..... broccoli, of all things.    Who would have thought that possible?  I have often thought I should try it again, just to be sure it was the broccoli, as it is a 'super food' that I ought to have in my diet, that I like very much, but the thought of having such a reaction again has put me off. I do hope you will find some answers soon.  
    • Weird Reaction
      Hi Richie,  I've not heard of this drink before, as I live in the UK, but any drink made from barley is something you should avoid.  There's a brand in the UK that makes lemon and barley water and orange and barley water and Coeliac UK say it is not safe for people with Coeliac disease.  (Our labelling laws in the UK changed a couple of years ago).  You say the drink you had was under 20 ppm, which is acceptable (usually) for coeliacs, but a lot of people are super-sensitive to gluten even in very small amounts.  I recently had a similar problem with something which was supposed to be okay for coeliacs, but when I checked the website of the product, for all it said there were no gluten containing ingredients, it was produced in an area where gluten was present, which was enough to put me off and must admit, the symptoms you describe sound very much like I experienced at the time.  (Personally I'd be avoiding that particular drink like the plague from now on). One other thing though,  have you checked the ingredients to see if there could be anything else in it which you may be intolerant to? 
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