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Just Curious
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But if gluten isn't the culprit how come all of my symptoms, including the DH I had for more than 20 years, went away when I quit eating gluten? Not that it matters, but I have gotten the flu shot every year (except this year) since I last got the flu 18 years ago. 18 years ago I did not get the flu shot and boy was I sick.

richard

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celiac disease was identified long before the flu vaccine was available.

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I don't do them either, I never have, although I probably should since I am prone to getting some extremely nasty flus. I'm just kind of nervous to have something injected into my body that I've never had before, for fear of allergic reaction or it making me sick or making one of these diseases of mine act up somehow (celiac disease as well as Colitis, and a problem with tachycardia.) Is that even a realistic fear?

Anyway I've never had one...do the rest of you get them?

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I got flu shots in 2003 and 2004 and I was diagnosed with celiac disease in March 2004.

This flu shot theory is interesting to me. I've had celiac disease-like symptoms for years (probably since I was 13 or 14) but most of them seemed to worsen and I developed more celiac disease symptoms after my first flu shot in 2003. The sickest I have ever been with celiac disease was a few weeks after my first flu shot last year.

Just some questions though, are you theorizing that someones first flu shot in 1999, 2001, or 2003 (or the first one in 10 years) may trigger celiac disease? or make it worse? and why those years?

I'm interested to see the results of your study!

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i can definitely say no flu shot "gave" me celiac. never had one, got diagnosed when i was 18.

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In response to the question as to whether or not the flu shot could trigger Celiac Disease, the answer to your question would be, "No." However, flu shots do contain thimerosal, which does contain mercury. Ammonia is there, too.

Depending upon the batch you received, sources outside the US will tell you that there was a higher than normal level of Thimerosal in the years I mentioned. Going on that premise, I was merely in search of something that would explain for the response in Cytokines and an open ended reaction with Nitrogen, as it would relate to Celiac Disease. I am merely looking for some further supportive evidence for my larger theory once I have it wrapped up. Thanks for your responses.

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;) never had a flu shot here either :( sometimes i wish i had, but not yet :) deb
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    • I thought I would update you all.  I started to eat gluten shortly after this post.  I was miserable by the time I had my EGD.  The doctor gave a diagnosis after the EGD was completed, duodenitis, gastritis and hiatal hernia.  I had abnormal mucosa of the whole stomach and severe inflammation.  The biopsy results came back today, they stated early stages celiac disease.  I wonder what it would've shown if I wasn't on a gluten free diet for two years?  My doctor said he still wants me to come in for a talk, he doesn't really know if he should call it celiac disease since it's early stages....  WTH!  I've really got to find a doctor that specializes in Celiac Disease...    
    • thank you for the info, its very helpful to hear from someone else who has it and knows a lot about it. When you say I may be eliminating one problem vs 3, what would you think the other problems could be? It's frustrating because I even buy Uldis gluten-free bagels and what not and I still find myself reacting sometimes to that, I don't use butter but just gluten-free peanut butter, but like I said I don't know for sure if its from that or maybe something else. I have read on this site about a couple others that have had issues with uldis breads so could be that. but like you said I guess it can also just take awhile to get better. I read the other day that a lot of throwing up can put stress on your small intestine which can maybe cause your body to react to dairy, do you know anything about that or if that's true?
    • Thanks for the reply!  Yeah, I really should have gotten testing done before the elimination diet.  I had asked my previous doctor, but she didn't want to do it.  I was transitioning to a new insurance and couldn't get a doctor's appointment for awhile, so I thought I would just do the elimination diet.  After all, it might not have been gluten.  (<--that was my thought process...) Hindsight is 20/20.  I felt pretty good during those 3 weeks gluten free, and was not expecting how bad it would be when I added it back in.  Anyway, I found a new doctor and I think she would totally be willing to test me again 9 weeks out. I think she would also be willing to order the endoscopy if I brought her research and really pushed for it. Now that I know how good feeling good feels... I just can't see staying on gluten for another 9 weeks.  I honestly don't know how I would survive.  Even if it's not Celiac, and it's ONLY the wheat allergy... it's making my life absolutely miserable. Thanks again for the reply!  I think I'll go in Friday for the blood test and take it from there.
    • Hi Alok, I suggest not eating any soy.  Soy is one of the top 8 food allergens in the USA.  Soy has other things about it that are not helpful to us.  Plus it is often sprayed with pesticides that are not so great for people.  Maybe you can try some other food for a while?  Also it might help to wash all your vegetables before using them. Just some ideas, I hope they help.
    • What she said!     The antibody panel is an important part of follow-up!
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