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Celiac.com Celiac Disease & Gluten-Free Diet Forum: How About Probiotics? - Celiac.com Celiac Disease & Gluten-Free Diet Forum

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How About Probiotics? Wondering which of these ingredients might be causing a celiac disease Rate Topic: -----

#1 User is offline   The Lovebug 

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Posted 14 June 2007 - 11:32 AM

I recently started taking probiotics but by the second day was having the old gas/bloating/cramping/nausea/diarrhea reaction which I used to get when consuming gluten. At first, I thought it was just the probiotics doing a job on my GI system, so I continued taking them for another day or so when it suddenly occurred to me to look at the list of ingredients for the capsules. I couldn't find anything on the label which was included in the list of no-nos on this website, but I stopped taking them anyway. Here are the ingredients: L. acidophilus, B. longum, digestive enzymes, Microcrystalline cellulose, gelatin, palm oil, glycerin, soy lecithin, pectin, magnesium stearate, silicon dioxide. Does anyone see anything in the ingredients which should be causing my trouble?

Thanks.

Sue
Self-diagnosed in 2004 after 6 years of hell. Doing well on gluten-free diet, but still having occasional bouts of accidental glutening. Message board has been a godsend. Have been on since 2004 as "grannynanny," but couldn't recreate password and was shut out, having to re-register in 2007. Update: Gastroenterologist wanted to do genetic test for celiac (Mar 2008). Results showed genetic marker on G8 -- one of two genes identified as Celiac.
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#2 User is offline   Ursa Major 

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Posted 14 June 2007 - 11:40 AM

Maybe the soy lecitin? I've heard here that sometimes you feel worse before you feel better when taking probiotics. Maybe you need to try them for longer, or maybe you need to try a different brand to see if it works better.
I am a German citizen, married to a Canadian 29 years, four daughters, one son, seven granddaughters and four grandsons, with one more grandchild on the way in July 2009.

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#3 User is offline   Nancym 

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Posted 14 June 2007 - 12:42 PM

It might be the digestive enzymes. I know someone else posted that their digestive enzymes were grown on wheat, yet the manufacturer didn't include that info on the label.
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#4 User is offline   Guhlia 

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Posted 14 June 2007 - 01:21 PM

Probiotics can be very hard on sensitive stomachs. I can't take them. They make me very ill, just like I'd been glutened, even if they're gluten free. I have no other intolerances.
~Angie~

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#5 User is offline   Phyllis28 

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  Posted 14 June 2007 - 01:22 PM

I use Source Naturals Daily Essential Enzyes Digestive Aid. I find them at Wild Oats.

The bottle says "contains no yeast, dairy, egg, gluten, corn, soy or wheat. Contains no sugar, starch, salt, preservative or artificial color flavor or fragrance.

I don't have any problems with it.
Phyllis

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#6 User is offline   hez 

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Posted 14 June 2007 - 02:16 PM

I statted taking probotics about a month ago and feel as if they are the best! However, mine say gluten-free on the bottle. I would try another brand that are gluten-free and see if you feel better. I swear by mine.

Hez
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Posted 14 June 2007 - 03:24 PM

I would call the manufactorer about it!

But When I started taking them I talked to my boss about it....she did say that I could possibly get D/bloating/gas ect from them as they are "flushing" the bad stuff out of my system! So it makes sense that you would feel yucky at first. But all of this depends on making sure your probiotics are gluten-free!
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#8 User is offline   The Lovebug 

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Posted 14 June 2007 - 06:37 PM

View Posthez, on Jun 14 2007, 06:16 PM, said:

I statted taking probotics about a month ago and feel as if they are the best! However, mine say gluten-free on the bottle. I would try another brand that are gluten-free and see if you feel better. I swear by mine.

Hez


Can you tell me the brand of probiotics you are using and where you got them? Thanks.

Sue
Self-diagnosed in 2004 after 6 years of hell. Doing well on gluten-free diet, but still having occasional bouts of accidental glutening. Message board has been a godsend. Have been on since 2004 as "grannynanny," but couldn't recreate password and was shut out, having to re-register in 2007. Update: Gastroenterologist wanted to do genetic test for celiac (Mar 2008). Results showed genetic marker on G8 -- one of two genes identified as Celiac.
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#9 User is offline   hez 

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Posted 14 June 2007 - 07:27 PM

Sue,

I picked up mine at Whole Foods in the refrigerated vitamin area. The ones I picked up are Mega Flora. I was feeling bad before I started on them and I fell so much better when I take them. My gi doc and I have no idea why they are working, we just know that they are. There were a ton of probotics that were gluten-free. Some were more expensive and some cheaper. I hope you feel better.

Hez
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#10 User is offline   The Lovebug 

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Posted 15 June 2007 - 07:29 AM

Thanks. I'm no longer close to a Whole Foods, so I'm somewhat limited in what I can find. However, I did get online with www.drugstore.com last night and found a probiotic made by Natrol which is called Natrol Free. It claims to be gluten-free as well as free of many other allergens (wheat, dairy, etc.).

Thanks for all your comments and suggestions.

Sue
Self-diagnosed in 2004 after 6 years of hell. Doing well on gluten-free diet, but still having occasional bouts of accidental glutening. Message board has been a godsend. Have been on since 2004 as "grannynanny," but couldn't recreate password and was shut out, having to re-register in 2007. Update: Gastroenterologist wanted to do genetic test for celiac (Mar 2008). Results showed genetic marker on G8 -- one of two genes identified as Celiac.
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#11 User is offline   KAG 

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Posted 15 June 2007 - 09:37 AM

I have tried MANY MANY MANY different probiotics. I know that a lot of them are not dairy free and I have a big problem with dairy. Some have worked for me and some did not. I was just reading somewhere that not all types of probiotics will work for everyone. I think that it is definitely worth trying to find one that works for you.
Kim

Irritable Bowel Syndrome 1995
Candida Problems 1996
Low Thyroid 2001
Gluten Free 2002
Dairy Free 2007
Egg/Onion/Garlic Free 2007
SIBO (self diagnosed) 2007
SCD since October 2007 and starting to feel better than I have in years!
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#12 User is offline   The Lovebug 

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Posted 20 June 2007 - 04:53 AM

Just thought I would update all of you who offered comments and suggestions. I did email the manufacturer (I ordered them from drlark.com) and received the following response:

This product contains no added sugar (sucrose, fructose, lactose), salt
(sodium chloride), yeast, wheat, gluten or milk. There are also no
preservatives, artificial colors or artificial flavors.

I'm beginning to think it was the soy, and am about to go to another board, where I saw references to soy intolerance.

Thanks again.

Sue
Self-diagnosed in 2004 after 6 years of hell. Doing well on gluten-free diet, but still having occasional bouts of accidental glutening. Message board has been a godsend. Have been on since 2004 as "grannynanny," but couldn't recreate password and was shut out, having to re-register in 2007. Update: Gastroenterologist wanted to do genetic test for celiac (Mar 2008). Results showed genetic marker on G8 -- one of two genes identified as Celiac.
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#13 User is offline   rinne 

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Posted 20 June 2007 - 05:17 AM

It might be the gelatin capsules, we've talked about this on the OMG 1200 pages + thread. Rachel has said that she does better when she opens the capsules and takes the supplement in water instead.

I know when I first got ill I couldn't tolerate anything in capsule form but I am now able to take a probiotic that is in a non GMO vegetarian capsule.
A family with Celiac disease, two brothers and two sisters.

Lyme Disease, Diagnosis October 19, 2006

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#14 User is offline   lovegrov 

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Posted 20 June 2007 - 05:28 AM

The ingredients look OK although I'd still call the company. The primary lesson in the post is, however, do not just start taking or eating something without at least reading the ingredients. And if you're not sure once you're read the ingredients, call the company.

richard
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#15 User is offline   lovegrov 

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Posted 20 June 2007 - 05:30 AM

The ingredients look OK although I'd still call the company. The primary lesson in the post is, however, do not just start taking or eating something without at least reading the ingredients. And if you're not sure once you're read the ingredients, call the company.

richard
Celiac.com - Celiac Disease Board Moderator
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