Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

They Messed Up The Samples On My Daughters Biopsy


Electra

Recommended Posts

Electra Enthusiast

They sent the wrong skin samples for the opposite testing, so my daughter screamed and cried and got emotionally scarred for life with the IV's and crap and they have to re-do the damn biopsy. She has a scar now that I didn't even want her to have and now they tell me that she will have another one. I'd like to scream right now UG!! What in the hell are these people thinking? If you do a test like this on a 2 yr. old you better get it right the first time around. The doctor assures me that the hospital will pay for the tests since they messed it up, but I don't care about that part I care about my daughter going through that ordeal again and about her having another scar on her little body. This is just absolutely rediculous. Why don't they just diagnose her with DH already and just call it good. CALGON take me away LOL!!

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



JennyC Enthusiast

That is absolutely horrible!!! They should pay for more than the second test! You should be able to request/demand that they give her gas (nitrous oxide?) before they insert the IV. She will be totally out and will not even feel the IV. Since she will be asleep an anesthesiologist will need to be present. They should have no problems accommodating your request. If I were you I would demand that she be asleep, even if she has to get the procedure done somewhere else. Poor little girl. :(

Link to comment
Share on other sites
Phyllis28 Apprentice

That's terrible.

I do not know if the medicine still exists, when my son was little the doctor prescribed a topical cream that we put on and covered about an hour before any needles. It numbed the area so the needle would not hurt.

Link to comment
Share on other sites
Izak's Mom Apprentice
That's terrible.

I do not know if the medicine still exists, when my son was little the doctor prescribed a topical cream that we put on and covered about an hour before any needles. It numbed the area so the needle would not hurt.

it's called EMLA cream - it's a topical anesthetic. you put it on for an hour beforehand under an occlusive dressing (like saran wrap) and then the area is totally numb for a couple hours.

Link to comment
Share on other sites
janelyb Enthusiast

If it were me they'd be hearing from my lawyer once I had hired a good one. And actually if she responds to the diet once you start that is proof enough than a 2nd biopsy.

Link to comment
Share on other sites
iluvbread Newbie

Seriously, I would have them pay for their screw up and not take her back. Just take her off Gluten. I have life long phobias from early childhood experiences like these. So I would not be inclined to do it again. You get one chance with me and then I'm done.

If you do have them redo it, make sure they knock her out lightly.

Link to comment
Share on other sites
Electra Enthusiast

Thanks everyone for the support. She has actually had the cream before and it didn't help at all. She's only 2 and a half so the fact that they are holding her down to stick a needle in her outweighs any chance that she may not even feel it. She just freaks out because they are trying to hold her still and stab her, so she's not reacting to the pain as much as them doing things to her that scare her.

The anesthesiologist told us that the medicine they gave to sedate her didn't work in her case and that next time he recommends they give a quick shot that will put her completely out and then after she is out they put the IV in. He said he would not recommend EVER putting an IV in again with her awake, because it will traumatize her.

I haven't made a decision on weather I will allow her to have another surgery or not. I guess it depends on if she ever breaks out as bad as she did the first time. That is the only time we've ever seen it get that bad and it's been very mild since, so I'm hoping it's not DH and it's just something she'll grow out of, but only time will tell.

Thanks again for all the support and advise!!

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Fiddle-Faddle Community Regular

I would not recommend a biopsy if the outbreak is not very bad. I had one that turned out negative (and left me with two HORRIBLE scars) because I had been on Prednisone the month before and had been gluten-free for a month--and the doctor didn't tell me that that would screw up the results. In my case, I believe that it WAS DH because I have not been able to find another cause for a totally symmetrical-on-both-arms blistering oozing rash and my IgG was through the roof.

I agree with everyone else that you should contact a lawyer. Scarring a child and putting her through major stress for nothing because the doctor screwed up is clearly malpractice.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Bayb replied to Bayb's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Trying to read my lab results

    2. - Aussienae replied to Aussienae's topic in Coping with Celiac Disease
      65

      Constant low back, abdominal and pelvic pain!

    3. - trents replied to mishyj's topic in Coping with Celiac Disease
      3

      Why?

    4. - trents replied to mishyj's topic in Coping with Celiac Disease
      3

      Why?

    5. - mishyj replied to mishyj's topic in Coping with Celiac Disease
      3

      Why?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,219
    • Most Online (within 30 mins)
      7,748

    SoCalSuzy
    Newest Member
    SoCalSuzy
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Bayb
      Hi Scott, yes I have had symptoms for years and this is the second GI I have seen and he could not believe I have never been tested. He called later today and I am scheduled for an endoscopy. Is there a way to tell how severe my potential celiac is from the results above? What are the chances I will have the biopsy and come back negative and we have to keep searching for a cause? 
    • Aussienae
      I agree christina, there is definitely many contributing factors! I have the pain today, my pelvis, hips and thighs ache! No idea why. But i have been sitting at work for 3 days so im thinking its my back. This disease is very mysterious (and frustrating) but not always to blame for every pain. 
    • trents
      "her stool study showed she had extreme reactions to everything achievement on it long course of microbials to treat that." The wording of this part of the sentence does not make any sense at all. I don't mean to insult you, but is English your first language? This part of the sentence sounds like it was generated by translation software.
    • trents
      What kind of stool test was done? Can you be more specific? 
    • mishyj
      Perhaps I should also have said that in addition to showing a very high response to gluten, her stool study showed that she had extreme reactions to everything achievement on it long course of microbials to treat that.
×
×
  • Create New...