Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

How To Deal With Family Members That Don't Believe
0

16 posts in this topic

I have been gluten-free since June 25, 2004. I have gotten sick 5 times - twice at resturaunts & 3 times at my in-laws.

Both my husband & I have a hard time talking to my mother-in-law about celiac. I don't look sick, so I am not. She also maintains she has been cooking a certain way for years & will not change. "She has to learn she will get sick sometimes & just deal with it". We ask what is in the marinates....and she will lie to my face.

I have tried giving her short informational articles, but they end up in the garbage. I doubt she reads them. We gave them a bag of groceries that I couldn't eat, all new & unopened. She was 'just use it up, don't give it away".

We are at the point we will not eat at their home anymore. The upcoming holidays are making this very difficult. This year Thanksgiving will be at our home (my father & brother also have celiac), and she made comments on the gluten-free Thanksgiving. She nicely offered to bring HER stuffing, even if we can't have it. I declined for cross-contamination reasons. She is now bringing a salad - which we will not eat.

Any suggestions on how to get through to her? She really believes I am just trying to get attention.

0

Share this post


Link to post
Share on other sites


Ads by Google:

Any chance your husband can intercede on your behalf?

Mom 2 2

0

Share this post


Link to post
Share on other sites

I take all my own food - stop by a grocery store and pick something up you can cook when you get there.

My grandmother was the same way when she was alive. She thought it was all in our heads - my dad, her son, is diabetic and she would just roll her eyes, make funny noises, strange comments and we would move on and go to where we could eat anyway.

Luckily everyone I am around either thinks I am just weird or belive me but they all support me. I refuse to eat where I will get sick. She cannot force you to eat, I understand the under-currents and everything, sometimes you just have to push or, as you are currently doing, refuse to go there to eat. They will either finally get it and fix something you can eat or not.

Do NOT make yourself sick.

-Kate

0

Share this post


Link to post
Share on other sites

They should make this a part of celiac diagnoses.

What to do when your family doesn't believe you.

It is easier for me to come to this conclusion, my daughter who is 2 also has celiac. Anyone who would give her something to eat that is not thinking in her best interest is harming her. You wouldn't sit back and let a child be harmed, so don't do it to yourself.

Family is not supposed to make "those comments" or potentially hurt you.

Spend the holidays with those you love and love you.

Laura

0

Share this post


Link to post
Share on other sites

I would say that it's time to realize that you can't get through to her (some people are stubborn that way), and that nothing she offers you to eat is guaranteed to be safe. In your house, you have every right to decline that she brings anything, so you can even tell her to scratch the salad. You know what you have to do to stay healthy, and what she thinks about doesn't really matter at all.

0

Share this post


Link to post
Share on other sites




I have the same problem with my husband's parents and his 7 brothers and sisters who all are married and with children and bringing food to the parties. It took the last 5 years and an ultimatum for them to accept the peanut allergy, and now we are learning of my son's celiac diagnosis. This should be fun, especially with the worst sister who is an emotional bully who likes to confront me at the parties. She's the know-it-all who doesn't want to hear about it, yet "plays dumb" when she brings peanut desserts. I don't expect any cooperation from them whatsoever, so I plan to bring all of his meals to the future parties. So you can basically say that I gave up banging my head against the wall and talking to deaf ears, and they can stare and tell all the extended relatives all the stories they want about how unneccessarily fanatical I am. As far as I'm concerned, they are selfish, self-absorbed people who have great difficulty placing themselves into other's shoes.

0

Share this post


Link to post
Share on other sites

roxyk,

Oh, my heavens! Your mother-in-law sounds like mine--especially the part about being convinced that I am just being a hypochondriac to get attention! My kids both have celiac disease, too, and my mother-in-law has expressed the desire to "talk" to their pediatrician (with the intent, no doubt, of explaining that the doctor shouldn't trust anything I say about their alleged "reaction" to gluten and should rely instead on her assurance that the boys are totally healthy!). This is ridiculously hysterical to me, because my in-laws live in a different state! They get to see the kids for maybe a week a couple of times a year! Of course, my older boy did stay with them for a three-week visit once before we had put the pieces together and realized he had celiac disease, but so what? Does that mean that they know "the truth" about my kids' health, and I don't? Needless to say, they won't be keeping the kids again--no matter how angry they get about it!

I am SO glad I don't have to deal with my in-laws often--especially since I am not "permitted" to bring food into their house, as it is "insulting." This doesn't stop me from doing it, but it does precipitate fights. My husband has so far chosen to be absent from our confrontations, and it is actually very painful for me that he won't tell his mother when she's crossed the line. (His father is also passive, so I really shouldn't be surprised....)

I haven't figured out what to do. I want to keep my kids out of her house at all costs, but she would throw a fit (and I am pretty sure my husband would side with her). I have had so many accidents in the past month just from plain old bad luck (like a contaminated batch of canned salmon, of a brand that I have eaten without problems for over a year) that I have no intention of eating anywhere I can't be sure is safe, and her kitchen is definitely NOT. I am thinking that I may have to refuse to visit over the holidays and just send the boys with their father. This would at least put the onus of keeping them gluten-free on him, for a change--unless he decided to lie to me about it. It would be out of character for him, but I am actually very reluctant to trust him about this. He seems to think that 1.) he owes his mother respect (which is laudable), and 2.) respect=deference/obedience. In other words, if she wants to feed my kids pancakes, well, it is her house.... It also doesn't help that none of our celiac disease has been biopsy-proven, so he's not even 100% convinced that gluten harms the kids (especially my older boy). I guess he shares his mother's belief that parental insight and clinical improvement on the gluten-free diet mean nothing; only specialized medical tests can establish that gluten is problematic for them.

So, like I say, I don't really know the best answer to my dilemma. I brought it up in therapy once, and my therapist responded, "Why do you have to visit them?" A good question. If only our kids weren't tangled up in the whole mess, it would be a whole lot easier to declare that we will visit only on the condition that I be able eat gluten-free meals (whose preparation is either done or supervised by me), without any derogatory comments (blatant or subtle).

Sigh. I wish I had an answer for you--or for me!

--Sarah

0

Share this post


Link to post
Share on other sites

Wow. I am so glad to see I am not alone.

I will give my husband credit. He tries. He has made lots of trips to their home to specifically discuss it. Bringing food to their home is not an option. She said that is "insulting - I just need to learn to deal with it".

I think we will just stick with the avoidance, until they someday (hopefully) learn.

0

Share this post


Link to post
Share on other sites

I should mention, my mother-in-law is a therapist.

0

Share this post


Link to post
Share on other sites

Sarah, your situation is nearly identical to mine except slightly worse as my in-laws live 5 miles away. My mother-in-law was sweet enough to ask the question, "is this genetic?" at the dinner table of 12 seated at a wedding shortly after my diagnosis. When I responded 'yes' she replied, "oh that's just great." My husband rarely says anything in my defense either. He's gotten a little better, but not enough where I feel protected by him. His father is the passive observer, his mother is the tyrant. I finally had to tell my mother-in-law how it was and how it was going to be in order to preserve my sanity and safety. I gave her a copy of the Wheat Free Worry Free book too (my sense is that she never has read a single page.)She freaked out and told the entire family I was an awful, terrible, disrespectful person (that's putting it nicely and without the profanity:). If she is confronted she yells louder to try and divert the attention away from the fact that she is the one doing the wrong. But when the dust settled, things have been just as I stated they should be. She doesn't like me and says bad things about me, but at least she respects me more now in regards to how things are with Celiac. It hurts knowing that his family thinks I'm this overconscious, paranoid, crazy person...when in fact I'm not. What I learned is that if your husband won't stand up for you, you have to stand up for yourself. Will there be repurcussions? Of course. But people who have no compassion or concern for the well-being of others will never change. So it's best to change how you react to them. Take solace in the fact that you are not alone in your experience. I know exactly how you feel...and sending a hug your way as I feel your pain!

0

Share this post


Link to post
Share on other sites

My situation is almost the opposite here. Me and my three kids are all on the gluten-free diet (hubby goes along with us) so we have a completely gluten-free house. I have a sister and a nephew (from a different sister) that have it but don't really "worry" about being gluten-free (the nephew is 7, so it's his parents <_< ) Anyway, whenever we visit, any of them, they ALL go on about how they have the same symptoms I have had and just KNOW they must have it, too, but just CAN'T imagine following a gluten-free diet... UGH! UGH! UGH! They ask me all the questions, I tell them anything they want to know, they are amazed that my kids won't eat all the cr*p their kids eat in front of them, but then, months later, they are still eating pasta every night and complaining about their kids and their own symptoms. I feel like this is a terrible example for my kids and am getting totally fed up with them, too. My 6 year old has to explain that, no, she can't have a sandwich because it makes her sick, when they've been told over and over.

Oops, sorry about the rant.

0

Share this post


Link to post
Share on other sites
:D for now, i am very lucky where family is concerned--my sister is also celiac and she is a dietician to boot--she is also a great cook and she experiments with recipes until she gets the right flour mixture that makes them taste like the wheat alternative :P --at family dinners there is always lots of things we can have plus things we cant and thats ok ;) --the others should beable to have the things special to the season that we cant--my grandkids should get to have old fashion sugar cookies and stuffing in their turkey :D --it does cost more to fix much of our foods, so i dont mind if there are items i cant have--i just enjoy the ones i can :P --the only time i do get upset is when someone offers me something and then doesnt want to tell me what is in it :angry: then they are offended if i wont try it--oh well ;) happy holidays to all of you--i am hoping this will be one of my happiest seasons ever :D deb
0

Share this post


Link to post
Share on other sites

I'm a lucky one, too. My inlaws are good about trying to understand the wheat free thing. Sometimes my MIL forgets little things like to have corn tortillas instead of wheat tortillas when she has us over for dinner, but I understand because I think it's an honest mistake. I've tried to break the news gently to those close to us by just saying, "It seems that Cyphar has a problem with wheat. He has diarrhea when he eats it/ it hurts his intestines." Everyone I have said that to has taken it very well and they try to make adjustments. He doesn't have "severe" reactions when he does get a little wheat, so I don't feel like I need to be too hard on myself or him when he accidentally gets a pretzel or froot loops from a little buddy. It takes several days of 100% gluten-free to get his stools firm again-- in fact his stools have been not firm for about 2 weeks because of the number of accidents. But his behavior is good, so I am not worried. I hate trying so hard to keep him gluten free and then I see him with a mouthful of goldfish in church. But I know that the less he has, the better his health, so of course I don't ever give him anything that I think might be contaminated. Anyway, I'm a little off the subject now.

0

Share this post


Link to post
Share on other sites

Sounds familiar! I have only known that I am Celiac for a week and when I told my Mother-in-law her response was "Oh well, just about everybody has that these days". We are going to visit them in a few months, and I have no idea how to cope with them while there. My mother-in-law is very insensitive obviously, so explaining to her the nature and effects of this disease is pointless. The more I deal with this, the more I feel like just keeping this to myself for fear of people scrutinizing me.

0

Share this post


Link to post
Share on other sites

Twister2,

If someone said that to me, I would respond "Yeah, you're right about that. But the difference between me and everyone else is that I am committed to getting and staying healthy, and the only way I can accomplish that is by staying totally gluten-free. It's not particularly convenient, but my health is the most important thing to me!"

Maybe you could fire off a similar retort?

--Sarah

0

Share this post


Link to post
Share on other sites

Hi,

Oh my gosh, reading your comments reminds me of just how many times over the past 30 years or so I have had to defend myself in terms of food. Of course I didn't know that Celiac was the reason I was always sick, at first, so those around me just thought I was some kind of eccentric freak who liked trying new and different foods (I would try almost anything if I thought it was going to help me stop wheezing with asthma). During those days I would get sick and lose 20 pounds, then start eating wheat again and gain 25 pounds, over and over, until I finally got tired of ending up in the hospital, and became serious about eliminating certain foods in an effort to capture that ever-elusive good health.

Some people would grimace and offer rude remarks, but I learned to just turn around and keep trying to find some kind of peace and good health, so I could realize all my hopes and dreams.

Last Christmas I bought Enterolab diagnosis kits for all my close family members. Some never even took the test, but my sister and brother did, and my sister has Celiac (she's had thyroid cancer already). I'm the only one who sticks to the diet, and I am able to outpace even the youngest of workers at my job, or wherever I may go. I got the Enterolab test when my youngest grandson couldn't keep down his formula at birth, and the test diagnosed that he was Celiac as well. I babysat him 5-6 days a week for his first 11 months, and diligently avoided all those poisonous foods. Then his mother decided to put him in daycare, and decided that he didn't really have Celiacl, so she now feeds him all those foods I worked so hard to keep away from him.

I captured a stool sample the last time I changed his diapers, and sent it off to Enterolab to verify once again that he does have Celiac. His doctor at Kaiser did a blood test or some kind of test and said it came out negative. I will keep trying to help those around me find good health, no matter what. It is a matter of life and death, after all. Welda

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,366
    • Total Posts
      917,513
  • Topics

  • Posts

    • What Are Your Brands & Flavors Of Gluten Free Ice Cream ?
      I don't worry about the same facility, but I check if it is on the same lines. I think it is usually a good idea to find out if things are made on shared lines. And if they are made on the same line as gluten-containing products how good is the cleaning in between? Chocolate is a good example of this. For example, I contacted a company whose chocolate I used to eat before being diagnosed and they outright told me they are not good about cleaning on shared lines and it is not safe for allergies or celiac. I have had this response from other companies as well (especially when it comes to chocolate sadly). I think this is why Godiva is not safe. Its just a good idea to check.
    • TRUSTING OTHERS about GLUTEN! how do you know if someone has used gluten free flour?
      Wow you all have more balls than I do. I've been gluten free since 2007 and I'm still afraid of offending people. It gives me lots of troubles, really. I'm more like rockstarkate I guess...the "people pleasing" aspect.  I love how you all just have the flat out rule I Will Not Eat It Unless I or a Celiac Made it. (Or a trusted family member).  I still simper and grovel and cringe and apologetically turn things away.  People still put dishes in my face and say "This should be gluten free..."  and I have to awkwardly not eat it and then seem rude.  I've done the whole...checking the bottles thing too.  I do try to dart out of things more though now. I volunteered in other countries in recent years and I felt as vulnerable as all heck, having to rely on them to make food, as well as definitely feeling like I offended people who didn't get it at all. I was feeling brave when I signed up for those but after the second time I was like okay, the fear/anxiety/stress about the food is too much. I managed to dodge out of getting sick, and for the most part people humored me...but it was pretty difficult because I don't like offending people, especially other cultures, with them trying to be nice and make food for me...pretty sure I did offend people as well as annoy many others.  Anyway...no OP, you are not alone. For sure I have trust issues eating other people's food. They say they know but I do truly doubt they are as strict as I would be.   A few times I will still brave eating something...like some little mozzarella balls with vinegar...though, I did still look at the labels.  Someone had to give me a persuasive speech and show me all ingredients (just salt and pepper) after making me chicken wings once. I do tell people, basically, NOT to make me stuff. But they still do.  Another time a friend had worked really hard and was having a terrible time and offered me a burger patty when I arrived, assuring me it was gluten free. I knew I hadn't been there to watch whether she used the "bun spatula" on it or not...but I just didn't feel like giving her a fight about it since she was having a rough time and hosts like to feel they are feeding guests, blah blah. So I ate it. And got glutened. And wailed and gnashed my teeth haha. Lesson learned.  I need to stick to my guns more. I just always feel like I'm being too "difficult" as it is. But...sigh.  It is refreshing for me to read these empowered no BS responses though. You all remind me of where I'm coming from, and not that I'm just being some kind of high maintenance, rude, crazy person. You'd think after, what, nine years now, I wouldn't still be bothered by it...
    • Mashed potato soup during healing
      I was on pretty much a liquid diet for 8 months waiting for my nausea to go away completely. I mostly had mashed potato soup, 1/2 fat ice cream (mostly whey, not milk), chocolate drink (no added milk) and gummy vitamins. The soup tasted yummy and I'm still alive so I figured I'd share it for people not feeling well in the beginning. I've been noticing people with alot of trouble keeping food down in recent posts. I couldn't have milk or eggs, but the cheese in the recipe didn't bother me at all. Notice the lack of spices. Makes it easy on the stomach.   Mashed potato soup: Boiled yukon gold potatoes (5lb bag) 1 package cauliflower, steamed 4-6 slices of Land O'Lakes white American cheese 4 tablespoons butter salt 16 cups homemade chicken broth, salted   Chop steamed cauliflower into teensy bits (pureed is better). Put in mixer with butter, cheese and a potato or two. Blend while slowly adding potatoes. Keep whipping for a few minutes to insure the cauliflower and potatoes are not lumpy at all. Salt to taste.   Combine 1/2 cup mashed potatoes to 1 cup salted chicken broth. Mix with spoon until mashed potatoes have completely dissolved. Enjoy. Individual servings can be frozen.   Homemade chicken broth: makes 8 - 10 cups of broth   1 organic chicken (regular chickens are too big) 1 stalk celery 1 carrot 1 large bay leaf 1/2 package fresh thyme from the  herb section of the vegetables area   Put all ingredients in pressure cooker along with 1.5 liters water. Bring to pressure. Cook for 35 minutes. Separate broth from solids. Separate broth from fat. Add ridiculous quantities of salt until it tastes like soup. Sorry I use a salt grinder so I don't have precise salt quantities.    
    • I have kidney stones...spent last night at the ER
      Hey ArtG, I saw the urologist today...unfortunately for me they can still see my stones on an xray.  Sigh.  The largest is 3x6 in my right kidney.  He does not believe I can pass this one on my own.   All of my bloodwork came back fine.  Nothing alarming in the urinalysis either. His recommendations...keep drinking tons of water.  I had 4.2 liters of urine output when I tested.  Add in a fish oil supplement.  Decrease sodium intake.  Limit meat to 10 ounces per day.  Increase dietary calcium.   Work at lowering oxalate consumption...my urinary oxalate was 45.  They want it between 20 and 40.  But he gets people that are over 100 so mine is not all that high. 3 options...1. watch and wait.  Recheck in a few months to see if there is stone growth.  2. Shock wave lithotripsy.  3. Let it come out when it decides to and see what happens. I just don't know.  I hate the idea of being put under as they would do for the shock wave thing.  I've had too many surgeries already.  It scares me to be honest.  I also don't want to deal with another episode.   I don't know what I'll do.  We've got a vacation planned at the end of the month and I just want to go and enjoy that.  Not worry about kidney stones. I'm sorry to hear about your upcoming surgery...it really is always something!
    • celiac disease is psychosomatic
      I know what food products are. Probiotics was a recent example I saw on the news about things labeled gluten free that were not gluten free. So, supplement labels in addition to food labels.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
    • ukuleleerika

      Hello! I am new to this Celiac website... Is there anyone out there with Celiac AND extensive food allergies? My allergies include shellfish, dairy, eggs, cantaloupe, kiwi, mango, nuts, oranges, red dye, and more I can't think of. I went to the allergist about a year ago to see why I wasn't feeling well, and once everything was eliminated, I still didn't feel well. We did more testing to find out I had celiac as well as allergies to cattle as well as rye grass (I live on a farm basically). This was back in January 2016. I recently had my endoscopy with the gastroenterologist a week ago. I have no idea what to do or what to eat... So fish and potatoes for me!
      · 2 replies
  • Who's Online (See full list)

    There are no registered users currently online

  • Member Statistics

    • Total Members
      60,513
    • Most Online
      1,763

    Newest Member
    ajrosales
    Joined