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My Dh Is Back! Advice?
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When I received my diagnosis of DH six months ago, I became gluten-free and everything cleared up right away. Suddenly I have the DH on my elbows and I seem to have hives in strange places. I can't trace anything I might have eaten recently. Does anyone know if DH can just flare up even if I've been gluten-free (with very few mistakes) for 6 months? How long does it take the antibodies to go away? How long after a gluten accident does DH appear? I have never been on dapsone but I'm thinking about discussing it with my dermatologist. Advice? Help?

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I don't have DH, and I'm sure others who do will respond with some great advice, but thought I'd have a go based on what I've read.

Do carefully check anything that goes in your mouth or on your skin for gluten and the hidden varieties of gluten. It's SO easy to overlook something that we usually don't think about. And, I've read, iodine is important in the process of the IgA deposits creating the skin lesions, so the advice there was to reduce iodine in the diet (particularly cutting out iodized salt) until it clears up.

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I hadn't thought about iodized salt. I have been eating tortilla chips a lot. I guess I have to watch more than gluten. Thanks for responding TIffany.

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From what I understand, that's only while there's gluten in your system and DH lesions. Once it's cleared, you don't have to be as careful about iodine any more. But try googling DH and iodine and see what you see for better information than what's left in my brain. ;-)

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Peggy,

For me the DH appears when I have had a known gluten item. For example,I had a 1/2 of a donut this weekend (sunday afternoon in fact) and on Tuesday evening became awre of the DH rash starting on my arms. So now and in the past my reaction time seems to be 48 hours.

I have been gluten-free since June and can say with very few mishaps ... but this donut on my dinning room table was more than I could handle.

My dermatologist gave me a topical cream to use in case of flareups (Lociod lipocream). My goal was to never need to use the cream. When I broke out this week I went on over yesterday to his office for a biospy to confirm what it was.

I hope you find what casued your DH to flareup.

Melissa

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I'm pretty sure the gluten I got was in some ricola throat lozenges and some teas I was drinking when I had a cold. I didn't even look at the ingredients, because it's my first gluten-free cold! Now I know to be more careful. The DH cleared up pretty well after about a week. Thanks for your replies.

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    • I just now saw the second reply and I see what you mean. Again, the issue is that I may have to go with the gluten until close to the end of the year.

      However, an idea did just come to mind, and that is, can my primary care doctor do such a test? I had normal blood work done, but they didn't really say anything about testing for celiacs. I can get an appointment with my primary care doctor much sooner than a GI.

      When I was talking to my PCP last, I asked her what I should expect as far as testing goes or what she may have been concerned about. Her reply was about a HIDA scan for the gallbladder but also any test needed in case of IBS or Celiacs. Just the way she threw that in there like an after thought and left me hanging kinda had me worried.
    • I am not a doctor that's for sure.  So, I can't even answer your questions.  If you know you have pre-diabetes, you probably are working with a doctor.  Can you email them and ask for a celiac blood panel?   You can work on the weight loss and diabetes -- that you can handle yourself now and take action.  I have diabetes and my glucose readings are fairly normal now without medication and I'm thin.  Being overweight does not cause diabetes.  It's either autoimmune (type 1) or you become insulin resistant (type 2).  You can cut out all sugar and  processed stuff ASAP to help take action and start walking 10,000 steps (helps with the insulin resistance).    But the prediabetes is not going to kill you in the next year.  Whatever's in your gut is more likely going to get you much sooner.  But heck, I'm not a doctor and I don't even know you!    
    • Hi Steph, Yes, celiac disease can cause a myriad of symptoms and damage to the body,  Have you completed all celiac disease testing?  Usually they do the blood antibodies test first and then do an endoscopy.   You shouldn't go gluten-free until all testing is completed. Gluten is in many processed foods.  But if you stick with whole foods it is not hard to avoid gluten.  Getting used to eating gluten-free may take some time, as we need to adjust our preferences in diet.  But there are many foods that are naturally gluten-free.  Gluten is the protein found in wheat, rye and barley.  Some celiac disease organizations recommend avoiding oats also for the first 18 months of the gluten-free diet. Celiac disease impairs the ability of the body to absorb nutrients (including vitamins).  That can make it hard for the body to maintain itself and heal/repair damage.  So celiac can easily impact any part of the body. Sardines, tuna, mackeral and salmon have good amounts of vitamin D in them.  There are supplements available also, but not all are good.  You can check them at the labdoor website.  Nature Made is a good one and not expensive.  Internal damage from celiac can cause liver issues.  Those will probably clear up after being on the gluten-free diet a while. Recovery from celiac can take  months, and can be a rocky road.  The more you stick with whole foods and avoid cross-contamination issues the sooner you will heal IMHO. You may find that dairy causes problems for your digestion at first.  But it make stop being a problem after you have healed up some. welcome to the forum!
    • Will this be dangerous considering how long I have to wait for any testing? I may not even get a blood test in November but here is hoping. I just worry having to wait so long will cause serious issues, not to mention delay of weight loss which I need for the pre-diabetes. Do ulcers have a chance to cause yellow stools though? I suppose a stool test will be needed for that for any signs of blood in stools but visually it does not seem so. The biggest issue is not knowing what else could be causing the yellow stools as this would not be a diabetic or ulcer thing. And without negative signs on the gallbladder or liver, it is narrowing down the list.

      At the very least this is making me assume I can wait on a final scan of gallbladder and attempt blood tests and endoscopy if they recommend it.
    • The first step is getting a celiac blood panel.   Any medical doctor can order one.  Live near Chicago?  They are do free screenings this month (check their website).  The cost is less than $400 for the complete panel.  If you get a positive on any one of them, then you should be referred to a GI for an endoscopy to obtain intestinal biopsies.   Here's more information from a reliable source and not just some lady on the internet: http://www.cureceliacdisease.org/screening/ Having had my gallbladder removed (probably ruined from undiagnosed celiac disease, but I don't know that for sure), I would recommend a HIDA scan.  I have no idea how expensive that one is.  It's a nuclear test that checks for functionality.  Basically, is your gallbladder squeezing bile into your small intestines when those fries or bacon come down the tube.  Mine happened to actually be rotting (infected).  ER suspected appendicitis, but it was a rotten gallbladder.  I never had any stones (that's what the CT or the ultrasound can find).  I am sorry that you are ill.  Keep eating gluten until all testing is complete.  This is important.  Go gluten free now?  Here's why you shouldn't..... http://theceliacmd.com/2013/04/six-reasons-to-test-for-celiac-disease-before-starting-a-gluten-free-diet/  
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