Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Diseases Related To Celiac?
0

9 posts in this topic

Hi. I'm a fairly recently diagnosed celiac. I have, in the last 3 months heard of 2 women who suffered both celiacs disease and polycystic ovarian syndrome. I too suffer from both of these conditions. Does anyone know if there has been any research or speculations as to a relationship between the two? Is there any other women out there with both who might have some information. My doctor just scoffed and paid no attention to my query.

Thanks, Izzy

0

Share this post


Link to post
Share on other sites


Ads by Google:

:o Dear Izzy,

I too have wondered if there might be some kind of connection between Celiac and female problems. Please allow me to explain. My mother (celiac) had uterine cancer. My sister (celiac) had breast cancer. This along with 3 women celiacs for each man sort of makes me wonder what if anything the hormones do to change cells. I have not seen anything about this but you know that some doctors think they are God and haven't a clue about things so they get real upset if you question them. Keep searching, there are good doctors and answers for all of us out there. God bless, Royann

0

Share this post


Link to post
Share on other sites

Hi- I have been diagnosed with Celiac for close to 7 years now- I have several other diseases that "go along "with celiac. Asthma, Diabetes, IGA deficiency, Interstisial cystis.

Terry :huh:

0

Share this post


Link to post
Share on other sites

Some women have also found a link between celiac and vulvodynia.

0

Share this post


Link to post
Share on other sites

i also have pcos. i don't know if there's any sort of connection. but, i know that the incidence of irritable bowell syndrom appears to be higher among pcos'ers, so there might be. if you want, you can send me a pm, and we could chat about it.

c-

0

Share this post


Link to post
Share on other sites




I'm yet another celiac with PCO syndrome. I discovered I was a coeliac in 2000 and have had bouts of cysts since then. However, I have only recently discovered that my gluten-free diet wasn't as gluten-free as I thought. No pain since starting the stricter diet but its only been a couple of months.

I have been doing quite a bit of research lately into gluten intolerance and its related diseases and I am sure I came across a connection between the two. However, at the time my focus was on another connection with coeliac disease and so put it aside. If I find it I will let you know. Otherwise, general infertility problems are well documented. There's a book called Dangerous Grains which summarises most of the known or suspected connections of gluten intolerance and other health problems including infertility. Also, a google search can be great and can even lead to the primary literature in the medical journals - perfect ammunition to arm yourself with when next you visit those doctors too lazy to do their own research and/or too arrogant to accept information from patients.

0

Share this post


Link to post
Share on other sites

Hi. I am a brand new member and I actually got on this board to find out this exact thing...I have type II diabetes and am 34 years old. Unusual as I was diagnosed when I was 32 and most Type II's are age on set as well as over weight. Not my case...I have not had the Celiac blood panel run yet but am going in on Monday. I have actually been using a gluten-free and wheat free diet for about 5 days now (had some slip ups along the way) and my sugars are much more manageable and I feel better. My grandmother had an allergy to gluten and wheat but as far as we know was never technically diagnosed with Celiac. She was also a Type II diabetic (age on- set). Is there anyone out there that is an early diagnosed type II and has Celiac? I found alot of correlation with Type I and Celiac but not so much info on Type II and Celiac. Strange, but I almost hope it is Celiac - atleast I would know what is wrong with me and get on the track of recovery. Also, does anyone out there with Celiac have gallbladder problems?

Thanks

Leslie

0

Share this post


Link to post
Share on other sites

Hi Leslie. Welcome to the group. I wanted to say that I understand about wanting to have celiac disease. I have a 7 page health history which begins at birth and I was 55 on Thursday. After a diagnosis of chronic fatigue, fibromyalgia, low thyroid/low adrenal, IBS, and sinus/allergy and still not well it would be SUCH A RELIEF. Keep us posted. My blood test was negative which doesn't mean anything. I'm awaiting the results from a simple stool test from enterolabs. A much more accurate test. Best wishes. Hugs, Carol B

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,655
    • Total Posts
      921,621
  • Topics

  • Posts

    • I never worried about cross contamination because i was originally told i was just intolerant. after going gluten free i felt so much better up until this last march. dairy and fructose have been giving me problems but both lactose and fructose test came back negative.  this is what my gi doctor emailed me today 
    • Any place you know of to find more info? Seems like I am still in so much pain/bloat, I am not even sure if I would pick the right 5 foods!
    • Don't freak out worrying about other maladies yet. You would be absolutely amazed at the things that can/will resolve on the gluten free diet. Some take longer than others -- neurological seem to take the longest for most people but really, I guarantee, there will be things you had no idea or expectation of resolving will. There were tons for me and then there were things I sort of "woke up one day" & said, "hey, that's gone and that & that & that". Other, larger things had taken my attention so I hadn't paid attention to the smaller things until...... On the other hand, not everything is related to celiac but I bet you wouldn't find a handful of celiacs who didn't say something very similar to what I said above. Yes, thyroid problems are common with celiac but I'll also tell you there are/have been people on here who were hypothyroid before dx but after being gluten-free for a while they actually went back to normal thyroid numbers. My husband is one (yes, we both are celiac - it happens). He was on synthroid for 20 years or more. Guess what? He's not on it anymore. We've had his thyroid panel done several times since about a year gluten-free & he is no longer hypothyroid. 
    • Yes please, that'd be awesome Having a fun time trying to reply on my phone due to broken screen but will be back on tomorrow after results of doctor appointment to get to the bottom of why they've given me seemingly wrong advice re: next steps. Yup I'll admit to pity, anger, frustration and outright fear, been through the mill of emotions in this first week that's for sure. One thing before I go for that; back when I was self-diagnosing I wanted a full thyroid panel (T3, T4 etc.) and also ESR & CRP checks for vasculitis and similar maladies. Now it seems from my reading they can often follow celiac so my worry level of those has gone up a notch, more blood tests ahoy it seems? Main reason for worrying about those is the nearly constant tight / tender head I have at the moment. Top and sides of scalp. Could be the stress tensing the shoulders and occipital muscles at back of head but after the celiac diagnosis being missed I'm fearful of anything else being missed. Did anyone else have this tight head feeling at the start? Feels like the skin is being pulled inwards, sometimes goes down for a few minutes here and there and gets worse when sitting I think. I see the term "brain fog" a lot but luckily don't seem to have too much of that at present, this is more a physical sensation.
    • I don't have a lot of faith in the allergy testing naturalpaths do. I had them done, but really it wasn't very helpful. Foods that were okay on the blood work- I was still having obvious reactions to. Skin testing through an allergist didn't show up food allergies either. I agree the food elimination diet is a better way to go and doesn't cost a bunch of money. I did a whole 30 diet a while back that could have been helpful if the foods I reacted to were corn, dairy,  soy, grains and sugar- but I react to more than that.  I do need to do a major elimination diet- just haven't gotten up the willpower yet.   
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,655
    • Most Online
      3,093

    Newest Member
    bentcreekmom
    Joined