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Celiac-disease Testing
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I'm new here, and unsure of I have celiac disease, but the symptoms seem to be matching up. After 3 months of various digestive issues, and a handful of doctor appointments with no success. After a day of nothing but bagels (thinking plain mundane food) I've gone gluten free for roughly over a week. Although, not strictly as I have been learning after the fact what has gluten and what doesn't by trial and error. However, my symptoms have GREATLY improved and I have felt almost normal again. This leads me to request a celiac testing by my physician. My question is, must I be consuming gluten for this test to be accurate?

These are my following symptoms,

abdominal cramping (more localization on left side)

diarrhea (and or constipation)

naseau

fatigue

cold sensitivity (possibliy anemia)

Does anyone else suffer from this and even after a bowel movement at times feel worse?

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You must go back to eating gluten for the tests to be accurate. You haven't been gluten-free enough for long enough to skew it yet, but you need to start eating it again. Fatigue is THE most common symptom of celiac disease.

richard

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Yes, you MUST be consuming a fairly decent amount (about the equivalent of three slices of bread a day) of gluten for a while before getting tested.

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Richard,

Thanks so much for the reply! I really hate to skew it if I can convince them to test me. Ahh, nice big wheat bagels, and a nap heading my way!

Thanks,

Dana

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If you get inconclusive results after being on/off gluten and are not sure, you need to think about testing via Enterolab in Texas. I got a negative blood test while eating gluten from the doctor's office and tested positive for gluten and casein intolerance while not on gluten from Enterolab. The test is done in your home by you, sent overnight to them and and I got my results in less than two weeks via email. I am very happy with the professional treatment and trust them completely. I bought the complete kit which included gene testing which was revealing as now we know where my granddaughter who has full blown celiac disease for five years now, got it.

Barbara

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If you have private insurance it will go up if your diagnosed. I would use

the unoffical entrolab (spelling) rather than the doctor blood test.

Ps you sound like a classic celiac to me.

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Celiacfreeman, Thanks for the information. Luckily my group health insurance through work is pretty good and paid fully within the company. I'll keep that in mind when I switch insurances in the future.

Now here's an odd question for all those diagnosied "celiacs" out there. Does an odor change in your bowel movements arise? I've noticed now being back on wheat (and mind you that's a joy when it hits my system!). But it tends to smell similar to copper almost. Does anyone else notice this?

Thanks for all of the wonderful information and support, this is a great forum!

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:huh: Well, to keep everyone posted, I saw my PCP today. She is scheduling me an appointment with a GI specialist, to confirm that I need a sigmoidoscopy(sp). I'm so sick of appointments!! But at least I may finally get some answers. And luckily this hospital has a specialist in Celiac Disease, and I should get to see them for this consult.

Back on gluten, and feeling tired. Not too much cramping or diahrrea, maybe I am wrong?

Well wish me luck everyone, and thanks for the informative posts. :D

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    • hey! Wondering if I can get some good info/help from you guys! I just signed up for this website couple weeks ago. Whenever I would Google things this was always the first to pop up and I always found info on things I googled. I am pretty new to the gluten free thing. I had a hernia surgery back in Jan and after that I kept throwing up after eating, the DR. told me it was probably acid reflex caused from surgery but all the meds I tried nothing helped. I went back and was told to cut gluten out. I have been doing so since. When I first started I felt like I had it under control and didn't throw up for 3 weeks, now I find it happening more often. I do buy gluten-free things and read labels to the best I can. My frustration comes from not knowing what its from. How do you know if its from the day before or what you just ate? I hate not knowing. Especially when I haven't had gluten (or so I think) I have been keeping a journal but I just find it so hard. I get this feeling in my stomach and can feel it in my throat. Sometimes I puke once sometimes 5 times! Yesterday for lunch I made an omlet with chicken mushrooms and feta cheese. I threw up almost 20 min after. I have also tried the no dairy thing and it doesn't seem to make a difference so I don't think dairy is an issue as well.
    • I have been on a gluten-free diet for exactly one-year. During that time, I have had no stomach issues or problems when I inadvertently ingested gluten. The other day, I had GI discomfort (no vomiting or diarrhea) and my blood pressure spiked t0 200/98 (normally 119/75). As my GI discomfort subsided, my pressure crept back to normal. This took about 16-hours. I know that I ingested something with gluten, which I had thought was gluten-free.  It never bothered me before. Should I expect that the longer I'm gluten-free, the more susceptible I will be to having a pronounced reaction to inadvertent gluten exposure? Has anyone else had similar experiences with blood pressure spikes?
    • If this is helpful: My local public library had a copy of Breaking the Vicious Cycle by Elaine Gottschall.  There is a Facebook group, I believe it is easily found by searching SCD Diet, and it's a closed group.  If you go directly to the official website of Breaking the Vicious Cycle, there's lots of information for free available, including the basics about the intro diet and beyond.  I would go to the original source of this diet rather than go to other groups/books who have perhaps veered away from Elaine Gottschall's fundamentals. Best wishes to you!
    • AdrienJ, thank you so much! I dream of traveling more one day. I have spondylitis too. I'm so glad that a gluten free and casein free diet is helping you feel your best!
    • Hi Lisa, I completely understand why you didn't do a biopsy on your daughter.  I went through the appendix thing myself...not fun!  I was diagnosed with just bloodwork and no biopsy, but did have the full panel.  I would go back to your PCP and ask for a full panel to include TTG, EMA and DGP tests.  Since she was already willing to test you, I'm sure she would be willing to order these.  Good luck!
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