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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Anyone Else Have This?
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8 posts in this topic

Hi all, I am just wondering if anyone else has headaches with muscle weakness, difficulty concentrating and coordination problems. For the past few days I have had these symptoms and its beginning to scare me. I have not yet gone gluten free because I have not had my biopsy yet. My blood work was positive though. I am just wondering if this is part of Celiacs or something else!

Thanks! :)

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Yep. Had those symptoms. Went to the hospital for the headaches they were so bad. Had severe muscle cramps in my legs too.

Laura

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;) yup--me too, had those symptoms--i have had headaches all my life though so it is sometimes hard to determine if it's a regular headache, a gluten problem, stress--i do have the difficulty concentrating :( deb
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Yes, I have had headaches, muscle weakness, and difficulty concentrating. It's not very fun.

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Yup. My coordination and muscle pain and weakness was so bad they looked at MS, Carpal Tunnel, peripheral neuropathy, RA, lupus etc.

They found nothing. I feel it is hormonal because going on the bc pill helped but the only other thing that helped were several bouts with predinisone. I am almost to the point to look in further again.

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;) i keep reading the post in here and i do have to say that when i look back i do believe the worst i felt started just after taking the birth control pills--my ex wanted a daughter so much and after our third baby i decided i would go through pregnancy one more time trying for a girl--i was always sick when pregnant, by the time i found i was pregnant i had decided i didnt want anymore babies, that 3 were enough, but :P i was already pregnant with our 4th son and i was so sick the whole pregnancy, i was anemic the whole time and borderline gestational diabetes B) so after him i decided to go on bc pills--i got so sick with them and became pregnant with our last child--i cant say now that i was disappointed about having her :D --i finally had my baby girl and she was so precious :D --i have always told her that she was a wonderful surprise, never an accident ;) ---now when i look back, the bc pills may have been my trigger too, if not, they sure pushed me along--deb :(
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I had all those symptoms. For years we thought I had ms but the mri wasn't showing lesions - we were stumped. I could barely walk down the stairs or carry my son. The headaches were horrible. I couldn't bear the sun or any kind of heat either.

I went through that for years - sometimes it would subside, but then it would come back again. It all disappeared on the gluten-free diet - just a day into it I felt better immediately, and i've been fine ever since (aside from some gluten mishaps that send me to the toilet - a symptom i NEVER had BEFORE!)

-donna

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Ive been gluten-free since Feb04 and had all of those complaints and more. They did improve when I started the diet but I still find myself very fatigued all the time. I have to work hard at comsuming enough calories daily with the limited things I can eat.

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    • Will my doctor test me? So many symptoms...
      Remember that you have to be eating a normal gluten diet for the testing so don't cut back & don't stop eating it. Make sure they do the full, current celiac panel: Anti-Gliadin (AGA) IgA
      Anti-Gliadin (AGA) IgG
      Anti-Endomysial (EMA) IgA
      Anti-Tissue Transglutaminase (tTG) IgA
      Deamidated Gliadin Peptide (DGP) IgA and IgG
      Total Serum IgA   
      Also can be termed this way: Endomysial Antibody IgA
      Tissue Transglutaminase IgA 
      GLIADIN IgG
      GLIADIN IgA
      Total Serum IgA 
      Deamidated Gliadin Peptide (DGP) IgA and IgG
    • Will my doctor test me? So many symptoms...
      Yep, get tested for celiac.  You have plenty of digestive symptoms to indicate it.
    • Weird Reaction
      Hi Richie, It definitely sounds like you got glutened.  Over here in the USA they can't label foods gluten-free if they are made from gluten ingredients, period.  So your barley drink would not be labeled gluten-free here.  A while back I read something about the testing for gluten in foods not being as accurate for detecting barley hordein as it is for wheat gliaden.  So the gluten-free testing (if they do any) that your drink maker does may not be reliable. Celiac disease is an autoimmune condition.  So the immune system starts reacting when it detects gluten and damages the gut lining.  An immune reaction is not like a food poisoning event, where most of the damage is only while the food is actually in your system and then ends.  An immune reaction can continue for weeks to months.  The immune system is really quite serious about protecting our bodies.  And since it is designed to detect and attack micro-organisms it reacts to tiny amounts of gluten. Wheat, barley, and rye are the main gluten grains that affect celiacs.  But some celiacs also react to oat gluten.  
    • Weird Reaction
      Hi Richie,  Glad you are feeling better. I wondered have you been officially diagnosed with coeliac disease? Just wondering as you say you are anaemic, that is one of the symptoms of coeliac disease, along with other general malnutrition. You don't need to eat meat for iron though, you can get it from non-heme foods, like spinach or parsley. Just be careful with the drink with barley, it may be that you only start to have symptoms if you consume a lot of it, but if you have coeliac disease the damage is still been done to your gut regardless of whether you have symptoms or not, which will ultimately lead to malnutrition as well as other things.
    • Weird Reaction
      I think, if all this is caused by glutening, it could be that it takes a while to work its way out of your system. I should explain about what I said about organic broccoli.   I don't have a problem with organic food,  in fact, I buy organic milk and carrots all the time, but I don't want to try organic broccoli in case it is the broccoli that is the problem, not the insecticide.    I meant to ask, are you a coeliac or is it non-coeliac gluten intolerance that you have?   I wonder what sort of support you get in Australia for these conditions once diagnosed?   Here in the UK I think the understanding is that if new gastro symptoms have lasted for more than six weeks it needs to be investigated.   I have found this very helpful advice because I do get odd twinges of pain and sometimes changes in bowel movements (sorry if tmi) but they rarely last more than a couple of weeks.   If they do persist I mention it to my gastroenteroligist and he follows it up.  I recently had a sigmoidoscopy for left sided pain and they found nothing.  Turns out it was to do with lactose intolerance, but I always imagine the worse!    
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