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Anyone Else Have This?


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7 replies to this topic

#1 Twister2

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Posted 26 October 2004 - 04:06 PM

Hi all, I am just wondering if anyone else has headaches with muscle weakness, difficulty concentrating and coordination problems. For the past few days I have had these symptoms and its beginning to scare me. I have not yet gone gluten free because I have not had my biopsy yet. My blood work was positive though. I am just wondering if this is part of Celiacs or something else!

Thanks! :)
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Antibody positive, diagnosed October 2004.
Mother and two sisters with Celiacs also
Edmond, Oklahoma

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#2 mommida

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Posted 26 October 2004 - 04:35 PM

Yep. Had those symptoms. Went to the hospital for the headaches they were so bad. Had severe muscle cramps in my legs too.
Laura
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Michigan

#3 darlindeb25

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Posted 26 October 2004 - 06:27 PM

;) yup--me too, had those symptoms--i have had headaches all my life though so it is sometimes hard to determine if it's a regular headache, a gluten problem, stress--i do have the difficulty concentrating :( deb
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Deb
Long Island, NY

Double DQ1, subtype 6

We urge all doctors to take time to listen to your patients.. don't "isolate" symptoms but look at the whole spectrum. If a patient tells you s/he feels as if s/he's falling apart and "nothing seems to be working properly", chances are s/he's right!

"The calm river of your life approaches the rocky chute of the rapids - flow on through. You are the same water. The rocks cannot hurt you. Remember, now and then, that you are the water and not the boat. Flow on!

#4 Carriefaith

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Posted 27 October 2004 - 11:49 AM

Yes, I have had headaches, muscle weakness, and difficulty concentrating. It's not very fun.
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Carrie Faith

Diagnosed with Celiac Disease in March 2004
Postitive tTg Blood Test, December 2003
Positive Biopsy, March 3, 2004

#5 Guest_missyflanders_*

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Posted 27 October 2004 - 02:59 PM

Yup. My coordination and muscle pain and weakness was so bad they looked at MS, Carpal Tunnel, peripheral neuropathy, RA, lupus etc.

They found nothing. I feel it is hormonal because going on the bc pill helped but the only other thing that helped were several bouts with predinisone. I am almost to the point to look in further again.
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#6 darlindeb25

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Posted 27 October 2004 - 03:17 PM

;) i keep reading the post in here and i do have to say that when i look back i do believe the worst i felt started just after taking the birth control pills--my ex wanted a daughter so much and after our third baby i decided i would go through pregnancy one more time trying for a girl--i was always sick when pregnant, by the time i found i was pregnant i had decided i didnt want anymore babies, that 3 were enough, but :P i was already pregnant with our 4th son and i was so sick the whole pregnancy, i was anemic the whole time and borderline gestational diabetes B) so after him i decided to go on bc pills--i got so sick with them and became pregnant with our last child--i cant say now that i was disappointed about having her :D --i finally had my baby girl and she was so precious :D --i have always told her that she was a wonderful surprise, never an accident ;) ---now when i look back, the bc pills may have been my trigger too, if not, they sure pushed me along--deb :(
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Deb
Long Island, NY

Double DQ1, subtype 6

We urge all doctors to take time to listen to your patients.. don't "isolate" symptoms but look at the whole spectrum. If a patient tells you s/he feels as if s/he's falling apart and "nothing seems to be working properly", chances are s/he's right!

"The calm river of your life approaches the rocky chute of the rapids - flow on through. You are the same water. The rocks cannot hurt you. Remember, now and then, that you are the water and not the boat. Flow on!

#7 Donna F

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Posted 28 October 2004 - 12:08 PM

I had all those symptoms. For years we thought I had ms but the mri wasn't showing lesions - we were stumped. I could barely walk down the stairs or carry my son. The headaches were horrible. I couldn't bear the sun or any kind of heat either.

I went through that for years - sometimes it would subside, but then it would come back again. It all disappeared on the gluten-free diet - just a day into it I felt better immediately, and i've been fine ever since (aside from some gluten mishaps that send me to the toilet - a symptom i NEVER had BEFORE!)

-donna
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#8 llj012564

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Posted 29 October 2004 - 07:44 AM

Ive been gluten-free since Feb04 and had all of those complaints and more. They did improve when I started the diet but I still find myself very fatigued all the time. I have to work hard at comsuming enough calories daily with the limited things I can eat.
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