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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

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2 posts in this topic

I hope you have some information for me. My daughter had colic when she was a baby, Iron free formula, soy formula, colic drops and up all night. As she grew it subsided. Several years ago I suspected she was lactose intolerant. We took her for the breathing test at the hospital and her readings came back that she was border line intolerant. 10 minutes after she drank the liquid they gave her she ran, and I mean ran to the bathroom with diarrhea. I think that made the results pretty clear. We have been treating her for the problem ever since. She uses as much dairy free products as possible and takes lactaid tablet, milk, ice cream etc.

She is still having a problem with stomach aches and ocassional unexplaned diarrhea. In addition to this she gets chunks of regergetation comming up on her periodically. She gets heartburn, nausia and head aches more than I think a 12 year old should have. There may be more symptoms that I just havn't retained from all the reading that I have done. She has an appointment to see a pediatric GI doctor.

I have had diarrhea problems as long as I can remember in my childhood. But it wasn't on a regular basis. 13 1/2 years ago when I had my son I became lactose intolerant. I have alot of the same symptoms as my daughter. Heart burn, Migrains, unexplained diarrhea (no dairy)

My main reason for thinking that we don't have celiac disease is the weight issue. I wouldn't call either of us fat but thin we are not. A lot of what I read is about people with a problem gaining weight. I have never had this problem. In fact it is hard for me to loose weight. I eat a lot of carbs and so does my daughter.

Does anyone have any info on this aspect of it? Non thin people with celiac disease?

Thank you to anyone who can help us.

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To The 2 of us.

You report symptoms that apear to be related to Celiac. Only a doctor can make that determination. Your concern about weight is really a non-concern. Many celiacs report that they were not bone thin. I too had difficulty losing weight all of my life. I believe it might be our bodies protecting us from the antibodies that we develop. It is not uncommon to develop lactose intolerance before bloating, gas, etc. The absorbtion of the lactose takes place, as I understand it, at the end of the villi. (the little fingerlike projections that absorb nutrients from the food into the intestine) Since the ends of the villi become damaged first, the lactose intolerance is noticable before other symptoms of glucose intolerance. Since this is as yet undiagnosed, it might be advisable to share w/ your md your concerns but do not allow yourself to be put off. You need to be tested especially since this seems to be a genetic problem. Frequently mothers of celiac children say that they were colicky babies. I don't know if that is true or just some passed on information. Unfortunately, doctors may not be as up on this disease as they would like. Perhaps others here can give you more information. In any case, good luck and God bless you 2. Royann :rolleyes:

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    • Will my doctor test me? So many symptoms...
      Yep, get tested for celiac.  You have plenty of digestive symptoms to indicate it.
    • Weird Reaction
      Hi Richie, It definitely sounds like you got glutened.  Over here in the USA they can't label foods gluten-free if they are made from gluten ingredients, period.  So your barley drink would not be labeled gluten-free here.  A while back I read something about the testing for gluten in foods not being as accurate for detecting barley hordein as it is for wheat gliaden.  So the gluten-free testing (if they do any) that your drink maker does may not be reliable. Celiac disease is an autoimmune condition.  So the immune system starts reacting when it detects gluten and damages the gut lining.  An immune reaction is not like a food poisoning event, where most of the damage is only while the food is actually in your system and then ends.  An immune reaction can continue for weeks to months.  The immune system is really quite serious about protecting our bodies.  And since it is designed to detect and attack micro-organisms it reacts to tiny amounts of gluten. Wheat, barley, and rye are the main gluten grains that affect celiacs.  But some celiacs also react to oat gluten.  
    • Weird Reaction
      Hi Richie,  Glad you are feeling better. I wondered have you been officially diagnosed with coeliac disease? Just wondering as you say you are anaemic, that is one of the symptoms of coeliac disease, along with other general malnutrition. You don't need to eat meat for iron though, you can get it from non-heme foods, like spinach or parsley. Just be careful with the drink with barley, it may be that you only start to have symptoms if you consume a lot of it, but if you have coeliac disease the damage is still been done to your gut regardless of whether you have symptoms or not, which will ultimately lead to malnutrition as well as other things.
    • Weird Reaction
      I think, if all this is caused by glutening, it could be that it takes a while to work its way out of your system. I should explain about what I said about organic broccoli.   I don't have a problem with organic food,  in fact, I buy organic milk and carrots all the time, but I don't want to try organic broccoli in case it is the broccoli that is the problem, not the insecticide.    I meant to ask, are you a coeliac or is it non-coeliac gluten intolerance that you have?   I wonder what sort of support you get in Australia for these conditions once diagnosed?   Here in the UK I think the understanding is that if new gastro symptoms have lasted for more than six weeks it needs to be investigated.   I have found this very helpful advice because I do get odd twinges of pain and sometimes changes in bowel movements (sorry if tmi) but they rarely last more than a couple of weeks.   If they do persist I mention it to my gastroenteroligist and he follows it up.  I recently had a sigmoidoscopy for left sided pain and they found nothing.  Turns out it was to do with lactose intolerance, but I always imagine the worse!    
    • Will my doctor test me? So many symptoms...
      Welcome, @iwillmoveamountain! Of course you are not wrong to pursue getting testing for celiac. My advice is to drop that doctor and find a new one, preferably one who is celiac savvy, and who will listen to you and test you for the disease.  
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