Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Help Celiac.com:
    eNewsletter
    Donate

Bloating, Weight Gain, Cramps Dreading The Dr Runaround Again


terridavis11

Recommended Posts

terridavis11 Newbie

I've been gluten free now for a year and a half, my daughter's been gluten-free for a year now. In the past 3-4 weeks I've been experiencing sudden onsets of severe abdominal pain, constant bloating, nausea, vomiting, fatigue. At first I thought it was a stomach flu than maybe stress. I studied my diet and found no triggers lactose, soy, corn, and really feel that this feeling is different than the previous celiac symptoms My biggest issue is having to deal with the dr's. I was diagnosed by a specialist in rheumotology after pure frustration with my dr. severe joint pain, fatigue, and just in general feeling crappy. My daughter was diagnosed as having IBS by her doctor and I had her tested thru enterolab and found she had a gluten sensitivity. Since following a gluten-free diet she is doing well physically and mentally (she made high honor roll when previously she struggled to maintain a 80 and was diagnosed Learning Disabled. She has since been declassified)

This october I watched my father die from complications from celiac and had to advocate for his best treatment in the hospital and explain to his dietician what he could eat and not eat. Some people and dr's were very understanding but others were basically horrible.

I guess my question is Is anyone else feeling as frustrated as I am? or had similar symptoms. My last dr visit ended with my dr. saying "well your symptoms are complicated and we need to do further tests?" for once I'd like to have something easy go wrong and not to have to wait for tests only to wait for more tests and more tests. I honestly thought all that was over with...

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor

Welcome Terrydavis,

Without a concern, you would not have found you way here. I would recommend that you read as much as you can from these posts. They hold an emense amount of knowledge and research. All you would want to know about Celiac is here on this side.

Triggers for Celiac are not always known to us, but most are pre-disposed.

If you have has a sudden onset of symptoms, you need to revisit what you eat and everything that goes into your mouth, including shampoos, lotions. New meds need to be checked through the manufacturers. After you have done that and symptoms are constant, you may want to pursue further testing. Not all roads lead to Celiac, and may can morf into other things.

An informed doctor can be helpful.

I am glad that you daughter has been successful and tip the nose to those who thought other wise.!

Is this frustrating, yeah, there are 15,000 on this site alone. 3 million people in the US alone, that we know about.

You do not stand alone.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      120,465
    • Most Online (within 30 mins)
      7,748

    Tra9
    Newest Member
    Tra9
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      Welcome to the forum, @LimpToeTheTimeless Bone growth plates close in the late teens to early twenties, so it's doubtful you'll grow much taller, but you may start to bulk up in muscle.  Remember to boost your absorption of vitamins and minerals needed to build muscle by eating a nutritionally dense diet and supplementing with essential vitamins and minerals, especially Thiamine B1, to counteract the malabsorption caused by Celiac Disease. Keep us posted on your progress! References: The effects of endurance training and thiamine supplementation on anti-fatigue during exercise https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4241913/ A functional evaluation of anti-fatigue and exercise performance improvement following vitamin B complex supplementation in healthy humans, a randomized double-blind trial https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10542023/
    • B1rdL0ver
    • shadycharacter
      Fermentation breaks down some of the gluten in wheat. Nowhere enough for a wheat dough to become gluten free, but the gluten may be significantly reduced. I think some pizzerias make the dough the day before and leave it overnight. The longer the microbes are acting on the flour, the better.
    • LimpToeTheTimeless
      I am M 21 and I diagnosed myself after a week of fasting and slowly reintroducing stuff in my diet except gluten, I had terrible eczema scars ,dandruff and brain fog, now I am free after 6 years of just pain, I am 6'2, will I grow taller? And since I am a gymnast will my muscles grow like quicker, cause before no matter how effort I put in I just couldn't. 
    • trents
      And the fact is, no two celiacs will necessarily respond the same to gluten exposure. Some are "silent" celiacs and don't experience obvious symptoms. But that doesn't mean no harm is being done to their gut. It just means it is subclinical. 
×
×
  • Create New...