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Request #3


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8 replies to this topic

#1 BamBam

 
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Posted 05 July 2007 - 06:27 AM

My girlfriend joined toe boards last week, she got no responses to her simple questions, so I wrote to the board asking the same thing and have yet to get an answer, so I will ask again.

I've never been doctor diagnosed with celiac, I am self-diagnosed so have not had any blood work done. But we need to know what blood tests to request to be checked for celiac/gluten intolerance. My girlfriend has many symptoms.

Also what other test is recommended for other food allergies, we think she is highly intolerant of corn products. When she eats them she is running for bathrooms almost immediately. I've heard of Enterolab, and wasn't sure if there were any others or not.

I thank you in advance for any advice! :)
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Montana
Self-diagnosed after many tests and no results to feel better
Gluten Free since 8-6-2005
Lactose free for many years
Casein Free since 02/14/06

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#2 ArtGirl

 
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Posted 05 July 2007 - 06:40 AM

I don't have this knowledge to relate to you, but I did a search on this board "blood tests to request" and came up with several threads on the subject.

This one What Tests to Request (Demand?) lists these tests:

Tissue Transglutaminase Antibody IgA and IgG
Gliadin Antibody IgA
Total IgA


You might want to do the search yourself and read the other threads that come up. You go to the search feature near the top of the screen - the one that gives the sample of tomato sauce - and key in the words you want to search on there - be sure you don't delete the word "site" at the end of the string.
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Valda
Enterolab results: ...two genes for gluten intolerance ...casein intolerance
other sensitivities: corn, eggs, soy, potato, tapioca
Hypoglycemic
Sensitivity to high EMFs [electromagnetic frequency] (limits my time in front of the computer)
Living a healthier, happier life.
-------------------------------------------------------------------------------------------------------------------
If I take the wings of the morning, and dwell in the uttermost parts of the sea, even there shall thy hand lead me, and thy right hand shall hold me.Psalm 139: 9,10

#3 Canadian Karen

 
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Posted 05 July 2007 - 06:41 AM

Here is the list I found on here:

They can test you for Celiac disease if you havent been tested and are still consuming gluten. These are the tests for the Celiac Panel:

Anti-Gliadin (AGA) IgA
Anti-Gliadin (AGA) IgG
Anti-Endomysial (EMA) IgA
Anti-Tissue Transglutaminase (tTG) IgA
Total Serum IgA

Karen
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Karen

positive bloodwork, positive biopsy
Celiac, collagenous colitis, hypothyroidism
endometriosis (at age 20)
spinal stenosis (early 20's)

Biopsy August 2006 confirmed complete villous atrophy despite being gluten-free for years and bloodwork within range showing compliance with diet. Doctor has confirmed diagnosis of Refractory Celiac Sprue.
Endoscopy also showed numerous stomach ulcers, have started taking Losec.

Mother to Eileen 13 yrs
Rhiannon 8 yrs
Daniel & Connor 6 yr twin boys......

"Joyfulness keeps the heart and face young. A good laugh makes us better friends with ourselves and everybody around us."
Orison Swett Marden


Laughter is the shortest distance between two people.
-- Victor Borge



"An optimist laughs to forget. A pessimist forgets to laugh."
Tom Nansbury


"Doctor to patient: I have good news and bad news. The good news is that you are not a hypochondriac."
Unknown

#4 Canadian Karen

 
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Posted 05 July 2007 - 06:43 AM

Keep in mind that if the problem is gluten intolerence, but not full blown Celiac, that will not show up on any bloodwork....... I firmly believe that is the case with most people who test negative on the bloodwork: They don't have full blown celiac, but are definitely gluten intolerant......

Karen
  • 0
Karen

positive bloodwork, positive biopsy
Celiac, collagenous colitis, hypothyroidism
endometriosis (at age 20)
spinal stenosis (early 20's)

Biopsy August 2006 confirmed complete villous atrophy despite being gluten-free for years and bloodwork within range showing compliance with diet. Doctor has confirmed diagnosis of Refractory Celiac Sprue.
Endoscopy also showed numerous stomach ulcers, have started taking Losec.

Mother to Eileen 13 yrs
Rhiannon 8 yrs
Daniel & Connor 6 yr twin boys......

"Joyfulness keeps the heart and face young. A good laugh makes us better friends with ourselves and everybody around us."
Orison Swett Marden


Laughter is the shortest distance between two people.
-- Victor Borge



"An optimist laughs to forget. A pessimist forgets to laugh."
Tom Nansbury


"Doctor to patient: I have good news and bad news. The good news is that you are not a hypochondriac."
Unknown

#5 ArtGirl

 
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Posted 05 July 2007 - 06:52 AM

Keep in mind that if the problem is gluten intolerence, but not full blown Celiac, that will not show up on any bloodwork....... I firmly believe that is the case with most people who test negative on the bloodwork: They don't have full blown celiac, but are definitely gluten intolerant......

Karen



So true. I am "only" gluten intolerant. I did have a blood panel for food sensitivities 10 years ago which showed up gliadin, wheat and gluten - but the doctor didn't even see that as a red flag, and I, of course, didn't understand the significance. After finding this forum I did finally go thru Enterolab and found that I have two genes for "intolerance" but none for Celiac. So probably if the doctors HAD run the tests they'd have been negative for Celiac and I'd still have had to figure it out for myself.

Edit...
I just reread your post and see that your girlfriend has a problem with corn. I do, too. I didn't fully recover symptom-wise until I eliminated corn and all corn derivitaves, including citric acid. There's a forum Avoiding Corn Forum that has been was very helpful to me. I have other links that give lists of foods to avoid (regarding corn) and if you're interested, just PM me and I'll send them to you.
  • 0
Valda
Enterolab results: ...two genes for gluten intolerance ...casein intolerance
other sensitivities: corn, eggs, soy, potato, tapioca
Hypoglycemic
Sensitivity to high EMFs [electromagnetic frequency] (limits my time in front of the computer)
Living a healthier, happier life.
-------------------------------------------------------------------------------------------------------------------
If I take the wings of the morning, and dwell in the uttermost parts of the sea, even there shall thy hand lead me, and thy right hand shall hold me.Psalm 139: 9,10

#6 holdthegluten

 
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Posted 05 July 2007 - 07:46 AM

For the food allergy test you can try US Biotek and order the food allergy panel (your doctor has to order it), if you want convenience you can order an at home finger prick test (96 food allergy panel ELISA) from optimum health resources $379 http://www.yorkallergyusa.com/
  • 0
28 yr old Male
Diagnosed Celiac in February 2007
Gluten-free/Casein Free
HLA DQ 2,3 Subtype (2,8) I have both celiac genes!
Married
1 child 9 months- Levi

Yeast/Bacteria overgrowth
" CHANGE THE WAY YOU LOOK AT THINGS AND THE THINGS YOU LOOK AT CHANGE"
Wayne Dyer

#7 BamBam

 
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Posted 05 July 2007 - 08:04 AM

Thank you so much for the quick responses. Rebecca will be back to work on Monday and I will have some good information for her.

Good to hear from you Canadian Karen - you're one of the oldies but goodies!! I miss hearing from some of the old timers!

BamBam
  • 0
Montana
Self-diagnosed after many tests and no results to feel better
Gluten Free since 8-6-2005
Lactose free for many years
Casein Free since 02/14/06

#8 happygirl

 
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Posted 05 July 2007 - 08:09 AM

BamBam,

Also remember that it is the summer and many of the regulars aren't on the board as much....vacation, kids out of school, trips, nice weather, etc. The board has had a lot of new posters lately and it is hard to keep up.

I am happy that your question was answered. You are a good friend for helping her.
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#9 gfpaperdoll

 
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Posted 05 July 2007 - 12:31 PM

Yep, Karen gave you the right info on the blood tests. Just be sure to remind your friend that a negative blood test does not mean that she does not have celiac or gluten intolerance.
Not a blood test, but I really like Enterolab.com
Please also remind your friend that dietary trial is the real proof.

Sorry she did not get a reply to her question.
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