Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

The Specific Carbohydrate Diet
0

9 posts in this topic

The specific carbohydrate diet is a gluten free, grain free, lactose free, low sugar, low carb diet.

It is recommened for individuals with celiac disease that have not responded well to the gluten free diet. (It is also recommended for a number of other things such as chrons disease, ulcerative colitis, IBS). Here is a website: http://www.scdiet.org/

I have read a lot of success stories about how the diet has worked and relieved symptoms for people with celiac, chrons, ulcerative colities /ect.

I am considering trying the diet in order to relieve my symptoms (I have been gluten free for almost 8 months with continuing symptoms) but it looks like a very hard diet to follow.

I was just wondering if anyone has tried the diet (or knows anyone who has tried it) and if it works.

Thanks for any responses

-Carrie

0

Share this post


Link to post
Share on other sites


Ads by Google:

i havnt tried that one, but i am on a similar diet now. ( no starch, sugar, minimal dairy, no grain) and i feel ten times better now then i have during my 3 months being gluten free.

i was still having gas, bloating, every day and during the first three days of the new diet it stopped.

i think its a good idea to try a more strict diet, if the gluten free isnt working.

lillie

0

Share this post


Link to post
Share on other sites

Hi,

I am 60 years old and have dealt with symptoms of Celiac since the age of 8, though I didn't know then that what I had was Celiac. I am intolerant of all grains, milk & dairy products (casein and whey included), egg whites, and yeast. My symptoms present as Asthma, and I have been in the hospital so many times, but not anymore! I am now on The Carbohydrate Addict's Diet, written by Drs. Richard and Rachel Heller. I am almost five feet tall and weigh 106. Throughout my life I always used to struggle with my weight, but not anymore! The diet is low carb foods 23 hours a day, except for one hour called your "reward meal" when you can eat or drink whatever you like (of course within your own dietary restrictions).

I have so much energy I outlast those many years younger than I, and I have just applied to law school, after retiring from 25 years of teaching, so you can see that the diet is a good one, and is so pleasurable and easy to stick with.

I used to eat my one hour at night, then relax, but lately I have been eating it for breakfast, and taking advantage of the energy that eating fruits, etc. give me during my working hours at a local bakery, or on my writing career, etc.

I hope you find this helpful, and that you find the diet that gives you relief, energy, excitement, and enthusiasm for life. Welda

0

Share this post


Link to post
Share on other sites

I read what they recomend and other than, rice and wild, no salt added canned salmon, I eat the diet. I do really good with the wild Alaskan canned salmon and see no problem with it. I don't do so good with some chicken meat, and I could not even imagin eating pork, or other meats loaded with hormones, chemicals, etc.

0

Share this post


Link to post
Share on other sites

Thanks everyone for your responses! I am considering eliminating other foods from my diet in order to feel better. I am just so tired of being sick I am almost willing to try anything at this point. If so many people are feeling better by elminating more foods than it must work! :)

-Carrie

Welda,

Thanks! I will definatley read up on the Carbohydrate Addict's Diet since it has worked so well for you.

0

Share this post


Link to post
Share on other sites




I have been on SCD for 2 years now. I have IBS and celiac. It does work

I've had a lot of up and downs-trying to figure out what I can and can't eat.

I can't eat some of the legal foods on the diet-its trial and error. MaaryB

0

Share this post


Link to post
Share on other sites

Hey Carrie,

My mom and I both have been diagnosed with celiac for three years. We did gluten free for little over a year and still were not feeling all that great. We heard about the SCD and tried it out. I'd say after being on it for a couple weeks we were both feeling really great. One morning I felt like a 10 out of 10 for the first time in a couple years. But then we started introducing the yogurt, nut flour and meals. My mom has fybromyalgia (sp?) so that wasnt working to well for her cuz of the nuts, and I react to casein and eggs, so the wasn't working too well for me. We ended up stopping the diet, but lately I've been thinking about starting it up again, but limiting it further. I know it's slightly more difficult than just being gluten free (which is ridiculously easy in my opinion), but if you can do it, I highly recomend trying it for a few months.

0

Share this post


Link to post
Share on other sites

Hi, I have been on the SCD diet since July 30. I also have had some ups and downs due to errors in eating. And I also do not tolerate many of the legal items on the diet. Am lactose intolerant, Don't get along with the potato tomato family and find that cabbage family vegetables are troublesome. Speaking of chicken, I wonder if some chicken comes from broth added poultry. I hadn't thought of chicken as a problem, but will check it out . Just finished a package, so will wait awhile, but I have had more trouble during the past few days. My next step should really be an elimination diet , going down to a very few foods that I am quite sure don't bother me and adding others one at a time.

Another area of concern has been toothpaste. I know one can buy gluten-free toothpaste at health food stores, but so expensive. I tried baking soda and then salt. Someone on the board said that soda would cause me to get cavities. I ran that past my dentist last week. He said that soda should be fine, but salt has sugar in it! I wonder how much sugar could be in salt? and in any case, I rinse my mouth thoroughly with water and mouth wash after brushing. The whole area of shampoos and soaps, etc. is a difficult one. Actually, my problems are small since I use no cosmetics.

Back to SCD, I definitely sleep better and have more energy since being on the diet. I have not been formally diagnosed, but have had digestive problems since early childhood. I figure that if my villi are damaged, this has been going on for 70 odd years, maybe longer. And if this is not actually due to celiac, this diet is also designed for ibs and other digestive problems. My doctor is following my situation . I have been losing weight slowly but steadily, but he is not worried. And I like fitting into clothes I haven't worn in awhile. Cheers, Ruth S.

0

Share this post


Link to post
Share on other sites
I know it's slightly more difficult than just being gluten free (which is ridiculously easy in my opinion)

I know what you mean, the gluten free diet seems like heaven compared to the SCD. That's why I'm a little hesitant about trying it. I eat potatoes, rice, turnip, soy, and corn (ect.) and don't know if I could give them ALL up.

But.... the SCD does seem to work for most people. So I don't know....

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,608
    • Total Posts
      918,334
  • Topics

  • Posts

    • How do you know what's causing what?
      Hi Kam, If you are going to continue the celiac testing with an endoscopy, you need to keep eating gluten until it's done. It can be hard for vegetarians to keep their vitamin D levels up.   This Vitamin D  Council link has some good info on ways to boost your levels. https://www.vitamindcouncil.org/about-vitamin-d/
    • Blood results - odd
      Your ferritin was very low!  My result was a 2 when I was diagnosed.    I hard a hard time breathing and the fatigue was awful due to low hemoglobin levels.  But after going gluten free and taking iron for a few months, I quickly recovered from iron-deficiency anemia.  I still have hemologobin levels that are slightly below range due to Thalassemia which is genetic and my body has adjusted for it.   My B12 and folate levels are  super high.  My B12 is over 2000!  Yeah, I googled and ruled out cancers, etc.  Looks like some of us do not process man-made B12 often included in supplements.  I opted for natural sources of B-12 and folate and my levels have come down a bit.   Let us know your results.  Read the Newbie 101 section under "Coping" within this forum for tips.   Be patient.  It can take months, to years to feel good.  But it will happen!    
    • How do you know what's causing what?
      Welcome to the forum!   Well.....in theory you should be able to heal within a few months (grow new villi, etc.).  The reality is that it takes so much longer -- like a year or two (I kid you not!)  Why?  celiac disease can damage more than just the gut.  Depending on what was damaged (nerves, bones, etc) can impact healing time.  The gluten-free diet has a very steep learning curve.  It's not just giving up gluten.  It's avoiding cross contamination.  Becoming an expert in reading labels.  Learning to avoid foods processed on shared lines in a facility.  Then there are intolerances that most celiacs develop.  The most common ones is lactose.  Why?  The villi tips release the enzymes to digest lactose.  No villi tips?  Then you can not digest lactose.  Often this is temporary, but if you are one of the many adults in this world, you might already be lactose intolerant or might become so as you age.   Other intolerances that members often report include corn or soy.   Some celiacs react to oats, even gluten free.  So avoid oats for six months.  So, try cutting out dairy for a few days and see how you feel.  Then add in those items that have the least lactose:  hard cheese, butter, yogurt and see how you feel.   Avoid eating out for six months until you have seen some improvement.   Read our Newbie 101 thread under coping for more ideas!  Hope you feel better soon.   
    • Recovery diet, nutrition, leaky gut?
      I am having my endoscopy on Tuesday. I want to begin to heal my gut asap. I spent this morning in the ER with stabbing pain in my right shoulder blade, pain to the left of my belly button and vomiting. It's referred pain from my small intestine. I couldn't move or breathe hardly it hurt so bad. I NEED to get everything together to heal my gut asap. I don't want to ever go through this again. What are your recommendations? I've been reading a bit on leaky gut - anyone have good experience/links Or would the autoimmune diet be better? Are they one in the same? I know I am also reacting to casein and possibly potatoes. 
    • Celiac.com: Celiac Patients Could Get Gluten-free Stipend
      Celiac disease is a sensitivity to the gluten found in wheat, barley, rye, spelt and oats that causes an autoimmune response in which the body attacks ... View the full article
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,707
    • Most Online
      1,763

    Newest Member
    Ree8080
    Joined