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Random Daily Torture...
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Ok, so today I go to my required lecture for class; and what do I walk in to? The professor has bought pizza for the entire class. Not just any crappy pizza, but Pizza Hut deep dish, extra cheese, ham sausage and pepperoni incredible smelling pizza. And I have to stay, I cant walk out because he's going to test us over the movie we're watching in class today. So I have to sit there for an hour and a half... and watch the girl next to me scarf down 3 slices of the stuff. Why do they torture us so bad? I was ready to gnaw my own arm off. I hate it when stuff like that happens, granted; our professor thought he was being nice to the class but why does that include me being tortured? AAAAHHHHHH

Sorry for the ranting, but I really want to scream my head off right now!

~amy

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I feel your pain :lol: I am a youth minister and find myself inflicting similar torture on myself as I buy pizza, or worse Subway, for different group functions. I always say that if there was a Pappa John's pizza joint here (we live in hickville...well not quite we do have a Pizza Hut) that I would go off the diet about once a week for a really good Pappa John's pizza :rolleyes: Anyways, I am sorry you had to suffer like that, but remember, the suffering is worse when you eat the bad stuff.

One last thing :ph34r: I never find a use for that "smiley" so I thought I would add him today. Take care, and keep smiling (it makes people wonder what you're up to :D )

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I know how you feel!! I buy gluten food for my son, so i always have cookies, pizza and all kinds of crap sitting around. a couple times i have actually grabbed a gluten filled cookie and almost took a bite, out of habit ;)

It's hard but you have to have will power, that is just how it is.

The one thing i havnt been able to give up is beer. It is horrible, my friends drink it around me so i have a couple every now & then. for awhile it wasnt effecting me, but i had 1 last night and was pretty sick this morning, so i HAVE to give it up :angry:

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I doubt that the professor was intentionally torturing you; just trying to be nice, as you said, but I know what you mean. The gluten-free diet isn't such a big deal if you're just eating a normal meal at home, provided you have found decent gluten-free foods. It is really frustrating and upsetting though, even for me having been doing this for close to a year, when everyone is eating pizza or something else that I really missed. I'm in eighth grade and lunch at school everyday is horrible. Everyone else is eating pizza or pasta or whatever while I have fish EVERY day of the school year <_< . It's good to vent, though, and it's good to have people who understand and can relate to this, though.

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Pastor Dave mentioned Pizza Hut AND Subway. I just came back from vacation with my extended family, who happened to eat both Pizza Hut and Subway while I was there. It was a major bummer!!! It smelled sooooo goood. I even went to pick up the Subway. AND I paid for it!!!! HAHAHA!!!! Well, at least my immediate family enjoyed it. Besides...they were having a special - six feet of subs for 20 bucks. Not bad.

Anyway, I remember before going gluten-free, when I would eat Pizza Hut or Dominos. I felt totally DRUNK. At least I think that's what I felt.....hard to say since I've never been drunk. I wonder if they use a high gluten flour to make it more elastic and, well.....like Pizza Hut crust.

I had an Amy's pizza yesterday. I appreciate their efforts, but it's just not the same. And I am in mourning......... :huh:

Hang in there. We're all pizza deprived. But at least we feel better because of it!!!!!

Brenda

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It's especially hard for children. My son was just diagnosed and he will sit in class today at his Halloween party and watch all the other kids eat whatever they want. Life sucks.

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Anyway, I remember before going gluten-free, when I would eat Pizza Hut or Dominos. I felt totally DRUNK. At least I think that's what I felt.....hard to say since I've never been drunk. I wonder if they use a high gluten flour to make it more elastic and, well.....like Pizza Hut crust.

I had an Amy's pizza yesterday. I appreciate their efforts, but it's just not the same. And I am in mourning......... 

Hang in there. We're all pizza deprived. But at least we feel better because of it!!!!!

I used to notice that when I ate a BIG NYC bagel every morning I'd be fine, but when I'd eat pizza, I'd get really sick a few hours later. They must do something to it, cause that always triggered STRONG reactions in me.

I've found the best pizza "replacement" to be Chebe....you take the breadmix, make it into a crust, cook it a bit, then take it out and add gluten-free tomato sauce, and Kraft cheeses (parmesean and mozzarella), and then finish cooking. No homemade or store bought pizza can match up to the real thing, but this is the best non-pizzeria pizza I've had.

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"I was ready to gnaw my own arm off." ~~ I feel like this all the time!! I live in a small town where the only choices are Pizza Hut, Subway or A&W ~ I don't trust any of them. Therefore, I am constantly being subjected to others eating yummy things! I don't eat out with my family anymore. It is too hard for me to sit there and just watch and smell what they are eating!! Ugh! I go to a lot of potluck style events, and those are always a pain as well. I always bring something that I can eat, or else I would just sit and starve! Hang in there... go home and make yourself a gluten-free pizza ~ one of my favorite "spoil me" things to do is make homemade ice cream and put in gluten-free oreo style cookies ~ yummy!!! :D Makes having to watch others eat pizza bearable!!

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It's definitely more bearable when you have something good of your own......the problem is that I usually don't...........I remember my first few gluten-free lunches at school. At this point, my mom and I hadn't talked to the cook about what i can and can't eat, so for the first few days, I just ate a gluten-free meal replacement bar and one of those snack-sized chip bags. It was annoying to answer all the questions about it and then upsetting when everyone was eating pizza, pasta, hotdogs, etc. at lunch and then for dessert brownies, puddings, cookies, cakes, etc. When you have the stuff with you it's easier to deal with, but when it's all at home or, at the start, you don't have anything even near comparable, it's (depending on the person) annoying, angering, sad, or depressing.

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I know how you feel Amy. I have to go off my diet once a week and eat a big spaghetti dinner, of course made with rice pasta made at a gluten free factory, and grating my own cheese. When I get down to my winter camp in Mexico, I am going to try and add some meat to the dinner. Maybe some grilled chicken or Yucatan thick hide brahman beef :huh:.

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I close my eyes and smell. Then drink major amouts of water and carry around those cinnamon toothpiks. Almost like I ate a meal.

Laura

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Last term my Philosophy Prof had pizza for our small class and I was the only one not eating it. He was the only one who knew about my celiacs and made me very comfortable and not seem odd that I wasn't eating any. . .so no one asked any questions! Sometimes I like it better wen people don't know or ask.

It did smell so good though. . .mmmmm.

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You get used to it....

But took ten years.

I work as an exec at a big office, and actually it makes me more uncomfortable when someone orders food in I can't eat then feels awful about it.

Elsinore.

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I had a teacher who brought donuts every Friday for the class all year. It was hard to watch everyone eating but i used to bring some of my own snacks. I found it also helped me to think about what eating those donuts would do to my system. It made me not want them at all.

This year I had a teacher planning a pizzia party and collecting money, when I said I didn't want to join in he asked, in front of the class, why not? I gave the quickie explanation and he just looked confused. The next day I brought him some literature on Celiac Disease. I'm still waiting for his response.

Just have to a Celiac and proud of it. :D

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heh my property teacher brought in pizza once cos we had to have a 3 hour class.. and my friend felt bad and i was like oh no it's not a big deal but i guess he could tell i was feeling left out and brought me a soda.. sounds stupid but it made me feel better and he knew i just wanted to feel included :)

of course i did have some peanut butter cups in my bag so it wasn't like i went hungry heh

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    • I think the idea of grinding your own at home stems from the thought that flavored coffees might be ground on the same machines.  The grinders in the grocery are not cleaned between uses.  However, I have not found a flavored coffee bean that had gluten, so it's probably not a real concern.  For coffee that comes from a factory ground, I wouldn't worry at all.   Machines would be cleaned between flavors and nothing but coffee could be made on the machines or even in the same building ( everything made would taste/ smell like coffee). if you still have doubts - I went to the International Celiac Disease Symposium a few years back.  This is held every few years in different countries for medical professionals that study and treat Celiac.  They present research, etc.  All food served was gluten-free.  We drank a lot of plain, already ground, coffee!  A lot!   Coffee is not on any lists as a gluten containing food.  Talking legitimate organizations - not some blogger or pseudo- science website.   After all this, if you still doubt that coffee is gluten free...... Then don't drink it!  It leaves more for me!    
    • To answer some of your questions.... Non celiac gluten sensitivity does not cause any damage to the small intestine so that is not the source of the "little holes or bumps".  You need to get her records including the report of the endoscopy to see exactly what it says as well as the pathology report of the biopsies. You should always get medical records anyway & keep a copy for yourself. How many biopsies did he take? There should be a minimum of 4, ideally 6. The small intestine is very vast even in a small child. An adults is the size of a tennis court! That's a whole lot of territory so biopsies can miss damage especially when enough of them are not taken! She has 2 positives on the serum panel. This crap about "weak" positives should be thrown out of the nomenclature! A positive is a positive, weak or not! Her DgP IGG is way over the range and extremely telling. As far as my knowledge goes, there is nothing else that causes a positive DgP IGG other than celiac disease. False positives are really rare and to have 2 false positives would be astronomically rare! You are right & smart that she really does need an official diagnosis! IMHO, keep her on gluten for right now. Get a second opinion pronto & I believe you'll be able to get her a dx based on the 4 out of 5 rule if nothing else. I wouldn't think it's going to take more than a month to get to see another doc for a second opinion. Then you can take her off gluten. Kids heal up really fast, way faster than us old geezers! I'm sure as others  wake up & get on their computers they will be along to voice their knowledge. I am in the eastern time zone & rise before the birds so I was on here early. Hang in there mom! You're doing the right thing!
    • Now that my initial rage has calmed a tad.... your daughter has to fulfill 4 out of 5 of the diagnostic criteria. Second opinion can do a gene test. If positive, then she will have4 out of 5 of the dx criteria to dx without a positive biopsy. See: http://www.gastro.org/news_items/a-biopsy-should-not-be-required-to-make-the-diagnosis which says in part: The presence of signs and symptoms compatible with celiac disease. Positive serology screening (high serum levels of anti-TTG and/or EMA). Presence of the predisposing genes HLA-DQ2 and/or –DQ8. Histological evidence of auto-insult of jejunal mucosa typical of celiac disease. Resolution of the symptoms and normalization of serology test following the implementation of a gluten-free diet.   Also see: http://www.tenderfoodie.com/blog/2014/5/1/dr-fasano-on-new-gut-autoimmune-research-autism-clearing-up.html She can get a dx after her symptoms resolve on a gluten-free diet!
    • OMG!!!! The doc wants her to get sicker & sicker & do further damage so he can diagnose her? Don't do me any favors doc!!! I'm so spitting med right now I can't even speak! Find a new doc, take the records & get a second opinion. Maybe the next doc will have a freaking brain & dx your daughter. She should be dx'd! This is absurd in the extreme. The very least that should happen is the doc give her a dx now & then in a year or 2 have her do a gluten challenge & do a biopsy all over again but seriously, that would be just as cruel as what he's doing now. He's an ASS!
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