Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Should Nutrient Levels Be Tested After Diagnosis?
0

3 posts in this topic

Hi-

I need to help my child gain weight. He is 8 years old and has just been diagnosed with celiac. He is extremely thin and his bone age is 4 1/2 even though he is now turning 8 next week.

After the celiac diagnosis, shouldn't they test his blood to see if he is deficient in certain nutrients? Or maybe they did and just haven't given me those results? I will check. They knew he was not anemic. They felt safe doing the endoscopy. Did your doctors test nutrient levels in your children after diagnosis?

Also, I read there is a bacterial virus that can cause villi atrophy. Why isn't a child tested for this as well, instead of putting them on the gluten free diet and waiting to see weight gain? Doesn't it makes sense to rule that out rather than wasting another few months? Is that done by biopsy or is a blood test enough?

My son's not a big eater. What are you feeding your kids to help them bulk up?

Also, I am terrified about the diabetes link to celiac. Diabetes runs in my family. Do celiacs generally avoid sugar when possible to avert developing diabetes? Are any of your children diabetic and celiac as well? Thanks-

Sharon

0

Share this post


Link to post
Share on other sites


Ads by Google:

Yes, they should check for nutritional deficiencies.

You say he's been diagnosed but then you sound skeptical. How was he diagnosed?

As far as gaining weight, I recommend as much protein as you can get him to eat. You say he isn't a big eater but assuming he does have celiac, that might be because eating hurts. His appetite might improve on the diet.

richard

0

Share this post


Link to post
Share on other sites

Hi Richard-

I am only skeptical after reading that other conditions mimic celiac. It took me 4 years to convince doctors that my son was too thin after being brushed off by them repeatedly and being told my son was fine. A specialist, not his pediatrician, suggested the celiac blood screen. After that, he underwent the biopsy and it was positive.

Then, last night on CSA website, I read that other conditions can cause villi atrophy and if the person's condition does not improve, other causes need to be looked at. That's why I'm asking why not look at them now. Why not rule out some bacterial infection that mimics celiac. Why make my son wait another 6 months.

His gastro did not suggest a nutrient test, which bothers me. I have a feeling the doctors the United States are not all what they are cracked up to be. That's why this condition is grossly under-diasgnosed in this country, but not in others.

Even after the diagnosis, my son's pediatrician still insisted his weight was normal because he had always been thin. His height is average, his weight in the low 5%! He ignored the fact that my son hasn't gained a pound in two years. I had to point it out to him, then he agreed with the diagnosis.

When I had my own endoscopy 3 years ago, celiac was never mentioned, nor was I tested for it. They labeled me "irritable bowel" although I have no irritable bowel symptoms. My brother-in-law underwent an endoscopy, and they simply told him they couldn't find anything wrong, although his intestines were strangely smooth. Celiac was never mentioned.

Would you trust these people? Why shouldn't I sound skeptical. If there's a virus that mimics celiac, shouldn't he be tested? Thanks.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,876
    • Total Posts
      919,430
  • Topics

  • Posts

    • Anyone experience brain fog like this?
      Thanks for the reply, melprkr! Feeling like you're still in a swimming pool moving is a good way to put it. It feels kind of like motion sickness, come to think of it, or a really bad hangover. I was curious because my experience of 'brain fog' in the context of thyroid problems feels so different than brain fog caused by gluten, and I couldn't quite figure out how to explain it. Swimming pool comes pretty close, though. Hope you feel better soon as well!
    • Anyone experience brain fog like this?
      Brain fog is a common symptom.  I had a hamburger patty from a local restaurant and am suffering the effects.  Sometimes mine is bad and sometimes it is mild.  This one feels mild, provided I am not "glutened" again.  I have the exact same feelings when I am contaminated.  I actually had 2 good days this week to ony have to go back through this again.  The first day is just tired and want to sleep, but as each day goes on it seems like all I can do to concentrate and do anything.  TV is OK but for me just standing up or moving sometimes makes me dizzy.  Luckily I don't have the nausea but even sitting still I feel like I am in a swimming pool moving.  You know kind of like when you were a kid and you got in the pool or went roller skating but then got out and and you still felt like you in the pool or skating?  The anxiety and the depression is the worst.  I am taking things to help with it but it doesn't always help.  Only thing that seems to help sometimes is just going in to my room and laying there and not moving and just going to sleep.   It will pass.  Just be cautious about everything.  I have opted to let my family know that I will bring my OWN food when we have gatherings.  I don't mind being the odd man out because I am already the odd ball.  One thing I have learned and that is people mean well but mistakes happen and we are the ones who have to pay the price.   Hope you feel better soon.
    • gluten intolerance, dairy intolerance and fructose
      Look into The Paleo Approach by Sara Ballentyne, PhD.  Great resource and will probably answer your questions.  I have the same problem. You have to really read labels.  The only coconut milk I can use is an organic canned one.  Others have too many ingredients that are problematic.  For now, stay with meat and vegetables as someone else has recommended.  If rice works for you, great.  If not, winter squash is good.  The diet change is overwhelming at first but then it starts to make sense.  The one good thing about an intolerance versus allergy is the possibility of someday being able to add it back into your diet once your gut has healed.
    • Anyone experience brain fog like this?
      I went gluten free about a month ago, and was finally feeling *great* last week when wham -- my well-meaning Dad cooked me dinner and forgot to check the ingredients on the fish sauce he used. The upside of being glutened for the first time is that, after a couple weeks of feeling good, I feel like I can discern the symptoms a lot better now. I've noticed that the worst part, aside from the nausea, is the "brain fog," but I'm curious if my experience of brain fog is the same as or similar to what other people are feeling. For me, it becomes almost physically painful to concentrate on anything. If I try to read a book, or watch a TV show, it makes me feel dizzy, overwhelmed, and nauseous. For a couple days, I feel like all I can do is try to stay still and do as little as possible while I wait it out. It feels similar to anxiety, but not quite the same, and none of the usual tricks for getting through a panic attack help. Do any of you experience brain fog in a similar way? Where it basically makes you feel sick to try and concentrate on anything, even fun and relaxing things?
    • gluten intolerance, dairy intolerance and fructose
      I've never gone fructose free so can't help much with that.  But any fruit is probably a problem.  If you are serious about avoiding fructose you could do a search and print out a list of foods to avoid. http://www.mayoclinic.org/fructose-intolerance/expert-answers/faq-20058097 Yes, it very possible to have multiple food intolerance issues.  Many people have multiple food intolerances.  It might help to avoid any foods that are sweet for now.  Meat and most veggies are probably the way to go.  You may want to get some jerky to eat for snacks.  Peanuts might be ok but you'll need to verify that.  Boiled eggs are probably ok.  Most soda would be a no-no.      
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • Jmg  »  admin

      Hello Admin!
      I don't know whether this is of interest to post on your articles feed:
      http://pratt.duke.edu/about/news/window-guts-brain
      Kind Regards,
      Matt
      · 2 replies
    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,912
    • Most Online
      1,763

    Newest Member
    Mamalarge
    Joined