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Unsure Its Cd
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3 posts in this topic

Here's my story, and it may be long, but looking for some confirmations, comparisons to my symptoms and anyone that can offer support!! I am waivering between being convinced (yet to see my GI doc) its Celiac Disease, lactose intolerance or just plain IBS, so here we go..

My troubles started approximately four months ago, after eating breakfast (sausage and an eggwhite omelet) with horrible abdominal cramping. Since then I've suffered from additional abomdinal pains, "gnawing" symptoms similar to hunger pains, etc. Intially my doctors suggested an ulcer. However, w/o heartburn and Nexium of no help, I have gone off taking it and do not accept that as a answer.

Since the abdominal pain, I have progressed to having chronic diarrhea (every bowel movement was like this.) but more recently have had days of consistent regular bowel movements. I've taken dairy away, and decided to try eliminating gluten for a week. After 3 days I felt like a normal person. Only when I realized I had been eating new generic rice cakes with gluten in them, that I had minor abdominal pains.

I reintroduced gluten with idea that they may do a blood test (but was referred to a GI specialist instead). The gluten did seem to cause a bout of diarrhea, but not a horrific upheavel. Is this normal that symptoms waiver at times like this? My PCP mentioned that the GI would want to do a sigmoidoscopy, will I need to be eating gluten at this time? Secondly, why not a colonoscopy?

Are there any connections between stomach ulcers and celiac disease?

So to sum up my symptoms I have the following, that waiver, can be severe or mild. :(

Abdominal cramping

Localized abdominal pain on left side frequently

Diarrhea

"urgent" BMs (where I literally shake out of panic at the thought of not finding a bathroom fast enough!)

Fatigue

Anemia symptoms (cold, pale skin, easily bruised etc.)

Shakes (when having an 'attack')

Lack of appetite

Weightloss

Naseua (particularly right before an 'attack')

Stomach discomfort (as though the muscles are tense even when they're not)

Thanks to anyone who took the time to read this entire post, and answer! I truly appreciate any thought or comments on any of it. I am so tired, confused, and frustrated. All I do know is that going gluten-free I felt human again for a few days. But then again sometimes I think its all in my head.. So thanks again to anyone willing to give their opinion. ;)

Note: I have an ultrasound to rule out gallbladder etc. No parasites, blood or fat found in a stool sample.

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Certainly many of those are celiac disease symptoms but they are also symptoms of other things. As for the sig, if your doctor's looking for celiac disease he's exploring the wrong end.

richard

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Thanks for the input. Perhaps my physician mispoke that they would do a sigmoid? I quote her "They'll do a sigmoidoscopy where they go in from the bottom and on up" I just thought the Sigmoid was half of a colonoscopy. I understood an endoscopy was a flexible scope down the throat.

Oh well, I have yet to see the GI doc, and they'll the ones who will do a consult and ultimately decide whats what. Luckily they're a celiac disease specialist.

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    • You're welcome! Yes, I too, hate waiting for lab results. Ugh!
    • I understand this is not a doctor's office and that I need proper testing done to rule out Celiac disease, however, I am stuck waiting until November to even see a GI doctor. So I need some suggestions soon on which test to go for first and what to do as I wait. Also do note, I am 28 years old.

      Right now, the most suspecting culprits to my symptoms have been Gallbadder, Celiac disease, and IBS. I have also been recently diagnosed with pre-diabetes and I am obese.  My Ultrasound and CT scan have all come up as normal and no signs of gallstones. However, I was in extreme pain as my upper abdomen was examined during the ultra sound. My white blood cell count also seems to be high at 12,000 but all blood work came back normal for liver and everything else.

      Symptoms included are: diarrhea
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      light gnawing pain in area a few inches above belly button
      burning in chest
      sometimes pain below upper right rib cage.
      Tenderness all around the upper abdomen, but more so on the right and center.
      burping frequently after meals
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      So far the upper right pain has subsided but the pain above my belly button would continue. The gassy and bloated feeling would come and go as well. I get severe heart burn after almost every meal. But I felt it especially after eating whole wheat sandwiches or whole wheat pasta. I however don't feel it when I eat a Nature Valley granola bar, or pack of peanut butter crackers. I also had a chicken and vegetable stir fry with soy sauce cooked in that also had little effect on me. A bowl of cereal also made the heart burn act up pretty bad. I sometimes feel numb or light headed after various meals. Especially larger ones. In fact, it seems the more I eat, the worse I feel. But the less in the stomach, the more the pain above my belly button starts to act up.

      It is usually in the morning and afternoon I feel the most with gas and bloating. Especially after any large meals from the previous day. Despite the diet and work outs I have had, nothing has changed the stools. However, taking fish oil pills has greatly reduced the pain in my upper abdomen as well as the pain  in the the area above my belly button. My question now is, is there a very likely chance of this being celiac disease? Should I go on a gluten free diet to test since I Have to wait so long? Also, which test should I ask the doctor for first, as it will take a GREAT deal of time to pay off each one. Colonoscopy, HIDA scan, or endoscopy. 

      Again, I understand this isn't a site to get compete medical advice or to know exactly what my illness is, but I am trying to narrow down the possibility or what is most likely. If this has a chance of being celiac disease, I would rather know sooner than later.
    • Thank you very much for all the info Squirmingitch. The doctor told me as we were talking he was going to order some tests with urine so I don't know why he didn't mark that. Maybe he forgot as we were talking? Duly noted about the bladder Cancer to watch out for too. Doctor said it will take about a week to get the lab results back usually from this lab. The wait will seem like forever I'm sure. Yes I will press to have the other tests done too if this one comes back negative.
    • http://www.cureceliacdisease.org/screening/ Was your hubs tested for total IgA to see if he's IgA deficient? Read this thread: http://www.mayomedicallaboratories.com/test-catalog/Clinical+and+Interpretive/83660
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