Question For Any Really Underweight Celiac's?
Posted 01 February 2004 - 09:54 PM
I'm a middle aged man who has always been very underweight no matter how much I ate. After coming to this site I'm beginning to wonder if I may have Celiac and am considering testing. I have some of the syptoms-many trips to the bathroom (4-5 times a day is normal) but only occasional diarrhea-but food does seem to go right through me.
I was wondering if any of you have had a hard time gaining weight until you were finally diagnosed, then after you went glutten free were you able to gain weight?
Posted 02 February 2004 - 10:30 AM
Maybe once you start a gluten-free diet and your gut begins to heal you will gain some weight.
Posted 05 February 2004 - 10:26 PM
I was wondering if any of you have had a hard time gaining weight until you were finally diagnosed, then after you went glutten free were you able to gain weight?--Ron
I guess I qualify as having lost a lot of weight and as having a hard time gaining it back, but since I'm self-diagnosed (soon to change once I receive the stool kit from Enterolab) I guess I don't exacty fit the picture you have described. But other than not yet being "officially" diagnosed, I do fit the celiac disease profile some have discussed on this board. I lost even more than Stacie, about 50lbs in 2 or 3 months in '85, done to 106lbs and felt so fatigued I had difficulty walking. I was misdiagnosed, I believe, with an incurable blood disorder, though I suppose I could have this along with celiac disease, but I doubt it, not having the typical symptoms. But enough of this--there's no sense in playing the blame game, and after 19 years it's time to move on.
It took a while before the weight started to come back after going on a mostly Ayurvedic regimen--the ancient East Indian approach to health and disease that is becoming popular thanks to Chopra, and his many books on the subject. Not knowing anything about celiac disease at that time, I nonetheless followed a mostly gluten free diet, based on rice and dal (kicheri), ghee, veggies and yogurt. A good gluten-free diet, but at the time of course I did not care about this, knowing nothing about celiac disease and knowing only that gluten is useful in making "good" bread. The diet did put on the weight, about 40lbs, and I remained pretty much at that weight for a number of years until this summer when I again started to lose weight. The reason is clear to me now: I went off a strict adherence to the Ayurvedic regimen and added pasta, bread, mostly the sprouted grain and lentil Ezekiel bread (a no-no for CDers I've since learned), whole wheat breads as well, and oats, practically every morning.
That's the background. Foreground is this: I quickly lost almost all the weight I put on these past few years, again in only a few months this past summer, down to
about 115lbs, not quite as bad as before, but at 6,' it's bad enough. The strange part for me to understand is that I was without the typical symptoms, except for the weight loss--no diarrhea, no constipation, no abdominal pain, no headaches during the time I went back to eating a more typical diet. When I decided that I must have celiac disease and stopped eating gluten, except for the occasional accident, it was then that the diarrhea started, the headaches, some mouth sores, some tenderness in the nostrils. When the diarrhea abated, luckily never worse than having to go after every meal, and that for no more than a week, I became constipated--neither of these conditions being experienced while on the
gluten containing diet. Some posters have stressed that it's not unusual for the body to become more sensitive to gluten once it starts to clean house. That's been my experience.
Finally, Ron, to wrap up this overly long (for which I apologize) response to your post, I have been gluten-free, with no intentional "glutenizing" since Nov. 23rd--a little over two months. And not a pound has come back--that's the discouraging news. The good news is that I haven't lost any, and there are no more headaches, stools are starting to resembe bananas, not pudding, and there are no more sores in either mouth or nose. There is a subtle but real sense that the body is more at ease than it has been in quite a while. I'm convinced that health will return, but I feel it will take more than just being gluten-free for the remainder of my life. I'm looking to make substantive changes not only with diet but in lifestyle. I'm now exploring what can be done, in addition to avoiding gluten, so that I can return to health as quickly as possible. My hope is that by doing this I will not only help myself but be able to share more effectively with others on the board, many of whom are already doing this. I know that without them, and others on other websites, I would not feel as confident that there will be a return to health, and even greater health than before celiac disease. --Aldo
Posted 01 May 2004 - 02:11 PM
when I look around, I think this,
this is good enough
and I try to laugh at whatever life brings
because when I look down,
I just miss all the good stuff
and when I look up,
I just trip over things
Posted 02 May 2004 - 07:18 PM
You say that food goes right through you all the time? I'd say to get tested if you can. Food went through me all my life, then it started to be where within 5minutes of eating everything would be evacuated from my body in a most unpleasant and painful manner. The extreme weightloss and malabsorption seemd to be the ONLY reason they decided to start really trying to find out what was wrong. I was down to 75lb's and they just couldn't ignore it anymore.
I've been Gluten free for about 8months now and I stay a 80lbs and can't seem to gain anymore.
It may depend on how damaged your intestines are (?), I know that mine were extremely damaged from 32 years of stumped doctors. Perhaps when they heal enough you will begin to gain weight. I'd like to be have some weight gain in the near future also
Posted 03 May 2004 - 06:46 AM
Posted 19 June 2004 - 06:47 AM
You have NO IDEA how strangely comforting it is to read these posts...I have not been diagnosed yet..doing the blood tests on Monday and the stool tests as soon as they get here..Ron-I too have had symptoms of Celiac all my life but never even knew of the disease until I was diagnosed a diabetic and began researching alternative eating it's taken me two years of different eating habits to come across Celiac disease. I have lost over 25 lbs in the last year and a half and am 5' 4" and weight in at 106. My bones ache, my muscles ache, I am either crying or irritable and I have no concentration. I have had so many tests that I feel like a research experiment but nothing has been conclusive except that I have mild osteoporosis (I am only 34) and that my blood sugars are still not normal although I keep them half way controlled. I feel, most times, like I have bone cancer - infact I am scheduled for a bone scan of my wrist and hand sometime this month due to the osteoporosis. I don't sleep well and am ALWAYS tired. I have been following a gluten free diet for only about a week and the first 4 days I did feel better but I must have gotten something contaminated because the last three days have been utter HELL! I have switched to Ezekiel bread but from your post I see that it's not a good choice, at which I cried...I am so frustrated right now and feel so bad...What kind of bread can I eat? The headaches are almost debilitating sometimes. I also have gall bladder problems to which they want to give me a hide a scan to see if it has porcenalized. Frankly, I feel like there is no light at the end of the tunnell and lately I have just been asking God to take me in my sleep because having to wake up and face the pain is getting to be almost too much but I have three children that need me so I guess I am glad that God hasn't listened to me on that one. Anyway, this is long winded but it feels good to get it off my mind. I'm glad to see other people out there who have the same symptoms.
Posted 08 December 2004 - 10:21 AM
I am a recenty (last week) diagnosed celiac. I am scheduled for an endoscopy on the 28th, so I have not gone 100% gluten-free yet (so as to not skew results). I HAVE ALWAYS BEEN FAR TOO THIN, NO MATTER HOW MUCH I ATE. I am 37 years old, and the mother of 3 boys. I am 5'10, and my highest non pregnant weight in the last 10 years was 119lbs. After knee surgery in Aug, I became steadily more ill. Nausea, pain lethargy etc... I have lost 7 lbs. I am so anxious to go gluten-free because I truly believe it will help. It is so depressing to be painfully thin, to have other women tell you that you're so lucky to be thin, and to feel defensive about your appearance. Many people think I look great....they are crazy. MY NEW YEAR'S RESOLUTION IS TO BE gluten-free, HEALTHY, HAPPY AND TO GAIN AT LEAST 15 LBS.!!! I am so happy to have an answer, and a plan for recovery.
Posted 08 December 2004 - 10:24 AM
IF YOU WANT TO CONTACT ME, WE CAN COMMISERATE. I FEEL A LOT LIKE YOU, BUT AFTER FINDING OUT I HAVE CELIAC I FEEL MORE OPTIMISITIC. I AM HERE IF YOU NEED ME.
P.S. BUY A BREADMAKER AND GO TO THE HEALTH FOOD STORE FOR PRE PACKAGED gluten-free BREAD MIXES.
Posted 09 December 2004 - 12:28 PM
I am thinking about getting a bread machine and I would like to know how to incorporated coconut oil into my diet. I need a good supplement to with calcium and Vit D (for bone loss). Does anyone know of one that is gluten-free? I suppose that is a different thread. I will keep checking this as I would love to gain some weight, although I am trying not to obsess about it as I have in the past.
Posted 24 December 2004 - 10:31 AM
" 15 years of it's stress!"
"blood work show's a disease called celiac,
but it can't be that because it's rare!"
Diagnosed via blood and biopsy 2003
Not a medical professional just a silly celiac
offering support, my
experience and advice
Posted 28 December 2004 - 11:18 AM
When I was very sick with celiac (before diagnosis) I lost close to 15 pounds and found it very hard to gain weight. I was underweight, I'm 5"6 and 3/4 (almost 5"7) and I was hovering around 112/114 pounds at the time.
After being on the diet for almost 10 months I have gained some weight but not a noticable amount. I'm now about 119/120 pounds which is normal but borderline underweight.
Diagnosed with Celiac Disease in March 2004
Postitive tTg Blood Test, December 2003
Positive Biopsy, March 3, 2004
Posted 29 January 2005 - 08:04 PM
I've also been told that Boost Plus and Ensure Plus (both of which are gluten-free and lactose free) are great to add on weight; I haven't tried them yet, though.
Good luck to everyone out there; I can certainly commiserate, as I repeatedly get people commenting on how thin I am (some have even told me they believe I have an eating disorder--sigh).
Gluten free since December 2004
Soy free since June 2005
Dairy free since July 2006
Posted 16 March 2005 - 07:39 AM
Laura in Ohio
Posted 16 March 2005 - 09:27 AM
They taste like candy and provide 500mg Cal per chew..
I have 2-3 a day...
Diagnosed Celiac in Feb 2004
0 user(s) are reading this topic
0 members, 0 guests, 0 anonymous users