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Confused About Test Results!
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Hello. I am a few weeks shy of turning 27. I have had stomach issues since I can remember. I have had an endoscopy performed years ago to check for ulcers, it was negative and I was put on nexium (which did nothing). I have also been told I have IBS from time to time. About 10 years ago I tried to donate blood and was told no - I was anemic. I am always tired, no matter how much I exercise or how well I eat. My main problem is TERRIBLE discomfort after I eat - MAJOR bloating and all that good stuff! Anyhow, I just moved to Houston and decided to find a PCP and get a physical. I told him my history and how I feel sick 9/10 times after I eat. He mentioned celiac disease, first time I'd heard of it and suggested we run a test. My results showed a "weak positive" for the IaG antibody. It also showed that I am still anemic. I have an appointment with a gastro. in 2 weeks. But, I am MEGA stressing b/c this is all foreign to me - I need some advice b/c 2 weeks is a lot of time to wait and all this googling is taking a toll ;) . Does the weak positive, along with my constant abdominal discomfort mean that I probably do have Celiacs? If anyone has a chance, please let me know! Thanks so much.

Allison S.

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A positive is a positive. Your immune system is producing antibodies to gluten - which is what gluten intolerance is. If you're looking for a full on celiac diagnosis, you may need a biopsy, as celiac specifically tends to refer to the damage in the intestines (or inferred damage based on blood test results) caused by the gluten intolerance. The question is: does the gluten-free diet help your symptoms? (Probably not a question you can answer until yoiu see the GI and determine if you'll do any further diagnostic testing that isn't the diet.)

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Thank you Tiffany. I guess I just have to be patient and see what the gastro. says in a couple of weeks. I just keep reading so much about it and I am freaking out a bit...this all came out of left field :blink: All I can do now is hope for the best.

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Please don't "freak out". The good news is that you already have the answer to your problem, and the solution is simply a gluten-free diet. No medicine side effects to deal with! My celiac disease was missed by 5 (five) doctors....thanks to forums like this, I self diagnosed, and my problems are resolving.

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I am new here also and it is so relieving to hear that I am not alone. I share all of your symptoms. The bloating, the IB diagnoses, the getting sick after you eat 9/10 times. My PCP is the one who caught the celiac disease. She has been treating me for IB, sent me to a gastro specialist who put me on more Rx's. 10 years later I now know the cause. YEA!!! But now am stressing because I have to change my diet and don't even know where to begin. (I got the test results in this morning saying I was positive for celiac disease)

Just wanted to let you know you are not alone!! That is something that I am just now figuring out.

Good Luck!

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Maxwell: Anxiety (STRESS) = Degree of Unknown X Degree of Importance. It's very important that you eliminate all sources of gluten from your diet. But you can greatly reduce the degree of unknowns by learning which foods naturally contain gluten (wheat, barley, rye and oats by contamination) and which ingredients contain gluten by referring to the safe and unsafe (gluten containing) lists on this and other celiac websites. Learning which ingredients contain wheat/gluten will help you to interpret food product labels. Then go through your pantry/refrigerator to examine everything you eat which may naturally contain gluten or have gluten containing ingredients. Rather than eliminate all your favorites, look for gluten free substitutes. There are MANY other grains (besides wheat, barley, oats and rye) which are naturally gluten-free. There are many companies which produce great gluten-free breads, pastas and pastries. There are many brands of condiments and/or processed foods which make gluten-free versions of those foods. If you think SUBSTITUTE, not ELIMINATE, that will make you feel less deprived at first. Many celiacs recommend eating only naturally safe foods like fresh vegies, fruits, meats and rice. I feared a sense of deprivation which would make me 'cheat' more than I feared gluten contamination, so I focussed on gluten-free substitutes at first. After I had to also eliminate dairy and soy, my safe foods did include a LOT of fresh meats, vegies and fruits, and nuts, but I still have my gluten-free favorite breads and cookies. :D Good luck!

BURDEE

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Please don't "freak out". The good news is that you already have the answer to your problem, and the solution is simply a gluten-free diet. No medicine side effects to deal with! My celiac disease was missed by 5 (five) doctors....thanks to forums like this, I self diagnosed, and my problems are resolving.

yeah, I totally agree! For me, the local docs said celiac disease...the one specialist said nothing..the other specialist said IBS..

endoscopy=negative..colonoscopy=negative..bloodtest=negative.

Self diagnosis was the only way I knew I had celiac disease. Plus, I was on the diet way before I had any tests done. Since all the tests check for your reaction to gluten, obviously I couldnt have a reaction if I have no gluten in me :P

So be glad you found out as quick as you did!

~lisa~

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      Thanks heaps. I will def be going private if the wait is too long. I have done a little research but i thought a gluten intolerance and coeliac was the same lol. My iron levels are just below average apparently but she said not bad enough for me to be this tired.
    • How effective is HD skin biopsy after being gluten free for a year
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    • How effective is HD skin biopsy after being gluten free for a year
      No one can say exactly how long you might be able to get a positive dh biopsy after having been gluten free as long as you have been. The Chicago Celiac Disease Center says this: http://www.cureceliacdisease.org/faq/im-scheduled-to-have-a-skin-biopsy-to-screen-for-celiac-disease-should-i-maintain-a-gluten-containing-diet-similar-to-those-who-are-being-screened-via-blood-or-intestinal-biopsy/ http://www.cureceliacdisease.org/faq/what-is-a-gluten-challenge/ You said you had a flare of the plaque psoriasis -- that is NOT dh so why do you think the dh biopsy will show positive? Testing positive for the celiac genes does not mean you have celiac disease. 30+% of the population have the celiac genes but only very, very small fraction of those people do or will present with celiac disease. The gene tests are only used to rule OUT celiac NOT to diagnose it. Frankly, I can understand why your GI does not put any stock in your Primary doc's thinking you have celiac disease. A positive celiac gene and the boils in your armpits which the GI never saw and were never biopsied for dh but they resolved on a gluten free diet and so did your plaque psoriasis. That's all the GI has to go on. I don't know why you are pushing an endoscopy. If you've been eating strictly gluten free then an endoscopic biopsy for celiac will be negative.  Your PCP should have done a celiac blood panel on you back when you were still eating gluten rather than dx you based on the celiac gene you tested positive for.
    • How effective is HD skin biopsy after being gluten free for a year
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