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Confused About Test Results!
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Hello. I am a few weeks shy of turning 27. I have had stomach issues since I can remember. I have had an endoscopy performed years ago to check for ulcers, it was negative and I was put on nexium (which did nothing). I have also been told I have IBS from time to time. About 10 years ago I tried to donate blood and was told no - I was anemic. I am always tired, no matter how much I exercise or how well I eat. My main problem is TERRIBLE discomfort after I eat - MAJOR bloating and all that good stuff! Anyhow, I just moved to Houston and decided to find a PCP and get a physical. I told him my history and how I feel sick 9/10 times after I eat. He mentioned celiac disease, first time I'd heard of it and suggested we run a test. My results showed a "weak positive" for the IaG antibody. It also showed that I am still anemic. I have an appointment with a gastro. in 2 weeks. But, I am MEGA stressing b/c this is all foreign to me - I need some advice b/c 2 weeks is a lot of time to wait and all this googling is taking a toll ;) . Does the weak positive, along with my constant abdominal discomfort mean that I probably do have Celiacs? If anyone has a chance, please let me know! Thanks so much.

Allison S.

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A positive is a positive. Your immune system is producing antibodies to gluten - which is what gluten intolerance is. If you're looking for a full on celiac diagnosis, you may need a biopsy, as celiac specifically tends to refer to the damage in the intestines (or inferred damage based on blood test results) caused by the gluten intolerance. The question is: does the gluten-free diet help your symptoms? (Probably not a question you can answer until yoiu see the GI and determine if you'll do any further diagnostic testing that isn't the diet.)

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Thank you Tiffany. I guess I just have to be patient and see what the gastro. says in a couple of weeks. I just keep reading so much about it and I am freaking out a bit...this all came out of left field :blink: All I can do now is hope for the best.

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Please don't "freak out". The good news is that you already have the answer to your problem, and the solution is simply a gluten-free diet. No medicine side effects to deal with! My celiac disease was missed by 5 (five) doctors....thanks to forums like this, I self diagnosed, and my problems are resolving.

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I am new here also and it is so relieving to hear that I am not alone. I share all of your symptoms. The bloating, the IB diagnoses, the getting sick after you eat 9/10 times. My PCP is the one who caught the celiac disease. She has been treating me for IB, sent me to a gastro specialist who put me on more Rx's. 10 years later I now know the cause. YEA!!! But now am stressing because I have to change my diet and don't even know where to begin. (I got the test results in this morning saying I was positive for celiac disease)

Just wanted to let you know you are not alone!! That is something that I am just now figuring out.

Good Luck!

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Maxwell: Anxiety (STRESS) = Degree of Unknown X Degree of Importance. It's very important that you eliminate all sources of gluten from your diet. But you can greatly reduce the degree of unknowns by learning which foods naturally contain gluten (wheat, barley, rye and oats by contamination) and which ingredients contain gluten by referring to the safe and unsafe (gluten containing) lists on this and other celiac websites. Learning which ingredients contain wheat/gluten will help you to interpret food product labels. Then go through your pantry/refrigerator to examine everything you eat which may naturally contain gluten or have gluten containing ingredients. Rather than eliminate all your favorites, look for gluten free substitutes. There are MANY other grains (besides wheat, barley, oats and rye) which are naturally gluten-free. There are many companies which produce great gluten-free breads, pastas and pastries. There are many brands of condiments and/or processed foods which make gluten-free versions of those foods. If you think SUBSTITUTE, not ELIMINATE, that will make you feel less deprived at first. Many celiacs recommend eating only naturally safe foods like fresh vegies, fruits, meats and rice. I feared a sense of deprivation which would make me 'cheat' more than I feared gluten contamination, so I focussed on gluten-free substitutes at first. After I had to also eliminate dairy and soy, my safe foods did include a LOT of fresh meats, vegies and fruits, and nuts, but I still have my gluten-free favorite breads and cookies. :D Good luck!

BURDEE

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Please don't "freak out". The good news is that you already have the answer to your problem, and the solution is simply a gluten-free diet. No medicine side effects to deal with! My celiac disease was missed by 5 (five) doctors....thanks to forums like this, I self diagnosed, and my problems are resolving.

yeah, I totally agree! For me, the local docs said celiac disease...the one specialist said nothing..the other specialist said IBS..

endoscopy=negative..colonoscopy=negative..bloodtest=negative.

Self diagnosis was the only way I knew I had celiac disease. Plus, I was on the diet way before I had any tests done. Since all the tests check for your reaction to gluten, obviously I couldnt have a reaction if I have no gluten in me :P

So be glad you found out as quick as you did!

~lisa~

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    • Advil (ibuprofen) is gluten-free, but can be a stomach irritant, especially if taken on an empty stomach. That said, I will also place my bet on the garlic and onions. As Raven said, eating more than once a day may also help. An empty stomach is likely to be an irritable stomach.
    • Another link: http://naldc.nal.usda.gov/download/7351/PDF
    • Thanks for posting.  I know it is difficult to talk about these sorts of things even on a webforum.  It is good thing for people to be aware though about celiac disease and that it can cause mental problems.  Gluten can cause brain damage and it can cause anxiety. If the brain does heal it may take a long time. I know that gluten can cause anxiety and obsessive thoughts.  My experience has been similar to your experience. When I first quit eating gluten I had a similar constant loop and strong negative feelings. There are lots of people on this forum who get anxiety when they eat gluten. Some people also experience gluten withdrawl where they experience anxiety after giving up gluten. It can take a long time for the body to heal and for obsessive thoughts to go away.
       It is normal for people to socialize with each other and to be comfortable about it. You said you have problems still socializing and being around people. It might be a depressing thought but it sounds to me like you still have problems with anxiety.  I would recommend considering what options you have available to treat the anxiety. When I quit eating Gluten I still had some symptoms, even though I felt much better. I have been slowly recovering over a period of about three years. I had obsessive thoughts even after I quit eating gluten.  Now I very rarely if at all think about those things. My experience is that my mind would latch on to certain things that caused me anxiety and focus on those things. Sometimes my focus would shift and I would latch onto other things. My ability to socialize has also improved greatly with time. I have made some dietary changes which I believe have helped greatly. It sounds to me like you have obsessive thoughts about things and maybe some brain damage. My experience has been that my obsessive thoughts about different things went away with time. I feel my obsessive thoughts were caused by gluten and not by what people did around me or any events. As my brain healed I became more self aware and things became less stressful.  I can't give medical advice on this forum but I can talk about my current diet and my experience with celiac disease. My experience with gluten is different from a lot of other people so it is a good idea to ask other people and to talk to a doctor.  I avoid oats and avoid almost all processed foods. I buy certified gluten free food. I eat healthy and I exercise every day. I take st John's Wort as I have read studies that say it may be as effective as some other anti-depressants for treating certain types of anxiety. It is available over the counter. I started with a small dosage and then stepped it up over time. I think it helps a lot.  This is also something that you should talk to a doctor about first. https://www.researchgate.net/profile/Martin_Mahoney2/publication/7426926_St._John's_wort/links/540d8acc0cf2f2b29a386673.pdf A lot of people with celiac disease have vitamin deficiencies.  Vitamin b deficiency can cause anxiety. Some people do not process the synthetic form of vitamin b (from normal pills)  very well, and do better on an activated form of vitamin b. I take:
      1 activated vitamin b12 daily
      1 activated vitamin b6 every once in a while. 1 regular vitamin b multivitamin
      1 magnesium pill every day.
      St Johns Wort daily.
      1 zinc vitamin daily
      I drink lots of Chamomile tea and decaf coffee. I avoid most caffeine. 
      I think each of these helps lower my anxiety level.  I eat fruit with every meal. Canned fruit from walmart is cheap and good for you. I eat salad and and vegetables and avoid dairy.  I eat frozen fish often as it has healthy proteins. Eating healthy is very important. I eat potatoes and rice. http://www.livestrong.com/article/454179-what-is-methyl-b12/ I avoid eating soy sauce, soy, cheese, aged meats and fermented foods (I do drink certain types of alcohol in moderate amounts.) These foods contain lots of Tyramine. I might (or might not) have "monoaine oxidase deficiency" and if so high Tyramine foods should be avoided.  I thought I might have problems with elevated ammonia in my blood, but I am not convinced of that anymore. I limited my consumption of meat for a while as well as dairy but I am not sure if i helped.  I have heard that Celiac disease can effect other organs besides the brain and those organs can have an effect on the brain.  My current diet is working so I am going to stick with it for now. I try not to worry about things that are outside of my control. Be patient as it took me a long time to recover.  Let me know if you have any questions. There is a lot of information on this site and people who are willing to help.
       
    • Thank you. This is really helpful. I will call around next week.  I just want to heal! 
    • My endoscopy showed i had decreased folds in my duodenum. The biopsy came back and showed that my villi were fine... i have been on a gluten free diet for 6 years because i was just told i was intolerant but never had any testing before. when i eat gluten i get sick for 2 weeks. i came down with issues of other foods in march so they were trying to figure out why and wanted to know if i had celiac are not because that would explain why dairy and fructose are a problem.. both intolerant test for both were negative but the fructose test made me extremely sick but it was negative...      Im trying to figure out why i have decreased  folds in the first place. my Gi doctor is stumped on that to why the endoscopy would show damage but the under the microscope are fine. She is going to call the dr who did my scope and then is supposed to get back to  me..    would being gluten free for 6 year make it so there was damage and then my vili are now fine but still cant be seen in the endoscope?
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