Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Staying On The Diet
0

8 posts in this topic

I have known about my Celiac disease for about five years, and probably had it for at least 8. I constantly had stomach aches and was exhausted. Since my diagnosis I have gone on and off the diet. I can feel the consequences but somehow I still eat gluten. Compared to most, my reactions aren't that bad. I get a bad stomach ache and feel exhausted. Is there anyone that can convince me to stay on this program? I know what may happen: It will ruin my intestine and may give me stomach cancer, I don't know if I really understand it though. Thanks.

0

Share this post


Link to post
Share on other sites


Ads by Google:

Anyone in your family have lupus? It killed my grandmother. I figure it could kill me, too. Anyone have rhumatoid arthritis? That would be a nasty thing to get. I've got a big ugly, red, itchy patch of eczema on my leg - another autoimmune disease - that I would have rather not gotten. Probably wouldn't have it if I had been diagnosed in time. You may have light symptoms now, but as you get older and your immune system gets more tired, you will probably have more trouble.

Is this the sort of response you were looking for?

0

Share this post


Link to post
Share on other sites

"Is there anyone that can convince me to stay on this program?"

No. Until you determine if your quality and length of life is more important than the taste of wheat based products, you won't stick with the diet. And I don't mean that in a rude or judgemental way; it's possible that someone finds bagels and wheat pasta so important to their life that it is worthwhile, in overall happiness over the span of their life, to deal with whatever level of symptoms they have an risk dieing earlier. I'd disagree, of course, but that wouldn't mean it wasn't true for them. ;-) (My moral philosophy is ethical egoism... this take on it comes from that.)

Some reasons to consider:

* Eating gluten when you have gluten intolerance will:

- Give you intestinal symptoms (even if they are mild)

- Give you other symptoms (mental and physical, and again they may be mild)

- Lower your quality of life, by an amount that you can't determine until you try being gluten-free for a while, and by an amount that may vary over the course of your life

- Increase your risk of dieing early

- Increase your risk of cancer and the cost, symptoms and medical treatments (many of which are uncomfortable) along with that

- Increase your risk of diabetes and the cost, symptoms and medical treatments (many of which are unpleasant) along with that

- Increase your risk of other autoimmune diseases and the cost, symptoms and medical treatments (many of which aren't fun) along with that

* Avoiding gluten, while initially difficult, is a learned skill that becomes easier with time.

* Taking full responsibility for your health and the work that goes into maintaining your health is representative of other healthy choices to be made in your life and is practice for all of those other decisions.

Those are just a couple things that come to mind.

0

Share this post


Link to post
Share on other sites

paradise2004,

Hi. Glad you're here. In 1977 I learned that my sister, brother, and I were the only ones on my mother's side of the family to not have Polycystic Kidney Disease, an hereditary, terminal kidney disease. I watched my mother, grandmother, two aunts, and two cousins die of the disease. Imagine how ecstatic my sister, brother, and I were to realize that we had been given a life without the threat of this terminal illness (my mother died at 48).

Later we watched as our father died of colon cancer. Oh what we would give to have our mother and father here with us now, as we, along with our children and grandchildren experience life.

Celiac Disease has tried to bring us all down. It has caused physical illness, depression, doubts about our sanity, conflict, anger, irritation, frustration, and pain. Suffering is no stranger to us. Why would we give in to it, and cause our early demise, by eating foods which we know are poison for us? My dad always told me, "Don't be a quitter!" I'd be giving up, just quitting, if I let grains, milk, dairy, egg whites or yeast pass these ruby red lips--lips which have so much good and so much positive to share with others. I just won't do it. I will stand up and fight! I will take each day and make the most of it, giving my best. I will offer hope and inspiration to others, who may not know what to do. I will thank my Creator that He spared me from an hereditary kidney disease and colon cancer, and that He gave me the opportunity to live my dreams.

We care about you, and we really want you to join with us in this fight. Together we can change the world. We can make a difference. We can experience victory, joy, and jubilation. Yay! Go team, go! Welda

0

Share this post


Link to post
Share on other sites

It's really up to you and you have to decide if you want to die when you are 60 or when you are 100? I choose 100 but it is really up to you. If you want to be throwing up and being sick all the time then that is your choice, but if you want to be happy and healthy, stay on the diet.

0

Share this post


Link to post
Share on other sites




OK, I'll add my 2 cents' worth: When you 'cheat', whom are you cheating? Only yourself. ;) When you learn that touching a hot burner on a stove will cause pain and damage your body, do you intentionally put your hand on the hot burner? Would you 'cheat' the 'rule against touching the hot burner' if you did?

Perhaps the 'cheating' notion comes from calling the gluten free eating program a 'diet'. Most diets deprive us of foods we like and force us to eat foods we dislike. That's not necessarily so with the gluten-free approach. You can find GREAT gluten-free substitutes for many gluten containing breads, pastries, pastas, etc. You can find gluten-free brands for many condiments and gluten-free versions of many other foods. Focus on SUBSTITUTION, not deprivation.

You may discover many great foods you never tried, because you were stuck in a gluten rut. I certainly was. :( I hardly ever tried other grains or starches, because I didn't like white rice or white russet potatoes, but I ate a LOT of gluten laden breads. I seldom tried other ethnic foods. Now I love all kinds of rice, rice noodles, quinoa, amaranth, many varieties of nuts and nut butters, all kinds of beans, squashes, and any potato except russet. I love trying authentic Mexican and Thai restaurants which have lots of gluten-free choices. Even though I must avoid dairy and soy, as well as gluten, I now have soooo many more food choices, because I was forced to look beyond my old favorites. ;)

BURDEE

0

Share this post


Link to post
Share on other sites
:D i tell people that i am not on a diet--it's a way of life and gluten-free is a way of life--when you are diabetic and have to change the way you eat, its not called a diet--same thing--its the way we live, no ifs, ands, or buts--i tell people i do not have a wheat allergy, but that i can not tolerate any wheat in my system and then i add or barley, rye, and oats and they dont understand, its up to us to educate people--lets be teachers----deb :P
0

Share this post


Link to post
Share on other sites
;) ps---we cant look at gluten-free as a life sentence--its---WOW, I HAVE MY LIFE BACK--YEHA-------deb :D
0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,662
    • Total Posts
      918,516
  • Topics

  • Posts

    • Celiac - Not yet diagnosed but feel like I'm dying.
      Hi Dylan I just wanted to join SLLRunner in welcoming you to the forum and yes, do ask to be tested for Celiac and Chrons. My nutritionalist told me that celiac disease is a great mimicker of many illnesses which I think must make a doctor's job all the harder when it comes to diagnosis.  For many of us it took us  a long time to get a diagnosis - for about eight years before my own diagnosis I had ulcers,  odd migraines and hallucinations on waking, anxiety, elevated blood protein but no obvious cause for it, anemia, numb hands and arms in the mornings, and eventually the abdominal pain and severe diarrhea. It was all scary stuff but  it was only when I got the last two symptoms, for six weeks, that I was tested for celiac disease (for the protocol here in the UK is that if you have a new gastric symptom for more than six weeks you should have further investigations).  I still wonder if I hadn't had that gastric pain and diarrhea whether my doctors would have even thought it was celiac related? After all you have been through it is not surprising that you are feeling depressed.  A lot of people feel very depressed and anxious before their diagnosis.  You are doing the right thing seeing a new doctor, and hopefully you are just around the corner from getting some long awaited answers.   Keep us posted.  You will find  some great advice here and support during your journey.  All the very best.
    • Costco
      This forum post came up when I Google searched Kirkland Dish Soap. I called them today and they said there is no gluten in the dish soap. Janis 
    • Food tolerance issues post-diagnosis
      In light of the studies that found some probiotics that are labeled gluten-free yet tested over 20ppm I wouldn't touch them. Now those would be the powder or pill forms. Yogurt is not affected by that. Since you don't have a problem with dairy then I would say eat some yogurt every day. I like Chobani Greek because it has more kinds of cultures. Remember now that powder or pill forms of probiotics do not come under the gluten-free labeling law. The same for OTC & prescription meds. You need to check every single one of those. There are a few online sites where you can check things like that or ask here but as far as prescription meds -- call the manufacturer EVERY TIME. I also wanted to tell you in case you didn't already know that since celiac is genetic and can present at ANY age then all your first degree relatives need to be tested every 2 years in the absence of symptoms and immediately if symptoms present between the 2 year periods. As far as the digestive enzymes go, I tried Digest Gold for a short time & it really didn't seem to do anything for me however I will say I had a lot of issues going on at the time so I might not know if they helped or not. I decided to quit them in order to take that out of the equation so I could try to pin down what was causing me distress. The fewer things in the mix you know. I have heard people report the same as your consultant said. Some say they helped & some say they didn't. Remember Jammy, you're just in the beginning stages. I KNOW you want to heal & heal FAST. Been there, done that! It's like this: you didn't get sick overnight & you're not going to heal overnight. Patience is the watchword here. It's hard I know! You just want to get on with your life. We can all relate.  Again, I'm going to say to eat foods easy on your gut. WELL cooked foods. No raw carrots, coconut, nuts & stuff like that. Easier on your gut would be nut butters.... peanut butter, cashew butter, almond butter etc.... It's sort of like being a baby ---  soft, easy to digest foods. Bone broth is a great healer for you gut & extremely nutritious as well as being easy on the digestion. Here's just one recipe: http://wellnessmama.com/5888/how-to-make-bone-broth/
    • Food tolerance issues post-diagnosis
      Thanks for the tip! Will try that out in the next few days. By the way, has anyone had any joy with probiotics or digestive enzymes in terms of symptom relief/speeding up the healing process? I asked my consultant about this when I saw him last week and he said that some people find them beneficial while others don't, but obviously I'm keen to try anything that may help, with uncomfortable fullness/bloating/gas still being my main issue  - is it worth giving them a go?
    • Are The Following Gluten-free?
      I realize that this is an old thread but I would just like to say something about label reading. Just because a product says gluten free on the label doesn't mean that you don't have to read any further and can have complete trust in the product.  There are a lot of products that state that they are gluten free on the package and then you find out that they are processed in plants that also produce wheat products. If you are super sensitive, you need to know that information. I am afraid that there is no escaping reading labels in supermarkets unless you know that the company makes it's products in a truly gluten free environment (even then you should read labels because ingredients can and do change, even in products made in gluten free facilities), It's a pain to stand there and read labels but if you are super sensitive, you might just have to do that. For example, I am gluten and lactose intolerant but also sensitive to nuts and sesame. While it may be fine for other gluten intolerant people to eat something that's labeled gluten free which is produced in a gluten free facility that also processes nuts, for me it is not.. 
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,751
    • Most Online
      1,763

    Newest Member
    The sweet cheeks
    Joined