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Newbie Here
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:o Hi everyone, My name is Terri and I have been newly diagnosed with celiac sprue and it all seems soooooooo overwhelming. I know nothing about this and all the different web sites are so confusing. Any suggestion?
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:) Thank you so much, this will be a big help
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My most important suggestion:

Take a deep breath and remind yourself to be patient.

You ate gluten for a number of years, you've got a pretty ingrained habit to break. You'll make mistakes - don't fret about them, just learn from them. You'll have good days and bad - don't stress about those, just move forward. You'll encounter people who aren't helpful - don't worry about them, just have the confidence to continue doing what you need to do. You may struggle through adapting to a new way of cooking - don't let that intimidate you, just take it one step at a time.

Make sure, for the time being, to stock up on things that are naturally gluten free. Whole foods like produce, meat, and rice/beans that come as they grow, not with anything added to them. Starting simply helps you not worry about contamination or reading every label in detail ('cause apples don't have ingredient listings ;-) ) while you take some time to read information available here and on other websites.

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Hi Terri,

I wanted to first of all welcome you here to the site. You will find a bunch of incredibly supportive, knowledgeable and wonderful people here.....

The gluten-free diet can be so incredibly overwhelming at first. All I can tell you is that you will get used to it. You will get so used to it that you just do it naturally.... It takes time, but just be patient with yourself, it is alot to absorb at first.... Secondly, knowledge is power, and you have to arm yourself with the knowledge. Read, and read lots!!! When you go shopping, take lists with you of things that are okay, so it makes for a more stress free shopping experience.... You can do this, we have all been at the starting gate, and we will help you along as much as you ask us to......

Welcome from Canada,

Karen

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Hi Welcome and I'm new too! I think the adjustment to having celiac disease is made easier or more difficult depending on how you ate before. For me and I'm so new at this I only have a few weeks under my belt, but eating at home is not so difficult. I went and downloaded off of web sites lists of gluten-free food that can be found in my regular store and then I went to the web sites of foods I like, like Hood Milk, Newman's Own and many of them list foods they make that are gluten free. At home we have always eaten very little processed or packaged food so that made it a bit easier for me, I think.

I was big on eating out and I'm disappointed that I won't be doing that as much. I posted in another part of this forum that I'm taking a cruise at Christmas and we notified the Cruise line that I need a gluten free diet and they said they can't do gluten free diets, its Windstar Cruises fyi. However they think there is enough food that I can eat there that is gluten-free. I'm doubting that but I'm still taking the cruise.

So I think you may find that after doing some research eating at home is pretty easy.

Any how, again welcome and I'm sure you will figure it out and it will become second nature.

Susan

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I would like to welcome you to the board! It is an awesome board and you will learn a lot from it!I have been diagnosed since I was a baby, 20 months old. So I know a lot about it. If you have questions you can always e-mail me or PM me.

I have one huge comment:

And it is think positive not negative. When you're negative you get depressed. If you go to the stor and all you see is food you can't eat, you're going to think that you can't eat anything.

Instead you should think that 'Wow I can eat that, that is awesome." you'll be happier. YOu will just be in a better mood because you will be like, I didn't kow I could have that, and that is much better than being like, wow this sucks, i can't eat anything.

Also don't expect to feel better in one day. It may take a couple of weeks to feel a difference because you are so badly damaged, but once you start feeling the difference, you will feel a whole lot better, and it does get better. I promise you it will get better.

People think that this diet sucks, but I have lived with it all my life and there was no gluten-free food back then 13 years ago. NOw there is so much better food and much more variety. I had gross food when I was little, but every year it got a little better, and then in the last two years the food got SO much better. So you are lucky that there is so much food now and it is so much better.

Being diagnosed it a privilage, you won't be sick anymore and you will have so much more energy than you have ever had.

I just want to say that you will be much better as time goes on and you will be glad that you have been diagnosed early and that you won't have to suffer more for the rest of your life and you will feel much better soon.

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Thank you all for your support. I really appreciate any help I can get. You guys are awesome. I see a dieticain next Friday so maybe they can help me to.

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;) i hope the dietician can help you, but dont be disappointed if she or he doesnt--many in the health field are not as into certain diets as they should be--now if you were meeting with my sister, a celiac dietician, you would learn so much--there was a post in here about a dietician who told the celiac that a little crumb wont hurt--and as everyone tells you--you will get the best info you can receive from these forums--living and learning is the best teacher and we have all become very good teachers :P good luck--deb :rolleyes:
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Deb, I might have alot of question for you to ask your sister after I meet this dietician if thats ok. I bought 2 book on Celiac sprue so I'm reading them know. Some of the stuff in it is confusing though. One part tells you that you can have mono - dig. and one part says no. ;) dont know which is right

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:D feel free to email me at anytime terri--my sister has helped me a lot--in her cafeteria kitchen at the hospital, there is a shelf for celiac products only--she gives the doctors info they need to know and has even helped patients get testing for celiacs--my email addy is on my post ;) deb
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    • Newly diagnosed and totally overwhelmed
      Hi!  I know I'll never forget the day I was told after an endo- and colonoscopy that I indeed had celiac disease.  I immediately went to a Trader Joe's grocery store and bought some gluten-free things to eat. about a month later I had a Total meltdown in my car outside a grocery store---feeling So Sorry for myself!   I cried and said I'll Never to able to eat what I want to again! that was 10 years ago and gluten-free foods have come a long way.... I love having a gluten-free everything bagel and delicious gluten-free 'Oreo cookies'----neither of which there were 10years ago. Everyone who has responded so far have Great Tips!  The best news is that your Diet will cure you!  I do not know of any other condition where this is true!! BTW---some of your friends and family Will understand and will make sure you aren't hung out to dry foodwise........and others just won't/can't understand and will think that just avoiding bread is enough..... Be kind, but don't risk your health to be nice to someone who forgot or doesn't understand. keep reading!  Keep trying different gluten-free foods to find what you like!   Best wishes!!  
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      Boy, you've sure had a rough time of it! My heart goes out to you! I love your positive attitude about coping until your villi heal more. THAT is your greatest ally in this journey. Okay, now to your problems...... Your gut is still damaged. You aren't healed yet - you know that as you've stated it. It can be really wonky for the first 6 months to a year. It's like being on a roller coaster ride & you can have good days & sucko days & good weeks & weeks that are the absolute pits. My advice would be to ditch all the processed gluten free foods. You'll heal faster & have less problems eating "whole foods" --- fresh or frozen fruits & veggies, meats & dairy as long as you can tolerate it. Forget the corn flakes & rice krispies. They may be gluten free but it's still processed food & therefore full of all kinds of chemicals & preservatives & stuff you don't need. We always tell people to spend at least the 1st 6 months avoiding the processed foods. Time enough to get into those after you heal right? How about for breakfast you have a couple eggs, either fried or pan scrambled. Some fruit -- bananas, pears, whatever floats your boat, a glass of milk, some yogurt. You may need to have well cooked foods for a while & that means mushy veggies as well as fruit. From the sound of the extent of damage you had I would say that's where you ought to be at this point. You don't want to make things any harder on your gut than necessary for the time being. You do have one great big thing in your favor & that's your age. You're young & will by all rights heal up much faster than us old geezers who weren't diagnosed until our 50's, 60's & 70's after a lifetime of damage. Please read our Newbie 101 & follow the links contained within the threads. This will give you a ton of valuable information. Just click on it:  
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      Anti-Endomysial (EMA) IgA
      Anti-Tissue Transglutaminase (tTG) IgA
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