Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Bioposy Wednesday!
0

7 posts in this topic

Hi I just needed to vent somwhere! and I find you very helpful. I just don't know how I am going to get my DD through these next few days. The dr's have her on a liquid only diet for 2 days before the test which is wednesday. ONly drinks and jello she is hyperglycemic so i am waiting for her to crash any second. I let her go to school this morning but picked her up for lunch I did not think it was fair to have her sit there while everyone ate. I am so nervous about the testing they are doing the endoscope and a coloscopy (there was blood in her stool). Her 1st blood tests came back positive but the GI dr did a different blood test that came back negative. they have done upper gi's, allergy testing, ulrasounds and numourous other testing I just can not wait for them to figure out what is wrong. Shes foggy headed alot, her belly swells pretty big after she eats. shes always tired, gets confused easily, has constant stomach pain sometimes severe I will find her laying on the bathroom floor some nights crying it hurts so bad She has also now had 2 episopes where she has been bede ridden for a day with severe belly pain and headaches her list of symptoms go on. celiac disease seems to be the answer I just hope they figure it out soon. HOw did you other parents get through these test I am a nervous wreck THey will be putting her to sleep I think thats making me very nervous. Sorry for ranting I am just on edge THanks for listening.

0

Share this post


Link to post
Share on other sites


Ads by Google:

I know how difficult it must be to watch your child go through this. I had the biopsy last month and I slept peacefully and didn't even know they had done the procedure. You'll be in my prayers. If she has Celiac, at least you'll finally know what it is and head in the direction of wellness :)

Lily

0

Share this post


Link to post
Share on other sites

I'm silly but I chose to think of it this way.. I was going to joke with the anaestesiologist that he should come by the house every day around 1:30 so I can get my ornery toddler to take a nap every day!

It'll be fine!

0

Share this post


Link to post
Share on other sites

I'll be hoping that all goes well, and that you receive a speedy reply. If the diagnosis is Celiac, you have a route to good health that will help you forget all this pain and suffering that has occurred. Godspeed! Welda

0

Share this post


Link to post
Share on other sites

Why the fluid only diet? I would have thought this could sway the results. Grace was NBM (Nil Orally) for 8 hours before surgery but was encouraged to be on a diet containing Gluten up until her biopsy.

I hope they find an answer for you as having a sick child is very debilitating for your spirit as a parent.

Good Luck.

Wendy

0

Share this post


Link to post
Share on other sites




Wendy, I believe the fluid diet is used to clear out the digestive tract as much as possible so the endoscope has freedom of movement.

0

Share this post


Link to post
Share on other sites

Ah probably another difference in protocols in different countries. I used to nurse in Theatres and we did endoscopes regularly. In Australia and NZ rarely we put people on Fluid only etc, Usually just the usual Nil By Mouth for 8-12 hours.

Thanks for your reply, I was just curious cause sometimes the preparations for the tests are quiet difficult and traumatic for kids and it would be nice if the preps were as simple as possible.

Cheers

Wendy

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,092
    • Total Posts
      920,314
  • Topics

  • Posts

    • WOW.  That looks eerily familiar.  Last December the temporary provider here at my local (rural) clinic gave me doxycycline to experiment with, but it was a mere ten milligrams.  Lol, no wonder it didn't help!  I'm glad you're feeling better.
    • I got cross contaminated some time ago & the rash came back pretty badly. I've attached a photo taken on June 11th of my back. It was also in my scalp, around my neck, on my front, shoulders, inner wrists and more.   Tonight I am not itching at all! I haven't itched all day long!!!! I can't take Dapsone because I'm allergic to sulfa drugs & Dapsone is a sulfa drug. Obviously that means I also can't take any of the other sulfa drugs that are used to treat dh after Dapsone is not an option. After those comes tetracycline. I really needed some relief! I began researching the dosage & particulars on tetracycline for dh. Extensive & exhaustive research did not pan out. The best I could find was treating Bullous phemphigoid. That said something like 500mg of tetracycline 4 times per day and about an equal amount of niacinimide. I really didn't want to take that much medication and in such strong doses. So my doctor (my PC doc) & I began experimenting. We tried Doxycycline 100mg twice a day. It seemed to be helping some but it just wasn't enough. Then we upped it to 200mg Doxycycline twice per day. It has taken about 5 days of that & I sit here not itching all day for the first time in a long, long time! This may not work for everyone. I did want to post it though as it is, at present, working for me. I am not thrilled at taking it but I have toughed this rash out before for years with no meds and I just couldn't do it again.
    • I laughed out loud at the 'little notebook' comment!😂 It has been interesting to see how much progress has actually been made over the past 10 years that there is even a notebook to be offered or a restaurant to eat in that will accommodate our 'allergy'. 10 years ago I feared that I would never eat in a restaurant again.  But the notebook comment is spot on.  Hopefully within the next 10 years restaurants will evolve enough to offer us a menu that clearly lists the delicious and extensive offerings that they have lovingly prepared just for us...and not just an ingredient list with nutritional values that take longer to read than War and Peace.   I am grateful that there are places to go that at least make the effort.  Who knows?  Eventually there may be restaurants which will have to offer menus with GLUTEN options available!
    • Thanks for posting this Adrien, it's a great list and I and others will appreciate the effort and the thought behind it. I loved my time in Malaysia and I'm glad I sampled all the food I could whilst I was still on an unrestricted diet. The good thing is that, like you say, some of the nice Malay foods are still ok. As a backpacker I survived on a lot of nasi goreng and laksa, nice to think if I return there I could still do the same Terima kasih!
    • I have posted on here before. DQ2, brother with celiac, DGP iGA was the only mildly elevated test. Was gluten-free so did 6 week challenge last winter. Negative biopsy. I am gluten-free now but do go out to eat. Prior to the challenge my health was good. Since then I have: Chest pain, pain between shoulder blades, periods of shortness of breath, heart palpitations, one instance of a heart arrythmia episode, neck is tender to touch on one side (they kept saying sinuses or TMJ which my dentist vetoed) ear ache, bowels never sink. Numbness and tingling. Blood pressure variations. Could be doing chores and feel dizzy and it might be 84/52.  not super low, but not typical for me if I'm running around the house.While other days I am mildly hypertensive. Recently lost 5 lbs in 8 days without trying. Recently electrolytes were low, alkaline phosphatese was low. Ferritin started dropping so started liquid iron 2-3 times per day 4 months ago. Primary watching that, I am not anemic but we are nowhere near iron overload either.  GI doc was a dick. Did not even know DGP replaced older tests and he was very condescending When I begged him for help recently and told me to get a second opinion which is exactly what I plan on doing.  I now have pain in my upper GI area. It is tender to touch. I had my gallbladder out in 97 along with a stone and infection in my bile duct. It hurts in this area. Pancreatic enzymes look fine, liver enzymes fine. Pancreatic ultrasound fine. I will now be doing a EUS Soon to look at bile duct, pancreas and liver.   so a typical day for me is that I might feel fine for a while and then suddenly feel like I'm going to pass out. really dizzy, numbness in odd places, like my body has been hijacked. I will typically eat a bunch of food something high protein and in about an hour or so I start to feel better. However, then my upper stomach starts to hurt in place of the passing out feeling. blood sugars are also normal. After getting the " it must be panic attacks" and condescending looks a million times my primary finally ordered an ultrasound of my sore neck and there is an abnormality in my thyroid which she says looks like possibly Hashti's. Except for one time, all my serum TSH tests were normal. We have more blood work on Monday. As I have not put on any weight and there are other symptoms that are closer to Graves.  Has anyone else had any thyroid issues that followed doing a gluten challenge?  where is your stomach pain? Do you have it above or below your belly button? Mine feels like it's in the pancreas area, like 2-3 inches above the belly button and when I push on it it's tender, but not all the time. sometimes i feel it in my back. 
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

    There are no registered users currently online

  • Member Statistics

    • Total Members
      61,123
    • Most Online
      1,763

    Newest Member
    ForeverYoung&GlutenFree
    Joined