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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

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3 posts in this topic

Hello everyone,

I am new to this site and now sure if I am posting in the correct area, however here is my story, hope someone can help?

I have never had any health problems except the one surgery to remove my tonsils and adnoids when I was in the 5th grade. Over the course of the past 10 years (I am 39) I have had Vertigo, which came out of nowhere, severe bouts of "food poisening" or so the Dr.'s thought. And ongoing severe cramping, diahrea (sp?), loose stool and with this comes a seizure like reaction which I end up fainting. It only happens when I am going to the bathroom and after writing down everything I ate for a month there was never any one thing we could pinpoint this reaction coming from. One time I passed out and broke the front teeth out of my mouth (2 months before my wedding, nice) another time I was home alone with my 4 year old and passed out off the toilet face first onto the ceramic tile floor and looked like I had been in a bar fight. I also get lightheaded and dizzy if I sit too long getting up and walking around seems to help. I have no other pain, no joint pain, a little arthritus in my knees and the occassionaly achy bones feeling but it goes away and isn't occuring enough to cause me any issues.

I recently changed Dr.'s and my new Dr. found that I have tested positive for an auto - immune disease. Which one is the question. I had a positive ANA blood test which led him to this conclusion. Now I have been referred out to a Rhuematologist. We live in a small town and we only have one Rhuematologist and I can't get in to see him until the end of September. I have had a CAT SCAN, MRI, EEG, EKG, and loads of bloodwork. The positive ANA blood test was the only thing to turn up. My Dr. said I am in for a load of more tests because it is so difficult to diagnose auto immune diseases. A friend suggested I check into Celiac Disease or having an allergy to wheat. My symptoms sounded similar so as I have researched online it does seem to have similarities. I was hoping someone out there might have some of the same symptoms or be able to tell me how to get tested for Celiac Disease and do I have to wait for the Rhuematologist or is this something my family practioner can handle? Would love any input anyone could offer, thanks for listening.

Northern Michigander

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You can get a celiac panel done by your general practitioner. Be sure he does the whole panel, not just the IgA.

Also, you may want to get a Lyme test (because of the knee pain and vertigo). Be sure it's done by IGeneX. I had the test kit sent to my house, then took it to my doctor so that I was sure it was done by this particular lab (www.igenex.com).

I'd also have them test your B12 levels.

Have you had your iron levels checked?

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Crohn's or ulcerative colitis are also a possibility. Have you had a colonoscopy done?

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    • Week late aftershock!?
      I had a similar problem, I was glutened after a meal out at the beginning of April and am still experiencing problems, obviously not as bad now, but bad enough.  I have also become intolerant to  xanthan gum since, which cuts down the foods I can eat even more. I'm already intolerant to dairy, soya, and a whole lot of other stuff.  Cyclinglady is right about the auto-immune disorders, and I've noticed I have similar problems to her.  I too, eat easy to digest foods until the glutening symptoms pass. The sinus infection might also be a reaction to the glutening, it effects people in different ways.
    • celiac disease is psychosomatic
      Thanks, I'll check out the information in the link. Do you remember how long you were on a gluten-free diet before your vertigo disappeared? I have been on the diet for 2 years, but I might be glutened from time to time since I am not an expert food label reader. My dizziness still persists.
    • celiac disease is psychosomatic
      Thank you, Arlene, for making tea come out my nose!  I should have known not to read your post while drinking......
    • celiac disease is psychosomatic
      sella.........in 11 years gluten free, I have never been glutened by natural flavorings. I know some of the older literature on Celiac says it may contain gluten but they rarely do.  For more info, I have put in a link that briefly explains how it works with labeling for those.  The link is dated 2013 but I have yet to read any updates that list any pertinent changes to this.  It will take a few years or longer for a person with Celiac to really learn how to read a label to the point where they feel comfortable with eating that food but I guarantee you'll be a food expert! http://www.glutenfreeliving.com/gluten-free-foods/gluten-free-nutrition/gluten-questions-and-answers/natural-flavorings/ As to your other question, yes, Celiac most certainly causes balance and neuro issues.  I suffered from extreme vertigo for years, which disappeared after being on the gluten-free diet for a while.  I had no idea it was connected to celiac disease but it completely disappeared on the diet.  I also never had anxiety issues but now, on the rare occasion I sustain a hit, the anxiety is bad.  It disappears after about a week.  This is well know to Celiac's but many doctors still don't get all the symptoms we suffer from, that are related to gluten ingestion.  Frustrating!
    • Can treatment for Giardia reverse active Celiac
      SugarCube, I saw your other posting today.  I can not believe that I missed your original posting!  Maybe I was doing something super fun that week (oh, my parents were visiting!).   Your celiac blood panel was positive and you had intestinal damage that was caused by both celiac disease and Giardia?  After treating the Giardia, your CD resolved or went into remission?  Are you consuming a diet containing gluten still?  Have you had a follow-up biopsy?   I read your link to the study, but that feature just one patient (a child).  Have you found any other larger studies?  Inquiring minds want to know!       
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