Do I Need A Second Opinion?
Posted 04 November 2004 - 10:02 AM
Posted 04 November 2004 - 11:44 AM
Your question about if you need a second opinion or not really depends. Are you questioning the validity of the bloodtests? Are you thinking that it might be wrong? It is a slim possiblity, but if you have symptoms and have previously been diagnosed IBS then the likelyhood of it being celiac disease is pretty high.
You might want to get a few more follow-up tests to check for nutritional deficiencies, and the only reason you would need a biopsy is to either have it as a pre-gluten free reference to compare with a future biopsy to check for improvement, or to convince a doctor that you do have celiac disease. If you doctor is willing to diagnose you based on the blood alone, then that would be okay in my mind. Of course the next doctor might tell you that you HAVE to have the biopsy to get a diagnosis. It is up to you to decide what is best for you.
There are problems with both the blood test and biopsy, but usually positive blood tests mean Celiac. It is the negatives that can often be false. It is like this: a positive test means positive for the disease, but a negative does not always mean negative for the disease, it can mean that you are not advanced enough with it to produce antibodies in the blood. The biopsy is not fail proof either. The damage can be spotty and it takes a skilled (and lucky) doctor, taking many tissue samples in the right places, to get an accurate diagnosis. If the doctor doesn't take enough samples and fromt he right places then you end up with a negative biopsy and are back to the IBS diagnosis.
If you feel the diagnosis is accurate, and you feel better off gluten, then I would go with that. But if you feel like you need a second opinion and a biopsy, then you had better stay on gluten while you seek those things, since going off of gluten will alter future test results.
Mariann, gluten intolerant and mother of 3 gluten intolerant children
Posted 04 November 2004 - 01:13 PM
The test are probably right. I have only been gluten-free for 2 days. Ill give it time.
Posted 05 November 2004 - 02:21 PM
Posted 06 November 2004 - 02:39 AM
Long Island, NY
Double DQ1, subtype 6
We urge all doctors to take time to listen to your patients.. don't "isolate" symptoms but look at the whole spectrum. If a patient tells you s/he feels as if s/he's falling apart and "nothing seems to be working properly", chances are s/he's right!
"The calm river of your life approaches the rocky chute of the rapids - flow on through. You are the same water. The rocks cannot hurt you. Remember, now and then, that you are the water and not the boat. Flow on!
Posted 06 November 2004 - 06:15 AM
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