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Horrible Day..
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6 posts in this topic

Ending my first full week back on gluten and today has been officially the worst yet! I was having no symptoms other than mild abdominal pain/discomfort. But tod ay back and forth to the bathroom 3 times this morning so far! Miserable!! Sorry just needed to vent as I know you can ALL relate. Thank goodness my appt is next Wed with the GI doc. Can't wait to end the torture!! :o

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I apologize for not remembering but how long were you gluten-free? If it was for a while, 11 days of eating gluten isn't nearly enough for an accurate biopsy. If it wasn't for very long you're probably OK.

richard

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Richard, I was gluten-free for approximately 5-6days. (But boy was that a blissful 5-6days!!) Nothing I think to damage my chances of a good biopsy. And to be honest, I know I wasn't 100% gluten-free in those 5 days because of not realizing just how much gluten is in everything! :) Thanks though... I certainly hope I get "clean" results. :D

Dana

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Hope you get your results soon. Please tell us, what came out.

Lots of greetings and hope you get better soon, Stef

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5-6 days won't hurt the results.

richard

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Thanks guys!

Richard, thanks for the confirmation. I don't know what I'd do if they said "Ooh you gotta keep eating gluten for another month or two just to be sure." I think I'd go nuts. Even if its not my issue, in my head, those few days were great, so... I'd love to go gluten-free. In addition, my boyfriend keeps trying to take me gluten-free. He runs around telling me I can't eat this or that because there is gluten in it! What help! Except, I have to eat gluten, so I told ihm I'm going to have what I can while I can have it! ha ha!

Oh well good intentions, thats what they are! Not to mention, I think everyone is sick of my stomach issues and doctor appointments too!

I'll be sure to let youa ll know what becomes of this Wed. appt. Thanks for all the info!!

Dana ;)

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    • Hi Beachgrl, It won't hurt anything to go gluten-free now, except the possibility of getting a diagnosis of celiac disease.  When i went gluten-free, it seemed like the initial changes were spread over about 6 weeks.  I had gut spasms for that time.  And other changes, all for the better.  Initial recovery from celiac damage can take up to 18 months, so it can be a slow thing.  Some people get better much faster of course, because we are all individuals and not identical. Going gluten-free for celiac disease is a lifetime commitment though, and some people have a hard time doing that without a diagnosis.  Even minor amounts of gluten can cause us to react, so it is best to eat a very simple diet of whole foods at first.  Avoid dairy and processed foods.  I hope it works out for you.  I know some people with Crohns disease eat gluten-free and find it helps them.  Gluten is a tough thing to digest for all people, but most don't have an immune reaction to it like celiacs do.  
    • Honestly, I would not trust the school to provide a gluten-free meal except for fruit, salads, veggies, etc. I sub in a school cafeteria and I swear everything is breaded or on bread. Utensils are shared. They're very clean but unless you have a very knowledgeable person in there, I just wouldn't chance it. I found a slim Jim type snack that says gluten-free on it. If you want to give me your email or FB account, I can send you some very valuable info on 504's though. They carry the student right through college. I kept a copy of what a friend wrote about her daughter being in a sorority and just how the 504 helped immensely. But, I would definitely get one and still be prepared to pack a lunch. All our meals are delivered frozen and we just hear them up. If your school actually fixes food, that's different. 
    • Oh, I would suggest providing gluten-free goodies (e.g. Candy) or even a frozen cupcake (kept in the teacher's freezer) in the event of a party.  My daughter's classmate is severely allergic to peanuts.  Her mom did that and Abby was never left out!  😊
    • Hi Nobody, Welcome to the forum!  I noticed you said you have been avoiding wheat products.  That's good, but are you avoiding rye and barley also?  Wheat, rye, and barley are the 3 grains that cause reactions in celiac patients.  About 10% also react to oats. If you haven't had the full celiac antibodies test panel, it might be worthwhile getting that done now.  The ttg is just a basic test and is generally followed up by an endoscopy or the full celiac panel. I wouldn't worry a lot about getting cancer.  That doesn't happen often. It is possible some of the other grains you might be eating are contaminated.  A group did a test on several off the shelf products a few years ago that would not normally be thought of as having gluten and found some actually did have low levels of gluten.  Things like corn meal for example.    
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