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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Inflammation In The Stomach
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8 posts in this topic

Hi

I took my daughter for her biopsy on the 29th of january. While doing her biopsy they noticed some inflammation in her stomach and her intestines were twisted. Does anyone know if this is related to celiac disease. The doctor did mention that they thought celiac disease effected the intestines but you can also see signs of the disease in the stomach.

Hillary

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Hi

Now I know why no one has replied to my message I did some research and found out that Ronni has Intestinal Malrotation. I am so worried I dont know what to do the doctor is suppose to contact me today regarding her biopsy I already know she will need surgery to repair her intestines but I still dont understand why she has inflammation in her stomach. Does anyone understand why the doctor would tell me not to start the gluten-free diet yet Im so confused. Im a single mother and work from 8:00 to 5:00 her doctor is in California we live in Las Vegas so its hard for me to get in touch with her doctor to ask questions. We moved to las Vegas a year ago I didnt want to change her insurance because she was sick all the time and I wanted to wait until she was healthy. But this has really been hard for us. Please if anyone has any information on inflammation in the stomach I would really appriciate it.

Thank you,

Hillary

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Hillary, I am sorry you and your daughter are going through this. :( I do not know about inflammation of the stomach but I do know when I had my colonoscopy the doctor said my colon was twisted too however he did not seem to be worried about it all. <_<

Maybe the reason the doc don't want to start on the gluten-free diet yet is because he wants to do further testing on your daughter?!?! Has the doc drawn blood to check her for Celiac or did he/she skip to the endoscopy?

I know at this point you want some answers and I don't blame you. Have you considered testing through Enterolab? It is noninvasive and very simple. You get the results in a matter of weeks and they are accurate!

I hope your little one feels better soon :) !

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Hi Stacie,

Thank you for your reply, I just got word this morning that her biopsy confirmed celiac disease and the biopsy on her stomach was fine. Ronni goes in feb. 13 for x-rays on her intestines to see if she will need surgery. The doctor also told me to start her diet. I will be going shopping tonight.

Hillary

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That is good, at least now you know what makes her sick and you can avoid it by putting her on a gluten-free diet! :)

I am sure you will begin to see an improvement in her within a couple of weeks, I could tell a difference within days.

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Hillary,

I'm so glad to hear that your daughter's biopsy was conclusive! celiac disease isn't the easiest diagnosis to adjust to, but it isn't the hardest, either, and on the gluten-free diet I am sure she will grow up happy and healthy. Good luck in your first gluten-free shopping venture tonight!

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Hi

Ronni's x-rays came back fine she doesn't need surgery. But I'm having a problem with this diet ronni is picky to begin with and she doesn't like the gluten-free food at least what we have gotten so far. We drove back from California on sunday after her doctors appointment, when we stopoped at the gas station ronnni wanted something sweet (I did have gluten-free Crackers and Cookies for her but she doesn't like them) well they didn't have a Hershey's bar so I let her get a Jolly Rancher she has been sick for two days. I feel she's not getting enough food. I sent her to school with turkey, ham, grapes,orange and some gluten-free chips I know half of it will come back. I feel so alone with this diet and I cry for her thinking this is her life.

Hillary

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Hi Hillary, she doesn't need surgery, that is wonderful news!!! I know how you feel I too have a picky daughter ;) . My daughter is 8 and in the 3rd grade. I usually try to send her to school with Rice, pasta (corn), chicken, hamburgers along with chips and fruit. Her teacher has been nice enough to warm her lunch for her after I wrote a letter explaining celiac disease and asked that she do this. They added the letter and her diagnosis to her file and meet her needs. Maybe this would be an option for you? And if your daughter is anything like mine she comes home and chows down, am I right???? :)

I hope she begins to feel better and don't get discouraged, it will get better!!! Hang in there :D

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    • Gluten ataxia...?
      I was explaining that some people have other trouble that is immune related and caused by eating gluten, but doesn't effect the gut in a noticeable way. According to the paper that I quoted there are some people which have different types of brain problems but don't have inflammation when tested by a biopsy.  The author used the term "non-Celiac gluten sensitivity" to refer to anyone who has any brain trouble that can be traced to gluten but without obvious gut inflammation.  There are a lot of different possible ways gluten can effect the brain some may not be related to the gut.  It could still be an immune system problem.  Normally "non-Celiac gluten sensitivity" refers to just a food intolerance.  Withdrawal symptoms are not normal and could be indicative of an immune system response of some sort, but I don't know for sure.        
    • Weird Reaction
      Hi Richie I've put the above in quotes as you have described in the first and second sentence how I felt six months prior to my DX.   In my own case, in the end I concluded it was anxiety after consulting Dr Google!  It was such an alien feeling to me, I couldn't even think what it was, particularly as life was pretty good at the time.  Anxiety is a problem for a lot of celiacs prior to diagnosis, and often after glutening after going gluten-free. You mention breathlessness, this of course can be for reasons such as anaemia (again a common celiac problem, I had this prior to DX) but of course also can arise if you are anxious.   Re 'gluten free' - Flowerqueen is right, from what I have read on this forum some people really do seem to react with less than 20ppm.    But perhaps some other things to consider...  could there be something wrong with the batch you have consumed?  Might it be worth contacting the manufacturers?   That said, you could , as Flowerqueen suggests, have a problem with another ingredient, in the product or something else you consumed. In the past I have had a terrible reaction - fever, trembling, diarrhea, stomach cramps that lasted up to three hours the last three times I ate..... broccoli, of all things.    Who would have thought that possible?  I have often thought I should try it again, just to be sure it was the broccoli, as it is a 'super food' that I ought to have in my diet, that I like very much, but the thought of having such a reaction again has put me off. I do hope you will find some answers soon.  
    • Weird Reaction
      Hi Richie,  I've not heard of this drink before, as I live in the UK, but any drink made from barley is something you should avoid.  There's a brand in the UK that makes lemon and barley water and orange and barley water and Coeliac UK say it is not safe for people with Coeliac disease.  (Our labelling laws in the UK changed a couple of years ago).  You say the drink you had was under 20 ppm, which is acceptable (usually) for coeliacs, but a lot of people are super-sensitive to gluten even in very small amounts.  I recently had a similar problem with something which was supposed to be okay for coeliacs, but when I checked the website of the product, for all it said there were no gluten containing ingredients, it was produced in an area where gluten was present, which was enough to put me off and must admit, the symptoms you describe sound very much like I experienced at the time.  (Personally I'd be avoiding that particular drink like the plague from now on). One other thing though,  have you checked the ingredients to see if there could be anything else in it which you may be intolerant to? 
    • Confused
      I have not. I'll talk to my doctor about it
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