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Celiac.com Celiac Disease & Gluten-Free Diet Forum: Changing Body Shape? - Celiac.com Celiac Disease & Gluten-Free Diet Forum

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#1 User is offline   MN Grannie 

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Posted 15 August 2007 - 05:08 AM

I have tried very hard not to gain weight since starting the gluten-free diet and actually have only gained about 5 pounds. However, my body shape has changed completely! I used to carry extra weight in my butt and thighs and now it has moved completely to my belly. I actually think I look about 5 months pregnant! What's up with this? Anyone else have this experience?

Jane in Osakis MN
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#2 User is offline   stargazer 

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Posted 15 August 2007 - 06:46 AM

Hi Grannie, I was diagnosed with Celiac in Nov 2006. Until my diagnosis, I was losing weight because my body couldn't absorb any nutrients. After I went gluten free, and my intestines healed a little bit, I began to gain weight again. The weight I gained went right to the waist and abdomen! Everywhere else stayed the same size! I don't eat a lot of grains because I haven't really had success in finding breads that I like the taste of. I rarely buy the gluten free cookies and crackers, and I only have pasta a couple of times a month. I have really cut back on the processed foods too. But after all this, I still am gaining weight! The bulk of my diet is fruit and vegetables with a little dairy. How can I still be gaining weight? The weight goes right to the middle of my stomach and abdomen. I look like I am pregnant! It is a mystery to me. I don't know what is causing the shift in the body shape. Why is the weight gained differently? If anyone else has any ideas please share.
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#3 User is offline   barbara123 

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Posted 15 August 2007 - 08:50 AM

View Poststargazer, on Aug 15 2007, 07:46 AM, said:

Hi Grannie, I was diagnosed with Celiac in Nov 2006. Until my diagnosis, I was losing weight because my body couldn't absorb any nutrients. After I went gluten free, and my intestines healed a little bit, I began to gain weight again. The weight I gained went right to the waist and abdomen! Everywhere else stayed the same size! I don't eat a lot of grains because I haven't really had success in finding breads that I like the taste of. I rarely buy the gluten free cookies and crackers, and I only have pasta a couple of times a month. I have really cut back on the processed foods too. But after all this, I still am gaining weight! The bulk of my diet is fruit and vegetables with a little dairy. How can I still be gaining weight? The weight goes right to the middle of my stomach and abdomen. I look like I am pregnant! It is a mystery to me. I don't know what is causing the shift in the body shape. Why is the weight gained differently? If anyone else has any ideas please share.


I have noticed the same thing, I am below the weight i used to weigh but my old pants still don't fit. To small around the stomach!! This is truly not fair. :blink:
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#4 Guest_Doll_*

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Posted 15 August 2007 - 09:28 AM

Assuming you are not *bloated*and that really IS fat:

Abdominal (belly) fat is related with insulin resistance. Which is BAD!!! Insulin resistance is linked to Type 2 diabetes, heart disease, some types of cancers, etc. Insulin resistance, obesity, etc. is a growing problem worldwide, and although there may be other factors, it is closely tied with diet and/or lack of exercise.

While some possible reasons are hormone changes (i.e. menopause, hypothyroid, high adrenal levels) or insulin resistance due to previous starvation due to undiagnosed Celiac (ever notice how yo-yo dieters get fatter and fatter? That's one reason why!), it can also be the gluten-free diet itself.

Many people on the diet use the gluten-free replacement breads, cereals, baked goods, etc. These are LOADED with carbs, more so than gluten containing foods, and usually have little fibre. Fibre, found in whole grain breads, cereals, and oats, can prevent weight gain, Type 2 diabetes, and perhaps some types of cancer. Ever heard the term "Fibre is your friend"? ;)

All of the above=weight gain, Type 2 diabetes, heart disease, the list goes on. I don't know if you use gluten-free products or not. Perhaps you don't. But if you do, you might want to stop. The gluten-free diet is NOT automatically a healthy one, unless you cut out processed foods altogether.

I personally use gluten-free products rarely. I eat mostly fish, beans, veggies, brown rice, nuts, and rarely, meat and fruit. I personally think that gluten-free replacement products (anything processed, really) are often not healthy. They're awesome for a treat, for sure though! I love gluten-free pizza, but I don't eat it everyday! The amount of carbs in that is INSANE. Get your fibre from brown rice and veggies, and stick to lean meats and fish. Make sure you are not drinking soft drinks (high fructose corn syrup) or eating junk food.

I would also ask your doctor to run a hormone panel, just to make sure everything checks out. However, this question seems to apear quite often, and I *personally* think it is linked with the gluten-free products that are marketed towards us. No one REALLY needs cookies, breads, pastas, flour, etc. Chocolate, well that's another story...hehe.... ;)

Hope you figure out why this is happening, and if you do need to change your diet, I am sending you support! :)

STARGAZER: I think you should also have your hormone levels checked. Do you feel like you have swelling or bloating? Do you have pain? Have you been tested for anything else? Like a C-diff infection? Or is it just plain old fat? There is also a good chance that you are severly insulin resistant due to the undiagnosed Celiac. In that case, make sure you are following a Type 2 diabetic diet, which it sounds like you are. You might also want to add Omega 3 supplements to your diet, and increase the amount of fish you eat. Look for wild salmon, it has less PCB's etc. Basically, you want to avoid all carb sources as much as possible. Salads, lean meat, fish, low startch veggies, gluten-free oats (if you feel safe eating them), and small amounts of brown rice are good. Make sure you get enough calories though overall. If you are still eating very few calories, that will all be stored as...you guessesd it! Fat!

Celiac...the gift that keeps on giving! :D
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#5 User is offline   marciab 

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Posted 17 August 2007 - 03:54 PM

Jane,

I'm 5' 5" and 115 lbs and I have fat now on my belly too. It's definitely fat as it feels squishy. I don't eat a lot of sweets since I am severely hypoglycemic. I thought it was menopause related ...

Doll,

What does severe insulin resistance due to undiagnosed celiac mean ? And why would this cause belly fat ? Thanks ...

Marcia
Jan 1990 - Dx CFS/ME/FM (URI's, Ataxia, myoclonus, orthostatic hypotension, insomnia, brain fog, swollen lymph nodes, sore throat... ) Completely Disabled (housebound and bedridden at times)

2004 - Digestive pain all the time.

May 2004 - Hiatal hernia, erosive gastritis, gastroparesis (endoscopy)
August 2004 - Colon polyps, diverticulitus, internal hemorrhoids (colonoscopy)

No relief from Nexium, Prilosec, Protonix, Zelnorm, Miralax, Imodium, Lomotil ...
July 2005 - GP recommended WFDFSFEFCF + vegan (Also, anything that hurts free)
Immediately stopped needing naps and digestive pain reduced.

Sept 2005 - GFDFCFSFEF + chemical free - Immediately stopped feeling jittery / buzzing and digestive issues were much better.

June 2006 - Dx B12 and iron deficient. Started B12 injections and using cast iron pan.

August 2006 - MYOCLONUS GONE. (off Klonopin)
September 2006 - ATAXIA, INSOMNIA and Feeling like the floor was moving under my feet gone.

June 19, 2007 - Positive DQ2, Dx Celiac

October 2007 - Sleeping like a baby, waking up with energy, but still having fatigue/stamina issues

Nov 2007 - Started Paleo diet for chronic hypoglycemia

April 2008 - GTT normal. I'm no longer hypoglycemic. Started Low oxalate diet for kidney stones.

May 1, 2008 - Began salt loading for OI/NMH - noticed immediately muscle weakness was gone. I was sodium deficient but my labs don't reflect it. Still working on OI and PEM.
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#6 User is offline   booboo 

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Posted 16 October 2007 - 05:00 PM

View PostDoll, on Aug 15 2007, 01:28 PM, said:

Assuming you are not *bloated*and that really IS fat:

Abdominal (belly) fat is related with insulin resistance. Which is BAD!!! Insulin resistance is linked to Type 2 diabetes, heart disease, some types of cancers, etc. Insulin resistance, obesity, etc. is a growing problem worldwide, and although there may be other factors, it is closely tied with diet and/or lack of exercise.

While some possible reasons are hormone changes (i.e. menopause, hypothyroid, high adrenal levels) or insulin resistance due to previous starvation due to undiagnosed Celiac (ever notice how yo-yo dieters get fatter and fatter? That's one reason why!), it can also be the gluten-free diet itself.

Many people on the diet use the gluten-free replacement breads, cereals, baked goods, etc. These are LOADED with carbs, more so than gluten containing foods, and usually have little fibre. Fibre, found in whole grain breads, cereals, and oats, can prevent weight gain, Type 2 diabetes, and perhaps some types of cancer. Ever heard the term "Fibre is your friend"? ;)

All of the above=weight gain, Type 2 diabetes, heart disease, the list goes on. I don't know if you use gluten-free products or not. Perhaps you don't. But if you do, you might want to stop. The gluten-free diet is NOT automatically a healthy one, unless you cut out processed foods altogether.

I personally use gluten-free products rarely. I eat mostly fish, beans, veggies, brown rice, nuts, and rarely, meat and fruit. I personally think that gluten-free replacement products (anything processed, really) are often not healthy. They're awesome for a treat, for sure though! I love gluten-free pizza, but I don't eat it everyday! The amount of carbs in that is INSANE. Get your fibre from brown rice and veggies, and stick to lean meats and fish. Make sure you are not drinking soft drinks (high fructose corn syrup) or eating junk food.

I would also ask your doctor to run a hormone panel, just to make sure everything checks out. However, this question seems to apear quite often, and I *personally* think it is linked with the gluten-free products that are marketed towards us. No one REALLY needs cookies, breads, pastas, flour, etc. Chocolate, well that's another story...hehe.... ;)

Hope you figure out why this is happening, and if you do need to change your diet, I am sending you support! :)

STARGAZER: I think you should also have your hormone levels checked. Do you feel like you have swelling or bloating? Do you have pain? Have you been tested for anything else? Like a C-diff infection? Or is it just plain old fat? There is also a good chance that you are severly insulin resistant due to the undiagnosed Celiac. In that case, make sure you are following a Type 2 diabetic diet, which it sounds like you are. You might also want to add Omega 3 supplements to your diet, and increase the amount of fish you eat. Look for wild salmon, it has less PCB's etc. Basically, you want to avoid all carb sources as much as possible. Salads, lean meat, fish, low startch veggies, gluten-free oats (if you feel safe eating them), and small amounts of brown rice are good. Make sure you get enough calories though overall. If you are still eating very few calories, that will all be stored as...you guessesd it! Fat!

Celiac...the gift that keeps on giving! :D

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#7 User is offline   booboo 

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Posted 16 October 2007 - 05:06 PM

Doll,
I call it my Celiac Belly! Diagnosed over a year ago, I've only gained 5 or so pounds but it's all in my belly! What a HUGE relief to hear of others with this problem. I don't eat very many processed foods, and I've heard that rices and potatos are "high glycemic" starches that cause belly fat - is this what you are saying too? Aside from eliminating rices and potatos completely, is there any other option? Ooh, and I've just eliminated soy milk from my diet, feeling MUCH better - is soy milk high in fat perhaps?

Sign me
Still Struggling After a Year
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#8 User is offline   Jesse E 

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Posted 29 October 2007 - 09:13 PM

I used to have a huge belly until I eliminated all dairy/milk. A lot of my other symptoms also disappeared after eliminating dairy.
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#9 User is offline   MissWingBat 

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Posted 29 October 2007 - 09:25 PM

OMG you all could be me!! After going gluten-free, I have put on 5 kilos and all in the tum. I bought one of those 'fat-suits' (as I call them) that suck it all in and push your boobs together because of the squishy-ness!! I've been gluten free for a while now and I find that I 'bloat' with dairy, with horrible cramps, and have headaches with rice... So i'm heading back 2 the hills and going all fruit and veg, which is extremely hard... But I am getting married in 10 months and HAVE 2 LOSE THE BELLY!
Any other suggestions? I know it takes months and lifestyle to change, but I'm willing...
I look extremely funny with scrawny arms and the beergut... :rolleyes:
Mum to 3 wonderful "mini-me's"
Misdiagnosed for how long!
Dx with celiac disease Aug 2007
gluten-free since Oct 2007 (I'm gettin' there!)

DD1, DS2 & DD3 >> ?
Husband just loves fishin'...
[/color]
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#10 User is offline   loraleena 

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Posted 02 November 2007 - 10:17 AM

This could be me. I feel so fat. First I lost 15 lbs. Then going gluten free gained them back, which was good. I am 5'9" and weigh 132. I have always had a larger lower half, but had a flat belly (even when I weighed 145 several years ago. Now I have a little fat pad, but this is not much. Most of it is bloat. I measured myself before and after breakfast (not a big meal). My waist change 3 inches!! I look 4-5 months pregnant. My stomach is hard to the touch not flabby. I did however put real weight on my lower back - the love handles. Never had this before. I am at a weight I always was comfortable at, but now feel horrible in my body. I am wondering if dairy is the culprite as well. I do notice bloat after everything , even a lot of water. Just above my waist my ribs stick out and all the bones in my back show. I am completely off balance!
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#11 User is offline   debmidge 

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Posted 03 November 2007 - 04:17 AM

My huband (celiac) is now 130 lbs. from a grand high of 180 (see photo at left) and he can no longer gain weight in arms and legs; it only deposits in waistline. He does not eat gluten-free junk food. We can't figure it out either as to why the waistline gets the extra pounds first. Maybe it's because he's over 55 years old? Does age make a difference? (due to other health issues he cannot work out or run - and he needs to conserve his calories to stay at 130 or higher. He is actually under 130 this week as he missed meals back in August and he hasn't been able to gain those 4-5 lbs. back.
Husband has Celiac Disease and
Husband misdiagnosed for 27 yrs -
The misdiagnosis was: IBS or colitis
Mis-diagnosed from 1977 to 2003 by various gastros including one of the largest,
most prestigious medical groups in northern NJ which constantly advertises themselves as
being the "best." This GI told him it was "all in his head."
Serious Depressive state ensued
Finally Diagnosed with celiac disease in 2003
Other food sensitivities: almost all fruits, vegetables, spices, eggs, nuts, yeast, fried foods, roughage, soy.
Needs to gain back at least 25 lbs. of the 40 lbs pounds he lost - lost a great amout of body fat and muscle
Developed neuropathy in 2005
Now has lymphadema 2006
It is my opinion that his subsequent disorders could have been avoided had he been diagnosed sooner by any of the dozen or so doctors he saw between 1977 to 2003
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#12 User is offline   amande01 

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Posted 22 November 2007 - 03:51 PM

I was diagnosed almost 2 years ago (confirmed by genetic test 2 weeks ago) but I only started gaining weight in June. Between June and October I gained almost 20 pounds. Nothing in my diet or excerise changed, but I swear my doctor could care less and assumes I'm just stuffing my face. This is definately not the case. I'm a vegetarian as well, which means that most fatty foods are totally cut out of my diet. I also work out 4 to 5 days a week. It's very frustrating. I also bloat severely after I eat or drink anything. My stomach bloats to the point where I can't even where any of my clothes. Has anyone else been having these problems? I just seems odd that it has started so long after I began the gluten-free diet.
Amanda
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#13 User is offline   JodiC 

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Posted 25 November 2007 - 03:12 PM

I have the same problems. I have had all the tests run for vitamins, hormones, etc. Weight is the only thing I cannot seem to get a grip on. There has got to be a reason for all of this. It would be great if an answer was found. Does anyone else have elevated cholesteral levels also. Mine were great until I went gluten-free. I follow the diet and know I am not getting "glutened" from other sources. I can't stand the way gluten free tastes (any of it) so I don't bake anymore. I don't eat breads, pizzas etc. Nothing out of a box. God made foods only (all natural) though I do have Cheetos every once and awhile :)
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#14 User is offline   loraleena 

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Posted 25 November 2007 - 04:54 PM

Get your thyroid checked. The TSh test is very inacurate and misses many people with hypothyroid. Make your you get a complete thyroid panel especially the thyroid peroxidase antibody test. This should be under 20. Mine was 799 even though my TSh was normal. Elivated levels show the autoimmune form of the disease known as Hashimotos Hypothyroidism. Weight gain is a very common symptom among many others. Elevated cholesterol is also common with hypothyroidism.
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#15 User is offline   Emily Elizabeth 

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Posted 25 November 2007 - 08:34 PM

I have definitely changed shape after going gluten free. After I eat, I almost always have the distended belly, unless I eat like a bird. The worst of it is that my bust is down a whole cup size and my waist and hips are actually larger than they used to be by an inch or two! SO frustrating! I almost want to go back to eating gluten just to get my body back <_<, but I wouldn't ever do that since the consequences are way to serious.

After beginning the diet back in May, I gained about 10 lbs, then lost almost all of them by doing a low calorie diet (admittedly too low, 900-1100 calories a day while working out 6 times per week). Anyway, the only way I was able to get rid of my belly was by not eating enough food. As soon as I started eating again the distended belly came back. I thought this could have to do with the whole "starvation mode" thing so I started making sure I was at least getting about 1500 calories/day, working out 5-6 times/week and now I still have the belly and more fat on my hips so I don't know what to do. I want to be healthy, but I also want to be able to fit into my clothes comfortably again (and my bras!).

I believe I am eating healthy food, but I am open to any suggestions! (homemade buckwheat pancakes, yogurt, bananas, eggs and potatoes, tuna casserole w/broccoli or green beans, homemade bean and veggie soup with rice, unsweetened applesauce, raw carrots, cauliflower, celery, salad, homemade corn tortilla chips, popcorn, occasional gluten free pasta, homemade pizza/bread, wine occasionally in the evenings, coffee, tea and lots of water)

I had my thyroid checked and it was in the normal range. My lactose intolerance test came back negative. My antibody levels are still raised, but my doctor expected that would be the case after only 6 months of healing time (I also was tested only a few days after the absolute worst glutening of my life).

It would be so great if we could figure out what is causing this? For those of you who have been on the diet longer than a year or two, have you noticed that your body shape has gone back to normal? It sounds like even those of you who are on the all natural foods diet even have the same problem. I may try and cut back on dairy, but I don't think I really have that much on a daily basis anyway (yogurt and cottage cheese). I get so frustrated with my appearance sometimes. I started buying shirts that poof out at the stomach to hide my belly. Is there anyone out there that has a solution/ideas?

(sorry for the long post!)

Emily
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