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Celiac.com Celiac Disease & Gluten-Free Diet Forum: Is Vsl#3 Safe - Celiac.com Celiac Disease & Gluten-Free Diet Forum

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Is Vsl#3 Safe It says it has Gluten in???? Rate Topic: -----

#1 User is offline   whattodo 

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Posted 18 August 2007 - 10:33 AM

Hi everyone, I have had a prescription from my doctor for some VSL#3 Probiotic food supplement. I got this to try and help with my candida and get me some good bacteria after a course of antibiotics.

My question is, is it safe for celiacs to take, i read in the leaflet it has traces of gluten in it.

Thanks, Jason
Hope i dont become a nuisance but there are so many questions i need to ask
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#2 User is offline   CarlaB 

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Posted 18 August 2007 - 10:45 AM

I called the company, and it's gluten-free. I never noticed that comment on the insert .... are you using the packets? Both the flavored and unflavored are gluten-free.
gluten-free 12/05

diagnosed with Lyme Disease 12/06
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#3 User is offline   whattodo 

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Posted 18 August 2007 - 10:59 AM

View PostCarlaB, on Aug 18 2007, 07:45 PM, said:

I called the company, and it's gluten-free. I never noticed that comment on the insert .... are you using the packets? Both the flavored and unflavored are gluten-free.


It states on mine "this product contains traces of gluten, soy, lactose and skimmed dehydrated milk.
It states this on the packaging and the inset leaflet.

Did you ring Actial Farmaceuticals Ltd

It states it in the website aswell
http://www.vsl3.co.uk/index.php?option=com...6&Itemid=29

Dont know what to do?
Hope i dont become a nuisance but there are so many questions i need to ask
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#4 User is offline   CarlaB 

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Posted 18 August 2007 - 11:20 AM

Hmm, that's interesting. Sounds like a the allergen warning they use when something is made in a facility that processes wheat .... my box does not say that, neither does the insert, so that must be new.

You might call them and ask. A few months ago when I did they told me it was okay.
gluten-free 12/05

diagnosed with Lyme Disease 12/06
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#5 User is offline   whattodo 

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Posted 18 August 2007 - 11:22 AM

View PostCarlaB, on Aug 18 2007, 08:20 PM, said:

Hmm, that's interesting. Sounds like a the allergen warning they use when something is made in a facility that processes wheat .... my box does not say that, neither does the insert, so that must be new.

You might call them and ask. A few months ago when I did they told me it was okay.


It is over here in UK so possibly made by a different company
Hope i dont become a nuisance but there are so many questions i need to ask
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#6 User is offline   CarlaB 

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Posted 18 August 2007 - 11:26 AM

View Postwhattodo, on Aug 18 2007, 03:22 PM, said:

It is over here in UK so possibly made by a different company


That would explain it. Here's the website with ingredient listings for the US. http://www.vsl3.com/VSL3/order.asp
gluten-free 12/05

diagnosed with Lyme Disease 12/06
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#7 User is offline   ravenwoodglass 

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Posted 19 August 2007 - 02:45 AM

View Postwhattodo, on Aug 18 2007, 10:33 AM, said:

Hi everyone, I have had a prescription from my doctor for some VSL#3 Probiotic food supplement. I got this to try and help with my candida and get me some good bacteria after a course of antibiotics.

My question is, is it safe for celiacs to take, i read in the leaflet it has traces of gluten in it.

Thanks, Jason


I wouldn't take this product. There are probiotics that are safe for us, I would either pick one of those or try to find a yogurt with live cultures that is safe. Your not going to have much success balancing your digestive bacteria when you are getting CC'd.
Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)
0

#8 User is offline   whattodo 

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Posted 20 August 2007 - 07:28 AM

View PostCarlaB, on Aug 18 2007, 08:26 PM, said:

That would explain it. Here's the website with ingredient listings for the US. http://www.vsl3.com/VSL3/order.asp



I rang the company who make VSL#3 over here and they said yes there are traces amount of gluten in VSL#3 and it is made in the exact same way as the ones in America. The difference is that the regulations regarding packaging over here are much stronger that that it america and therefore have to state even trace amounts. He also said if they have trace amounts in the product then so will you. Apparently it is picked up along the way when growing the bacteria (or something).

The company i rang was Ferring Pharmaceuticals Ltd (uk)

So do you still think that I shouldnt take VSL#3 even though it is the same product. Trace amounts means that its so small they cannot measure it, will this harm me (us).

I am confused, i have 28 days worth in my fridge and dont know what to do with it?
Hope i dont become a nuisance but there are so many questions i need to ask
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#9 User is offline   CarlaB 

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Posted 20 August 2007 - 10:10 AM

If it has trace amounts, a celiac should not take it.

I have gluten intolerance as a secondary condition to another disease and my gluten intolerance is diminishing greatly as I am healing ... I will continue to take it, but a celiac should not.

The unique thing about VSL#3 is the high number of bacteria (450 billion). The next highest that I take is Theralac (20 billion) and Ultra Flora (15 billion). You might look into those to see if they're gluten-free ... I think they are.
gluten-free 12/05

diagnosed with Lyme Disease 12/06
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#10 User is offline   ravenwoodglass 

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Posted 21 August 2007 - 03:30 AM

View Postwhattodo, on Aug 20 2007, 07:28 AM, said:

I rang the company who make VSL#3 over here and they said yes there are traces amount of gluten in VSL#3 and it is made in the exact same way as the ones in America. The difference is that the regulations regarding packaging over here are much stronger that that it america and therefore have to state even trace amounts. He also said if they have trace amounts in the product then so will you. Apparently it is picked up along the way when growing the bacteria (or something).

The company i rang was Ferring Pharmaceuticals Ltd (uk)

So do you still think that I shouldnt take VSL#3 even though it is the same product. Trace amounts means that its so small they cannot measure it, will this harm me (us).

I am confused, i have 28 days worth in my fridge and dont know what to do with it?



If you are still healing, ie. symptomatic, do not take these it can set you back or keep you symptomatic. I would pass these on to a non gluten intolerant friend or ask at the store you bought them if you can return them for exchange or refund. Depending on the store if you explain that you turned out to be 'allergic' to a component of the product this may be possible. Most companies will credit the store for the return under that sort of circumstance.
Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)
0

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