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"caliectasis" Of Right Kidney


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11 replies to this topic

#1 Joni63

 
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Posted 18 August 2007 - 05:31 PM

I'm having a rough summer.

First in May I had an ovarian cyst burst, then an ER visit, several blood tests, a colonoscopy/endoscopy that diagnosed me with Celiac, 4 ultrasounds, and now my kidney had Caliectasis. I feel like I am just falling apart. I thought I was doing well - just started the gluten free diet 2 1/2 weeks ago and feel a lot better. Had to have a follow up ultrasound done of my right kidney this past Monday because it had Caliectasis. Now they are sending me back to a OBGYN? Why would they do that for a kidney problem?

I have no idea what this is or what it means. Did anyone every have "Caliectasis" of their kidney? What does it mean?

I can't seem to get a break. It's just one thing after another. I've been handling this ok until now but I just can't handle anything else at this point.

I can't even call until Monday because the Doctor isn't in. I could scream!
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Joni


Dx'd with Celiac Disease 8/01/07

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#2 Guest_j_mommy_*

 
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Posted 18 August 2007 - 06:51 PM

So I did some digging...looked im my med dictionary ect.

Definition is inflamation/dialation on the calix of the kidney......this can be due to blockage or infection. Such as kidney stones ect.

That's about all I can offer...hopefully others will be able to fill in more!

Good Luck!
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#3 melmak5

 
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Posted 18 August 2007 - 07:08 PM

I don't know about the kidneys, but it seems pretty standard that 3 months after you have a ovarian cyst issue they want to re-check to make sure new ones aren't forming and old ones aren't getting bigger.

It is pretty unacceptable that they did not give you a reason. Its your body, demand information.

Thank goodness your body is responding well to being gluten free! Hopefully that will help give you some relief and you can get the rest of your organs to follow suit.

(I have a pretty similar summer of one system after another having problems. Hopefully the fall will be our season!)
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#4 2kids4me

 
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Posted 18 August 2007 - 10:21 PM

Caliectasis is a dialation in the kidney plevis. It can be due tio iunfection or a kidney stone. The reason they might refer you back to a OB GYN is because a kideny infection can be due to an ascending urinary infection secondary to an infection related to the genital/urinary tract....or an issue with the genital tract.
In females - these parts are all related.
Sandy
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Sandy

Type 1 diabetes - 1986
hypothyroid -1993
pernicious anemia
premature atrial beats
neuropathy
retinopathy
daughter is: age 15
central hypotonia and developmental delay
balance issues (rides an adult 3 wheel bike)
hypothyroid 1996
dermatographia - a form of angioedema 2002
celiac 2004 - by endoscopy
diagnosed Aspergers at age 7 - responded very well (HUGE difference) to gluten-free diet
recovered from Kawasaki (2003)
lactose intolerant - figured out in Oct/06
Gilberts syndrome (April/07)
allergy to stinging insects
scoliosis Jan 2008
nightshade intolerance - figured out April 2008
allergy to Sulfa antibiotics

son is 13
type 1 diabetic - 2003 diagnosed on his 9th birthday
celiac - 2004 by endoscopy
lactose intolerant - figured out Nov/06

#5 The Lovebug

 
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Posted 19 August 2007 - 11:44 AM

Dear Bellyfat,

I can't offer any new information, but I just want to give you a big, virtual hug 'cause it sounds like you just need some plain, old fashioned tea and sympathy. We're here for you.

Sue
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Self-diagnosed in 2004 after 6 years of hell. Doing well on gluten-free diet, but still having occasional bouts of accidental glutening. Message board has been a godsend. Have been on since 2004 as "grannynanny," but couldn't recreate password and was shut out, having to re-register in 2007. Update: Gastroenterologist wanted to do genetic test for celiac (Mar 2008). Results showed genetic marker on G8 -- one of two genes identified as Celiac.

#6 Joni63

 
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Posted 19 August 2007 - 01:33 PM

Oh my. Thanks so much Sue. Your post brought tears to my eyes. I guess I'm going through one of the crappy stages that happens after I did the "I can handle this" stage. I always tackle problems head on and handle them fine and fall apart later.

I appreciate all the other help and ideas. I hope it's nothing serious. I have felt really lousy the past few days, but think it was related to my menstrual cycle. They are always bad for me. I'm really tired and am kind of disappointed because I felt so good at first on the gluten free diet. But I know I also pushed myself too hard trying to catch up on things I've let go the past couple of months because I was sleeping so much due to fatigue. I'm also trying to get better sleep during the night and not nap at all during the day so I can hopefully train my body to stay asleep all night. I've only slept maybe 10 or so times all night through in the past 9 years. That's wearing on me also. I guess once I was diagnosed Celiac and got on the diet I thought I was superwoman. Guess not!

Melmak, I did have a 2nd ultrasound of the cysts and it did change. Originally there were 3 on left ovary and 1 on the right, after a month I had 2 on the right and 1 on the left. She said we will wait 6 months and recheck, but they all looked like simple follicle cysts so hopefully no worry there. I've been following your posts and see you've been having problems also. Best of luck in getting yourself straightened out as quickly as possible. Bring on the 'Fall' season...

I'm not sure but I think there was a mixup about what office the kidney ultrasound results went to. My OBGYN is named Reilly and my Primary Care is Reilly-Lowe. I was surprised when I got a letter in from the OBGYN office that said I need to make an appointment when my family doctor ordered the ultrasound and told me she would send me to a kidney specialist if it didn't improve since the last kidney ultrasound 6 weeks ago. I will call both offices tomorrow and see what is going on. I was going to make an appointment to see her and it really surprised me when the letter came in the mail from the other office. Worrying has become my new favorite past time with all these health issues going on. Seems it's never ending right now.

Thanks for the support. I want to give you all 'big hugs' back. Glad we have each other cause I know most of the people in my life aren't understanding this at all right now.
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Joni


Dx'd with Celiac Disease 8/01/07

#7 The Lovebug

 
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Posted 19 August 2007 - 05:53 PM

I'm also trying to get better sleep during the night and not nap at all during the day so I can hopefully train my body to stay asleep all night. I've only slept maybe 10 or so times all night through in the past 9 years.


Bellyfat,

For what it's worth, I've found a sure-found formula for good sleep. First of all, I take an Excedrin P.M. at bedtime, then I put ear plugs in my ears and a sleep mask over my eyes. Other than a trip or two to the potty, I sleep like a baby. ;)

I agree that if you sleep well you're so much better able to deal with what life throws your way the next day. Hang in there, kiddo!

Sue
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Self-diagnosed in 2004 after 6 years of hell. Doing well on gluten-free diet, but still having occasional bouts of accidental glutening. Message board has been a godsend. Have been on since 2004 as "grannynanny," but couldn't recreate password and was shut out, having to re-register in 2007. Update: Gastroenterologist wanted to do genetic test for celiac (Mar 2008). Results showed genetic marker on G8 -- one of two genes identified as Celiac.

#8 Joni63

 
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Posted 20 August 2007 - 09:06 AM

Bellyfat,

For what it's worth, I've found a sure-found formula for good sleep. First of all, I take an Excedrin P.M. at bedtime, then I put ear plugs in my ears and a sleep mask over my eyes. Other than a trip or two to the potty, I sleep like a baby. ;)

I agree that if you sleep well you're so much better able to deal with what life throws your way the next day. Hang in there, kiddo!

Sue



Funny you mentioned the sleep mask. I just bought one of those and used it about 5 nights but thought it was hard to get used to so I stopped using it. I also have ear plugs I could try. Did it take you a long time to get used having the ear plugs in and the eye mask on?

I also have something the Doctor gave me I haven't tried yet - it's called zolpidem tartrate (generic for ambien). I just hate to take meds if I can solve the problem the 'natural' way. But so far I've been unsuccessful with cutting caffeine, the mask, a light therapy light, etc.

The good news is I called my Doctor and my ultrasound of the kidneys all came back normal. Yeah! I also have a call into the OBGYN to see why they sent me the letter. It can't be anything too serious as my primary already went over the results of those with me and she said we should just do another ultrasound in 6 months to monitor them. So for now, I think I'm ok. :)
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Joni


Dx'd with Celiac Disease 8/01/07

#9 The Lovebug

 
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Posted 21 August 2007 - 05:29 AM

Bellyfat,

Good news on the kidney-thing. Glad to hear you are ok, after all.

Re the sleep mask: I does take a little getting used to, but I can't sleep without mine now. I invested in one made by Tempur-pedic so it's a lightweight foam than molds to the contours of your face (Brookstone and similar places carry them). It completely blocks out light, which allows your pineal gland to produce melatonin, which induces sleep. I swear by it. The earplugs are another thing I can't do without. They probably do take a little getting used to (I've used them for so long, I've forgotton). They were a godsend when I thought my husband and I might have to sleep in separate bedrooms because of his snoring. They don't completely eliminate noise, but they lower the decibels considerably.

Hope this helps.

Sue
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Self-diagnosed in 2004 after 6 years of hell. Doing well on gluten-free diet, but still having occasional bouts of accidental glutening. Message board has been a godsend. Have been on since 2004 as "grannynanny," but couldn't recreate password and was shut out, having to re-register in 2007. Update: Gastroenterologist wanted to do genetic test for celiac (Mar 2008). Results showed genetic marker on G8 -- one of two genes identified as Celiac.

#10 Joni63

 
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Posted 21 August 2007 - 09:54 AM

Bellyfat,

Good news on the kidney-thing. Glad to hear you are ok, after all.

Re the sleep mask: I does take a little getting used to, but I can't sleep without mine now. I invested in one made by Tempur-pedic so it's a lightweight foam than molds to the contours of your face (Brookstone and similar places carry them). It completely blocks out light, which allows your pineal gland to produce melatonin, which induces sleep. I swear by it. The earplugs are another thing I can't do without. They probably do take a little getting used to (I've used them for so long, I've forgotton). They were a godsend when I thought my husband and I might have to sleep in separate bedrooms because of his snoring. They don't completely eliminate noise, but they lower the decibels considerably.

Hope this helps.

Sue


Yes, it was great news - thank you!

I tried the mask and earplugs last night. I ended up taking out the earplugs very early in the morning. I will keep trying, maybe give it a month or so. I also bought an Inspiration Light Therapy LED Lamp that I'll also try. Maybe that will help.

Has anyone ever used one for sleep problems or depression? DId it work?

This pattern of waking up 2-3am has been going on a very long time, guess I can't expect it to resolve in a week. I just want to try natural remedies before I start using the sleep medicines. From what I've read taking supplements like melatonin only trick your body into thinking it's working correctly, but doesn't actually help correct the problem.
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Joni


Dx'd with Celiac Disease 8/01/07

#11 Joni63

 
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Posted 27 August 2007 - 01:21 PM

FInally got hold of the OBGYN office today! I am sooooooooo mad at them. I left 2 messages last week, one on Monday morning and one Tuesday evening. No one called me back so this mornig I called and the receptionist said she left them the messages, but they could be busy. Uh, sorry that's not a good answer. I went off telling her that I NEED to talk to the Nurse Practitioner about the letter their office sent me and it Has to be today!

Long story short, the NP called me back within 1/2 hour and reviewed my bloodword that I had done and my CA 125 test is elevated. She's sending me the paperwork to go back and have the same tests done again and I am making an appointment with the OBGYN. I told her I just got diagnosed with Celiac and she said that could cause the CA 125 test to elevate due to the inflammation in the intestines. I also had the ultrasound of my kidney during the same time and that was showing the calectasis or inflammation.

I read up on the CA 125 and saw their is a lot of false positives, especially in women of premenapausal age. I'm trying to think positive about this, but I do have a couple cysts on my ovaries. Ovarian Cancer scares the crap out of me - I had a friend die at age 28 from it and she left behind two children ages 3 and 5 at the time. Ever since I saw what she went through and the rapid changes that Ovarian Cancer can cause it is just so frightening to me.

Please pray for me that this is just another obstacle I'm going through and I will come out of it fine!

I have been so healthy up until this past May when everything seems to have gone totally wacky on me.

Thanks for all your support and help, just knowing someone is here for me makes a huge difference!
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Joni


Dx'd with Celiac Disease 8/01/07

#12 The Lovebug

 
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Posted 27 August 2007 - 02:26 PM

I'm sending positive vibes your way, Bellyfat. Keep us posted.

Sue
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Self-diagnosed in 2004 after 6 years of hell. Doing well on gluten-free diet, but still having occasional bouts of accidental glutening. Message board has been a godsend. Have been on since 2004 as "grannynanny," but couldn't recreate password and was shut out, having to re-register in 2007. Update: Gastroenterologist wanted to do genetic test for celiac (Mar 2008). Results showed genetic marker on G8 -- one of two genes identified as Celiac.




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