Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Enterolab Question
0

7 posts in this topic

Please don't take this badly but has anyone had a negative result with a test from Enterolab? It seems that all the posting always come back positive in someway but they were negative through other doctors. I just want to be careful - I have sent in my son's complete stool and gene test to Enterolab and just wanted to make sure that I was dealing with a good lab. My son doctor had recommended someone else and I went against her recommendation.

0

Share this post


Link to post
Share on other sites


Ads by Google:

I just got my EntroLab stuff today and I sort of wondered the same thing... however I did see a couple of people post here that there results were negative. And on top of that I'm not sure why they would just diagnose every one positive for the heck of it, unless they own stock in a gluten free bread company or some such!

:lol:

Susan

0

Share this post


Link to post
Share on other sites

This topic has been discussed many times. Yes there are people that have had negative results however since they are negative they don't stick around the boards and continue to post messages.

In my opinion the reason all of our blood work comes back negative and the stool panel is positive is because the stool panel tests are more sensitive than blood and it takes time for diseases to show up in blood and it takes time for gluten to damage the villi, I guess it just takes longer for some of us ;) .

If you do not feel comfortable going through Dr. Fine at Enterolab you could always put your son on a strict gluten-free diet for a couple of months, if he improves he obviously has a problem with gluten.

0

Share this post


Link to post
Share on other sites

I have also been skeptical of the EnteroLab results, but I can't deny that I have improved on the gluten-free diet. My GI told me that Dr. Fine's method was more advanced then the blood tests and more conclusive then the biopsy. He said that I should go on the gluten-free diet. I would also like to hear from some people that have received a negative results from Dr. Fine. :rolleyes:

0

Share this post


Link to post
Share on other sites

my family went thru enterolab. myself and my 2 yr old came back with the malabsortion w/ rates that were pretty high. my five yr old came back with gluten sensitivity but he still absorbed ok. my brither also had the test and he came back negative. my mother was also tested and had a low level of sensitivity but she had already been on the gluten-free diet bc of my father being celiac disease biopsy found. if all of us would have come back pos. i probably would have questioned it more. but i knew that it was especially true for myself and my 2 yr old. i had been having gut problems for the last yr and my 2yr old has always had a massive stomach and skinny arms. so, it kinda just calrified what we had. i didnt even know about this disease until my father was diagnosed and once i found out it was genetic i wanted my family to be tested bc hes been gluten-free for a yr now and still no improvement. i also didnt want my kids to go thru a biopsy. i did question the findings for awhile but just had to except the fact that we do feel better and my 2yr olds stomach isnt this hard basketball anymore. it a slow air leaking one now. ha.

goodluck

cdobbs

0

Share this post


Link to post
Share on other sites




I have repeatedly come out negative on all of the blood tests for Celiac Disease, except the not very accurate IgG. Since, I had all of the symptoms of Celiac Disease and felt better on a gluten free diet, I decided to get the Enterolab tests to prove to myself that I was on this restrictive diet for a reason. According to Enterolab I have "gluten sensitivity" and it is recommended that I go on a gluten free diet. I showed these results to my gastroenterologist who dismissed Kenneth Fine's diagnosis to say that there was not enough evidence yet to prove that these fecal antibodies could be used to make a diagnosis for Celiac Disease. However, I refused to believe him. Now I currently see one of the leading doctors in the country for Celiac Disease. I asked him what he thought about Mr. Fine. He said that one cannot detect Celiac Disease from fecal antibody tests and that this man is on a mission to prove that almost everyone has this disease. However, the gene test that Mr. Fine gives is very accurate. So, basically we are back where we started. If you feel better not eating gluten then the obvious answer is not to eat it. Althought, it is frustrating not knowing whether or not you have Celiac Disease, ultimately that doesn't matter.

0

Share this post


Link to post
Share on other sites

The absence of exhaustive studies proving the stool test method does not make the method invalid, just unproven within the criteria of modern medicine. Nor does it prove the method wrong. The test and method seems to work well for many people who report on this board. The lack of negative reports on this board doesn't mean there aren't any. Dr. Fine has stated a significant percentage of people who come to him for testing are found negative. The genes that cause celiac disease are present in about 35% of the population. If gluten does indeed cause presentations beyond classic celiac disease and DH - yet to be recognized by medicine, it may be possible the root cause of many health problems is consumption of gluten. Then there are the problems with milk, soy, yeast, etc.

Personally, I don't get too hung up on what medicine's absolutes. These are the same people who recommend a gluten challenge for diagnosis. The equivalent in heart disease would be to eat butter and beef to see if they can detect a heart attack.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,880
    • Total Posts
      919,451
  • Topics

  • Posts

    • Celiac - How many symptoms can there be?
      Hi Everyone I am new here and wanted to see if anyone else is experiencing the same thing I am.  I was diagnosed positive for celiac in 2/2016 via biopsy from an endoscopy.  I was negative for blood work because I self-eliminated gluten 9 months prior; so I guess I had not antibodies register in my lab work.  Prior to 2/2016 I was having symptoms for almost an entire year.  Despite cutting out grains in general for 9 months, I would have a gluten attack at least once a month.  I have had a history of sinus, bronchial infection.  I remember as young as 17 getting sick but I always bounced back and was active in sports and working out.  But in the past year I developed the following symptoms - Sudden desire to pass out, nausea, headaches, heart palpitation, crashing exhaustion as if I was recuperating from the flu, wheezing in my chest. I was bounced around to an allergist at this and was told I was asthmatic and I had food sensitivities to dairy, nuts, corn or corn derivatives (including corn syrup) and grains.  so I cut everything out!  Despite cutting everything out I was still have episodes at least monthly, possibly cross contamination.  In April 2015 I traveled to the Carribean for 2 weeks,  I became very ill with a urinary tract infection, stomach bug and severe back pain with constant fever.  I was treated with antibiotics (Bactrim) for 10 days which did clear up the situation. I came home and dismissed everything to a coincidence.  Six weeks later the GI distress woke me up in the middle of night.  The pain was so excruciating that when I sat on the toilet thinking I had to go, I almost past out from the pain.  I lay myself down on the floor until it subsided.  The next day I contacted my primary and was immediately seen.  She referred me to a GI specialist but the appointment was not until August.  Then 2 weeks before my GI appointment they called and rescheduled for late September.  I saw him and by then I was feeling better; no epsides for almost 2 months.  So we did nothing.... boy did I talk to soon.  Immediately after the appointment I had an attack.  These were the symptoms: Nausea, crashing fatigue (as if I was hit with the flu), diarrhea, dizziness,, loss of appetite,  lower back pain, specifically in the middle; intestinal discomfort and body aches which lasted 10 days!! and abruptly disappeared, thank God.
      . I had to wait to see the GI until 1/2016.  Once I saw him he did labs which were all normal.  He checked my liver, kidney, pancreas, blood count which was all normal.  He also scheduled the endo/colonoscopy for end of 1/2016.  Speeding forward in time....since the Endo/Colonscopy procedures, I had attacks January through March which last 7-10 days each time.  I finally had a break for 2 months and today as I type this I am on day 6 of another episode.  What I wanted to see if anyone has experience the following.  For me each episode is getting worse with the following symptoms: Nausea (horrible), back pain on the left side both in the rib cage (the front and back) at times this pain also gravitates toward my left hip.  I also get diarrhea, bloating, intestinal distress, crashing fatigue and loss of appetite.  What really hits me hard is the rib cage pain that is in the front and back on my left side.  I will be seeing the GI doctor in August; but I am hoping to see him sooner Any input in reference to symptoms is appreciated.    
    • Depression / anxiety issues
      Hi all  10 weeks ago i was diganoised with celiac with blood work and a endoscopy. I have had the worst 2 years of my life that started with blood being in my stool everyday. I have always suffered with anxiety for as long as I can remember but I always just pushed trough it. I then I started having panic attacks, insomnia and major depression that I could not handle, I could not function, I lost my job because I could not leave my bed, I shaked as I lay in bed everyday uncontrollably. I met with a doctor who put me on lexapro (antidepressant) I finally gave in after 6 months and started taking them, they made me worst than I already was so I had to stop after 14 weeks. Fast forward to 15 months later and the symptoms still persists including the bloody stools, I was in and out of hospital every week and told I had all sorts of conditions, then the blood work and endoscopy Finaly discovered the celiac. I have been on the diet now for 10 weeks, the first week my anxiety went away, the horrible knot in my stomach that I have had everyday, the hot flushes, the tingling I had run trough my legs. This all left but only for a couple of days then it came back, the depression also lifted but has now came back, I have been more than strict with the diet, I check everything twice before I eat it, me and the misses have thrown away everything from our kitchen and replaced it with new things. I had my Vitiam levels checked and I'm deficient in b12, Vit D, all B vitiams. It's like one step Foward 2 steps back in tearms of healing, I know these anxiety / depression feelings are not me but I've had them for so long that I can't seem to see light at the end of the tunnel. The couple of days that they left me when incredible I felt human and alive. Just wondering if any of this has happened to anyone else with celiac or gluten intorlance. Any advice or hope In tearms of healing or am I to feel like this for the rest of my life (I'm 28) by the way. Thanks a lot   
    • So I've been glutened....
      That sounds like a plan JMG.  If things aren't working then make a change, hopefully a positive change.  It seems to me we have more noticeable symptoms sometimes after being gluten-free a while.  I made a mistake last night and ate some tuna canned in water.  It definitely wasn't boring.  I usually have more sense than to eat tuna canned in water but screwed up last night.  They canned  it in broth of some sort.  Ingredients say vegetable broth and soy.  Yuck, not good for me.  It sure tasted good though, just ouch.  I am not saying it had gluten in it, but it does have soy and some kind of unnamed veggie monsters.  So it could be soy, or carrots or some other disgusting vegetable that got me.   Not all celiacs have additional food intolerances beyond gluten, but some do.  My gut could testify to that.  Anyway, if you have bloating, cut out all carbs and sugar for starters.  And try peppermint tea or Altoids.  Over here we have something called Pepto Bismol that helps soothe gut pain and another neat thing called aspirin.  And gluten-free beer as needed.  
    • Gluten free apparently not helping entirely
      Jean, Maybe your boss can find you a job in the office for a while?  It's worth asking maybe? It's not easy being on constant travel with celiac disease but it can be done.  Your effort to find safe food is going to be harder than most but it is not impossible.  But if you can't manage it you should really think about getting a non-travel job.  Your boss may be willing to work with you on an office position, even if it's temporary.  That would give you some time to look for a local job and also eat a safer diet. It's really up to you to control your diet and make sure it is safe.  If you can't figure out how to  do that while traveling you owe it to yourself to figure a way out of the travel. Celiac disease isn't always fun and games.  Not always.   I hope you find a way to improve your circumstances.
    • Gluten Free baby food pouches?
      Anyone know of any baby food pouches that are gluten free?  We love to have them on the go for our kids (not just baby), but I have no idea which ones to get now!  We used to get Meijer brand and Plum.   Thanks!
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • Jmg  »  admin

      Hello Admin!
      I don't know whether this is of interest to post on your articles feed:
      http://pratt.duke.edu/about/news/window-guts-brain
      Kind Regards,
      Matt
      · 2 replies
    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,922
    • Most Online
      1,763

    Newest Member
    Barsch
    Joined