Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Enterolab Question
0

7 posts in this topic

Please don't take this badly but has anyone had a negative result with a test from Enterolab? It seems that all the posting always come back positive in someway but they were negative through other doctors. I just want to be careful - I have sent in my son's complete stool and gene test to Enterolab and just wanted to make sure that I was dealing with a good lab. My son doctor had recommended someone else and I went against her recommendation.

0

Share this post


Link to post
Share on other sites


Ads by Google:

I just got my EntroLab stuff today and I sort of wondered the same thing... however I did see a couple of people post here that there results were negative. And on top of that I'm not sure why they would just diagnose every one positive for the heck of it, unless they own stock in a gluten free bread company or some such!

:lol:

Susan

0

Share this post


Link to post
Share on other sites

This topic has been discussed many times. Yes there are people that have had negative results however since they are negative they don't stick around the boards and continue to post messages.

In my opinion the reason all of our blood work comes back negative and the stool panel is positive is because the stool panel tests are more sensitive than blood and it takes time for diseases to show up in blood and it takes time for gluten to damage the villi, I guess it just takes longer for some of us ;) .

If you do not feel comfortable going through Dr. Fine at Enterolab you could always put your son on a strict gluten-free diet for a couple of months, if he improves he obviously has a problem with gluten.

0

Share this post


Link to post
Share on other sites

I have also been skeptical of the EnteroLab results, but I can't deny that I have improved on the gluten-free diet. My GI told me that Dr. Fine's method was more advanced then the blood tests and more conclusive then the biopsy. He said that I should go on the gluten-free diet. I would also like to hear from some people that have received a negative results from Dr. Fine. :rolleyes:

0

Share this post


Link to post
Share on other sites

my family went thru enterolab. myself and my 2 yr old came back with the malabsortion w/ rates that were pretty high. my five yr old came back with gluten sensitivity but he still absorbed ok. my brither also had the test and he came back negative. my mother was also tested and had a low level of sensitivity but she had already been on the gluten-free diet bc of my father being celiac disease biopsy found. if all of us would have come back pos. i probably would have questioned it more. but i knew that it was especially true for myself and my 2 yr old. i had been having gut problems for the last yr and my 2yr old has always had a massive stomach and skinny arms. so, it kinda just calrified what we had. i didnt even know about this disease until my father was diagnosed and once i found out it was genetic i wanted my family to be tested bc hes been gluten-free for a yr now and still no improvement. i also didnt want my kids to go thru a biopsy. i did question the findings for awhile but just had to except the fact that we do feel better and my 2yr olds stomach isnt this hard basketball anymore. it a slow air leaking one now. ha.

goodluck

cdobbs

0

Share this post


Link to post
Share on other sites




I have repeatedly come out negative on all of the blood tests for Celiac Disease, except the not very accurate IgG. Since, I had all of the symptoms of Celiac Disease and felt better on a gluten free diet, I decided to get the Enterolab tests to prove to myself that I was on this restrictive diet for a reason. According to Enterolab I have "gluten sensitivity" and it is recommended that I go on a gluten free diet. I showed these results to my gastroenterologist who dismissed Kenneth Fine's diagnosis to say that there was not enough evidence yet to prove that these fecal antibodies could be used to make a diagnosis for Celiac Disease. However, I refused to believe him. Now I currently see one of the leading doctors in the country for Celiac Disease. I asked him what he thought about Mr. Fine. He said that one cannot detect Celiac Disease from fecal antibody tests and that this man is on a mission to prove that almost everyone has this disease. However, the gene test that Mr. Fine gives is very accurate. So, basically we are back where we started. If you feel better not eating gluten then the obvious answer is not to eat it. Althought, it is frustrating not knowing whether or not you have Celiac Disease, ultimately that doesn't matter.

0

Share this post


Link to post
Share on other sites

The absence of exhaustive studies proving the stool test method does not make the method invalid, just unproven within the criteria of modern medicine. Nor does it prove the method wrong. The test and method seems to work well for many people who report on this board. The lack of negative reports on this board doesn't mean there aren't any. Dr. Fine has stated a significant percentage of people who come to him for testing are found negative. The genes that cause celiac disease are present in about 35% of the population. If gluten does indeed cause presentations beyond classic celiac disease and DH - yet to be recognized by medicine, it may be possible the root cause of many health problems is consumption of gluten. Then there are the problems with milk, soy, yeast, etc.

Personally, I don't get too hung up on what medicine's absolutes. These are the same people who recommend a gluten challenge for diagnosis. The equivalent in heart disease would be to eat butter and beef to see if they can detect a heart attack.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,596
    • Total Posts
      918,304
  • Topics

  • Posts

    • No gluten allergy because I don't have classic symptoms of celiac
      after you get yourself squared away, these docs need reporting.  out right lying to you...
    • Oat Flour making me sick?
      Hi CeliacMommaX2, 'Yes, you must treat oats like wheat in a situation where gluten free oats cause the same response. I would also not use pots or pans for your daughter, that you have cooked oats in, as there is always a chance that there are traces left in the pans after washing up.  It's better safe than sorry. 
    • In Dire Need Of Help
      Alex the good news is you have found a great site with useful information and warm support! You need to work with your doctor to get a diagnosis but there are plenty here who have had similar experiences: http://www.celiac.com/gluten-free/search/?&q=panic%20attack so it sounds like your on the right lines   Take heart that you have probably found the cause now rather than later.  Follow CyclingLady's excellent advice above and go for celiac screening asap. For tests to work you need to be eating gluten for some time. That is a scary prospect when you've finally experienced some relief but it's for a limited time period, you can get support here along the way and if you choose to you can go gluten-free at the end and get relief whatever the results.  Once you're done testing and off the gluten you will be in a much better position to nail the lifestyle. That may mean some pre-planning, maybe taking a backpack with some gluten-free snacks with you, at least until you find the places you can reliably eat at. There are apps and sites that can help and probably local support groups in NYC as well: https://www.google.co.uk/?ion=1&espv=2#q=new%20york%20gluten%20free%20restaurants With research you'll also get to know what fast food options are viable, what readily available candy bars are ok etc. I can eat Mcdonalds fries for instance, which can come in handy if I'm away from my kitchen or supplies. Most starbucks or equivalents will have at least a gluten-free snack bar. So although a pain in the arse, it's doable and the health payoffs MORE than make up for the hassle.  Good luck! 
    • to biopsy or not?
      I ordered the cookbook the same day you recommended it.  I am SO excited!  I actually cried looking through the book!  I honestly don't believe I am good at all in the kitchen.  I am lucky enough to have a husband who cooks everything when he's home.  The only thing I felt skilled at in the kitchen was baking.  I made all of my kids' birthday cakes for the last 8 years.  I was sad thinking that we wouldn't have anything good for a birthday cake.  I mean, I've tried gluten free cake from a box, but it was just ok.  It wasn't amazing the way a homemade cake can be.  So now I have hope.  Hope that maybe my non-celiac kids will enjoy a birthday cake still.  My daughter (the most-likely-to-be-celiac one) never really ate birthday cake to begin with.   So this summer is her birthday and we will find out if it's good!  Thank you for the recommendation!!!   Janis
    • antibiotic for my 6 year old- could it have gluten?
      It is probably fine.  Very few meds actually have gluten.   shows as gluten-free on this list  http://www.glutenfreedrugs.com/list.htm
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,697
    • Most Online
      1,763

    Newest Member
    deandrade
    Joined