Gluten "allergy" Mentioned On Tonight Show
Posted 09 November 2004 - 10:24 PM
Posted 10 November 2004 - 02:32 AM
There's a "profile" for celiacs? Fair skin, red hair you say? Hmm. Would figure...
Posted 10 November 2004 - 02:42 AM
Long Island, NY
Double DQ1, subtype 6
We urge all doctors to take time to listen to your patients.. don't "isolate" symptoms but look at the whole spectrum. If a patient tells you s/he feels as if s/he's falling apart and "nothing seems to be working properly", chances are s/he's right!
"The calm river of your life approaches the rocky chute of the rapids - flow on through. You are the same water. The rocks cannot hurt you. Remember, now and then, that you are the water and not the boat. Flow on!
Posted 10 November 2004 - 01:56 PM
Posted 11 November 2004 - 03:22 AM
Don't overlook the swarthy Mediterranean types (my celiac husband). Black/brown hair, brown eyes, sallow-olive complexion.
Perhaps one of the celiac groups can with permission of the celiac celebrity, put out a pamphlet with their photos and talk about their experiences with celiac?
Husband misdiagnosed for 27 yrs -
The misdiagnosis was: IBS or colitis
Mis-diagnosed from 1977 to 2003 by various gastros including one of the largest,
most prestigious medical groups in northern NJ which constantly advertises themselves as
being the "best." This GI told him it was "all in his head."
Serious Depressive state ensued
Finally Diagnosed with celiac disease in 2003
Other food sensitivities: almost all fruits, vegetables, spices, eggs, nuts, yeast, fried foods, roughage, soy.
Needs to gain back at least 25 lbs. of the 40 lbs pounds he lost - lost a great amout of body fat and muscle
Developed neuropathy in 2005
Now has lymphadema 2006It is my opinion that his subsequent disorders could have been avoided had he been diagnosed sooner by any of the dozen or so doctors he saw between 1977 to 2003
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