Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Coffee
0

13 posts in this topic

Can you handle coffee? Once I start, it kicks start my repeated runs to the bathroom too. Maybe I'm crazy, but is it just the caffiene or is there hidden gluten in here too?!

0

Share this post


Link to post
Share on other sites


Ads by Google:

What kind of coffee are you drinking? According to my list, the following coffee's are gluten-free:

Folgers

Maxwell House

Sanka

Taster's choice

It could be the warmth of the coffee that makes you go or it could be the creamer (dairy). Just a thought.

0

Share this post


Link to post
Share on other sites

What coffees are NOT gluten-free? :blink: I had thought that we only had to stay away from flavored coffees (which I'm doing.) Have I been accidentally zapping myself every morning? :o

0

Share this post


Link to post
Share on other sites

I personally have not been able to handle coffee, even the gluten-free ones with 100% dairy free creamer. I don't know what it is in coffee that doesn't agree with me. I am able to take headache pills with added caffeine, so I doubt that the caffeine is the problem...

0

Share this post


Link to post
Share on other sites




If you can't handle coffee it's something other than gluten. In three years, the only coffee I've EVER found not gluten-free are a couple of ones at Starbucks where they actually add brownies or something as they mix it. Plain unflavored coffee is absolutely unquestionably gluten-free.

richard

0

Share this post


Link to post
Share on other sites
;) i agree with richard--i had diarrhea for years and years and now that i am gluten-free, i am still very much a coffee drinker--as i have posted before--the one coffee that made me sick was a hazelnut coffee that i got at a gas station/convience store--i use half & half creamer at work cause our coffee is so bitter, but i have read the ingreds on the box and there is nothing in them that can hurt us--so i agree--your problem with coffee may be something other then celiacs---please dont take my coffee away :P deb
0

Share this post


Link to post
Share on other sites

Actually, I know alot of people that will drink coffee to "kick start" there bowels. In fact a joke is that its a natural laxative. So there has been times prior to recently that it would give me the urge to go.

However, I don't really know what brand it is I drink here at the office. In fact its something cheap and generic because that's all they'll buy. Out of desperation for a pick me up I was drinking it and it'll cause me to run to the restroom.

At home, we always have Folgers, and I never suffer from that.

Strange.. but thanks for everyone's input. I think I'll stick to water! :blink:

0

Share this post


Link to post
Share on other sites

Does anyone know if Gevalia flavored coffees are gluten-free?? They are the only ones I drink, and only once a week or so.

0

Share this post


Link to post
Share on other sites

Hello all,

i can't drink coffee either. But with me my old belly pain and the pain (at the same time) in the left of my foreheadbone starts again. Like i had it in the last days of my glutenlife. It can't be the warmth of the liquid either, because i add cold milk. In fact there is mostly milk in it, because i don't like the pure coffee taste. It's like 1/4 coffee and 3/4 milk or sometimes even less coffee.

It can't be the milk either, because I drink it together with the Nestle cocoa powder (which also is on the glutenfree list) and i don't have problems with that. Next i check the sugar and i didn't have problems with the sugar either. So i think it's the coffee. We always drink the Folgers coffee, which is supposed to be glutenfree. Last time my pain was so bad, i had to stay in bed all day. I don't know what it is in the coffee that bothers me, but i won't drink any coffee anymore. Whatever it is, it must be in pepsi, too. Cause i just drank a glass as i'm writing this here and i have my old foreheadbonepain again. Is coffein also in pepsi?

Lots of greetings, Stef

0

Share this post


Link to post
Share on other sites

Gluten is added to some coffee. It is used to counter act some of the bitterness of the beans. Some people use a piece of bread to clean the grinders, takes the oil residue off the blades. I would avoid the coffees that say "special blended for a smooth rich flavor"

Laura

0

Share this post


Link to post
Share on other sites

I can only drink a small amount of coffee - I am down to 1 1/2 cups of half-caf in the morning only. Otherwise, I get a "sour" stomach, bathroom problems, etc. I always assumed it was the acid. It got worse after GERD. I also must eat with my coffee or it is just as bad as if I had drank a full pot, which I used to do a LOT.

-Kate

0

Share this post


Link to post
Share on other sites

Stef,

Too much caffeine (which is in sodas unless otherwise noted such a Pepsi) can cause headaches. Hav eyou tried elminating all caffeine from your diet? That might be the source! Worth a shot!

Dana

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,096
    • Total Posts
      920,333
  • Topics

  • Posts

    • I've had a range of symptoms in the last 2 months and in the past few weeks I have discovered that my TTG abs (igA) levels were 41 (my igA tests were fine). The doctor said that he is pretty much certain that it is celiac disease and I am awaiting an endoscopy to confirm it.  Before I found out that my TTG abs (igA) levels were high, I noticed that my body was reacting really badly to dairy products. I went on an elimination diet and stopped all gluten and dairy products and felt much better. I carried this on after my results and thought that I must have developed a dairy intolerance due to my celiac. 2 days ago I accidentally consumed a glass of wine which I thought was dairy free but it contained Milk. I have not had any gluten.  I am currently in the middle of a flare up. All of a sudden rashes have started to appear on my hands and my anxiety has returned (usually not a anxious person). No diarhhoea, vomiting or digestive issues. I am currently suffering from muscle twitching, rashes predominantly on hands and feet, brain fog, pins and needles/numbness on hands, feet and arms. However, I have been tested for milk allergy and this came back negative. Is it possible that it is dairy that is causing my symptoms/autoimmune reaction and could this be a reason for elevetated TTG abs (igA) levels. Or has the doctor only picked up my celiac and missing something else. If it was dairy intolerance then I would have digestive issues but I don't seem to have any. Could it be the casein protein?  Anyone been in a similar situation or can anyone provide some insight? 
    • Hello Everyone, This is my first post here and I am writing to seek help from experienced people here. I have been suffering for over 4 years now and still no where close to having a solution/ satisfactory diagnosis of my problem. My problems started in Mar 2012 with sudden diarrhea which would not go away for days. At first, I was given general antibiotics medication which would help bring down the frequency for some days and then it would come back. Since then it has been going on. I am giving a time line and the series of tests and procedures I have gone through. Would like opinion from experienced and experts here. I can send the scans and reports if required. Would really appreciate the help. Male, Indian origin Mar 2012 - onset of symptoms - multiple bouts diarrhea - spaced 3-4 weeks, bloating, weight loss (to start with I was 74 Kgs), GP managed with antibitocs and loperamide for months Dec 2012 - consulted a GI doc towards end of 2012, Colonoscopy done - conclusion was "IBS" - was advised to manage stress. use Rifaximin and immodium Jan 2013 - Aug 2013 kept moderately fine for 3-4 months ..again started getting frequent diarrhea + weight loss (was around 70 Kgs) Oct 2013 - Consulted another doc, MD - stool and blood test - Ecoli and high Eosinophil Count, medication done for 5-6 months, montinored eosinophil from nov - Mar: always kept high.. came down but then again shot up in a month Mar 2014 - Consulted another GI expert - Endoscopy and duodenal biopsy done - H Pylori and Unremarkable Villious pattern, (weight 68 Kgs) - On and Off diarrhea continued. Given: Ivermectin July 2014 - again same doc - Blood test done: High Eosinophil count,  Colonoscopy and Ileum biopsy - preserved villous architecture, features of eosinophilic enteritis; Endoscopy  + duodenal biospy again - numerous H pylori bacteria, Preserved villous crypt ratio, features of eosinophilic enteritis > conclusion: I have eosinophilic enteritis. Started on Prednisolone (steroids) Aug 2014 - 3-4 days of severe diarrhea> weight came down to 65 Kgs. Hospitalised for 3 days - continued on Prednisolonerios Sep 2014 - After 10 days only again a serious bout of diarrhea - hospitalized again - put on IV fluid for 8 days - weight 59 Kgs. Colonoscopy + biopsy done: features of superimposed c. difficile colitis, non-specific mild colitis > c. difficle test came out negative. CT Enterolysis +Scan done: mesenteric lymphadenopathy > nothing wrong acc to docs. IgA deficiency found - diagnosed Celiac - advised for Gluten free diet.   Sep 14 - May 16: continued gluten-free diet, gained weight upto 63 Kg in Jan 16, but then started losing again and came to 59 Kgs in May. No signficant diarrhea. Minor issues. June 16 onwards: Again diarrhea started, still on gluten-free diet, weight lost - 54 Kgs now. hospitalised again under same GI doc - blood test - eosinophil high, CT Enterolysis done: Showing mucosal thickening in Jejunum and Ileum; Enteroscopy (going in jejunum) + jejunal biopsy - jejunal erosions + villous blunting, marked atrophic with V:C ratio of 0.5: 1 to 0:1. HttG blood test done - Came out negative> Conclusion : No gluten exposure (how?) + Refractory Celiac disease. June - July - have been suffering from continuous diarrhea (goes off for 5-6 days and comes back, bloating, trappings in abdomen - waiting for I don't know what. On Rifaximin + Ivermectin + Codeine Sulphate (for diarrhea) I am very depressed and have no clarity on what's going on. If it is celiac, why am I not doing better on gluten-free diet. If the villous damage is still there in small intestine, then why did I kept fine for Sep - May period? HTTG - negative now but was NOT taken in Sep when I was first diagnosed with celiac. Can we trust negative HTTG now and conclude that it has come down? I am 20 kgs down from my ideal weight and still going down. Have no clue what NOT to eat to stop this. Why is eosinophil always high. Can any of you expert help me to put my case to docs in other countries? With lots of hope, Alok          
    • So, I know I'm obsessing but...... University of Chicago Celiac Disease Center website says any total IgA result over 20 won't affect the celiac test.   If this is so,  I'm still confused as to what a weak positive ttg iga means even though her result was barely in this category.  Why bother having a weak positive anyway?   I just don't get it and our doc is on vacation so I won't know what he'll recommend for another week.  I'll be finding out this week if we can see a GI without a referral. Our lyme doc (she's had lyme, may still have it, like I said it's a long story) is having her do an IgG wheat test but I don't think that has any bearing on celiac does it?    
    • Hi!  I've had good luck at the Minnesota state fair because most food booths are only doing one thing so there is no cross-contamination. For example: french fries or chocolate covered bacon or Indian kebabs.   But I live in California and I am heading to the state fair today! Does anybody have any great food suggestions that are definitely gluten-free there? Thanks, Celiac C.
    • Hi.  I have been reading your post and thinking about how my pain was around diagnosis.  It was above the belly button, I think where you are describing.  At the time I assumed I had a stomach ulcer.   I had been taking Neurofen for an ear problem and assumed it was the NSAID that had caused my stomach ulcer (which I actually didn't have, when I had an endoscopy a few weeks later my stomach was looking great! My small intestine was not!).   Going back to the pain, it was a burning feeling.   My doctor prescribed Omeprazole but it didn't touch it.   In fact I ended up with bad D. which eventually lead to me having all the tests for Celiac Disease.   I still get that pain if I eat oats (pure oats) that are supposed to be OK for most Celiacs.     I get various pains in different places in my digestive tract from time to time, but that burning pain is something I won't forget. The other thing I had that you mention was that pain between the shoulder blades.  I had that - I felt almost like someone was pushing my shoulders down.  So odd. I get palpitations when I am anemic.    I hope you get some answers soon.  It is pretty tough having to keep going from one doctor to another, but sometimes it is the only way.   
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,132
    • Most Online
      1,763

    Newest Member
    Feralgurl
    Joined