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Bad Stomach Pains

4 posts in this topic


I've not yet been diagnosed with Celiac, although I'm pretty sure that I have it. I had no idea what it was until my doctor ran a blood tests for gluten antibodies a few weeks ago thinking that it may be the cause of a wide variety of poo problems.

Anyway, he let me know that one of the tests cam back as a weak positive, that I might have gluten sensitive enteropathy, and that I should see a gastroenterologist. (Note: I chose the two weeks before the blood test to do a result, I had NO gluten during those two weeks - with the exception of a small amount of soy sauce.)

Anyway, while my doctor is out of town, I've been eating a lot of bread and pasta because everything I've read says that you should be eating gluten while they try to diagnose you...otherwise, everything comes up false negative.

Right now, I'm having unbelievable stomach pains....they are not really localized...instead they're pretty much all over. Also, my bones hurt, my hair is falling out, blah, blah, blah. The weird thing is that my symptoms are different before going gluten-free for those two weeks than they are now.

My questions:

1. Is it normal to have different symptoms after going gluten-free for two weeks.

2. How much gluten must I eat on a daily basis to make sure I don't get a false negative (couple crackers or a plateful of pasta plus a few slices of garlic bread)?

3. For how many weeks before the blood test must I be eating gluten? Before the biopsy?

4. Is it normal to be obese and have this thing? If it is possible, HOW?

5. Must you fast before taking the gluten anti-bodies blood test (the first time I took it, I had to because of some other blood work that was being done.)

6. Do you have to stay in the hospital to have the tube slid down your throat for the biopsy...or do you have to be in the hospital at they give you drugs if you have a nasty gag reflux.

Yeah, I have lots of other questions, but that should be enough for now.

Thank you all so much...



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4. Is it normal to be obese and have this thing? If it is possible, HOW?
I would like to answer essay question number 4 please :D

Your body goes into a survival mode. Seeing as your body isn't getting nutrients(due to the villi flattening) your body starts storing fat. Thus you become obese over time. This doesn't happen to every Celiac, but does to some.

Hope that helps ya!!

-Jessica :rolleyes:


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From my understanding, gluten is found in alot more items than just bread and pasta, so even though you may have been adhering to an Atkins diet, you probably were ingesting *some* gluten of some sort. Its amazing the kinds of things I've already found that contain gluten... I'm new to this, but I've found it to be true so far... So you may not have been as free from it as it would seem, but maybe so.

To answer your questions as well as I can. I have had unbelievable stomach pains as well, even after going gluten free, they are still there. I have read it can take weeks to rid yourself of the side effects once on a gluten free diet. My symptoms dont always stay the same... like, my bones ached for months, then I became really gasey, etc etc. The abdominal pains seem to be the flavor of the month =) So I don't know if things would change in 2 weeks or not...

I don't really know how much you should eat to not get a false negative, to be honest. My doctor told me 2 weeks ago that I could begin the gluten free diet even though I was having my biopsy two weeks later, and he said the damage would not reverse that quickly. He told me he even found enough damage to confirm a patient of his 6 full months after they went gluten free. Your doctor can answer these questions for you when you go see them.

I am slightly overweight (15-20 pounds?), I suppose, though in the last month and half when things really got bad (to the point of not eating anything), I began to lose weight (25 pounds and counting). I have read that some people don't react by losing weight. I suppose because some people don't get diarrhea and flush things (I dont), and even though the nutrients may not be being absorbed, doesn't mean the fat is? Good question. Ask your doc and let me know what s/he says =)

I didn't have to do anything before having the blood test done. Matter of fact, I didn't know what he was testing for... he just told me he wanted to do more labs.

I just had my upper endoscopy done on Monday. I have had one done before to find an ulcer, and both experiences were the same (diff doctors, hospitals, etc). I went to the GI Lab at my hospital, they hooked up an IV, put me to sleep just using sedation (keeps you out about 30 minutes or so), and they did the procedure. I felt nothing, remember nothing. I do know they spray your throat with something to numb it in order to combat that gag reflux =) My docs office had me watch an information video on the whole thing before going through with it. There are people who opt not to be sedated, I didn't take that route (though my insurance co believes it to be elective and doesn't pay for it. Money worth spending as far as I'm concerned). Once you're back awake, they let you go home. I went home and slept another 6 hours or so. Piece of cake =)

I hope that helps some... My best advice is to see a doc. Do some research yourself, arm yourself with questions, and see a doc about it all. =)


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Well, I was able to see the gastroenterologist today. She was very friendly (what a relief) and she seemed to know what she is doing. She is a faculty member at the University of Michigan medical school, so I'm hoping she's clued in.

Anyway, she said that I probably didn't have celiac despite my symptoms because most people with Celiac are underweight, and I'm 100 pounds over. However, she ordered the proper tests anyway just to be on the safe side - it is an easy test to run, and if that is the problem, we really ought to know now.

So, now I have a week to wait. That's fine. I'm patient.

If I don't have it, I'll need to get a colonoscopy to find out whether I have micro ... colonitis or something like that. I'm not sure if I caught the name quite right.



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    • For those of you who get this, how long did it last? I am going on 3 months now, glutening 2 months ago.  Popping zofran in the morning and I feel pretty dizzy and queasy the first half of the day. No, I am not pregnant. I also get flu like aches and accelerated heart rate after eating. 
    • That's how he makes his money... of course you will not get them to agree that the tests are bogus! Same with all these " miracle" supplements that claim to " digest" gluten.  If you call them, , of course they are going to say they work! "We only embrace tests that have endured rigorous scientific evaluations. So far, these tests have received no evidence-based support. Enterolab has never successfully published anything on the accuracy of stool tests (nor have any other stool test manufacturers, to our knowledge) making it difficult to confirm the research results. Because of this, we must make our decisions based on what hasbeen published; Harvard, UCSD, and the American College of Gastroenterology all agree that stool tests are simply not sensitive or specific enough methods in screening for celiac disease. We can say therefore with confidence that the test currently being used by these labs is not good enough. In fact, while it is true that about 40% of people with proven gluten sensitivity have elevated AGA-IgG, it is also true that about 15-25% of the healthy individuals who have absolutely nothing wrong also have elevated AGA-IgG. Hence, about 60% of gluten sensitive people do not have elevated AGA-IgG (making the test not sensitive enough); and about 20% of normal, non-gluten sensitive people have elevated AGA-IgG for no apparent reason (making the test not specific enough)."    
    • Hi Gemini, My birthday is in June, so I'm a Gemini too---and I do agree with some of your good points.  I had written that one could EITHER try Dr. Fine's stool sample testing, where his EnteroLab looks for elevated numbers of IgA antibodies to various food proteins (gluten, milk proteins, soy proteins, yeast proteins, etc.), OR one could just avoid eating or drinking or touching suspect food proteins, for at least a month (3 months is better), and see whether AVOIDING eating and touching such proteins causes improvement or not, in one's symptoms and lab test results. I urge you (and anyone else who wonders about this) to speak by phone, with people working at Dr. Fine's EnteroLab,  and state your objections to them, and see what their replies might be. Here's their phone number: 972-686-6869. I called Dr. Fine's Enterolab, and the folks I spoke with there, were nice enough to reply to any questions that I had, including one lady (I believe she was a nurse) there telling me about the "IgA deficiency" blood test called "total secretory IgA", which one can do first, to see whether it pays to try EnteroLab's stool sample testing! From what I understand, Dr. Fine doesn't try to distinguish between Celiac and non-Celiac forms of gluten "sensitivity". This is because although Celiac Disease is VERY serious, it is the "tip of the gluten-sensitive iceberg", meaning, that higher percentages of gluten-sensitive folks are NON-Celiac gluten-sensitive folks, who can also have major health problems, but the non-Celiac folks have "villi" that are sub-microscopically damaged, and thus, this sub-microscopic villi damage cannot be seen under the microscope--but it's there! And, Dr. Fine's point, is that in both Celiac and non-Celiac types of gluten sensitivity, the cure is the same: AVOID GLUTEN! Dr. Fine doesn't use the term "gluten intolerance", because newer uses of the word "intolerance" refers to NON-PROTEIN intolerances, such as "lactose/milk sugar intolerance" (lactose/milk sugar is a carbohydrate, not a protein), and intolerances are not related to one's immune system, while gluten "sensitivity" and other "sensitivities" ARE related to one's immune system, with ingestion (eating or drinking the offending proteins) causing one's immune system to cause the production of antibodies to those proteins that one is "sensitive" to. Many years ago, a friend of my husband, went to a local doc who told my husband's friend to try avoiding gluten. My husband's friend, without being biopsied, went off gluten, and has become well, ever since that day long ago. Some years ago, both my husband and I did Dr. Fine's "EnteroLab" stool sample testing, for gluten sensitivity. My husband came out positive, and I came out negative. My husband has avoided gluten, ever since then, and I try to do so also, to avoid tempting him to cheat, and he has avoided getting colds, etc., the way he used to, before he stopped eating glutenous foods. And, there is much disagreement (I know, because I'm a retired nurse, and I've been a patient now and then) between doctors, about gluten sensitivity, and about anything medical. So, I've learned to be wary of the terms "valid medical institutions" and "valid medical professionals". What may seem valid today, might be disproved tomorrow, and what might not seem valid today, may be shown to be valid tomorrow. Medicine is always in flux, thankfully. If not, medicine would be "dogma". If you call and speak with Dr. Kenneth Fine (M.D., gastroenterologist, "sensitive" to many food proteins himself, including gluten, but not "Celiac") &/or to the folks working at his Enterolab, please let us know what their replies are, to your objections to his lab's work. In the meantime, let's both try to keep an open mind. Sincerely, Carol Sidofsky (wife of gluten-sensitive non-Celiac hubby, and I'm a retired RN/nurse)
    • Where do you live? I was going to go to Cleveland but just got an appointment with Celiac Center in Boston. 5 hour drive next month. Hoping it is worth the trip. Might be worth looking into.   I just educated a lab on DGP yesterday. They just brought a celiac panel in house and i saw they were using gliadin. I think they are running my sample on the old test in-house and sending it out for DGP to see what happens.     
    • Me too, I am not a member of Medscape.    Is this the article?  I goggled the topic and filtered using "news".  (Hope it works!) Celiac Disease in Children: Experts Clarify Diagnosis and Management Recommendations   Here is what I liked.....a gluten sniffing dog for helping kids to remain dietary compliant!   Count me in!  
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