Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Bad Stomach Pains
0

4 posts in this topic

Hi...

I've not yet been diagnosed with Celiac, although I'm pretty sure that I have it. I had no idea what it was until my doctor ran a blood tests for gluten antibodies a few weeks ago thinking that it may be the cause of a wide variety of poo problems.

Anyway, he let me know that one of the tests cam back as a weak positive, that I might have gluten sensitive enteropathy, and that I should see a gastroenterologist. (Note: I chose the two weeks before the blood test to do atkins...as a result, I had NO gluten during those two weeks - with the exception of a small amount of soy sauce.)

Anyway, while my doctor is out of town, I've been eating a lot of bread and pasta because everything I've read says that you should be eating gluten while they try to diagnose you...otherwise, everything comes up false negative.

Right now, I'm having unbelievable stomach pains....they are not really localized...instead they're pretty much all over. Also, my bones hurt, my hair is falling out, blah, blah, blah. The weird thing is that my symptoms are different before going gluten-free for those two weeks than they are now.

My questions:

1. Is it normal to have different symptoms after going gluten-free for two weeks.

2. How much gluten must I eat on a daily basis to make sure I don't get a false negative (couple crackers or a plateful of pasta plus a few slices of garlic bread)?

3. For how many weeks before the blood test must I be eating gluten? Before the biopsy?

4. Is it normal to be obese and have this thing? If it is possible, HOW?

5. Must you fast before taking the gluten anti-bodies blood test (the first time I took it, I had to because of some other blood work that was being done.)

6. Do you have to stay in the hospital to have the tube slid down your throat for the biopsy...or do you have to be in the hospital at all...do they give you drugs if you have a nasty gag reflux.

Yeah, I have lots of other questions, but that should be enough for now.

Thank you all so much...

Simply

0

Share this post


Link to post
Share on other sites


Ads by Google:
4. Is it normal to be obese and have this thing? If it is possible, HOW?
I would like to answer essay question number 4 please :D

Your body goes into a survival mode. Seeing as your body isn't getting nutrients(due to the villi flattening) your body starts storing fat. Thus you become obese over time. This doesn't happen to every Celiac, but does to some.

Hope that helps ya!!

-Jessica :rolleyes:

0

Share this post


Link to post
Share on other sites

From my understanding, gluten is found in alot more items than just bread and pasta, so even though you may have been adhering to an Atkins diet, you probably were ingesting *some* gluten of some sort. Its amazing the kinds of things I've already found that contain gluten... I'm new to this, but I've found it to be true so far... So you may not have been as free from it as it would seem, but maybe so.

To answer your questions as well as I can. I have had unbelievable stomach pains as well, even after going gluten free, they are still there. I have read it can take weeks to rid yourself of the side effects once on a gluten free diet. My symptoms dont always stay the same... like, my bones ached for months, then I became really gasey, etc etc. The abdominal pains seem to be the flavor of the month =) So I don't know if things would change in 2 weeks or not...

I don't really know how much you should eat to not get a false negative, to be honest. My doctor told me 2 weeks ago that I could begin the gluten free diet even though I was having my biopsy two weeks later, and he said the damage would not reverse that quickly. He told me he even found enough damage to confirm a patient of his 6 full months after they went gluten free. Your doctor can answer these questions for you when you go see them.

I am slightly overweight (15-20 pounds?), I suppose, though in the last month and half when things really got bad (to the point of not eating anything), I began to lose weight (25 pounds and counting). I have read that some people don't react by losing weight. I suppose because some people don't get diarrhea and flush things (I dont), and even though the nutrients may not be being absorbed, doesn't mean the fat is? Good question. Ask your doc and let me know what s/he says =)

I didn't have to do anything before having the blood test done. Matter of fact, I didn't know what he was testing for... he just told me he wanted to do more labs.

I just had my upper endoscopy done on Monday. I have had one done before to find an ulcer, and both experiences were the same (diff doctors, hospitals, etc). I went to the GI Lab at my hospital, they hooked up an IV, put me to sleep just using sedation (keeps you out about 30 minutes or so), and they did the procedure. I felt nothing, remember nothing. I do know they spray your throat with something to numb it in order to combat that gag reflux =) My docs office had me watch an information video on the whole thing before going through with it. There are people who opt not to be sedated, I didn't take that route (though my insurance co believes it to be elective and doesn't pay for it. Money worth spending as far as I'm concerned). Once you're back awake, they let you go home. I went home and slept another 6 hours or so. Piece of cake =)

I hope that helps some... My best advice is to see a doc. Do some research yourself, arm yourself with questions, and see a doc about it all. =)

0

Share this post


Link to post
Share on other sites

Well, I was able to see the gastroenterologist today. She was very friendly (what a relief) and she seemed to know what she is doing. She is a faculty member at the University of Michigan medical school, so I'm hoping she's clued in.

Anyway, she said that I probably didn't have celiac despite my symptoms because most people with Celiac are underweight, and I'm 100 pounds over. However, she ordered the proper tests anyway just to be on the safe side - it is an easy test to run, and if that is the problem, we really ought to know now.

So, now I have a week to wait. That's fine. I'm patient.

If I don't have it, I'll need to get a colonoscopy to find out whether I have micro ... colonitis or something like that. I'm not sure if I caught the name quite right.

Later.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,637
    • Total Posts
      918,422
  • Topics

  • Posts

    • Anxiously waiting
      Hi all. Ive just had my blood test results which showed a high level for coeliacs,originally i went to doctor coz my bowel movements had changed and haven't been normal for over a month and i am very tired,the tiredness i assumed was low iron and my tummy/bowel issues well i thought IBS Maybe or a bug as ive not really had issues before,anyway she has put me on a wait list to have a endoscopy done. Im so so confused as i didn't expect i may be coeliac,my symptoms come and go so on a day im good i think sweet my issues are resolved but then they come back so they are not consistent which makes me wonder if it is coeliac or not,but my tiredness,headaches,shortness of breath,tummy gurgling,different bowel movements,feeling nauseous are all symptoms that come at different times. The test i had was for gliadin IgG which was 20 but should be 7 or lower, i guess im just anxious to wait who knows how long for the endoscopy coz i would like to try and cut out gluten but the dr said not to till the procedure is done. P.s im in australia so not sure if things are different here.
    • Celiac Night Vision
      Scotomas returned for the 7th year on the 24th February despite liver pâté and have varied since with 3 brief gaps. I have always had migraine, latterly occurring more than once a month, usually of basilar or retinal type with aura (but no headache) lasting less than 5 minutes. A recent bout looked like a TIA and led to a CT scan which revealed clear major vessels but old cerebellar infarcts, so maybe migraine accounts for poor memory too. The scotomas are very different from migraine eye symptoms - stationary, irregular in shape and lasting hours. I think food is excluded as the cause but seasonality, gaps, variation with wind direction and rain mean that pollen is still a possibility. Scott Adams did a marvellous thing founding this site so celiacs could enlighten each other. Please post if you have anything like these scotomas!
    • healthy bread recipe?
      Eat what you eat at lunch or dinner.  I am happy with a fried hamburger patty, fish, or chicken (I know it needs to be fresh or frozen for the histamine diet).  Yes, I eat veggies for breakfast!   Wanted to add that I was glutened in July (GI ordered follow-up antibodies testing and it was high)  and it took me 3 months to recover.  Picked up a histamine intolerance and became lactose intolerant again.  Luckily, when I healed, the histamine thing went away (or  Diminished ) and the lactose intolerance resolved.    I was getting hives, rashes and itching (not DH), vomiting, etc.  So, her intolerances may be just temorary!  
    • Could this be celiac or is it really just IBS?
      Are you sure you had the complete celiac panel?  Here are the tests:   -Tissue Transglutaminase (tTG) IgA and (tTG) IgG -Deamidated Gliadin Peptide (DGP) IgA and (DGP) IgG -EMA IgA  -total serum IgA and IgG (control test)     -endoscopic biopsy - make sure at least 6 samples are taken   VERY IMPORTANT:  Keep eating gluten daily until ALL testing is complete or the tests can be inaccurate.     (Source: NVSMOM -- 😊)   Here is more information from a reputable site (and not just info from a crazy cyclist on the Internet!):   http://www.cureceliacdisease.org/screening/   IBS, in my opinion, means "I Be Stumped!"  It is just a cop out!  So is the "stressed" thing.     I also had my GB out too.   It was a non-functioning (0% per HIDA scan), no stones, and rotting.     You seem to have many celiac disease symptoms.  Verify (obtain copies of your lab tests) to see if you got the complete panel. You might just have had the TTG IGA and TTG IGG tests.  Good for screening but it does not catch all celiacs.  My TTG tests are always negative even on follow-up testing.  The DGP test catches a positive for me.  My biopsies revealed moderate to severe damage.  If my celiac-savvy GI did not order the complete panel, my celiac disease diagnosis would never have been caught.   if celiac disease is really ruled out, research mast cell disorders.  The flushing and GI upset sound familiar!  You can have more than one thing going on!  But I would put my money on celiac disease!            
    • tightness in throat after eating gluten?
      I've noticed that if I accidentally eat gluten, for the next few days I have this tightness in my throat. It feels like my throat is closing. It's not constant, but comes and goes throughout the next 1-3 days. My hands have also been itchy. Is this a normal symptom for celiac or gluten intolerance, or could it possibly be an allergy? I haven't been tested or diagnosed with celiac or anything yet, so I'm still not entirely sure. All I know is that gluten makes me very sick.. But especially with the itchiness and tight throat.. I'm allergic to acetaminophen and my reaction is similar, so it just makes me wonder. What do you think?
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,727
    • Most Online
      1,763

    Newest Member
    Kal
    Joined