Well I promised I would post regarding my expedition to Children's Hospital in Los Angeles. I have very little positive to say about the office staff so I will keep my mouth shut, but Dr. Pietzak was wonderful once we were able to actually get in front of her. She was a wealth of information, took the time to listen to my daughter's very extensive medical history, all the while my two year old was playing devil child and bouncing off the walls(not the child with celiac disease, she was very well behaved, sat quietly and wolfed down a bag of gluten free pretzels). Anyway, given my daughter's off the charts positives on all the blood tests and her amazing reaction to being on a gluten free diet for over a month Dr. Pietzak felt comfortable officially diagnosing her with celiac disease. We need to get one more blood test to test nutrition levels but we are forgoing the biopsy. So, for anyone in the LA area that is looking for a specialist, I highly recommend Dr. Pietzak, but you need to be pretty tough and persistent to get an appointment in a timely manner. I look forward to learning as much as possible, this forum has been a wealth of information already.
deb, mom to a newly diagnosed 7 year old.
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