Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Side Effects From Going Gf?
0

10 posts in this topic

I've been gluten-free (aside from two accidents, er.. "learning experiences") for 12 days now and am wondering if the stuff I've been experiencing is fairly typical.

Aside from GI symptoms lessening (YAY!) and my skin looking a little better, some things about going gluten-free have not been pleasant. SHEESH! For all the hard work of starting a gluten-free diet, I guess I was expecting rainbows to appear and birds to sing every morning, for crying out loud!

Today I had no appetite at all (I'm 27 and that's the 4th time in my life to have ever lost my appetite) and even less energy. I was in bed most of the day. Also, I used to be able to go to the gym for a couple of hours at a time, but since going gluten-free it's like my body's attention is somewhere else and I'm not able to work out but 30-45 min before I'm ready to pass out and/or throw up. My menstrual cycle's going crazy too (more than usual).

Sorry if any of that's TMI, but I'm feeling not a little lost in this new world and was hoping some of you could clear up some of this confusion I'm feeling. What did you experience after going gluten-free?

0

Share this post


Link to post
Share on other sites


Ads by Google:

The first couple of weeks were great-minus the whole "oh my gosh, I have a disease" aspect. Then I started having accidents a lot. It was really frustrating the first 6 months to year. I was anemic, so I would get tired all the time-any strenuous activity for more than 15 minutes and I'd need a snack (and then another 15 minutes later). I didn't get my period for almost 4 years, and it started within a week of going gluten free. My lymph nodes stopped being swollen all the time. I became lactose intolerant. I got really depressed, then better.

Looking back, the first year of diagnosis really sucked, but I guess we all go through it. Stick in there---After a while your body will heal and being gluten free won't be the big deal it used to be.....

Take care-

Nadia ;)

0

Share this post


Link to post
Share on other sites

For my first week of gluten-free (i've only been gluten-free for 4 weeks now) I was exhausted but I wasn't eating any carbs then either.... now I've added back rice and potatoes and such and that seems to have upped my energy level some.

I think you have to remind yourself that this is a process, most of us ate gluten for years when we shouldn't have so I feel it will take a while for me to feel totally wonderful again. However for me, the intestional symptoms were so bad that just that alone being better is enough for me. For the past 8 years I swear I've spent half my life in the bathroom. I'm done with that now!!

Susan

0

Share this post


Link to post
Share on other sites

When first going gluten-free, many people tend to just cut out all the gluten containing foods, not necessarily replacing them with anything. What you're describing, the energy loss, tiredness, etc., is very common for people who cut carbs from their diets. You're not giving your body the easy energy it's used to! Adding to that, with celiac disease, you probably aren't digesting foods very well in first place. You need to give yourself something to replace the breads and such that you are used to feeding your body (especially when exercising) to keep your energy levels up. If you're not interested in simply replacing gluten filled foods with non-gluten replacements (expensive, btw, and not always satisfying) try changing your diet somewhat. Eat more beans of all kinds (beans seem to fill the same nitch that grains do in filling and providing energy.) If you're not interested in low carbing it :P, you will need to find something your body can use to replace the carbs you are no longer eating.

Maybe there is a forum for people who exercise a great deal that also follow a gluten-free diet that may have menu suggestions or pre, during and post exercise food ideas?

Good luck!

0

Share this post


Link to post
Share on other sites

I exercise quite a bit-started right around the time I was diagnosed-and the best thing I've found is white rice and a little olive oil an hour or two before activity, plus some kind of fruit or juice before and/or during. Just being diagnosed, you're probably still very anemic-have you gotten blood tests done at all? Anemia will sap your energy pretty quick. Rice might bug your tummy a bit in the beginning-that's why I always ate it with a little oil. Being freshly diagnosed, you also might not be able to digest fats and complex carbohydrates well either, or tolerate lots of high fiber foods. I know a lot of people who have had success with digestive enzymes (they help your body break down a lot of nutrients and will help with bloating). Hope this helps! Staying active will help you tons with your recovery!

Nadia B)

0

Share this post


Link to post
Share on other sites




I'm pretty sure I'm not digesting fats well (or much of anything else for that matter). The anemia thing might be something to look into as I've always tended toward that. Lately it seems a lot of things bother my stomach so I either drink water, eat rice or bland veggies.

I ate a metric ton of carbs before (almost always complex tho), so maybe what I'm feeling is, like you said Freya, coming down off of that.

I started taking raw sauerkraut to help put good bacteria back into the system. We'll see what happens...

Thanks!

0

Share this post


Link to post
Share on other sites

Be careful about adding a lot of exotic foods to your diet. They can cause you discomfort and you could perhaps have food reactions to them, too.

0

Share this post


Link to post
Share on other sites

The most noticeable side effect I experienced was my sugar cravings going through the roof! I have a sweet tooth to begin with. When I cut out all the gluten products (i.e. carbs, bread) my body started to crave sugar like I never have before!

It is most definitely a process. You body has to balance itself out and you have to balance out your diet. It took me almost 6 months before I started to really eat a balanced diet again. I had to force myself to find alternative foods and new favorites. I have to remember to eat a balanced diet.

The other thing that I have found to be the best help is exercise!! Working out helps to flush the system and regulate things. I feel SO differently when I am working out regularly versus when I am not.

I have been gluten-free for a little over a year and I am still learning what works for me. It seems that it is different for each individual. I reccommend cutting out as much as you can and working to re-introduce things one at a time. It's not fun to guess, but after a while you will balance out and be eating and feeling better.

0

Share this post


Link to post
Share on other sites

Hi,

It took me 9 months to actually start feeling better.

Because I was diagnosed in my early 60's, I had been

sick for a long time. Also I stubbornly refused to stop

dairy, I kept trying soy, rice, goat's milk. When I

finally gave up dairy I started to really feel better,

no more joint pain, sinus headaches, foggy head feeling.

Keep at it, there is a light at the end of the tunnel, not

exactly a rainbow but a light. You do feel worse instead

of better in the beginning.

0

Share this post


Link to post
Share on other sites

REALLY good to hear. Thank you!

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,891
    • Total Posts
      919,518
  • Topics

  • Posts

    • I'm actually scared to go to the doctor and could use some advice
      I finally found out my gluten issues right after I left a very stressful job and could no longer function I was so ill. Symptoms had gone on for decades before, but it took a moment of stress to bring it to a head. I had anxiety gerd and the irregular heartbeat and I had a nasty bout of shingles when I was 20 which I've subsequently realised was due to my compromised immune system.  Shingles follows a particular nerve  around the body which is probably why Cristiana's dr suspected it. I had it from the front right of torso moving around to my back. The pain you describe is similar to how shingles felt before the blisters arrived, it starts with the skin feeling very tender as if it's been burnt. Maybe you're getting the forerunner to it and your body is successfully stopping it progressing? Ah, enough amateur doctoring from me! I hope you get the answers you need and are soon on the way to recovery. Sending you best wishes.
    • Amaranth and Quinoa: Pseudo-cereal Super Foods
      My latest obsession is creating new quinoa recipes, since my eight year old daughter absolutely loves it! Her favorite is warm quinoa with crumbled turkey sausage, broccoli, and lots of cumin. She also loves it with oil and balsamic vinegar. I like it cold with chopped veggies, garlic, and fresh squeezed lemon juice. View the full article
    • Easy Soy-Mirin Glazed Salmon (Gluten-Free)
      If you're looking for and easy yet exotic way to serve fish, look no further than this soy and mirin glazed salmon. It's easy to make and offers a delicious departure from standard fare. View the full article
    • Mexican?
      Chipotle is one of my favorite places to eat, but it is a 50/50 chance of having a reaction due to cross-contamination.  Yes, they graciously make an effort to be gluten-free and will change gloves.  BUT, before that they used gloves and handled flour tortillas and then used same gloves to reach into the lettuce and cheese--voila--cross-contaminated food.  Changing gloves for you does not avoid this cross-contamination problem.  I started having reactions and my daughter advised me to avoid all the corn products there because of what she read on their website about allergens--so no more chips, or crispy taco shells, or corn.  I also avoid the green salsa and the pico de gallo--not that I am aware of cross contamination but she never eats that there and she has been successful at not having reactions, so that is what I do now and have had much success. Here is what I get:   burrito bowl with either white or brown cilantro lime rice, grilled veggies, black beans, barbacoa, red salsa, cheese, sour cream, guacamole, and lettuce on top.  So GOOD! and so far, safe for me.
    • I'm actually scared to go to the doctor and could use some advice
      Hi Elle.   To be honest, to this day I am not sure if I actually had zoster sine herpete.  It was one of several suggestions by bewildered doctors.  What I can tell you is that I had to have MRIs  because one doctor thought I might have trapped nerve in my spine and I thought it would reveal something dreadful being the sort of person who gets weird nerve sensations - and it didn't reveal a thing.   It was unsettling to have symptoms like that for so long but what made me think my brother in law might have been right was because the worst of the symptoms lasted a year which I gather is pretty typical (but don't panic, because they can go a lot faster!)   My nutritionalist told me that if we get run down we are more prone to shingles so that is something to watch. Easy to say (and I'm speaking to myself here!) try not to spend too much time by yourself worrying about these things because anxiety never helps with nerve pain. I found that rest was very beneficial so I would recommend you try to get as much of that as you can.  Also, someone suggested a warm bath for 20 minutes with some Epsom salts.  That helped too. As I say, just one reason you might be getting this pain but I would continue with the investigations and perhaps mention the pain to your doctor and ask if it could be shingles.      
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • Jmg  »  admin

      Hello Admin!
      I don't know whether this is of interest to post on your articles feed:
      http://pratt.duke.edu/about/news/window-guts-brain
      Kind Regards,
      Matt
      · 2 replies
    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,937
    • Most Online
      1,763

    Newest Member
    ckrlink1
    Joined