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I Just Know He Has Celiac!
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Hi all,

My name is Casey and My Husband is Stephen our soon to be 3yr old daughter is Kyla. I have been doing lots of research on the net the last 8 month or so.

A little knowledge bout my situation......my husband started having problems alittle before our daughter was born. Sporadic diarrhea started first then months later came the stomach pain. When I was in the hospital after having a c-section he was sleeping on those uncomfortable chairs because he had to be to work at 8 pm that night and he started to cry and moan in his sleep so me and my mom woke him the the nurses rushed him to the ER. They found nothing and then he started to go to the doc. They started to tell him he had colitis and he needed a colonoscopy. He did this and it came back fine with not probs at all! They told him there are people with diabetes and people with different allergy's you just have the shits. This man has been from job to job and doctor to doctor. No solid results! Half the time was in Georgia and the other half has been here in Austin, Tx. Last year he was even diagnosed with (no real reason) IBD Irritable bowl disease (chron's, ulcerative colitis) and told he would have to have his colon removed in about 2 year. This was when we was 23 @ 21 he has the colonoscopy. So we got really worried then I researched his symptoms basically 1 by 1 and found celiac disease in January of this year. He was tested but only the IgA test. It came back neg! We just could not believe this. No real answer! The one symptom that throws us is his weight. When we got together in 2003 he weighed about 180. He is now 330 and it fluctuates! He does eat gluten free but was in denial not to long ago. He is gettin to the point of eating nothin but rice. Most of which is because he says I get on him all the time about a job and stuff. I get over whelmed alot b because I am the only one that is working and we live with a roommate because we could not pay the bills and still be ok. I don't know what else to do for him. He doesn't have any energy to do anything anymore. And I know he isn't very happy about his weight because it shows! He is upset because he feels his stomach hates him.

Our daughter on the other hand has not had any significant symptoms only on 2 occasions. Both were after she ate a sub from Quiznos and a place here in Austin called Jasons Deli. I got woke up with her screaming MOMMY MY TUMMY HURTS then the throwing up started. The first time we took her to the ER and they even transfered us by ambulance to the children's hospital because they thought the had a intestinal blockage. End result they said she had a stomach flu. The poor girl threw up for 4 hours. The second time was only about 3 months later and I just knew what to expect. I keep tellin her its ok KK you have to get it out of your system. Since then the poor girl won't eat bread! So now here I am making very low money To support the 3 of us on $8.25 an hour is very difficult and I don't even get 32 hours a week anymore since new management. They lowered my food stamps from $408 to $149 because I work. HA HA HA! My husband don't work because he can't stay out the bathroom. I have to cut my insurance from my job because its too much $83 a month I need that! He needs an endoscopy done and no doc will do one unless they think its nessecary around here. I think he may have borderline diabetes also. Any suggestions? I don't get on here much. So if you could email me @ Peaches102984@yahoo.com. If you want to leave a thread I will try to be on here in the next week. I just need support and encourgement. Also some friendly advice.

thanks

casey

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The "stereotypical" celiac is underweight due to malnourishment, but many celiacs are actually overweight. One theory is that if you're not absorbing enough food, your body is in starvation mode so your metabolism plummets and you hold on to everything.

Blood tests commonly give false negatives.

And I also think it's common for one or two gluten foods to make celiacs sick while other ones don't appear to cause symptoms. Just like your daughter and the sub sandwiches, I had the same thing with pizza. I could eat several slices of bread and feel fine but pizza always gave me stomach problems.

Since you are on a tight budget, I'd recommend just trying the diet rather than pursuing more medical testing.

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Casey,

If your husband is on a strict rice diet, he probably isn't getting the vitamins and minerals that he needs. Especially if he does have celiac disease, - celiac disease creates a problem in absorbing vitamins and minerals in the lower digestive tract; especially with B vitamins, iron and folic acids. His energy loss may well be due to vitamin deficiency. The problem is, if he has celiac, and the intestinal wall isn't fully healed, he may not be able to absorb what his body needs at this point by taking vitamin pills (since the pills dissolve in the intestinal tract). He might want to try taking a sublingual (dissolves under the tongue) vitamin B12 once or twice a day for a week or two to see if they help his energy level. (The sublingual pill is specially made to be dissolved under the tongue and absorbed in the mouth, bypassing the lower digestive tract.) They may be a bit expensive at first (GNC carries them for about $20 for 120 pills, - less if you sign up for their discount program and buy them during the first seven days of the month; but you may be able to find them for less at other vitamin suppliers - just make sure that they are gluten free [check directly with the manufacturer if they don't say gluten free on the label]), but if he is in the middle of a B12 deficiency, they very well could be the difference between not having the energy to stand up, and having the energy (and emotional strength) to start feeling better. (Hopefully others here will have other suggestions on where to get gluten free B12, and some of the other vitamins that he may be lacking, at a lower cost.)

Best of luck to you, your husband and your daughter!

Pat

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Sounds like he could be suffering from anemia. He should get his iron and ferritin levels checked. For many men, including myself, if the levels are low, and there are no other causes, gluten intolerance is often the culprit.

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Dear Casey,

The test results do not always show anything. I have Celiac, but I was seronegative. Blood tests are often negative in the most severe cases, according to new research by Dr. Kenneth Fine. Your daughter is smart! She already knows that bread is making her ill.

I have some wonderful news for you. Just because your husband is Celiac, does not mean that you have to buy everything at the healthfood store. Money has always been tight for us. Naturally, I have found a number of ways to remedy that. Believe it or not, there are many things we can have at the regular store! :) Only buy what you absolutely have to at the healthfood store.

Something else I would like to mention is your husband and child can get sick from cross-contamination. This means if you touch bread or crackers, then touch their food, they can get sick. A microscopic amount is all it takes to make me violently ill. Unfortunately, my parents just treat me like a lunatic, then complain I whine about being sick, they cannot get in the bathroom, and cannot figure out why I do not just go out and get a job. :rolleyes: Dear God, these people are idiots! So are many doctors. They tell Celiacs they are just crazy, or something of the sort.

I also should tell you that it is not your fault and you are trying. Your husband and daughter are lucky to have a wonderful, considerate person such as yourself in their life. In order for them both to be well, it is necessary that you analyze some items you may not have thought of. First of all, you need new cookware and utensils. Gluten hides in cracks and scratches. Wooden utensils particularly need to go. Wal-Mart has a great four piece set with a dutch oven, two different sized saucepans, and a skillet for only $22.88, so if you would like, I can send you a link.

Other items such as toiletries and cosmetics are often forgotten about. Toothpaste, mouthwash, hair styling products, aftershave, shaving cream, handsoaps, lotions, medications, and even your cosmetics can gluten your husband and child. Do not worry, I know of the brands that clearly label ingredients, and I can ease your mind about that. ;) I want to make this as easy a transition as possible for everyone. It is okay to be frustrated, angry, or sad. Have a good cry if need be. This is a lot to deal with.

Okay, now I have a present to welcome you to our forum. I have a list that should really help. This is overwhelming. I went through this with myself in August of 2006. You spend most of your day cooking and cleaning obsessively. The rest you are on the phone with reps from companies trying to find out what is safe. I decided to save you the trouble!

1. There are a number of things in the regular grocery that are safe. Some things are labeled already. Wal-Mart's Great Value brand has numerous things you can eat.

2. For the love of God use Coupons on items you are allowed to eat. People can get them and print them out online even. Call some of the local stores and ask if they accept online coupons.

3. Check the ads online and in the newspaper. You would be surprised how many people do not do this.

4. Some items like rice flour and rice noodles are safe to buy at the Chinese or oriental market. The merchants are more than happy to help you if you cannot read the label.

Now, here is my list of great things to get you started:

Condiments:

Smart Balance Margarine*

Crisco Shortening

Crisco Oil

Pompeiian Olive Oil

Great Value soy sauce

Heinz Ketchup

Lea & Perrins Worchestershire Sauce (all Lea & Perrins Products are safe)

Sweet Baby Ray's Barbecue Sauce

Kraft French Fat-Free Salad Dressing

Kraft Thousand Island Fat-Free Salad Dressing

Pace Picante Sauce

Ortega Salsa

All Classico Red and *White sauces

All Jif Peanut Butters including Smooth Sensations

Welch's Grape Jelly

Cool Whip*

Philadelphia Cream Cheese*

Miracle Whip

Daisy Sour Cream (fat-free, low-fat, regular)*

Snack Foods:

Utz Potato Chips (Found at Sam

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My step son was diagnosed with celiac this past December, and we have been told that it can be hereditary. At that time we really didn't think my husband or anyone in his family could possibly have it because we figured it would have been diagnosed when they were younger, but we didn't know much about the disease at that time. We have since read many things stating that the disease can basically lay dormant in your body even into your sixties. My husband has so so many of the symptoms that we have discovered in some of the information we have read. The symtpoms are endless, but he has several of them. I have been trying for months to get him to try going gluten free for a little while just to see if it makes him feel better at least and he has NO will power whatsoever! Even if every meal I cook is gluten free, he will get it from somewhere. I am so positive that he has it, but it's like he'd rather suffer......and make me suffer......than do something about it. I say that I have to suffer because I have to listen to his constant whining about how horrible he feels and how everything he eats makes him sick. MEN!!!! :rolleyes: Anyway, is it doing him any good for me to be cooking gluten free meals for him when he's going to eat it anyway, am I wasting time and money?

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Dear sarad1,

I know what you mean! My parents are the same way! My brother and I got the disease from somewhere! We have Irish on both sides, and both my parents are good candidates for the disease. Mom swallows four different prescription pills alone for her constantly loose bowels, on top of OTC anti-diarrheal liquid medication. She, my aunt, and uncle all had to be placed on 2 percent milk as infants due to spitting up every formula like my brother and I did.

Dad had ulcerative colitis as a teenager and young adult. As an infant, he had starvation diarrhea. Still, he cannot possibly have it and is fine. :rolleyes: I told him, he should have been a doctor he is so full of himself. I am so tired of stupid people, you have no idea! I told them both they are not allowed to whine when they end up with intestinal cancer. I have had it with their crap!

Sincerely,

NoGluGirl

P.S. I have been working on a cookbook. If your hubby loves chocolate chip cookies, I love the ones hot and out of the oven. Since I had my own recipes prior to being diagnosed, that made it easy. All I had to do was tweak them. Just PM me for the recipe!

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Dear sarad1,

I know what you mean! My parents are the same way! My brother and I got the disease from somewhere! We have Irish on both sides, and both my parents are good candidates for the disease. Mom swallows four different prescription pills alone for her constantly loose bowels, on top of OTC anti-diarrheal liquid medication. She, my aunt, and uncle all had to be placed on 2 percent milk as infants due to spitting up every formula like my brother and I did.

Dad had ulcerative colitis as a teenager and young adult. As an infant, he had starvation diarrhea. Still, he cannot possibly have it and is fine. :rolleyes: I told him, he should have been a doctor he is so full of himself. I am so tired of stupid people, you have no idea! I told them both they are not allowed to whine when they end up with intestinal cancer. I have had it with their crap!

Sincerely,

NoGluGirl

P.S. I have been working on a cookbook. If your hubby loves chocolate chip cookies, I love the ones hot and out of the oven. Since I had my own recipes prior to being diagnosed, that made it easy. All I had to do was tweak them. Just PM me for the recipe!

I have to say, I am very proud of him, he has not had any gluten all day, and for him that is pretty much a miracle! I tried to tell him that there are so so many things that he can still eat and it's not like he has to go without anything. Not to mention, he actually likes the gluten-free tapioca bread that my step son eats....so what's the big deal? I guess it's just the idea of it! Thanks for your reply, I really hope my hubby sticks with it, and finds out what is wrong with him!

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I have to say, I am very proud of him, he has not had any gluten all day, and for him that is pretty much a miracle! I tried to tell him that there are so so many things that he can still eat and it's not like he has to go without anything. Not to mention, he actually likes the gluten-free tapioca bread that my step son eats....so what's the big deal? I guess it's just the idea of it! Thanks for your reply, I really hope my hubby sticks with it, and finds out what is wrong with him!

Dear sarad1,

Congratulations to your hubby! :) Since he has been such a good boy, I have a little present for you and him to make things easier. Also, I wanted to remind you to be careful with your lipsticks and such. If you eat gluten and are not a Celiac or gluten intolerant, he can become ill from kissing you. :o This disease really can be difficult to deal with at times. There is somuch you have to think about. The list below will surprise your husband, because there are a lot of options!

I have a list that should really help. This is overwhelming. I went through this with myself in August of 2006. You spend most of your day cooking and cleaning obsessively. The rest you are on the phone with reps from companies trying to find out what is safe. I decided to save you the trouble!

1. There are a number of things in the regular grocery that are safe. Some things are labeled already. Wal-Mart's Great Value brand has numerous things you can eat.

2. For the love of God use Coupons on items you are allowed to eat. People can get them and print them out online even. Call some of the local stores and ask if they accept online coupons.

3. Check the ads online and in the newspaper. You would be surprised how many people do not do this.

4. Some items like rice flour and rice noodles are safe to buy at the Chinese or oriental market. The merchants are more than happy to help you if you cannot read the label.

Now, here is my list of great things to get you started:

Condiments:

Smart Balance Margarine*

Crisco Shortening

Crisco Oil

Pompeiian Olive Oil

Great Value soy sauce

Heinz Ketchup

Lea & Perrins Worchestershire Sauce (all Lea & Perrins Products are safe)

Sweet Baby Ray's Barbecue Sauce

Kraft French Fat-Free Salad Dressing

Kraft Thousand Island Fat-Free Salad Dressing

Pace Picante Sauce

Ortega Salsa

All Classico Red and *White sauces

All Jif Peanut Butters including Smooth Sensations

Welch's Grape Jelly

Cool Whip*

Philadelphia Cream Cheese*

Miracle Whip

Daisy Sour Cream (fat-free, low-fat, regular)*

Snack Foods:

Utz Potato Chips (Found at Sam

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Thank you so much for that list noglugirl! That is so helpful. I had no idea that Fruity Pebbles were gluten free and my step son has been so deprived all these months. They are his favorite! When I sat that bowl of FP in front of him at breakfast that next morning I thought he was going to cry. I even made gluten-free Fruity Pebbles treats with marshmallows....his favorite. They were gone in a day.

Thank you for taking the time to do that!

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Dear sarad1,

You are so welcome! :) I know what you mean. I have a belief that no one should be deprived of comfort food! It is surprising what we are able to eat sometimes. Thank goodness for the internet! Celiacs would starve without it. I want to make this as easy as possible for others, because the transition is so overwhelming. Feel free to ask questions anytime!

Sincerely,

NoGluGirl

P.S. If you need a recipe for chocolate chip cookies like Tollhouse cookies, just ask! I am working on a cookbook.

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Hi all,

My name is Casey and My Husband is Stephen our soon to be 3yr old daughter is Kyla. I have been doing lots of research on the net the last 8 month or so.

A little knowledge bout my situation......my husband started having problems alittle before our daughter was born. Sporadic diarrhea started first then months later came the stomach pain. When I was in the hospital after having a c-section he was sleeping on those uncomfortable chairs because he had to be to work at 8 pm that night and he started to cry and moan in his sleep so me and my mom woke him the the nurses rushed him to the ER. They found nothing and then he started to go to the doc. They started to tell him he had colitis and he needed a colonoscopy. He did this and it came back fine with not probs at all! They told him there are people with diabetes and people with different allergy's you just have the shits. This man has been from job to job and doctor to doctor. No solid results! Half the time was in Georgia and the other half has been here in Austin, Tx. Last year he was even diagnosed with (no real reason) IBD Irritable bowl disease (chron's, ulcerative colitis) and told he would have to have his colon removed in about 2 year. This was when we was 23 @ 21 he has the colonoscopy. So we got really worried then I researched his symptoms basically 1 by 1 and found celiac disease in January of this year. He was tested but only the IgA test. It came back neg! We just could not believe this. No real answer! The one symptom that throws us is his weight. When we got together in 2003 he weighed about 180. He is now 330 and it fluctuates! He does eat gluten free but was in denial not to long ago. He is gettin to the point of eating nothin but rice. Most of which is because he says I get on him all the time about a job and stuff. I get over whelmed alot b because I am the only one that is working and we live with a roommate because we could not pay the bills and still be ok. I don't know what else to do for him. He doesn't have any energy to do anything anymore. And I know he isn't very happy about his weight because it shows! He is upset because he feels his stomach hates him.

Our daughter on the other hand has not had any significant symptoms only on 2 occasions. Both were after she ate a sub from Quiznos and a place here in Austin called Jasons Deli. I got woke up with her screaming MOMMY MY TUMMY HURTS then the throwing up started. The first time we took her to the ER and they even transfered us by ambulance to the children's hospital because they thought the had a intestinal blockage. End result they said she had a stomach flu. The poor girl threw up for 4 hours. The second time was only about 3 months later and I just knew what to expect. I keep tellin her its ok KK you have to get it out of your system. Since then the poor girl won't eat bread! So now here I am making very low money To support the 3 of us on $8.25 an hour is very difficult and I don't even get 32 hours a week anymore since new management. They lowered my food stamps from $408 to $149 because I work. HA HA HA! My husband don't work because he can't stay out the bathroom. I have to cut my insurance from my job because its too much $83 a month I need that! He needs an endoscopy done and no doc will do one unless they think its nessecary around here. I think he may have borderline diabetes also. Any suggestions? I don't get on here much. So if you could email me @ Peaches102984@yahoo.com. If you want to leave a thread I will try to be on here in the next week. I just need support and encourgement. Also some friendly advice.

thanks

casey

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I know how frusterating a diagnosis can be to get and how expensive the gluten free diet can be.I was recently diagnosed with celiac,but it took the doctors 5 years to find the celiac disease and by then i was severely dehydrated and anemic.I spent a week in the hospital with really severe diarhea.My doctor said it was IBS and told me to stop eating thigs like tomatoes,cucumbers,seeds,and nuts but it didnt help.So one day i threw a hissy fit on my doctor and demanded he find the problem before i died from what was attacking my body.Of course he didnt agree.But he went ahead and did the bloodtest and a biopsy of my intestinal tract both came back positive for celiac.This disease almost wrecked my life and almost costed me my home,because i missed so much work from being so sick and missing work.6 months later i am still struggling to ctch up on my bills.I try to eat things like plain hamburger,grilled chicken,mashpotatoes,and i love spaghetti made rice noodles,and macoroni and cheese made with them.I have had to do alot of research to find what i can eat safely.Feel free to write me at reginaarmes47@yahoo.com.I recently found out all pepsi and coke products ar gluten free,as well asV8 drinks.

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    • I get these crazy cravings for some things I can not eat anymore. Not only am I diagnosed with celiac but I also have a allergy to corn, olives, sesame, peanuts, and intolerance to yeast, soy, dairy, and a very low tolerance for carbs/sugars, Top it off with I can not digest meats or egg yolks, they just give me the burps and come up later.
        To deal with these I find myself turning to Republic of Teas (They have a great desert tea line up all certified gluten-free) and sweetening them with monk fruit extract, or stevia. And I find myself making Puddings bases that I use for shakes, dips, and ice-cream for meals. The puddings are normally a blend of cashew, or almond milk with a thickening agent like agar agar, pectin, or knoxx gelatin, blended with a sweetener like xylitol, swerve, stevia, monk fruit or a combination. And flavored with Lor Ann Oils (all gluten-free certified and you can find the kosher ones listed as such) super strength flavors or fountain syrups to match something I can not eat normally a combination of two flavors (Strawberry Cheesecake, Banana and Carmel, Cookies & Cream, etc) Then I add a fat that matches best, like almond butter, cashew butter, hemp butter, ground flax seed, coconut flour, chocolate, Pumpkin seed butter or a combination) These bases are normally blended up and consumed with 1-2 scoops of protein powder and eaten with steamed vegges as a side dip or loaded into a ice cream maker for a desert after my meals.      Also found myself making desert soups....like a pumpkin soup that taste like pumpkin pie. I am sure we all have our little quirks but this is one of mine for getting that sweet craving taken care of. Most premade items are off my list due to the allergies and it seems most companies use the oils, starches I am allergic to as non stick or thickening agents, Even the semi safe ones tend to put way to much sugars in them and I find myself only being able to nibble . There is also my little binge issues with almonds, pumpkin seeds, and, cocoa but that was explained to me as normal And on my most craving for peanuts I have found sancha inchi powder to work great, The Powder itself taste like the girl scout peanut butter cookie sandwich from my childhood, And is great mixed with a bit of almond milk into a butter or used in baking and smoothies. Before this I have been making Artisan blends of almond butter for years and even made a market selling them to pay  for my own consumption. Baked goods wise I have a bunch of recipes I make for others and sell at markets and this allows me to nibble on a sample to check it, as most contain a bean or gluten-free Harvest Oats/Flour in them and the carbs from that and the coconut sugars bother me. Still helps with cravings there, I only have 2 recipes that sell good and are safe for me to eat full servings of but are so expensive as they use almond and coconut flours, low sugars/xylitol and are paleo that I only can afford to make them once a month. Posting to hear about some odd and out there ways others deal with substitutions and cravings. Please do not bash mine as odd as they might be as they keep me from going crazy. (Yes I know DROP THE OATS, fact is I only get them when tasting stuff and they are gluten-free Harvest, the only ones I have never gotten glutend with)  
    • After suffering pretty much all year with one illness after another I've finally managed to get a diagnosis and it turns out to be celiac. After my doctors consistently failing to even consider the possibility it might be that (as opposed to "IBS" or "stress") I kept pushing for the Iga TTg test and it was off the charts with a score of >128... may as well fail it in style I guess. So here I am at the start of what feels like the end of my life as I know it. Been doing nothing but reading for the past week and frankly it's terrifying. Here's a few things that are going round in my head and I'd really appreciate your thoughts with. Apologies if it's a bit of an essay  Diagnosis I'm still furious at my doctors for not even entertaining the thought that celiac could be the root cause of all my ills. Given the blood test is so simple it feels almost negligent that they don't run this right at the start to rule it out. Instead I got subjected to poisons like Omeprazole which made me even more ill, whilst being told the physical symptoms were all in my head. Just as well I knew better and kept hitting up Google until my self-diagnosis was proved correct... to think these people get paid highly to be so incompetent makes my blood boil. Does feel good having outwitted the so-called professionals though. Seems 9 months is comparatively quick from symptoms to diagnosis compared to some others that have gone years with the problems so could be worse I guess. Food and diet I'm male vegetarian (non-negotiable) which makes this even harder as so many of my protein sources are now ruled out. Seems many with celiac were having trouble losing weight whereas I'm in the opposite situation. Already lost best part of a stone in the past few weeks and it's becoming noticeable now. The MyFitnessPal app reckons I need 2600 calories a day to maintain \ gain weight - no idea where that's going to come from. On top of that I read sites like Gluten Dude where even the Gluten Free foods are seen as poisons and going on extreme diets like Paleo \ SCD are the only real way forward. Again being veggie makes that practically impossible and if I'm unlucky enough to end up with the dairy issues as well I'm well and truly stuffed. Right now I'm trying the gluten-free Quorn products to see how I go, as well as more eggs etc. Porridge has been my go-to breakfast in the mornings for a while after I cut out bread whilst self-diagnosing but depending on where you read even that's a potential problem (currently using gluten-free porridge oats and seeing how it goes) Seems many gluten-free people have to go right back to basics and cook everything from scratch. That's a problem for me as I'm utterly hopeless on that front and time doesn't permit waiting hours just to prepare one meal. Seems nigh-on impossible to do day-in, day-out. Health Rightly or wrongly right now I see this diagnosis as a death sentence long-term. Looks like it brings other associated illnesses with it and this particular article really scares me: http://scdlifestyle.com/2012/03/the-gluten-free-lie-why-most-celiacs-are-slowly-dying/ I've only really had noticeable symptoms for the past year or so but wonder how long this has been going on for and what damage has already been done. All seems to have started from when I turned 30 (knew I was dreading that age for a reason) and right now I wonder how long I'm going to last before the really bad stuff starts. One of the other illnesses I'd considered as a possibility before getting diagnosed was Hashimoto's Thyroiditis; now it seems that's closely linked with Celiac so may not be out of the woods with that yet either. Just seems to be one big list of illness all triggered from the same point One positive change I've noticed thus far since cutting out gluten is that bloating seems to have gone down and bowel movements are better. Still getting headaches and muscle twitching, which could be as much a withdrawal symptom from gluten as anything else.  Some sites were suggesting stopping exercise whilst withdrawing but I can't face that as it's the only thing keeping me going at present. Again will keep going as-was and see what happens. Then to top it off it sounds like the next step is the biopsy - I'm scared of being put out for the procedure as a member of family went into hospital a few years back for something supposedly routine and never came back out. From what I've been told it's important to have done though as it shows just how broken the villi are so another thing to worry about in the meantime. Social life Seems like despite there being some gluten free options in certain restaurants (granted better now than years ago) I'm going to be hugely limited in food options. Either sitting on the side looking on or just plain not able to go out much anymore. Already had the first hitting-home moment watching colleagues eating pastries that were brought in while I just have to look on... then it dawns that this is never going to get better... urghhh Family life I'm really struggling to accept this lifelong illness and loss of health and it's taking a toll on the people around me at the moment. They won't be going gluten-free so will have to take my chances with the mixed kitchen environment; already gone with split toasters etc. so can't do much more than that. Dating Basically seems game over on that front, unlike many who are diagnosed with understanding partners \ spouses I'm still in the dating game, which is judgemental enough as it is without all the complications that the gluten issues bring. I'm reading even kissing someone with lipstick \ make-up is apparently a big no-no... once any date hears that they won't be coming back... forever alone status confirmed is how it looks right now. Overall feelings I still can't quite figure out if this illness was in me all along and just hasn't flared up enough to notice until now or whether the extreme stress I've been under for the past year or so has triggered it. If the second scenario is correct I can't stop thinking about the events that all led up to this almost year-long bout of ill health and life-changing diagnosis. Can celiac be brought on by stress alone or realistically was I always a ticking timebomb just waiting to be set off? For every person I see that's had a positive change after cutting out gluten (and getting by with reasonably achievable adjustments) there seems to be 10 others with horrible side-effects and long-term complications. Right now the future feels rather bleak - like all hope just been taken away. Help???
    • It sounds like you're doing great. That's amazing that your anxiety has decreased like that. You're obviously doing something really good for your health. With the other things I'm sure they will get better in time. After I gave up gluten I had a bad year but overall it got better. Things like anxiety and insomnia massively improved over time with being gluten free. However, going Paleo (which you are on your way to with the no dairy too) really helped my anxiety, as did running and self-taught acupressure. In particular I found processed gluten free foods were awful for my mood. I know you have to find your own way but I really want to encourage you to see how you feel without that if you haven't already. I also can't afford therapy but when I did have it, that helped too but just being well, gives you the chance to sort your own thoughts and feelings out even without a therapist. Good luck
    • Thank you so much guys. Reading that last response and those from forum members who seemed to be mind-bogglingly sensitive to gluten at times helps me feel like less of a freak  Perhaps worse than the symptoms themselves was my fear that I'm the only person on earth who has gone through this and that if it continues, I will end up with all of my friends and family washing their hands of me because it would look to them like I'm the only one with this and so I must be crazy. It's really good to hear that the sensitivity can go down too. I've been holding onto this idea through the tough times, reminding myself that I also had really bad hayfever for a few years, and asthma at a different time and they both got better.  It has been a whole month since I had a bad reaction to gluten. It has also been two weeks since I even had a small reaction and I'm feeling SO much better. I'm still going to take every precaution I can but this feels worlds away from how it was. At my most risk averse, I had a day on holiday where I only ate bananas and avocados because I could eat them without them having been touched by human hands, even my own! (This was straight after getting sicker and sicker and hunting down what it was that made me ill. I found the refill bottles of soap in the house where I was staying and read that they had wheat in them - not an airborne reaction I imagine but when I washed my hands to prepare food it was probably contaminating my food. Plus because I didn't speak the language, I couldn't be sure the new soap I bought was gluten free.) Now, I am still avoiding environments with lots of gluten and staying clear of grains, but I have reintroduced rice using the food challenge method as directed by my dietician (since I understand that rice is, according to Dr Fasano, the lowest risk of gluten contamination of all the grains) and I am building my weight back up. My Paleo+Fasano diet has been assessed by a registered dietician to include every nutrient and micronutrient that I need so I guess having a really good diet is helping too. My husband has been able to see also that the last time he cooked gluten in the house was the last time I got ill. So it is reassuring for him to see that the sacrifice he is making is making such a difference to me. I also took the advice about new cooking utensils - thanks! I have my fingers crossed for me. I want this better health to continue but right now I'm happy to know that there is a break in the clouds and to know that I can feel like me again. A lot of the steps I have taken to avoid gluten would be seen by some as over the top but I can say that for me, when I introduced these steps, that's when I stopped getting reactions and it's all worth it. Good luck to everyone, sensitive or not, who gets into a bad place with managing their reactions. Hang on in there!        
    • Hello all  I have been living gluten free now for 6 months, as directed by my family doctor after a 6 week elimination diet revealed that I may be celiac or gluten sensitive. I was tested by blood work,  which showed nothing, and am awaiting a specialist to get a biopsy done. I am no where close to getting into see her as it is cased as a non emergency. I have been constantly having bowel problems, rashes all over my body, low iron, weight fluctuations, no energy, depression  and anxiety now for 6 years. Have been a huge nuisance(imo) to my doctor requiring constant antibiotics for this,  creams for this "mystery rash" and either laxatives for constipation that would sometimes go on for over a week to diarrhea that would keep my home- no in between . It hasn't been easy, especially whenever doctors are so quick to blame all symptoms as mental illness. Even though I have continuously told them I feel my issues are something simple...  not a mental illness. Anyways long story short, after going gluten free I have had somewhat Nnormal bowel functions, less rashes around my stomach, been able to cut back drastically on my depression medications and anxiety meds, and energy has taken a huge improvement  which all is great! But .... I am constantly HUngry have gained 20 lbs and can no longer fit into most of my clothes. This is really bothering me because I am afraid I am approaching a weight problem.  At only 5'5" weighing 165lbs is large to begin with. Especially whenever I have two children and have only EVER weighed this much while being pregnant with them. I am 26 years old and just tired of not being myself. I am physically healthy and just would like my body to act it. Any help would be greatly appreciated, as I said I am only 6 months into my journey and have definitely re exposed myself to gluten (accidently) many times in between. Much love. 
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